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Re: Digest Number 235

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As to the subject of teeth...I seem to live at the dentist for the past 3

years. It is a constant cleaning, filling new cavitys , had a few root

cannals , two caps.....now my dentist has made a mold and is going to have me

do weekly floride treatment at home. The gel he gave me to use at PM didn't

do it. It is just another one of those lovely side effects from liver

disease..and the same thing which makes us loose bone mass........ sigh.

Joanne

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  • 4 months later...

Hi All-

Just a note about the fatigue issue. We all react differently, but I have

found that the more active I am the better my days go. Mind you it is a real

struggle some times, but it really does pay off. I think part of it is that

it forces me to forget about my " condition " for a while. I am on combo plus

a handful of alternatives (including milk thistle) and in my 4th week. That

may also be part of it. I hear that some folks don't get hit by the sides

until a bit later on. But, I've been pretty amazed at my energy level.

Sometimes I feel better than I did before I started treatment.

Anyway, there is an herbal product out there called schizandra that is

supposed to help with HCV and fatigue. I do not claim to be a doc or

anything like that so don't run right out and buy this until you've spoken

with your doctors.

The best of luck to all and have a healthy new year.

Kati

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Thanks for sharing your info Kati. I will certainly

check out the schizandra.

--- Rockenb7a@... wrote:

> Hi All-

>

> Just a note about the fatigue issue. We all react

> differently, but I have

> found that the more active I am the better my days

> go. Mind you it is a real

> struggle some times, but it really does pay off. I

> think part of it is that

> it forces me to forget about my " condition " for a

> while. I am on combo plus

> a handful of alternatives (including milk thistle)

> and in my 4th week. That

> may also be part of it. I hear that some folks

> don't get hit by the sides

> until a bit later on. But, I've been pretty amazed

> at my energy level.

> Sometimes I feel better than I did before I started

> treatment.

>

> Anyway, there is an herbal product out there called

> schizandra that is

> supposed to help with HCV and fatigue. I do not

> claim to be a doc or

> anything like that so don't run right out and buy

> this until you've spoken

> with your doctors.

>

> The best of luck to all and have a healthy new year.

> Kati

>

<HR>

<html>

>

__________________________________________________

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  • 2 weeks later...

In a message dated 01/11/2000 7:43:02 AM Central Standard Time,

candidiasisonelist writes:

> Renate M " <lesle@...>

> Subject: hyperthyroid

Hi I am at this time having trouble with thyroid. I have already had thyroid

surgery, ten years ago. They have found numerous (cysts,tumor,etc):( I have

to go and have a needle stuck straight into my thyroid, I have had this done

once before. Only it took three tries before they were able to get the

fluids they needed. I am not happy about this but I am hoping it will make me

feel better when it's all over.(surgery) I have not been diagnosed with

candidacies, I can't get any doctor to take me serious. I have a rash that

had scarred me from head to toe. I stay broke out. I am Post Traumatic Stress

Disorder so that adds to it all. I have had tumors removed from my liver,

female organs,wrists.also. The dr. told me a long time ago that I had the

recurring type of tumors (every 5 yrs. are so) So far NONE have been cancer,

so I am so blessed. So what I have scars and road map body, I am here and I

have the privilege to raise my two great children am grateful to have a place

where others understand. This list helps me a lot. People who are never sick

just don't understand. But quitting is not what I do. I rely on the power of

God and I want to finish raising some great children. He trusted me with that

job and I plan to always do my very best.:)

Rita

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In a message dated 01/11/2000 7:43:02 AM Central Standard Time,

candidiasisonelist writes:

> Lamisil

Nascar I wanted to let you know That Lamisil is one of the best things I

have used on my skin.If you use it daily you will see results.:)

Rita P>S> I have tried

Lots of different creams. Prescribed and over the counter, all in 10 years of

skin problems. I was happy to find it. Try to reduce your stress also. Hope

this helps.

