RE: Neurologists for Achalasia

[Guest guest]

My doctor has decided that I should see a

neurologist for my achalasia and neuropathy. Funny, I’ve

been thinking this all along, and now that I have the appointment, I’m a

little afraid about going. I wonder if he’ll have any brilliant ideas

about achalasia…or if he’ll even know

what it is. :-)

If anyone can think of any questions for

me to ask of the neurologist, feel free to share your thoughts/ideas with me.

, you are the only one I know of who

is seeing a neurologist about achalasia. Do you find

the neurologist to be of any help to you?

Thanks,

Sandi

Holt-

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To visit your group on the

web, go to:

achalasia/

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[Guest guest]

Sandi, I would ask about the use of various medications for treating the NCCPs -- anti-convulsants and anti-depressants seem to have an interesting effect, and I'd like to hear a neurologist's take on the "nerve pain" angle that's been discussed here.

I'll also like to know what he thinks our NCCPs are -- spasms? wrong signals being sent by nerves in the esophagus? misinterpretation of those signals by the brain? etc.

And any insight into "nerve regeneration" with regards to achalasia.

If I think of anything else, I'll pass it along.

Deb

[Guest guest]

It will be interesting to see what he says. I went to one about six years ago and he said there was no evidence to suggest that it had anything to do with neuropathy. I still wonder.

F

RE: Neurologists for Achalasia

My doctor has decided that I should see a neurologist for my achalasia and neuropathy. Funny, I’ve been thinking this all along, and now that I have the appointment, I’m a little afraid about going. I wonder if he’ll have any brilliant ideas about achalasia…or if he’ll even know what it is. :-)

If anyone can think of any questions for me to ask of the neurologist, feel free to share your thoughts/ideas with me.

, you are the only one I know of who is seeing a neurologist about achalasia. Do you find the neurologist to be of any help to you?

Thanks,

Sandi

Holt-

[Guest guest]

Holt- wrote:

>... think of any questions for me to ask of the neurologist, feel free to

>share your thoughts/ideas with me.

>

You could ask him about biofeedback and also if there are things we should

avoid for the sake of our nerves.

notan

[Guest guest]

In a message dated 1/23/2004 3:47:02 PM Eastern Standard Time, efitzgar@... writes:

The main side affect is sleep depravation. I have wondered for sometime if anyone in this group suffers from this as well.

F

I have a form of insommnia which involves waking up after only a couple hours sleep every night, if that counts!

Jan in Northern Kentucky

[Guest guest]

Thank you Debbi,

I’ll print this up and take it with

me when I go to see him. I have an appt. on March 15th. I hear this

doctor is very good and very thorough and asks a lot of questions, so I’d

like to be readily prepared with questions and concerns.

Sandi

Holt-

Re:

Neurologists for Achalasia

Sandi,

I would ask about the use of various medications for treating the NCCPs --

anti-convulsants and anti-depressants seem to have an interesting effect, and

I'd like to hear a neurologist's take on the " nerve pain " angle

that's been discussed here.

I'll

also like to know what he thinks our NCCPs are -- spasms? wrong signals being

sent by nerves in the esophagus? misinterpretation of those signals by

the brain? etc.

And

any insight into " nerve regeneration " with regards to achalasia.

If I

think of anything else, I'll pass it along.

Deb

Groups Links

·

To visit your group on the

web, go to:

achalasia/

·

[Guest guest]

I agree , it will be interesting. They

know a lot more about achalasia now than they did six

years ago. Seeing as though achalasia is a

neurodegenerative disease and people with diseases like MS, Parkinsons

and scleroderma are treated by neurologists,

it only makes sense to me that we should see a neurologist as well. I wonder if

there are other tests other than manometry and endoscopopy tests that should be done for achalasia. I have a history of multiple sclerosis in my

family, and MS is diagnosed by an MRI. MS is always in the back of my mind as

one of my major concerns for myself. I have really bad leg pain and numbness

and I’m hoping it’s just from having degenerative disk disease.

I think I need to hear the words, “Good

News, you don’t have MS” so I can just put this out of my head.

Thanks for listening.

Sandi

Holt-

Re:

Neurologists for Achalasia

It will be interesting to see what

he says. I went to one about six years ago and he said there was no evidence to

suggest that it had anything to do with neuropathy. I still wonder.

F

RE:

Neurologists for Achalasia

My doctor has decided

that I should see a neurologist for my achalasia and neuropathy. Funny,

I’ve been thinking this all along, and now that I have the appointment,

I’m a little afraid about going. I wonder if he’ll have any

brilliant ideas about achalasia…or if he’ll even know what it is.

:-)

If anyone can think of

any questions for me to ask of the neurologist, feel free to share your

thoughts/ideas with me.

, you are the only

one I know of who is seeing a neurologist about achalasia. Do you find the

neurologist to be of any help to you?

Thanks,

Sandi

Holt-

Groups Links

· To

visit your group on the web, go to:

achalasia/

·

[Guest guest]

notan,

I’ve been reading the discussions

between you and (from Honolulu) but I’m not really clear on the whole biofeedback concept. I’ll

have do some reading about this.

I’ll definitely add the things we

should avoid for the sake of our nerves to my list, as well as things we can do

to help our nerves.

