Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 My son is 4 and I began Proefa in mid March also. He has the vocabulary of an adult, but his articulation is pretty bad. At first I thought he had improved, but as time went by I, who was the only one who understood most of his voc., was understanding less and less. Then my mother said she was not understanding anything anymore, where she was understanding his " common " words. I took him off of the suppliments about 3 weeks ago and now he's better than he was prior to taking them. The neighbors have commented on how much they can understand and even strangers are picking up words. I don't know if the suppliments had any play here or not, but for some reason I believe they do. We are seeing a Neurologist this Thursday, so I'm gonna ask her opinion. Maybe they everyone is effected differently. Believe me, I wanted mircles from Proefa, but didn't get them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 We saw the same thing, initially. We poke a hole in the ProEFA capsule and squirt it in our son's juice. I figured he wasn't getting the full dose because the oil coats the Dixie cup and the straw and not all of it comes out of the capsule, so we went ahead and decided to give him 2 a day. We saw even more improvement after the increase in dosage. At our last therapy session, the therapist said that she feels we're not really dealing with the apraxia so much anymore. The problem now is the hypotonia (low muscle tone) in his mouth that is a left-over result of the apraxia. I don't expect to see anymore improvement from the ProEFA because I don't think it affects muscle tone, only brain connections. But, I'm certainly not going to stop giving it to him yet! Hope this helps a bit. TJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 Hi, I would not stop giving the ProEFA. Adam has reached several plateaus (that is typical of Apraxia) and then after a while, improves again. If you read the posts you will see that apraxic children learn and progress in stages. From what I have read, most who discontinue the ProEFA see regression and that is not what you want. As far as increasing the dosage, have you read The LCP Solution by Stordy (available through CHERAB foundation)? It gives alternative ways for getting EFA's if you are not comfortable increasing the dosage. The book also give amounts that children should receive based on age. It really is a great investment for any parent with an apraxic child. You may want to consider reading the book before deciding where to go from here. One last thing - try alternative ways to get your little one to take the ProEFA. Adam has his in his juice in the AM. I pop a hole in the pill and squeeze the liquid out (perfectly safe). I put it in a dixie cup with a straw and some OJ to minimize the fishy smell and he drinks it up. Good luck. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2001 Report Share Posted June 26, 2001 Hi - my 38 month old daughter began taking PRO EFA about 3 months ago. We saw an improvement after about two weeks and then a plateau. Approximately, 6 weeks ago, we began giving her 2 capsules per day (I squeeze it into applesauce every night after dinner, for dessert). We saw dramatic improvement. She began putting two and three words together and her pronunciation became much better. In fact, I had not told her SLP that I had increased the dose, and she was remarking on how much better she had gotten over the last few weeks. Then I revealed the " secret " . In addition, I spoke to a chiropractor who is familiar with the dosages and he said that it is such a low dose, he is surprised that it has so much effect! Anyway, Hannah is now stringing three and four words together, this morning she said " barney, I wuv u " . Amazing !!! In addition, her tone is different from other children, but am told this is common with apraxia. She sound southern and we live in PA! Her SLP recently commented that she is " atypical " apraxic, because she can now say the final " R " in words! No explanation, other than a lot of therapy and the PRO-EFA! Kate, mother to Maggie, 7 and Hannah, 3 verbal apraxia & hypotonia > My 5 yr old dyspraxic son has been taking 1 PRO EFa and 1 Childrens > DHA each day since mid March. Originally, I saw alot of improvement > in his speech and motor skills. However, since about 1 or 2 months >on the supplements, I am not noticing any more improvements. He sems >to have hit a stand still. I am curious, has anyone else experienced > this and is there anything else I can do. I've considered giving >him 2 PRO EFA a day but am sceptical. IF I start that...when does it >end? Will he improve for 1 month and then hit a stand still again? It >has also taken me quite a bit of coaxing to even get him to take it. I > can't imagine the struggle we would have to go through if he had to > take it 2x a day. He is only ok with taking the Childrens DHA >because it tastes so much better than the PRO EFA (he chews the pro efa). > Should I stop giving him the PRO EFA? I am scared to do this for > fear that he will regress. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.