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Re: Had my dilation today

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>

> Back from my dilation. Sore and nauseas & still a little stoned. I

> think the nausea is from the gas they fill the stomach w/, cause I

> vomited a whole lot of air a few times on the way home.

>

> When I asked my dr. what size balloon she would use, I got a

strange

> answer. She said she would try to dilate me anywhere from 3-4

inches.

> She decided how far to go when she gets in there and if she decides

> its safest to do less than 3 she said she'd want me back to finish.

> Thus avoid perforation.

>

> She never did come to see me after I woke up, which makes me angry.

So

> I didn't get any information about anything she saw. I guess mine

ran

> over and she was in another procedure. So I'll be calling her

office

> and firmly requesting a few things. I did manage to get one of the

> nurses to give me a few stills that were taken. That poor lady, I

was

> trying to ask her all the question that the GI doc was supposed to

be

> there for.

>

> When I asked about my manometry she said I had loss of peristalsis.

I

> asked what percentage and she looked at me like I'd grown a second

> head. She said `it just doesn't work' …. That's funny. I certainly

> don't feel like I have complete loss of peristalsis, and in

addition

> other's on the board who've mentioned sever loss of motility say

they

> can't regurge… I can certainly do that.

>

> Anyway, I know they did an x-ray afterward, although I don't know

if

> involved barium. THAT dr did come to see me to tell me I was ok to

> leave. At which point the nurses promptly dumbed me out of the bed

and

> into a seat where I had to wait another oooh 20 min – ½ for my

ride.

> The waiting room receptionist wasn't answering the phone, so my

poor

> nurse had to go down 5 floors and holler my guys name.

>

> I don't THINK I woke up. I do remember falling out of it slowly,

and I

> kept pulling the mouth piece out to ask questions or say something

and

> they had to keep telling me to put it back in. Ah, drugs, gotta

love

> em.

>

> -Jess

Where did you have this done? Mine is Tuesday. Sounds like I can

hardly wait. Rest up this weekend. I'd like to hear how you feel in

a day or 2. Thanks for the info. G.

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When I asked my dr. what size balloon she would use, I got a strange answer. She said she would try to dilate me anywhere from 3-4 inches.

Hopefully this is 3-4 CENTIMETERS, not 3-4 INCHES! :o)

When I asked about my manometry she said I had loss of peristalsis. I asked what percentage and she looked at me like I'd grown a second head. She said `it just doesn't work' …. That's funny. I certainly don't feel like I have complete loss of peristalsis, and in addition other's on the board who've mentioned sever loss of motility say they can't regurge… I can certainly do that.

I think the issue may be that there is no "firm number" on something like peristalsis.... you either have it or you don't. It's not just a matter of the contractions being "less strong than normal", so it's not something you can say "I have 50% peristalsis". (Often when people in this group say they're at 10% swallowing function, it's just our way of saying, "on a scale of 1-10, with 10 being normal swallowing and 0 being nothing ever gets through at all, I'm currently at a 1 on the scale.)

Peristalsis means contractions that happen IN THE CORRECT ORDER to propel food from one end to the other. First A then B then C then D, etc. So you may still have contractions in the body of the esophagus, but if they're not in the right ORDER, you don't have peristaltic function.

Below is some info in a post I wrote several months ago (which is also a combination of previous posts) that spells it out in more detail (forgive me the cut-and-paste, but when I'm really pressed for time and can't write it all out fresh, I just re-use my previous info -- better than not replying at all, I guess.....) Hopefully that explains it a little better/more detail than what I did above.

Hope you're feeling better real soon!Debbi in Michigan

-------------------------------------------------------------------------------

So when someone says they have "no peristalsis in the esophagus" or that they are "aperistaltic" (or if your doctor tells you that you have no peristalsis in the esophagus), this does NOT necessarily mean that there is no MOVEMENT or that there are no CONTRACTIONS in the esophagus. It simply means that there aren't any PERISTALTIC contractions in the esophagus.

