Re: Mixed messages: Michigan

July 29, 2001

HI Tara,

I've been there and I thought I would share with you want has been

working with us. Jadon my 2yr old has some autistic like symptoms and

after going through alot of eval. dr, and theripst we found out that

he has Sensory integration proplems and when we address these he got

hte help he needed and we needed and he is starting to talk probally

has 35 words and is starting to communicate. If I were you I'd have

her evaluated by an Occupational theripst with certicfication in

Sensory integration. and SI is very important.

Now Jadon symptoms have dissappeared and he's doing great we still

have to do his sensory activities. and music therapy but talking as

well as the brushing. all powerful tools. Soooooooo... if the dr.

can't figure it out I'd try the OTheripst. If you need to email me

I'd be glad to share more. Also he goes to Speech twice a week.

Becky

> I am hoping this is the right direction to reach Dr. Agin. It is

my

> understanding from what I am reading on this site, that Dr. Agin's

> expertise is in apraxia and autism. I am in Michigan, and mom to a

> four and a half year old little girl. Kayla has no language at

all.

> She has undergone umptene tests that all come back normal.

July 29, 2001

Thanks Becky. So encouraging to hear parents that have been in similar spots.

Kayla was evaluated a couple of years ago by an OT, but once again our wonderful

insurance hear in Michigan overlooks these kids. She is getting some OT through

school, as well as speech. I am researching the best way to attack the insurance

coverage for speech once I can find someone kind of local to us. I am starting

a new job in about two weeks, so we will be having a change of insurance, but

probably won't make too much difference, still same carrier. Thanks for your

help!

Tara

HI Tara,

I've been there and I thought I would share with you want has been

working with us. Jadon my 2yr old has some autistic like symptoms and

after going through alot of eval. dr, and theripst we found out that

he has Sensory integration proplems and when we address these he got

hte help he needed and we needed and he is starting to talk probally

has 35 words and is starting to communicate. If I were you I'd have

her evaluated by an Occupational theripst with certicfication in

Sensory integration. and SI is very important.

July 29, 2001

Hi Tara. I, too, live in Michigan in northern Oakland County. Last week I

sent a message to Dr. Agin asking her if she knew of any doctors in Michigan

that are well versed in apraxia. I am waiting for her reply. My is

2.8 years and is apraxic, both oral and verbal. He has no " diagnosis " since

all testing has come back " normal. " He is hypotonic with possibly mild

sensory issues. We have been going to physical therapy since age 22 months,

some OT since then, and speech for the last 6 months. He is also in the

school system's early intervention program (not during the summer). It's

good for socializing but that's it. They are getting a new SLP this year so

perhaps it will be better. Same PT though (not impressed). I will let you

know when I hear back from Dr. Agin. Where in MI do you live?

Mom to (32 months; developmental delays, hypotonia, possible apraxia)

and (13 months and a bundle of energy)

July 29, 2001

Hi Tara, again. I forgot to mention that finally grew out of

his vomiting stage at around 2 years. He would shovel things into his mouth

and then trigger the gagging reflux. I believe that this is due to the

hypotonia of his mouth.

Additionally, it might be a long shot, but I am checking into it as

well...Childrens Special Healthcare Services might regard apraxia as a

medical/neurological condition that would qualify your daughter for covered

ST.

Mom to (32 months; developmental delays, hypotonia, possible apraxia)

and (13 months and a bundle of energy)

July 30, 2001

Hi - thanks for writing. Soooo nice to talk to parents with similar

issues nearby. I agree with the Early Intervention. We moved in 1999 from

Dearborn Heights because of the ineptness of the Early services we were getting.

I decided if I was going to fight, I would do it in a community I wanted to be

in ( we had to live there because of my husband's job). Anyhow, we got a waiver

on the residency requirement and are now in Brighton. Kayla is going to be five

in October. All of her testing too, has been " normal " . She is scheduled for a

MRS on Thursday. It is suppose to be a more extensive MRI, that records

chemical and physiological information about the tissue in the brain, rather

than just photographing it. Kayla is in an autistic impaired program, but it

has been puzzling for everybody since she doesn't really fit the diagnosis. She

does fit everything I have read about Apraxia so far, but I am still learning.

In the meantime, I will take any diagnosis I can get in order to get her

services. What are s behaviors? Would love to talk to you more- what city

are you in?