- thyroid and RP

[Guest guest]

Hi !

Glad that you got your thyroid discovered... fortunately it's one of

the few cancers with a VERY high cure rate!

As for the RP, there are several groups here at and other

places that deal with it. You might want to check out:

http://maelstrom.stjohns.edu/archives/rplist.html

Retinitis_Pigmentosa_Support/

retinitispigmentosa/

RP-Friends/

LivingWithRP/

I hope that one of those is helpful to you!

Debbi in Michigan

> Hello Pepto Debbie in Michigan!

>

> Well besides having A....I have had a lump on my neck for years, but

> doctored for depression for 10 years before my thyroid was

diagnosed. I

> chose surgery for the lump and not a biopsy because I felt if it

didn't

> belong there, then take it out!!! Well it's a very good thing they

did. I

> had a hard time coming out of anestesia. The surgery was at 9:30

in the

> morning and I didn't come out of anestesia until 9:00pm that night

and in

> total shock. My husband was on the phone with his sister and I

hear him

> say, " Yes, it was cancer and they think they got it all! " They took

> everything!!! I was so surprised that my eyes whipped open and I

said,

> " Hang up that phone! " Well that's how I found out that I had a bad

thyroid.

> So in being treated for depression for that many years, they

couldn't

> completely diagnosis my depression. They said it might be post-

partum, or

> clinical---they couldn't tell. Well it might not have been either

one.

> However, I am still on Wellbutrin and am afraid to go off of it for

fear of

> getting back in that dreaded hole!!! Not a good place to be.

Throid does

> control a whole lot of things like your hair, nails, skin, energy.

So now I

> live on Synthroid and get TSH tests every six months. I am now

cancer free.

> It has been 5 years and all is well. I had dilatation done a year

and a

> half ago and knock on wood-----My spasms that I had at least 15

times a week

> have almost completelly left. I haven't had one in 3 months until

last

> week, but I just threw-up and a little pain. I praise Dr. Vaezi at

the

> Cleveland Clinic. So to make a long story short, between

depression,

> thyroid, achalasia and an eye disease called retinitis pigmentosa

and it is

> incurable, I am doing well and just maintain everyday. If anyone

knows

> about RP write to me and let me know what you know. I do know that

you go

> blind or at least tunnel vision between the ages of 40 and 80. I

am now 45

> and have a brother who is 48. We have both been diagnosed. I wish

I could

> set up a website for RP like this one. Well thanks for the CHAT

site

> information also. Have a great day everyone!!!

>

> in PA

>