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Renate have you thought about seeing a naturopathic

doctor? Just wondering cause they (doctors) kept

telling my parents that there was nothing wrong with

them. My mother my freshman year of high school had

candasis so bad that she was on crutches because she

could barely walk on her own, the doctor that she was

seeing at the time misdiagnosed her with rheumotid

arthritis, which she didn't have. My father was on

multiple different inhalers to try and control what

the doctor told him was reoccuring bacterial/viral

pneumonia, when in fact what he actually had was

chemical pneumonia that was brought on by the

candidia. My parents finally got fed up with being

told that nothing was wrong with them by the doctor so

they finally went to a naturopath and were told that

they had candidia. So, now they don't go to a doctor

anymore because they wouldn't listen when they tried

telling the doctor that something was wrong with them.

Personally I don't blame them especially after having

gone and been misdiagnosed with a panic/anxiety attack

when in fact what I had and even told the nurse

practioner that I had pneumonia she just ignored me.

She didn't even want to give me anything to help me be

able to breathe either. She finally gave me a

breathing treatment, which helped, and a prescription

for abueterol. The next day I was feeling even worse

still, so my parents took me to their naturopath who

actually listened to me and told me in fact that I was

right that I had pneumonia again, and gave me the

proper treatment that I needed so I could get over it

once and for all.

Mona

--- SenoritaRita1@... wrote:

> In a message dated 01/11/2000 7:43:02 AM Central

> Standard Time,

> candidiasisonelist writes:

>

> > Renate M " <lesle@...>

> > Subject: hyperthyroid

> Hi I am at this time having trouble with thyroid. I

> have already had thyroid

> surgery, ten years ago. They have found numerous

> (cysts,tumor,etc):( I have

> to go and have a needle stuck straight into my

> thyroid, I have had this done

> once before. Only it took three tries before they

> were able to get the

> fluids they needed. I am not happy about this but I

> am hoping it will make me

> feel better when it's all over.(surgery) I have not

> been diagnosed with

> candidacies, I can't get any doctor to take me

> serious. I have a rash that

> had scarred me from head to toe. I stay broke out. I

> am Post Traumatic Stress

> Disorder so that adds to it all. I have had tumors

> removed from my liver,

> female organs,wrists.also. The dr. told me a long

> time ago that I had the

> recurring type of tumors (every 5 yrs. are so) So

> far NONE have been cancer,

> so I am so blessed. So what I have scars and road

> map body, I am here and I

> have the privilege to raise my two great children am

> grateful to have a place

> where others understand. This list helps me a lot.

> People who are never sick

> just don't understand. But quitting is not what I

> do. I rely on the power of

> God and I want to finish raising some great

> children. He trusted me with that

> job and I plan to always do my very best.:)

>

> Rita

>

__________________________________________________

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Lamisil is only good if the skin problem that you have is a fungus. As

well you MUST use it consecutively for a month to see any results. I

have a tube of it here and for me it did nothing. This summer I found

this wierd patch on my left leg. One doctor said it was nothing.. could

not even see it. Another said it was a cyst under the skin, another said

it was a parrasite and yet another said it was a fungus and I needed

Lamisil. Well, It is still there.

Made the dermetologist take a sampling of it. This is done by scraping

the skin. Dumb specialist had to be asked to do this simple procedure..

Shocking. Just dont want anything that can be passed on to the kids.

Anyhow.. it came back as nothing. So the skin pigment change stays and

the lamisil stays in the cupboard.

It is a great product when used for the right condition. It is very

potent. BUT remember.. no results are visible they say for a month.

:)

a

SenoritaRita1@... wrote:

>

> From: SenoritaRita1@...

>

> In a message dated 01/11/2000 7:43:02 AM Central Standard Time,

> candidiasisonelist writes:

>

> > Lamisil

> Nascar I wanted to let you know That Lamisil is one of the best

> things I

> have used on my skin.If you use it daily you will see

> results.:)

> Rita P>S> I have

> tried

> Lots of different creams. Prescribed and over the counter, all in 10

> years of

> skin problems. I was happy to find it. Try to reduce your stress also.

