Re: Anyone have these symptoms in addition to ?

[Guest guest]

Gail- What is ataxia?

I have definitely had the fatigue. It can also be related to depression, a common problem with people who have chronic illness. I think mine was both nutritional deficiencies and depression. Cindi in PA

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[Guest guest]

Cindi,

Ataxia is a lcak of coordination. Boy, I would have bet you would

have known that!

Mike (Still coordinated after all those years!)

> Gail- What is ataxia?

>

> I have definitely had the fatigue. It can also be related to

depression, a

> common problem with people who have chronic illness. I think mine

was both

> nutritional deficiencies and depression. Cindi in PA

[Guest guest]

In a message dated 7/8/2004 1:16:19 PM Eastern Daylight Time, theriggs@... writes:

Hi All,I haven't been on for a while. I have had achalasia for a few years nowand have been to the Cleveland Clinic, first for a balloon dilatationand then the surgery.My swallowing has improved but I still have muscle weakness, ataxiaand memory/concentration problems along with severe fatigue.Has anyone experience these symptoms?Gail

Gail,

I'm sorry to be so dense, but what is "ataxia"?

I have lots of memory and concentration problems, but I figured that it might be due to poor nutrition, since my problems have been going on for a year of very poor and little food consumption.

Jan in Northern KY

[Guest guest]

Hi Gail,

Ataxia can be caused by some medicines - are you on any medicnes - blood pressure meds can do this. I wobble around dangerously some days!

Fatidue and lack of cancentration also go with a nutritional deficiency - are you eating well - even if it is in the form of soft sloppy stuff or liquidised food it is important to get the right nutrients. Try some vitamin and mineral supplements - you can use a liquid form.

Debbi has also pointed you in the direction of thyroid problems. When you have researched that and tried some vitamins go an see you house doctor and discuss it. If it medicine related they can try other medicines. You don't always have to feel awful !

Joan

Johannesburg

South Africa

joearse@...

Anyone have these symptoms in addition to achalasia?

Hi All,I haven't been on for a while. I have had achalasia for a few years nowand have been to the Cleveland Clinic, first for a balloon dilatationand then the surgery.My swallowing has improved but I still have muscle weakness, ataxiaand memory/concentration problems along with severe fatigue.Has anyone experience these symptoms?Gail

[Guest guest]

---

Gail,

You've been worked up neurologically?

Jo from FLA

In achalasia , " Joan Pearse " <jpearse@p...> wrote:

> Hi Gail,

> Ataxia can be caused by some medicines - are you on any medicnes -

blood pressure meds can do this. I wobble around dangerously some

days!

>

> Fatidue and lack of cancentration also go with a nutritional

deficiency - are you eating well - even if it is in the form of soft

sloppy stuff or liquidised food it is important to get the right

nutrients. Try some vitamin and mineral supplements - you can use a

liquid form.

> Debbi has also pointed you in the direction of thyroid problems.

When you have researched that and tried some vitamins go an see you

house doctor and discuss it. If it medicine related they can try

other medicines. You don't always have to feel awful !

>

> Joan

> Johannesburg

> South Africa

> joearse@p...

>

> Anyone have these symptoms in addition to

achalasia?

>

>

> Hi All,

>

> I haven't been on for a while. I have had achalasia for a few

years now

> and have been to the Cleveland Clinic, first for a balloon

dilatation

> and then the surgery.

>

> My swallowing has improved but I still have muscle weakness,

ataxia

> and memory/concentration problems along with severe fatigue.

>

> Has anyone experience these symptoms?

>

> Gail

>

>

>

[Guest guest]

At 06:07 AM 7/9/2004, Joy wrote:

YES..YES...YES...I have these

symptoms too. I can fall asleep on a

dime.

Joy, I agree with Sandi, it may be a good idea to check into a sleep

study. There are a lot of things a sleep study can find.

notan

[Guest guest]

Is it in any way related to Achalasia? What does it do? I thought

it was when you stop breathing at night or something like that. My

Dad does that and then sort of snorts himself away....terrible heavy

snorer though. I, myself, am what my husband calls a " sleep

breather " ....I enter a loud deep sleeping slow breathing mode...but I

always thought I sleep all night quite well and then wake rested.

Joy

> Joy,

> Have you had a sleep study?

> You sound very much like me. I was just diagnosed with sleep apnea.

> You might want to check into it.

>

> Sandi

>

> Re: Anyone have these symptoms in addition to

> achalasia?

>

> YES..YES...YES...I have these symptoms too. I can fall asleep on a

> dime. My husband jokes because I can literally fall asleep on the

> way to the grocery store - 4 blocks away! I have rotten memory and

> concentration!!!! I went to the neurologist a couple years ago for

> that and because I was having such terrible migraine headaches that

I

> was concerned I had a tumor or a " brain worm " or something eating

my

> brain or something....but he did a bunch of tests and said I

> was " normal " and put me on Topomax - a seizure preventative that

also

> treats for the prevention of migrains and headaches. It doesn't

seem

> to do anything for concentration or memory though and I think I

have

> early alzheimers (I am only 43)! But, my hormones are getting

wacky

> already too and I am getting very crazy cycles and hot

flashes...and

> the whole 9 yards! That, I can live with. It's the memory loss

and

> concentration and fatigue. But I DO get excellent nutrition and

eat

> very well.

