Re: my daughter just had surgery

[Guest guest]

wow sounds like a little trooper, well pleased she is doing well

sue

selena Kuch <skuch@...> wrote:

Hi AllJust an fyi-I was reading some of the posts and wanted to share thatmy 8 yr old was diagnosed w/achalasia last monday and had the heller myotomy this past thursday. They did it laproscopically(sp?) and sofar so good. She will be able to start soft solids this monday-she is pretty sore but has been a trooper throughout the whole ordeal- her symptoms started @10mos ago and progressively got worse-this April being the tip of the iceburg w/the nocturnal coughing and possibly aspiration on the junk that she was regurgitating at night- it was coming through her nose as well....she has lost some weight naturally-but hopefully the worst is behind her now. We are looking forward to her recovery and her quality of life improving....anyone have any questions please feel free to ask and we can give you as much info as we

know...much luck to those dealing with this disorder-go for the myotomy if your insurance allows it-

[Guest guest]

Hello Selena:

My goodness ... diagnosed on Monday and surgery on Thursday! That is

remarkable. I am so glad that she is doing so well. My heart aches

for the children who have this disease.

Where are you located and who was your surgeon.

Kathie in Pitsburgh

> Hi All

> Just an fyi-I was reading some of the posts and wanted to share that

> my

> 8 yr old was diagnosed w/achalasia last monday and had the heller

> myotomy this past thursday. They did it laproscopically(sp?) and so

> far

> so good. She will be able to start soft solids this monday-she is

> pretty sore but has been a trooper throughout the whole ordeal- her

> symptoms started @10mos ago and progressively got worse-this April

> being the tip of the iceburg w/the nocturnal coughing and possibly

> aspiration on the junk that she was regurgitating at night- it was

> coming through her nose as well....she has lost some weight naturally-

> but hopefully the worst is behind her now. We are looking forward to

> her recovery and her quality of life improving....anyone have any

> questions please feel free to ask and we can give you as much info as

> we know...much luck to those dealing with this disorder-go for the

> myotomy if your insurance allows it-

[Guest guest]

Hi Selina,

Welcome to the group ! It is great that your daughter was diagnosed and then

scheduled for surgery so soon. The waiting for surgery can be so awful.Good

wishes for the day we will be thinking of you! Do tell us about yourselves,

where you are from and do keep us posted about your daughter's progress.

Joan

my daughter just had surgery

> Hi All

> Just an fyi-I was reading some of the posts and wanted to share that

> my

> 8 yr old was diagnosed w/achalasia last monday and had the heller

> myotomy this past thursday. They did it laproscopically(sp?) and so

> far

> so good. She will be able to start soft solids this monday-she is

> pretty sore but has been a trooper throughout the whole ordeal- her

> symptoms started @10mos ago and progressively got worse-this April

> being the tip of the iceburg w/the nocturnal coughing and possibly

> aspiration on the junk that she was regurgitating at night- it was

> coming through her nose as well....she has lost some weight naturally-

> but hopefully the worst is behind her now. We are looking forward to

> her recovery and her quality of life improving....anyone have any

> questions please feel free to ask and we can give you as much info as

> we know...much luck to those dealing with this disorder-go for the

> myotomy if your insurance allows it-

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Kathie

we live in the western burbs of Chicago-our pediatric

gastroenterologist is Dr. Rajeev Nagpal who diagnosed everything and

he

set up the surgery with Dr. Janet Meller w/Midwest Pediactric

Surgical

Assoc and she was assisted by Dr.Meslah who is the Chair of the

Laproscopic dept at Christ Hospital in Oak Lawn, IL. I guess my child

was the first time they did the myotomy laproscopically(on a child)

in

that hospital. Thank God they didn't have to make the big ole nasty

incision.

yea, this disease sucks, would like to know why, what , where and how

it all started but I don't think we'll find that out anytime soon,

huh?

I am thankful that she got in so fast- I think Dr. Nagpal was very

concerned w/aspirating at night-after her monometry they were ready

to

admit her that night and we kind of freaked...everything was

happening

so fast!?! it all worked out in the end and she has started on solids

today...cross our fingers everything seems to be ok so far!