> Hope

> this helps.

> ----------------------------------------------------------------------

> [

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  • 1 month later...
Guest guest

Hi Sheryl and any other insurance wranglers, I did not have success with my

former company. The harder you fight the more likely you can get it (squeaky

wheel theory). My present ins co said they only cover speech therapy in the

case of an accident where speech is affected and needs to come back. They do

cover physical therapy. So Lori said she can make a case for oral motor

therapy being like physical /occupational therapy.

Yes her rates are high but she is a wonder. See what you can work out. Try

to get to the head of the ins department, speak to the doctors rather than

just the phone answerers.

love to all from Debbi and Logan 5 1/2 Eli (DS) and Milo, 3 1/2

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Guest guest

In a message dated 3/6/00 5:21:15 AM Eastern Standard Time,

Multiples-DSonelist writes:

<< a) biology-it isn't

sooooo unusual to have twins one w/Ds. >>

That is a statistic that I've been trying to find for years! Anyone know the

odds?

Thanks, just curious, Debbi

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Guest guest

Hi and Thierry, Welcome to the list and CONGRATULATIONS on your little

bundles! I'm Debbi, and I have a son named Logan who is 5 1/2 and twins Milo

and Eli who are 3 1/2. Eli has DS. He is a great kid (so are my others!)!

You've come to the right place for advice, support, info, laughter, tears

etc. Again, welcome.

Debbi

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  • 9 months later...

In a message dated 01/01/2001 2:16:21 AM Pacific Standard Time,

egroups writes:

<<

Ozonated water is not the same as H2O2; it loses its special 'ozonated

water' status and becomes the same within minutes of making it.

>>

Duncan...what is the difference between ozanated water and oxygenated water?

I'm feeling confused.

Thanks.....Kiasi

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  • 5 months later...
Guest guest

Hannah,I just read your letter and always wondered if anyone in our situations home schooled?In my situation,I am a stay at home mom and to home school would be such a determent to my son.He has thrived so much in a school situation and has learned so much that I don't want to rock the boat.I am lucky for him this is the best situation,but if it wasn't we couldn't afford private therapy,which our insurance only pays for 20 visits in a six month period,he has 6 sessions of speech and OT a week. I would never send him to a private school because they cannot handle any special needs kids. I guess I would have to home school too. Good luck.I find everyone's situation very interesting and am so glad they have found what works for them. Gretchen mother of 6,apraxia and sensory intergretions dysfunction

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  • 2 months later...

Sally, my son was vaccinated at 2, 4, 6, and 12 months. He was born in

1993.

> But I'm a bit confused. I have my ds shots down at 2, 4, 6, and 16

> mo. My dd (who is not getting vacc.) goes for her well check ups and

> to (not) get shots at 3, 6, and 9 mo. I think this was the schedule

> for my other ds too. Did they change this after 1995, or were first

> ds shots just all messed up? Thanks to anyone who knows!

>

> God Bless,

>

> Sally

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  • 1 year later...

In a message dated 12/18/2002 6:42:25 AM Eastern Standard Time,

writes:

> My birthday is December 19. I will be 55 Thursday --- never thought it

> could happen!

>

HAPPY BIRTHDAY LADY! I Hope it's a great day! Love ya, Vickie 0:)

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In a message dated 12/18/2002 6:42:25 AM Eastern Standard Time,

writes:

>

> I thought I would ask that same question here. If you knew you were

> >going to die in a week, what would you do with the time left? I'm

> >serious, what would you do?

>

>

A good question.....I'd spend it with my " grandbaby " boy, my little neices

and nephews and Hunny Bob somewhere in the Smokey Mts. My favorite ppl and

fav. place. That would be all I needed. My b-day is 07/03/1953 and I shout

the year loud and proud! Love to all, Vickie 0:)

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  • 1 year later...

