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Re: My consolt

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Steve, you can read about manometry (the pressure test) in the folder about "testing" in the Links section. You can also search the archives for keyword "manometry" to see our personal experiences, etc.

And there are posts just yesterday/today about the subject, too. I listed some "things to keep in mind" in a rather long post about 's manometry this week, too.Debbi

Well yesterday I went to Portland, ME where I met with Dr. Cobean. He talked about having surgery on me whilst it is still in a early stage. But before he does that with me he would like me to do the pressure test, just to make sure 100% that I have acalasia. Has anyone else had this test done? Will I be knocked out when doing it, because it dosn't sound to pleasent having a tube stuck up my nose. :(Anyways, thanks for reading :)Steve

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Steve,

They don’t put you under for the manometry, but they should give you something to either spray

or snuff up your nose to numb it.

I don’t think the manometry is too terrible. I guess maybe it’s

different for everyone depending on what you go in expecting and how bad your

symptoms are…I know one of the times I went in I had a sinus infection

and that made it much more difficult, but still, it was not that bad…. I

just gagged a little more.

The first couple of times I had the manometry, I gagged and gurged up

water all over the technician, but it’s not painful. It’s just a

little humiliating! Just try to relax. The most difficult part is getting it

through the LES. It keeps coiling up at the bottom of the esophagus. I find it

much easier to swallow the tube through if I’m in a sitting position

instead of laying on my side like they usually

position me. Hopefully you’ll have an understanding technician. Don’t

be afraid to explain to them about your condition, and let them know any tricks

that might work better for you. I sit up with my left arm back behind my head

and this seems to help stretch my esophagus to make it go through easier, and I’ll take a few hard swallows to try to

force it through…but this won’t work for everyone. After a couple

of years of my LES being closed tightly, I started realizing that I could force

food through by swallowing air and water.

Welcome to the group, and good luck with

your manometry. I hope you’ll keep us posted!

I had a manometry

w/dor fundoplication going

on 2 years now, and I’m doing really well with my achalasia.

Sandi in No CA

Holt-

My consolt

Well yesterday I went to Portland, ME where I met with

Dr. Cobean. He

talked about having surgery on me whilst it is

still in a early

stage. But before he does that with me he would

like me to do the

pressure test, just to make sure 100% that I have

acalasia. Has

anyone else had this test done? Will I be knocked

out when doing it,

because it dosn't sound to pleasent having a tube

stuck up my nose. :(

Anyways, thanks for reading :)

Steve

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Sandi,

Thanks for this description. I'm about to schedule my first manometry in decades. I barely remember the first one. I've just been hoping the technique and equipment have gotten better. It helps to know what to expect..

Aloha,

(in Honolulu)

RE: My consolt

Steve,

They don’t put you under for the manometry, but they should give you something to either spray or snuff up your nose to numb it.

I don’t think the manometry is too terrible. I guess maybe it’s different for everyone depending on what you go in expecting and how bad your symptoms are…I know one of the times I went in I had a sinus infection and that made it much more difficult, but still, it was not that bad…. I just gagged a little more.

The first couple of times I had the manometry, I gagged and gurged up water all over the technician, but it’s not painful. It’s just a little humiliating! Just try to relax. The most difficult part is getting it through the LES. It keeps coiling up at the bottom of the esophagus. I find it much easier to swallow the tube through if I’m in a sitting position instead of laying on my side like they usually position me. Hopefully you’ll have an understanding technician. Don’t be afraid to explain to them about your condition, and let them know any tricks that might work better for you. I sit up with my left arm back behind my head and this seems to help stretch my esophagus to make it go through easier, and I’ll take a few hard swallows to try to force it through…but this won’t work for everyone. After a couple of years of my LES being closed tightly, I started realizing that I could force food through by swallowing air and water.

Welcome to the group, and good luck with your manometry. I hope you’ll keep us posted!

I had a manometry w/dor fundoplication going on 2 years now, and I’m doing really well with my achalasia.

Sandi in No CA

Holt-

-----Original Message-----From: sjdownie83 [mailto:sjdownie83@...] Sent: Wednesday, February 11, 2004 10:37 AMachalasia Subject: My consolt

Well yesterday I went to Portland, ME where I met with Dr. Cobean. He talked about having surgery on me whilst it is still in a early stage. But before he does that with me he would like me to do the pressure test, just to make sure 100% that I have acalasia. Has anyone else had this test done? Will I be knocked out when doing it, because it dosn't sound to pleasent having a tube stuck up my nose. :(Anyways, thanks for reading :)Steve

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Aloha ,

I’m sure they have much more

advanced equipment now than they did 25 years ago. I just had a manometry last October (by choice…it was a little

experiment) and I was the first one with achalasia to

be tested with the new equipment. The technicians were all fascinated and

understanding with my achalasia and made me very

comfortable and let me do anything I needed to do to get the “tube sensor

thingamabob” to go down. The only bad thing about the experience was that

the computer wasn’t responding correctly, so she jabbed me with her

fingers several times in the area of my LES to test to see if the sensor had

gone down through the LES (which it hadn’t) and the jabbing was quite

painful. I was afraid she had done some damage to my myotomy,

but I was ok after a few days. I don’t know what she was thinking jabbing

me like she did…she knew I had recently had surgery. It made me mad that

she did this to me, but otherwise, she was very nice and understanding. Once I

did my little “tricks” for getting the tube down, everything was

fine. They have this really good numbing gel now and I didn’t even feel the

tube going down. I remember asking the technician if the sensor was past my

throat yet, and it was already down in my esophagus!

I hope you have a good experience. There’s

nothing pleasant about it by any means, but I actually found it quite

interesting (I’m kind of weird that way), as it was showing that I had

some movement that I didn’t have before.

Sandi

Holt-

Re: My

consolt

Sandi,

Thanks for this description.

I'm about to schedule my first manometry in decades. I barely remember

the first one. I've just been hoping the technique and equipment have

gotten better. It helps to know what to expect..

Aloha,

(in Honolulu)

My consolt

Well yesterday I went to Portland, ME where I met with Dr.

Cobean. He

talked about having surgery on me whilst it is

still in a early

stage. But before he does that with me he would

like me to do the

pressure test, just to make sure 100% that I have

acalasia. Has

anyone else had this test done? Will I be knocked

out when doing it,

because it dosn't sound to pleasent having a tube

stuck up my nose. :(

Anyways, thanks for reading :)

Steve

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