Re: Re: This sucks - an idea to help

[Guest guest]

Sandi,

What kind of breathing problems exactly???

Snoopy Martha

RE: Re: This sucks - an idea to help

Ginny,I have also been playing the Oboe and English Horn since high school, Ialso used to make my own reeds as well, but I don't play much anymore.Great idea though! Maybe I should start playing again. I have breathingproblems and that would really help. I keep telling myself I need tostart playing again. You just gave me some incentive! :-)Thanks!Sandi-----Original Message-----From: ginnyfamily2004 [mailto:ginnyfamily2004@...] Sent: Thursday, July 22, 2004 5:02 AMachalasia Subject: Re: This sucks - an idea to helpHi,Having lived with achalasia 33 years, I have developed some ideas about coping. First of all, I always have hobbies not related to eating. My hobby for the past 6 years has been learning how to play oboe and English horn, and to make reeds for both. Playing a wind instrument has helped keeping my lungs strong, and maybe even might relax the LES. At least, it keeps my mind off of the problems with food. Also, I use a straw whenever I drink liquids (even coffee), because fluids are the hardest to swallow. Also, remember that you have family and friends that love you and need you. It seems that every family has some sort of disorder with which they have to cope. Although achalasia is not thought to be genetic, I keep telling myself that there are worse disorders - I know there are. Ginny

[Guest guest]

Hi Snoopy Martha!

Looks like you just gave yourself a new

nickname!!! Hahahahaha :-)

My breathing/respiratory problems:

I’m a VERY shallow breather

I forget to breathe ALL the time

I have sleep apnea and my oxygen saturation levels drop to 70% at

night which is real bad (I was in ICU after surgery because my Oxygen Saturation

levels were so low)

I have severe sinus disease according to a recent MRI

I’m allergic to molds and cats

I used to have really bad allergies up until maybe the past several

years, and they have been almost non existent (knock on wood) since then

with the exception of the sinus problems.

I’m prone to sinus infections and bronchitis. I can get a

cold one day and have a sinus infection and bronchitis the next day.

Allergies/asthma are common in my family (along with MS) however, I

don’t have much of a problem with asthma unless I’m around

cats.

Feel free to snoop, I don’t mind. If

it gets too personal, I’ll just e-mail you privately or tell you to…nevermind! LOL (I’m just kidding) :-)

Sandi

Re: Re: This

sucks - an idea to help

Sandi,

What kind of breathing problems

exactly???

Snoopy Martha

Re: This sucks - an idea to

help

Hi,

Having lived with achalasia 33 years, I have

developed some ideas

about coping. First of all, I always have

hobbies not related to

eating. My hobby for the past 6 years has

been learning how to play

oboe and English horn, and to make reeds for

both. Playing a wind

instrument has helped keeping my lungs strong, and

maybe even might

relax the LES. At least, it keeps my mind

off of the problems with

food. Also, I use a straw whenever I drink liquids

(even coffee),

because fluids are the hardest to swallow.

Also, remember that you

have family and friends that love you and need

you. It seems that

every family has some sort of disorder with which

they have to cope.

Although achalasia is not thought to be genetic, I

keep telling

myself that there are worse disorders - I know

there are.

Ginny

[Guest guest]

Thanks, Sandi! That is quite a list of breathing difficulties. It is a wonder you are still around to "enjoy" achalasia!

Snoopy

RE: Re: This sucks - an idea to help

Ginny,I have also been playing the Oboe and English Horn since high school, Ialso used to make my own reeds as well, but I don't play much anymore.Great idea though! Maybe I should start playing again. I have breathingproblems and that would really help. I keep telling myself I need tostart playing again. You just gave me some incentive! :-)Thanks!Sandi-----Original Message-----From: ginnyfamily2004 [mailto:ginnyfamily2004@...] Sent: Thursday, July 22, 2004 5:02 AMachalasia Subject: Re: This sucks - an idea to helpHi,Having lived with achalasia 33 years, I have developed some ideas about coping. First of all, I always have hobbies not related to eating. My hobby for the past 6 years has been learning how to play oboe and English horn, and to make reeds for both. Playing a wind instrument has helped keeping my lungs strong, and maybe even might relax the LES. At least, it keeps my mind off of the problems with food. Also, I use a straw whenever I drink liquids (even coffee), because fluids are the hardest to swallow. Also, remember that you have family and friends that love you and need you. It seems that every family has some sort of disorder with which they have to cope. Although achalasia is not thought to be genetic, I keep telling myself that there are worse disorders - I know there are. Ginny

[Guest guest]

Snoopy,

If I wasn’t around, I’d miss

out on all the fun around here with you guys!

PS…Speaking of fun, where have you

been Mr. “uomo divertente”

(funny man) Mike????

I miss seeing your posts!

Sandi

Re: Re: This

sucks - an idea to help

Thanks, Sandi! That is quite a

list of breathing difficulties. It is a wonder you are still around to

" enjoy " achalasia!

Snoopy

Re: This sucks - an idea to

help

Hi,

Having lived with achalasia 33 years, I have

developed some ideas

about coping. First of all, I always have

hobbies not related to

eating. My hobby for the past 6 years has

been learning how to play

oboe and English horn, and to make reeds for

both. Playing a wind

instrument has helped keeping my lungs strong, and

maybe even might

relax the LES. At least, it keeps my mind

off of the problems with

food. Also, I use a straw whenever I drink

liquids (even coffee),

because fluids are the hardest to swallow.

Also, remember that you

have family and friends that love you and need

you. It seems that

every family has some sort of disorder with which

they have to cope.

Although achalasia is not thought to be genetic, I

keep telling

myself that there are worse disorders - I know there

are.

Ginny