7/23,24 Apraxia Conference See more at apraxia.cc

[Guest guest]

Hi everyone!

Most of the details about the upcoming 7/23,24 apraxia conference can

be found at http://www.apraxia.cc

For those parents attending, some info about the dinner/dinner speaker:

" This is a time of celebration, a moment in history that will long be

remembered as the opening door to research for apraxic children. As

parents and professionals, it's been a long road to get to the point

where this conference has brought us. On this night, we can share

the glimmer of hope this conference brings to all our apraxic

children. "

" Hugo W. Moser, MD, our distinguished dinner speaker, has a venerable

career as a world renowned basic & clinical researcher in the area of

genetic disorders with implications to the central and peripheral

nervous systems.

For many years, one of Dr. Moser's roles has been his involvement as

Chairman of the Medical and Scientific Advisory Board of the United

Leukodystrophy Foundation. Dr. Moser's life work has been to

identify and cure such diseases as adrenoleukodystrophy (ALD), which

is the condition that the little boy, Lorenzo, had in the

movie " Lorenzo's Oil " . Dr. Moser is the developer of new therapeutic

approaches in this area, for example, he was the first one to

undertake clinical studies with an oil mixture that is now well known

as " Lorenzo's Oil " . ..

We are also honored to have such a distinguished speaker as Dr.

Moser, who in many ways, due to his own past professional

experiences, can educate all of us as to how the power of research

professionals, inspired by the passion of parents, can sometimes

lead to answers and cures that were at one time thought impossible by

the experts.

As we hear about successful research, we may realize that the

treatment itself is not the miracle, but that our children, and how

the treatment can metamorphosize their life is the real miracle. We

will learn the power of hope, which will build on our theme for the

celebration of the night, our " Quilt of Hope " for apraxic children. "

Information for the professionals (or professional parents) is in the

following agenda below. Again, please check the website for more

details, and to get your reservations in ASAP (space is limited)

A CHERAB FOUNDATION EMERGENCY FACT-FINDING WORKSHOP ON

ESSENTIAL FATTY ACIDS AND VERBAL APRAXIA: A POTENTIAL NEW THERAPEUTIC

INTERVENTION

July 23-24, 2001, Headquarters Plaza Hotel, town, New Jersey

July 23, 2001

4:00 pm-7:00 pm Registration

6:00 pm-7:00 pm Opening Reception (open bar and hors d'oeuvres)

7:00 pm-8:30 pm Dinner

Dinner Speaker: Hugo W. Moser, MD,

Kennedy Krieger Institute and s Hopkins University

School of Medicine, Baltimore, land

" Emerging Therapies for Neurologic Disorders "

(Scientific panel members will not attend)

Evening Session: Verbal Apraxia: Current Thoughts

Chair: Marilyn Agin, MD

8:30 pm-8:40 pm Opening and Welcoming Remarks

Marilyn Agin, MD and Ms.

[Guest guest]

Hi ,

It's great to have you back. Did you say one time that the

conference would be videoed? I was just curious how we would be able

to access the info which is discussed at the conference.

No hurry.

Thanks!

Alwert