I had a lot of nerve pain in both legs. It would vary from leg to leg and

didn't seem to make much sense. I would wake up a night with cramps in my

calf muscles. My MRI showed a bulging disc that eventually ruptured. I

also had a degenerate disc at L5-S1. This is the same disc that ruptured.

I went through all of the epidural pain shots, etc. I got tired of all the

temporary relief suggestions. You get your hopes up that this procedure

might actually help and they hardly ever do. My doctor said surgery was the

only way to permanently remove the pain and he was right.

Turns out I had a large bone spur (the size of my doctor's thumb) was also

pinching my nerve that did not show on the MRI. He had to chisel it off my

back. The recovery was long, but I have to say I am much better today. I

do have days where I feel a little sciatic pain, but nothing compared to

before surgery. I am glad that I went through with the surgery (fusion and

laminectomy). I was 39 when I had it done.

Tish

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I had a lot of nerve pain in both legs. It would vary from leg to leg and

didn't seem to make much sense. I would wake up a night with cramps in my

calf muscles. My MRI showed a bulging disc that eventually ruptured. I

also had a degenerate disc at L5-S1. This is the same disc that ruptured.

I went through all of the epidural pain shots, etc. I got tired of all the

temporary relief suggestions. You get your hopes up that this procedure

might actually help and they hardly ever do. My doctor said surgery was the

only way to permanently remove the pain and he was right.

Turns out I had a large bone spur (the size of my doctor's thumb) was also

pinching my nerve that did not show on the MRI. He had to chisel it off my

back. The recovery was long, but I have to say I am much better today. I

do have days where I feel a little sciatic pain, but nothing compared to

before surgery. I am glad that I went through with the surgery (fusion and

laminectomy). I was 39 when I had it done.

Tish

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  • 8 months later...
Guest guest

Interesting, this pharmacy is just a couple miles from

where I live. Maybe I'll drop by and talk them more

about the absorbtion rates of this stuff. I hadn't

known it was available as a gel.

Jim

> http://www.leesilsby.com/autism.html

>

> Stabilized Reduced Glutathione Transdermal Gel™

> Lee Silsby's Stabilized Reduced Glutathione

Transdermal Gel™ has

been

> proven to maintain its stability.

>

> The stability of a product refers to the ability of

an active

> ingredient to retain its full potency when

incorporated into a

dosage

> form such as a capsule, liquid, cream, or gel. Many

active

ingredients

> decompose – either gradually or rapidly – when added

to an

improperly

> formulated dosage form.

>

> Several years of research and development have led

to the creation

of a

> formulation that we feel is the very best system for

delivering

reduced

> glutathione into the body. This was a particularly

difficult task

> because of the poor stability of glutathione when

added to a

liquid,

> cream, or gel.

>

> In order to insure that our glutathione formulation

does, in fact,

> remain stable, we had it tested for stability by an

independent

> laboratory. At the same time, another glutathione

formulation

commonly

> used by other compounding pharmacies was also tested

for

stability. The

> results of the testing showed that the glutathione

in our

transdermal

> gel formulation remained virtually 100% stable,

while the

glutathione

> in the standard formulation underwent rapid

decomposition. In

fact, as

> illustrated by the table below, the standard

formulation lost 85%

of

> its stability within three months.

>

> Priding ourselves in our constant innovation in

formulation

> development, we have recently made additional

adjustments to our

> glutathione gel. These adjustments reflect our most

current

> understanding about how best to achieve the highest

skin

absorption of

> topically applied medications. Our knowledge in this

area has been

> developed through working with doctors and their

patients on a

clinical

> basis, as well as hundreds of hours of research into

and

development of

> transdermal dosage forms.

>

> How stable is your glutathione?

> Glutathione Graph

> ====

>

> Sue ,

> Upstate New York

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