> So, it baffles me.

> You know, I was wondering, if food is sitting in the esophagus for

a

> few hours...perhaps rotting...then maybe by the time it reaches

your

> stomoch you are not getting anything of value. Sometimes a couple

> hours after eating I feel queezy....I think that is when my LES is

> relaxing and allowing the food to pass....but maybe by then it is

> only rotted stuff and I am sort of always just processing " garbage. "

> Joy

>

>

>

>

>

>

[Guest guest]

Joy,

Sleep apnea isn't related to achalasia as far as I know, but yes, you

stop breathing in your sleep. Apnea, sleep apnea or obstructive sleep

apnea are defined as " the cessation of breathing for 10 or more seconds

while asleep " .

I was a bit surprised that I have sleep apnea because I usually sleep so

well and I have such an easy time falling asleep. However, according to

my sleep study, I stop breathing 17 times an hour and I have 63

incidents an hour when my breathing slows down to the point that my

oxygen saturation levels drop. I also don't get any REM sleep.

Do you have high blood pressure? I have a very big problem w/my BP and I

think it has a lot to do with the sleep apnea. I've been noticing lately

that when I take a deep breath before taking my BP, my BP drops

dramatically.

Well, anyway, your symptoms sounded familiar and I just thought you

might want to look into it.

Here is a link if you'd like to read more about it:

http://www.sleepfoundation.org/publications/sleepap.cfm

Take Care,

Sandi

Re: Anyone have these symptoms in addition to

> achalasia?

>

> YES..YES...YES...I have these symptoms too. I can fall asleep on a

> dime. My husband jokes because I can literally fall asleep on the

> way to the grocery store - 4 blocks away! I have rotten memory and

> concentration!!!! I went to the neurologist a couple years ago for

> that and because I was having such terrible migraine headaches that

I

> was concerned I had a tumor or a " brain worm " or something eating

my

> brain or something....but he did a bunch of tests and said I

> was " normal " and put me on Topomax - a seizure preventative that

also

> treats for the prevention of migrains and headaches. It doesn't

seem

> to do anything for concentration or memory though and I think I

have

> early alzheimers (I am only 43)! But, my hormones are getting

wacky

> already too and I am getting very crazy cycles and hot

flashes...and

> the whole 9 yards! That, I can live with. It's the memory loss

and

> concentration and fatigue. But I DO get excellent nutrition and

eat

> very well.

> So, it baffles me.

> You know, I was wondering, if food is sitting in the esophagus for

a

> few hours...perhaps rotting...then maybe by the time it reaches

your

> stomoch you are not getting anything of value. Sometimes a couple

> hours after eating I feel queezy....I think that is when my LES is

> relaxing and allowing the food to pass....but maybe by then it is

> only rotted stuff and I am sort of always just processing " garbage. "

> Joy

>

>

>

>

>

>

[Guest guest]

Sandi,

Hmmmm? Very interesting.

Well, not sure if I think I am ready to sign myself up for any more

studies at the moment. I don't really want to find out I have

anything else wrong with me or be diagnosed with any other diseases

or problems.

I do have VERY LOW Blood Pressure though if that has anything to

do with it.

Anyway, I will read the article and I do find it very interesting.

Joy

> > Joy,

> > Have you had a sleep study?

> > You sound very much like me. I was just diagnosed with sleep

apnea.

> > You might want to check into it.

> >

> > Sandi

> >

> > Re: Anyone have these symptoms in addition to

> > achalasia?

> >

> > YES..YES...YES...I have these symptoms too. I can fall asleep on

a

> > dime. My husband jokes because I can literally fall asleep on

the

> > way to the grocery store - 4 blocks away! I have rotten memory

and

> > concentration!!!! I went to the neurologist a couple years ago

for

> > that and because I was having such terrible migraine headaches

that

> I

> > was concerned I had a tumor or a " brain worm " or something eating

> my

> > brain or something....but he did a bunch of tests and said I

> > was " normal " and put me on Topomax - a seizure preventative that

> also

> > treats for the prevention of migrains and headaches. It doesn't

> seem

> > to do anything for concentration or memory though and I think I

> have

> > early alzheimers (I am only 43)! But, my hormones are getting

> wacky

> > already too and I am getting very crazy cycles and hot

> flashes...and

> > the whole 9 yards! That, I can live with. It's the memory loss

> and

> > concentration and fatigue. But I DO get excellent nutrition and

> eat

> > very well.

> > So, it baffles me.

> > You know, I was wondering, if food is sitting in the esophagus

for

> a

> > few hours...perhaps rotting...then maybe by the time it reaches

> your

> > stomoch you are not getting anything of value. Sometimes a

couple

> > hours after eating I feel queezy....I think that is when my LES

is

> > relaxing and allowing the food to pass....but maybe by then it is

> > only rotted stuff and I am sort of always just

processing " garbage. "

> > Joy

> >

> >

> >

> >

> >

> >