Guest guest Posted February 10, 2005 Report Share Posted February 10, 2005 I never though there was so many that had the same issues as I do. After reading the posts every day my heart goes out to everyone. I am also amazed that there are still doctors out there that have no idea what this disease is. Even after seeing a patient for the first time you would figure that they would research this disease. I know when I found out I went looking for as much infor as I could get my hands on, and I am not even a doctor.... If I had a doctor that did not know anything on a disease that I was diagnosed with I would run hard and fast from them.... I hope everyone is doing well and is finding all the proper help they need. in suffolk Quote Link to comment Share on other sites More sharing options...
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