Guest guest Posted June 20, 2005 Report Share Posted June 20, 2005 Hello Maureen: If I am not mistaken, you and I had our surgery around the same time, March 16, 2005. I am SO sorry that you are now having to face another disease. As if this one was not enough! I hope the medications help you. I will keep you in my prayers. Kathie in Pittsburgh --- In achalasia , " Maureen " <mo56_2000@y...> After the 3 > tests usually done, I had a hellelr's myotomy (March 21), but the dr > could not do the toupet wrap due to the condition of my e. I've been doing pretty good except for eating very much meat or bread. I was sent to a > rheumotologist who told me I have scleroderma. Mo (Mauren) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2005 Report Share Posted June 21, 2005 Mo -- so sorry to hear of this latest diagnosis, but glad that at least you have the "limited" type. I too experience instances of Raynaud's. I'm beginning to see more and more of a link between my achalasia and autoimmune issues -- my Raynaud's, allergies, and dysphagia all started in my early 20s. It seems as if more and more autoimmune disorders are cropping up everywhere, and I hope and pray that researchers can soon discover how to "unflip" the autoimmune switch in our bodies. Please keep us posted on how you are doing. Debbi in Michigan Greetings Friends, I posted a few times before & after my surgery,but have been "lurking" for a few months. Notice quite a few new members, so will give a short recap. About 13 yrs ago, I had pneumatic dilation because of difficult swallowing. A perforation occured at that time & I was hosp. for a wk. I did get relief forabout 3 yrs & then ended up with even more difficulty. After the 3tests usually done, I had a hellelr's myotomy (March 21), but the drcould not do the toupet wrap due to the condition of my e. I'vebeen doing pretty good except for eating very much meat or bread. I noticed whiteness of my fingers & toes this past winter & justwent to the dr for this cond. & was diagnosed with raynaud's. After bloodwork confirmed a positive ana I was sent to a rheumotologist who told me I have scleroderma. He based this on the A, raynauds, red spots on my nose, skin starting to toughen on my hands, & the blood test. He said I have had scleroderma ever sinceI started having trouble swallowing - 13 yrs ago! The positive side is that I have "limited" scleroderma & should notaffect my heart, lung, or kidneys. I was put on a blood pressure med to dilate blood vessels. This info is not meant to scare anyone into thinnking they have scleroderma if they have A. However, I think it might be helpful if other symptoms appear. Thinking of all of you & keeping all of you in my prayers. Mo (Mauren) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 > I have scleroderma. Maureen: So sorry to hear of this diagnosis, but glad that it appears to be self-limiting. It is a worry for many of us and your information about symptoms is helpful/ Peg Quote Link to comment Share on other sites More sharing options...
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