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So I've finally come the realization that I need to change my GP and

my GI. I was able to get info from another GI in the city of our

area's leading Achalasia GI. I decided to call his office for a

recommendation on a GP who might have familiarity with Achalasia.

When I left a message, the receptionist is the same as the one for my

old GI! They're in the same clinic! Now, I have somewhat spurned my

old GI, hopefully not too severly (I'll pop that story at the end) and

I don't know if this receptionist is taking me seriously or maybe the

doctor isn't responding on purpose but no one ever called me back.

Any advice on if you think I should still persue this GI w/ specialty

in Achalasia? The whole reason I want a new GI is that I want someone

who actually knows about the condition.

To top that off, I got a recommendation for a GP from a co-worker.

This GP has 2 offices, one of them is the same as my old GP. Is this a

crazy coincidence or what?

So, also, the story of my old GI. This lady says one dilation and then

we'll consider surgery. I saw her ONCE before the dilation (the day

she did the consultation and said we'd do the proceedure). I never got

to ask her any other questions. So I'm trying to ask them as they are

shoving the paperwork under my nose, I'm strapped in and everything. I

got out of her during this that she expects to do at least 2 dilations

because they build on each other to stretch out the esophegus....

never heard this anywhere else (validity anyone??). AND she never came

to see me after the proceedure, no one told my driver how to take care

of me and she didn't do any biopsies. I'm pretty freaking pissed at

this point, and a week after the dilation my symptoms begin returning.

I'm about 70-80% as bad as I was pre-proceedure, about 2 months later.

I'm furious and was not told what to do or when I'd ever get a follow

up. I called her office to see if she had scheduled one and neglected

to tell me. She didn't. Talked to my allergist (btw, apparently I'm

allergic to peanuts and never knew) and it came out how upset I was

and that my symptoms had returned. She put a note in my file I guess

and 2 days later the GI office calls to schedule a follow up. I left a

message that I wasn't interested and I'd call them if I was.

(persistent bastards wouldn't take silence for an answer and were

leaving like 2 messages a day). I'm sorry to say I don't want to even

talk to this GI again, and now come to find that our area Achalasia

specialist might be a close coleague. Crap.

-Jess

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Jess,

There was a young woman who used to post in the group who was in

Sacramento. The GI doc she saw was a Dr. Jaun in

Sacramento and he had a lot of experience with achalasia. Have you heard

of him? I think I might have some contact information for him if you'd

like I can look for it.

Sandi in No CA

Advice apreciated

So I've finally come the realization that I need to change my GP and

my GI. I was able to get info from another GI in the city of our

area's leading Achalasia GI. I decided to call his office for a

recommendation on a GP who might have familiarity with Achalasia.

When I left a message, the receptionist is the same as the one for my

old GI! They're in the same clinic! Now, I have somewhat spurned my

old GI, hopefully not too severly (I'll pop that story at the end) and

I don't know if this receptionist is taking me seriously or maybe the

doctor isn't responding on purpose but no one ever called me back.

Any advice on if you think I should still persue this GI w/ specialty

in Achalasia? The whole reason I want a new GI is that I want someone

who actually knows about the condition.

To top that off, I got a recommendation for a GP from a co-worker.

This GP has 2 offices, one of them is the same as my old GP. Is this a

crazy coincidence or what?

So, also, the story of my old GI. This lady says one dilation and then

we'll consider surgery. I saw her ONCE before the dilation (the day

she did the consultation and said we'd do the proceedure). I never got

to ask her any other questions. So I'm trying to ask them as they are

shoving the paperwork under my nose, I'm strapped in and everything. I

got out of her during this that she expects to do at least 2 dilations

because they build on each other to stretch out the esophegus....

never heard this anywhere else (validity anyone??). AND she never came

to see me after the proceedure, no one told my driver how to take care

of me and she didn't do any biopsies. I'm pretty freaking pissed at

this point, and a week after the dilation my symptoms begin returning.

I'm about 70-80% as bad as I was pre-proceedure, about 2 months later.

I'm furious and was not told what to do or when I'd ever get a follow

up. I called her office to see if she had scheduled one and neglected

to tell me. She didn't. Talked to my allergist (btw, apparently I'm

allergic to peanuts and never knew) and it came out how upset I was

and that my symptoms had returned. She put a note in my file I guess

and 2 days later the GI office calls to schedule a follow up. I left a

message that I wasn't interested and I'd call them if I was.

(persistent bastards wouldn't take silence for an answer and were

leaving like 2 messages a day). I'm sorry to say I don't want to even

talk to this GI again, and now come to find that our area Achalasia

specialist might be a close coleague. Crap.

-Jess

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Identify a research hospital in you area or ask the board for a medical center that specializes in swallowing disorders. Look at the staffing at Cleveland Med and you will see some ten times more people in this field.