It's like saying that you don't have any broken bones in your body -- that doesn't mean that you don't have any bones AT ALL in your body, simply that you don't have any *broken* ones. Or saying that I don't have any female children... yes, it's true, but it doesn't mean that I don't have a *male* child!

In order to be considered "peristaltic", the movements/contractions in the esophagus must be sequential and of sufficient strength to propel food/liquid from top to bottom. Contractions that happen all at the same time or that happen at "random" rather than in sequential order are "aperistaltic". Contractions that are just little more than a "quiver" rather than a full-strength "squeeze" are "aperistaltic". And if you don't have ANY movements AT ALL, then that's also an "aperistaltic" esophagus

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Hi Jade,

I am glad to see that you at least have had a dilation to tide you

over. Maybe that will give you some relief. Keep on pushing your

doc until you get the anwers to your questions. It is your body, and

your right to have the answers. You will get them with persistance.

Let us know how the dilation helped.

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> Where did you have this done? Mine is Tuesday. Sounds like I can

> hardly wait. Rest up this weekend. I'd like to hear how you feel in

> a day or 2. Thanks for the info. G.

I live in Sacramento, California. I had mine done at the U.C.

Med Center. I've been asleep all day, and am probably going back to

bed shortly. Those meds really knock you out.

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  • 7 years later...
Guest guest

Pat, congratulations! Hope it holds for you. And welcome back to the world of

people who can swallow! Keep us up on how it's going.

in the wilds of WV

>

> After reading all the posts about HM and all the positive turnouts, second

> doubts about a dilation were there. But my plan has been to try it as the

> first option, and then consider surgery if it doesn't work.

>

> Just in the interest of sharing the experience ...

>

> They put me totally under for it. The used a 30 mm balloon. It was followed

> immediately by barium swallow to make sure they didn't tear the esophagus.

> There was no damage.

>

> The GI who performed the procedure said if the dilation doesn't work I'll

> know in about three to four weeks, but the longer I go without problems the

> greater the odds that the dilation will hold.

>

> The effects were almost immediate. While in recovery, I finished 8 ounces

> of apple juice in 10 minutes. That was impossible previously. Soup and

> fluids are going down a lot easier. I'm actually thrilled. In the next few

> days I'll increase the food challenges.

>

> The pain from the procedure was minimal; it was no different than the kind

> of rawness/discomfort I've felt after prior endoscopies. Not long lasting

> and no big deal.

>

> So that's it. I hope I can begin to eat a better diet, get better energy

> and start jogging again.

>

> Appreciate reading all the stories that people have posted about their

> experiences. This list has been a great source of support.

>

> Best

> Pat

>

>

>

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Congrats and speedy recovery

 

Suzanne

From: dcblogs administrator <dcblogs@...>

Subject: had my dilation today

achalasia

Date: Wednesday, April 25, 2012, 8:16 PM

 

After reading all the posts about HM and all the positive turnouts, second

doubts about a dilation were there. But my plan has been to try it as the

first option, and then consider surgery if it doesn't work.

Just in the interest of sharing the experience ...

They put me totally under for it. The used a 30 mm balloon. It was followed

immediately by barium swallow to make sure they didn't tear the esophagus.

There was no damage.

The GI who performed the procedure said if the dilation doesn't work I'll

know in about three to four weeks, but the longer I go without problems the

greater the odds that the dilation will hold.

The effects were almost immediate. While in recovery, I finished 8 ounces

of apple juice in 10 minutes. That was impossible previously. Soup and

fluids are going down a lot easier. I'm actually thrilled. In the next few

days I'll increase the food challenges.

The pain from the procedure was minimal; it was no different than the kind

of rawness/discomfort I've felt after prior endoscopies. Not long lasting

and no big deal.

So that's it. I hope I can begin to eat a better diet, get better energy

and start jogging again.

Appreciate reading all the stories that people have posted about their

experiences. This list has been a great source of support.

Best

Pat

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What is with people being given general anesthesia for a balloon dilation?

I had NOTHING for the largest dilator session, and promptly left the GI dept.

rather than having to suffer in agony and humiliation.