I really feel for y'all who are living with this disease/disorder...I

can relate having to know where the bathrooms are anytime we went

some

where to eat or at parties. I had to pick up my daughter at school

because she didn't make it to the bathroom and they thought she had

the

flu-she upchucked in the lunchroom in front of all her friends and

classmates-which as we all remember-made her want to die with

embarrassment...third grade is brutal...and in the end there she

wasn't

getting any quality sleep....it all just sucked and I was just an

observer I can't imagine living it-so my thoughts are with you all. I

know this procedure isn't a cure per se but if it will help her

quality

of life I am all for it...I have to put my kiddies to bed now so I

have

to run-take care all

> Hello Selena:

> My goodness ... diagnosed on Monday and surgery on Thursday!

That

is

> remarkable. I am so glad that she is doing so well. My heart

aches

> for the children who have this disease.

> Where are you located and who was your surgeon.

> Kathie in Pitsburgh

>

[Guest guest]

HI

good to hear your daughter was diagnosed and treated

so quickly - hope everything continues to go well.

Prayers with you. As a mother of an older child with

this challenging condition.

--- selena Kuch <skuch@...> wrote:

> Hi All

> Just an fyi-I was reading some of the posts and

> wanted to share that

> my

> 8 yr old was diagnosed w/achalasia last monday and

> had the heller

> myotomy this past thursday. They did it

> laproscopically(sp?) and so

> far

> so good. She will be able to start soft solids this

> monday-she is

> pretty sore but has been a trooper throughout the

> whole ordeal- her

> symptoms started @10mos ago and progressively got

> worse-this April

> being the tip of the iceburg w/the nocturnal

> coughing and possibly

> aspiration on the junk that she was regurgitating at

> night- it was

> coming through her nose as well....she has lost some

> weight naturally-

> but hopefully the worst is behind her now. We are

> looking forward to

> her recovery and her quality of life

> improving....anyone have any

> questions please feel free to ask and we can give

> you as much info as

> we know...much luck to those dealing with this

> disorder-go for the

> myotomy if your insurance allows it-

>

>

>

>

>

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[Guest guest]

Thanks - how old is your kid and how long have they had it?

> HI

> good to hear your daughter was diagnosed and treated

> so quickly - hope everything continues to go well.

> Prayers with you. As a mother of an older child with

> this challenging condition.

>

[Guest guest]

, this is a beautiful ending to a sad beginning. Every

time I hear stories like this I am reminded how lucky I was

to have been diagnosed so soon. Thanks for sharing this story and big hugs to you both.

Maggie

Alabama

[Guest guest]

Well Selena

she is now 25 years old. She started at 19 - intermittently then it progressed until she could not eat or drink anything over 4 years. Unfortunately she was misdiagnosed by her doctors with annorexia and lost her hair, 4 stone and periods - i really did prepare for her demise - terrible until I insisted that she saw a gastro (by this time Hannah did not have the energy to fight with the doctors) - he knew what it was straight away.

The happy ending is she had her myotomy in 2003 got married in 2004 and now has a beautiful baby girl of 2 weeks. She had no trouble whatsover during the pregnancy with her eating, she did ask about giving birth (the pushing) if that would do any damage - but her gastro said not; and I was there at the delivery - afterwards I asked her how her throat was and her reply was - I never even thought about it.

selena Kuch <skuch@...> wrote:

Thanks - how old is your kid and how long have they had it?> HI> good to hear your daughter was diagnosed and treated> so quickly - hope everything continues to go well.> Prayers with you. As a mother of an older child with> this challenging condition.> __________________________________________________

[Guest guest]

- that is awesome! glad to hear she is ok now

> Well Selena

> she is now 25 years old. She started at 19 - intermittently then

it progressed until she could not eat or drink anything over 4

years. Unfortunately she was misdiagnosed by her doctors with

annorexia and lost her hair, 4 stone and periods - i really did

prepare for her demise - terrible until I insisted that she saw a

gastro (by this time Hannah did not have the energy to fight with the

doctors) - he knew what it was straight away.

> The happy ending is she had her myotomy in 2003 got married in 2004

and now has a beautiful baby girl of 2 weeks. She had no trouble

whatsover during the pregnancy with her eating, she did ask about

giving birth (the pushing) if that would do any damage - but her

gastro said not; and I was there at the delivery - afterwards I asked

her how her throat was and her reply was - I never even thought about

it.

>

>