Advice apreciated

So I've finally come the realization that I need to change my GP and my GI. I was able to get info from another GI in the city of our area's leading Achalasia GI. I decided to call his office for a recommendation on a GP who might have familiarity with Achalasia.When I left a message, the receptionist is the same as the one for my old GI! They're in the same clinic! Now, I have somewhat spurned my old GI, hopefully not too severly (I'll pop that story at the end) and I don't know if this receptionist is taking me seriously or maybe the doctor isn't responding on purpose but no one ever called me back.Any advice on if you think I should still persue this GI w/ specialty in Achalasia? The whole reason I want a new GI is that I want someone who actually knows about the condition.To top that off, I got a recommendation for a GP from a co-worker. This GP has 2 offices, one of them is the same as my old GP. Is this a crazy coincidence or what?So, also, the story of my old GI. This lady says one dilation and then we'll consider surgery. I saw her ONCE before the dilation (the day she did the consultation and said we'd do the proceedure). I never got to ask her any other questions. So I'm trying to ask them as they are shoving the paperwork under my nose, I'm strapped in and everything. I got out of her during this that she expects to do at least 2 dilations because they build on each other to stretch out the esophegus.... never heard this anywhere else (validity anyone??). AND she never came to see me after the proceedure, no one told my driver how to take care of me and she didn't do any biopsies. I'm pretty freaking pissed at this point, and a week after the dilation my symptoms begin returning. I'm about 70-80% as bad as I was pre-proceedure, about 2 months later. I'm furious and was not told what to do or when I'd ever get a follow up. I called her office to see if she had scheduled one and neglected to tell me. She didn't. Talked to my allergist (btw, apparently I'm allergic to peanuts and never knew) and it came out how upset I was and that my symptoms had returned. She put a note in my file I guess and 2 days later the GI office calls to schedule a follow up. I left a message that I wasn't interested and I'd call them if I was. (persistent bastards wouldn't take silence for an answer and were leaving like 2 messages a day). I'm sorry to say I don't want to even talk to this GI again, and now come to find that our area Achalasia specialist might be a close coleague. Crap.-Jess

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Hi Jade!

I don’t think I have seen you on

here for a while…. It is good to see you posting.

In my opinion, I would totally pursue the

new GI with the achalasia experience. It will make a whole lot of

differernce once you get there. To have a doctor with experience is

important!!! Same with your GP. If you are not comfortable with

him/her, or whatever reason, do change. They have soooo many patients, I

wouldn’t worry about being seen again, while visiting your new GP.

I hope things pick up for you soon.

Don’t give up… keep up pursuing that new GI!

Take Care Jade!!

Advice

apreciated

So I've finally come the realization that I need

to change my GP and

my GI. I was able to get info from another GI in

the city of our

area's leading Achalasia GI. I decided to call his

office for a

recommendation on a GP who might have familiarity

with Achalasia.

When I left a message, the receptionist is the

same as the one for my

old GI! They're in the same clinic! Now, I have

somewhat spurned my

old GI, hopefully not too severly (I'll pop that story

at the end) and

I don't know if this receptionist is taking me

seriously or maybe the

doctor isn't responding on purpose but no one ever

called me back.

Any advice on if you think I should still persue

this GI w/ specialty

in Achalasia? The whole reason I want a new GI is

that I want someone

who actually knows about the condition.

To top that off, I got a recommendation for a GP

from a co-worker.

This GP has 2 offices, one of them is the same as

my old GP. Is this a

crazy coincidence or what?

So, also, the story of my old GI. This lady says

one dilation and then

we'll consider surgery. I saw her ONCE before the

dilation (the day

she did the consultation and said we'd do the

proceedure). I never got

to ask her any other questions. So I'm trying to

ask them as they are

shoving the paperwork under my nose, I'm strapped

in and everything. I

got out of her during this that she expects to do

at least 2 dilations

because they build on each other to stretch out

the esophegus....

never heard this anywhere else (validity

anyone??). AND she never came

to see me after the proceedure, no one told my

driver how to take care

of me and she didn't do any biopsies. I'm pretty

freaking pissed at

this point, and a week after the dilation my

symptoms begin returning.

I'm about 70-80% as bad as I was pre-proceedure,

about 2 months later.

I'm furious and was not told what to do or when

I'd ever get a follow

up. I called her office to see if she had

scheduled one and neglected

to tell me. She didn't. Talked to my allergist

(btw, apparently I'm

allergic to peanuts and never knew) and it came

out how upset I was

and that my symptoms had returned. She put a note

in my file I guess

and 2 days later the GI office calls to schedule a

follow up. I left a

message that I wasn't interested and I'd call them

if I was.

(persistent bastards wouldn't take silence for an

answer and were

leaving like 2 messages a day). I'm sorry to say I

don't want to even

talk to this GI again, and now come to find that

our area Achalasia

specialist might be a close coleague. Crap.

-Jess

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