Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Happy New Year to all of you! I joined this group a couple days before Christmas after learning that I probably have achalasia in early stages. I have been exploring the site and it is a great support and source of information. Thanks to all of you for sharing your experiences. It feels very scarey to be thinking about how this disorder will affect my life in the longer term. I have had swallowing difficulties for about a year and a half -- my symptoms got really bad between Nov 03 and May 04 (lost 40 pounds and felt like I was starving to death) and have been more stable and manageable since going on a calcium channel blocker. I am proceeding to work on getting referred to a specialty center in California and probably face another manometry (the first doctor didn't get the essential reading on the LES pressure). My barium swallow test shows my esophagus is only slightly enlarged at this point. A couple of questions I didn't see the answer to or reference to that I am wondering about: 1. Does anyone else have a history of Irritable Bowel Syndrome (a motility disorder of a different sort) and how does this disorder (especially flare ups) affect problems with the esophagus? 2. How has this disorder -- with nighttime regurg and coughing -- impacted the quality of sleep and how does that impact your life? Any suggestions for managing energy? 3. Did anyone else's onset start with what appeared to be the WORST heartburn ever -- such that it felt like my whole esophagus was injured? That happened to me several times -- very scarey and then swallowing difficulties slowly started developing over the next six months. 4. Do the women who have this disorder notice symptoms seem to get worse just before their menstrual periods and then calm down when flow starts (sorry, gentlemen!) Thanks in advance for any feedback. Peggy Quote Link to comment Share on other sites More sharing options...
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