Re: Cleveland Clinic Seminar Info

[Guest guest]

Saturday they’ll be discussing Achalasia, so I think we should attend the Saturday Seminar…we

could have our party on Friday!

Seriously speaking, I would love to do this, but only for the one day!

Sandi

Cleveland

Clinic Seminar Info

For

anyone who would seriously like to attend the seminar on April 16-17

that Maggie posted:

The Fourth Bi-annual Esophageal Symposium

http://www.clevelandclinicmeded.com/summit/esophageal/about.htm

Here's

the info:

For

non-health-professionals, the fee is the same as the " nurse fee " --

$250 for the full 2-day seminar, or $135/day if only attending one day (either

Friday or Saturday.)

Anyone

game?

Deb

[Guest guest]

Hop on a plane to DTW on Thurs. afternoon/evening (well, your afternoon *is* DTW's evening!) or anytime Friday, and I'll pick you up at the airport and drive us down to Cleveland.

Any other takers? Party in Cleveland.... come spend your tax refund! Deb

Saturday they’ll be discussing Achalasia, so I think we should attend the Saturday Seminar…we could have our party on Friday!

Seriously speaking, I would love to do this, but only for the one day!

Sandi

For anyone who would seriously like to attend the seminar on April 16-17 that Maggie posted:

The Fourth Bi-annual Esophageal Symposium

http://www.clevelandclinicmeded.com/summit/esophageal/about.htm

Here's the info:

For non-health-professionals, the fee is the same as the "nurse fee" -- $250 for the full 2-day seminar, or $135/day if only attending one day (either Friday or Saturday.)

Anyone game?Deb

[Guest guest]

Maybe there’d be a connecting flight

in Phoenix! *wink* *wink*

Sandi

Re: Cleveland

Clinic Seminar Info

Hop

on a plane to DTW on Thurs. afternoon/evening (well, your afternoon *is*

DTW's evening!) or anytime Friday, and I'll pick you up at the airport and

drive us down to Cleveland.

Any

other takers? Party in Cleveland.... come spend your tax refund!

Deb

Saturday they’ll be

discussing Achalasia, so I think we should attend the Saturday Seminar…we

could have our party on Friday!

Seriously

speaking, I would love to do

this, but only for the one day!

Sandi

For

anyone who would seriously like to attend the seminar on April 16-17

that Maggie posted:

The Fourth Bi-annual Esophageal

Symposium

http://www.clevelandclinicmeded.com/summit/esophageal/about.htm

Here's

the info:

For

non-health-professionals, the fee is the same as the " nurse fee " --

$250 for the full 2-day seminar, or $135/day if only attending one day (either

Friday or Saturday.)

Anyone

game?

Deb

[Guest guest]

Whaddya say, notan..... feel like giving The Establishment a run for their money w/ us???Deb

Maybe there’d be a connecting flight in Phoenix! *wink* *wink*

Sandi

Hop on a plane to DTW on Thurs. afternoon/evening (well, your afternoon *is* DTW's evening!) or anytime Friday, and I'll pick you up at the airport and drive us down to Cleveland.

Any other takers? Party in Cleveland.... come spend your tax refund! Deb

Saturday they’ll be discussing Achalasia, so I think we should attend the Saturday Seminar…we could have our party on Friday!

Seriously speaking, I would love to do this, but only for the one day!

Sandi

For anyone who would seriously like to attend the seminar on April 16-17 that Maggie posted:

The Fourth Bi-annual Esophageal Symposium

http://www.clevelandclinicmeded.com/summit/esophageal/about.htm

Here's the info:

For non-health-professionals, the fee is the same as the "nurse fee" -- $250 for the full 2-day seminar, or $135/day if only attending one day (either Friday or Saturday.)

Anyone game?Deb

[Guest guest]

Oh how I wish I could go! Those of you who do need to take copious notes for

all of us. In a perfect world, we would all go, and we would carry picket signs

on the sidewalk calling for increased research for Achalasia! All, what is it,

471 of us now? What a great pipe dream!

in Houston

> For anyone who would seriously like to attend the seminar on April 16-17 that

Maggie posted:

>

> The Fourth Bi-annual Esophageal Symposium

>

> http://www.clevelandclinicmeded.com/summit/esophageal/about.htm

>

> Here's the info:

>

> For non-health-professionals, the fee is the same as the " nurse fee " -- $250

for the full 2-day seminar, or $135/day if only attending one day (either Friday

or Saturday.)

>

> Anyone game?

>

> Deb

[Guest guest]

Oh how I wish I could go! Those of you who do need to take copious notes for

all of us. In a perfect world, we would all go, and we would carry picket signs

on the sidewalk calling for increased research for Achalasia! All, what is it,

471 of us now? What a great pipe dream!

in Houston

> For anyone who would seriously like to attend the seminar on April 16-17 that

Maggie posted:

>

> The Fourth Bi-annual Esophageal Symposium

>

> http://www.clevelandclinicmeded.com/summit/esophageal/about.htm

>

> Here's the info:

>

> For non-health-professionals, the fee is the same as the " nurse fee " -- $250

for the full 2-day seminar, or $135/day if only attending one day (either Friday

or Saturday.)

>

> Anyone game?

