Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 Hi Sally. It is good to hear from you, but sorry that Stefan is having problems again. I have not had a myotomy but I understand that it is not unusual to have to continue drinking a lot of water to get your food down. I have had the manometry and it was not a horrible experience for me, but it was far from pleasant. I don't think they can do the test if you are sedated. It will last about 30 minutes and is soon forgotten. He might feel a bit of irritation in the nose and throat for a bit. I know it is horrible to watch your child go through this and my heart goes out to you both. Good luck and hugs, Maggie Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 > > Remember us? (Stefan age 15,had Lap Heller's in July 2004) > He had a review at the hospital, (re his barium) and is now waiting > for an esophageal manometry. (Which I hear is pretty a awful > experience-do they sedate you?)The consultant seems to think that he > will need another Heller's if the pressure is not right. Stef is > eating and drinking, just with lots of water, and although he > sometimes gets a regurgitating feeling, he's always kept the food > inside him. The chest pain comes every couple of days, and the > drinks still help that. But it just seems so soon to be considering > another operation. > Sally (Stef's Mum) Sally, I had the manometry done twice. It lasts about 30 minutes and is not pleasant but is also not really painful. It is more uncomfortable. You are not sedated but they freeze the throat and nose. He may have a sore throat for a few hours after it is done. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 hello Sally, I can understand how you feel. My daughter is 16 and has achalasia too. She had a dilation in december 2003 but will probably need another treatment soon. It is hard to watch your child suffer. All my sympathy and wishes of good luck and strength go to you and your son. - claudine from Luxembourg - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 The manometry is pretty uncomfortable, something's stuck in your nose and throat, and you get the feeling you need to throw up (which I did just minutes before it was done). They make you drink water, that doesn't make it better at all ... My condition is about the same as Stefan's, but I had a dilatation in 2001. I can eat pretty much everything, but still have to drink a lot and also have these pains every few days, but most of the time they go away when I eat or drink something. And if not, I try to take very deep breaths, it seems that when my lungs fill up, it pushes against the sore spot and that feels pretty good. My GI tells me I have to see the specialist again, but I don't wanna. I feel pretty good, and am not in the mood for exams and tests and stuff. Just give me something that'll make the pain go away immediately, that's all I need! Evita from Belgium >From: " sallyavory " <sallyavory@...> >Reply-achalasia >achalasia >Subject: Stefan in England >Date: Mon, 01 Nov 2004 09:40:26 -0000 > > >Remember us? (Stefan age 15,had Lap Heller's in July 2004) >He had a review at the hospital, (re his barium) and is now waiting >for an esophageal manometry. (Which I hear is pretty a awful >experience-do they sedate you?)The consultant seems to think that he >will need another Heller's if the pressure is not right. Stef is >eating and drinking, just with lots of water, and although he >sometimes gets a regurgitating feeling, he's always kept the food >inside him. The chest pain comes every couple of days, and the >drinks still help that. But it just seems so soon to be considering >another operation. >Sally (Stef's Mum) > > > _________________________________________________________________ Volg Expeditie op de voet! http://www.expeditierobinson.vt4.be/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2004 Report Share Posted November 2, 2004 Thanks to you all for your helpful replies to my 'worried mum'post! It's really good to be able to let my worries (on behalf of Stef), out into the open, and to get various feedback to my queries.You are much appreciated,and a lot more informed than some of the doctors we've seen! All the best Sally Quote Link to comment Share on other sites More sharing options...
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