Steve

>

> After reading all the posts about HM and all the positive turnouts, second

> doubts about a dilation were there. But my plan has been to try it as the

> first option, and then consider surgery if it doesn't work.

>

> Just in the interest of sharing the experience ...

>

> They put me totally under for it. The used a 30 mm balloon. It was followed

> immediately by barium swallow to make sure they didn't tear the esophagus.

> There was no damage.

>

> The GI who performed the procedure said if the dilation doesn't work I'll

> know in about three to four weeks, but the longer I go without problems the

> greater the odds that the dilation will hold.

>

> The effects were almost immediate. While in recovery, I finished 8 ounces

> of apple juice in 10 minutes. That was impossible previously. Soup and

> fluids are going down a lot easier. I'm actually thrilled. In the next few

> days I'll increase the food challenges.

>

> The pain from the procedure was minimal; it was no different than the kind

> of rawness/discomfort I've felt after prior endoscopies. Not long lasting

> and no big deal.

>

> So that's it. I hope I can begin to eat a better diet, get better energy

> and start jogging again.

>

> Appreciate reading all the stories that people have posted about their

> experiences. This list has been a great source of support.

>

> Best

> Pat

>

>

>

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They used a breathing tube with me. I believe it was done tto prevent

aspiration which has been issue.

On Apr 27, 2012 1:25 AM, " nailheader " <stevenakamichi@...> wrote:

> **

>

>

> What is with people being given general anesthesia for a balloon dilation?

>

> I had NOTHING for the largest dilator session, and promptly left the GI

> dept. rather than having to suffer in agony and humiliation.

>

> Steve

>

>

> >

> > After reading all the posts about HM and all the positive turnouts,

> second

> > doubts about a dilation were there. But my plan has been to try it as the

> > first option, and then consider surgery if it doesn't work.

> >

> > Just in the interest of sharing the experience ...

> >

> > They put me totally under for it. The used a 30 mm balloon. It was

> followed

> > immediately by barium swallow to make sure they didn't tear the

> esophagus.

> > There was no damage.

> >

> > The GI who performed the procedure said if the dilation doesn't work I'll

> > know in about three to four weeks, but the longer I go without problems

> the

> > greater the odds that the dilation will hold.

> >

> > The effects were almost immediate. While in recovery, I finished 8 ounces

> > of apple juice in 10 minutes. That was impossible previously. Soup and

> > fluids are going down a lot easier. I'm actually thrilled. In the next

> few

> > days I'll increase the food challenges.

> >

> > The pain from the procedure was minimal; it was no different than the

> kind

> > of rawness/discomfort I've felt after prior endoscopies. Not long lasting

> > and no big deal.

> >

> > So that's it. I hope I can begin to eat a better diet, get better energy

> > and start jogging again.

> >

> > Appreciate reading all the stories that people have posted about their

> > experiences. This list has been a great source of support.

> >

> > Best

> > Pat

> >

> >

> >

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Guest guest

I hope you recover well! :)

>

> After reading all the posts about HM and all the positive turnouts, second

> doubts about a dilation were there. But my plan has been to try it as the

> first option, and then consider surgery if it doesn't work.

>

> Just in the interest of sharing the experience ...

>

> They put me totally under for it. The used a 30 mm balloon. It was followed

> immediately by barium swallow to make sure they didn't tear the esophagus.

> There was no damage.

>

> The GI who performed the procedure said if the dilation doesn't work I'll

> know in about three to four weeks, but the longer I go without problems the

> greater the odds that the dilation will hold.

>

> The effects were almost immediate. While in recovery, I finished 8 ounces

> of apple juice in 10 minutes. That was impossible previously. Soup and

> fluids are going down a lot easier. I'm actually thrilled. In the next few

> days I'll increase the food challenges.

>

> The pain from the procedure was minimal; it was no different than the kind

> of rawness/discomfort I've felt after prior endoscopies. Not long lasting

> and no big deal.

>

> So that's it. I hope I can begin to eat a better diet, get better energy

> and start jogging again.

>

> Appreciate reading all the stories that people have posted about their

> experiences. This list has been a great source of support.

>

> Best

> Pat

>

>

>

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