>

> Deb

[Guest guest]

Sandi wrote:

Maybe

there’d be a connecting flight in Phoenix! *wink* *wink*

You made my day! I don't

see me going to it though. A get together would be fun, but a conference

is an iffy thing for me. I would have to have a high expectation that

some thing would be better if I attended the conference, but I don't have

that expectation. It could happen, but at this point I see no reason to

expect much. Sorry if I am a wet blanket. This is just me, and I am not

saying you or others would not enjoy it.

notan

[Guest guest]

Notan wrote:

A get together would be fun

That’s the icing on the cake!

Sandi

[Guest guest]

, it would be awesome if you could come too !!!!

I'm thinking we could make up some BRIGHT shirts (fluorescent yellow?) that say things like:

"Think you know what Achalasia is? Ask me for The Real Story!"

"Achalasia -- What's in YOUR esophagus?!"

"Has your child ever watched you hurl your supper into the kitchen sink? Then you DON'T know what achalasia really is!"

Hey Boston Pete (and everyone else) -- can you come up with some other catchy phrases for us???? I'm thinking of stuff that's likely to make people really take the initiative to talk to us.....

Deb

Shoot!! I wish I could go too! Ohio is a bit far from New York. You guys are our representatives though! I'm gonna be VERY jealous of you all having a party and me not being there! I'm with ...take notes for us! (and maybe some pictures too?!)

Okay, I couldn't help myself. I checked on Expedia.com for flight prices and it's not bad at all! Round trip from NY to Cleveland is only $161. Hmm.....since it's a weekend thing and I won't miss any work time (being I took 2 1/2 weeks off only a month ago for my recovery), I can actually consider this!

[Guest guest]

notan wrote:

I would have to have a high expectation that some thing would be better if I attended the conference, but I don't have that expectation. It could happen, but at this point I see no reason to expect much.

The way I look at it is that I'm not gonna "change the whole face of achalasia" by going there and talking to some of the participants, but if I can make even ONE GI doc think of achalasia differently (better!), then I will have "made something better" for someone down the road.

Ideally, I'd like to be able to let several docs know what it's like to LIVE with this disease, what it's like to live with the NCCP's/spasm pains (and why it's unnecessary!), what it's like to be told "it's all in your head", etc.

I don't think that my attendance is gonna change anything for me personally with regards to my own treatment/progress, but I do think that I can have an influence on healthcare providers and/or researchers, which has the potential to change things for many more achalasia patients for years to come.

)

Debbi, hoping she talked notan into coming to the Symposium!

[Guest guest]

, I hope you can come too!

Deb…I like:

“Achalasia—What’s in YOUR esophagus?” But I don’t

want to wear a T-Shirt to a Medical Symposium. I think professional dress is

more appropriate. Buttons would be good though!

I’m on my way out the door now, but I’m

going to try and give you a call this afternoon around 3:00pm (my time), will you be home from work yet?

Anybody else coming?

Sandi

Re: Re:

Cleveland Clinic Seminar Info

,

it would be awesome if you could come too !!!!

I'm

thinking we could make up some BRIGHT shirts (fluorescent yellow?) that say

things like:

" Think

you know what Achalasia is? Ask me for The Real Story! "

" Achalasia

-- What's in YOUR esophagus?! "

" Has

your child ever watched you hurl your supper into the kitchen sink? Then

you DON'T know what achalasia really is! "

Hey

Boston Pete (and everyone else) -- can you come up with some other catchy

phrases for us???? I'm thinking of stuff that's likely to make people

really take the initiative to talk to us.....

Deb

Shoot!! I wish I could go too! Ohio is a bit far

from New York. You guys are our representatives though!

I'm gonna be VERY jealous of you all having a party and me not being

there! I'm with ...take notes for us! (and maybe some pictures

too?!)

Okay, I

couldn't help myself. I checked on Expedia.com for flight prices and it's

not bad at all! Round trip from NY to Cleveland is only $161.

Hmm.....since it's a weekend thing and I won't miss any work time (being I took

2 1/2 weeks off only a month ago for my recovery), I can actually consider

this!

[Guest guest]

Debbi Heiser wrote:

NCCP's/spasm

pains (and why it's unnecessary!),

Achalasia + NCCP's = A Pain in the Neck! Visits to

the ER and Lost Work.

what

it's like to be told " it's all in your head " , etc.

Achalasia:

It's NOT all in My Head!

Not Bulimic, Not Anorexic!

Years of Misdiagnoses.

My LES is Hypertensive, Why Are You Treating Me for GERD?

Achalasia = Fear of Social Eating, Sleepless Nights, and Lost Work

Days.

Hey Doc!

How Many More Failed Myotomies, Dilations and Botox?

How Old are Your Manometers and Scopes? Were They Used in the Spanish

Inquisition?

Manometries and Scopings Should NOT Be Torture!

Antidepressants and Anticonvulsants Help NCCPs.

What About Drugs for Neuropathy?

Visit Us at

achalasia

Thanks for Helping us!!!

notan

[Guest guest]

Visit us atachalasia

This is the one I vote for, Notan! The more dialog, the better!

Not that I can go...I will be busy getting ready for my myotomy on the 19th! However, just an observation to those of you attending this medical conference....I think it is great that you are going. I also think that both you & they can learn from one another & an approachable & teachable spirit will serve everyone best. Obviously, any MD there is there to learn. Have fun & keep us posted! Cindi

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