Thank you…you’re always such a

great help.

Sandi

Holt-

RE:

Neurologists for Achalasia

Holt- wrote:

>... think of any questions for me to ask of

the neurologist, feel free to

>share your thoughts/ideas with me.

>

You could ask him about biofeedback and also if

there are things we should

avoid for the sake of our nerves.

notan

Groups Links

·

To visit your group on the

web, go to:

achalasia/

·

[Guest guest]

Your mentioning leg pain reminded why I went to a neurologist in the first place. I have suffered from RLS (restless leg syndrome) which sounds rather innocuous but can be devastating. It involves a tingling, creeping feeling in the legs and pain that can only be helped by moving the legs, getting up and walking. I was given a medicine for Parkinson's disease that works for some but not for me. The main side affect is sleep depravation. I have wondered for sometime if anyone in this group suffers from this as well.

F

RE: Neurologists for Achalasia

My doctor has decided that I should see a neurologist for my achalasia and neuropathy. Funny, I’ve been thinking this all along, and now that I have the appointment, I’m a little afraid about going. I wonder if he’ll have any brilliant ideas about achalasia…or if he’ll even know what it is. :-)

If anyone can think of any questions for me to ask of the neurologist, feel free to share your thoughts/ideas with me.

, you are the only one I know of who is seeing a neurologist about achalasia. Do you find the neurologist to be of any help to you?

Thanks,

Sandi

Holt-

[Guest guest]

I know the feeling well ! Thanks for

sharing this. Sometimes I just jump out of bed at night and walk around the

house because I can’t stand that creeping feeling.

Sandi

Holt-

Re:

Neurologists for Achalasia

Your mentioning leg pain

reminded why I went to a neurologist in the first place. I have suffered

from RLS (restless leg syndrome) which sounds rather innocuous but can be

devastating. It involves a tingling, creeping feeling in the legs and pain that

can only be helped by moving the legs, getting up and walking. I was given a

medicine for Parkinson's disease that works for some but not for me. The main

side affect is sleep depravation. I have wondered for sometime if anyone in

this group suffers from this as well.

F

RE:

Neurologists for Achalasia

My

doctor has decided that I should see a neurologist for my achalasia and neuropathy.

Funny, I’ve been thinking this all along, and now that I have the

appointment, I’m a little afraid about going. I wonder if he’ll

have any brilliant ideas about achalasia…or if he’ll even know what

it is. :-)

If

anyone can think of any questions for me to ask of the neurologist, feel free

to share your thoughts/ideas with me.

,

you are the only one I know of who is seeing a neurologist about achalasia. Do

you find the neurologist to be of any help to you?

Thanks,

Sandi

Holt-

Groups Links

·

To visit your group on the

web, go to:

achalasia/

·

[Guest guest]

Yes! I have RLS too! I called it the heebie jeebies b/c I didn't

know what it was. But I have to shake my leg or walk around or try

and go to sleep. It happens most when I am really tired.

Diane

> Your mentioning leg pain reminded why I went to a neurologist in

the first place. I have suffered from RLS (restless leg syndrome)

which sounds rather innocuous but can be devastating. It involves a

tingling, creeping feeling in the legs and pain that can only be

helped by moving the legs, getting up and walking. I was given a

medicine for Parkinson's disease that works for some but not for me.

The main side affect is sleep depravation. I have wondered for

sometime if anyone in this group suffers from this as well.

> F

>

> RE: Neurologists for Achalasia

>

>

>

> My doctor has decided that I should see a neurologist for my

achalasia and neuropathy. Funny, I've been thinking this all along,

and now that I have the appointment, I'm a little afraid about

going. I wonder if he'll have any brilliant ideas about achalasia.or

if he'll even know what it is. :-)

>

> If anyone can think of any questions for me to ask of the

neurologist, feel free to share your thoughts/ideas with me.

>

>

>

> , you are the only one I know of who is seeing a

neurologist about achalasia. Do you find the neurologist to be of

any help to you?

>

> Thanks,

>

> Sandi

>

>

>

> Holt-

>

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>

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[Guest guest]

My sister also has RLS, and she says it’s

from sugar. She has MS and the RLS is a big problem for her. If she eats/drinks

anything with sugar before bedtime or going on a long drive, her legs drive her

crazy.

Sandi

Holt-

Re:

Neurologists for Achalasia

Yes! I have RLS too! I called it the

heebie jeebies b/c I didn't

know what it was. But I have to shake my leg

or walk around or try

and go to sleep. It happens most when I am

really tired.

Diane

> Your mentioning leg pain reminded why I went

to a neurologist in

the first place. I have suffered from RLS

(restless leg syndrome)

which sounds rather innocuous but can be

devastating. It involves a

tingling, creeping feeling in the legs and pain

that can only be

helped by moving the legs, getting up and walking.

I was given a

medicine for Parkinson's disease that works for

some but not for me.

The main side affect is sleep depravation. I have

wondered for

sometime if anyone in this group suffers from this

as well.

> F

>

> RE:

Neurologists for Achalasia

>

>

>

> My doctor has decided

that I should see a neurologist for my

achalasia and neuropathy. Funny, I've been

thinking this all along,

and now that I have the appointment, I'm a little

afraid about

going. I wonder if he'll have any brilliant ideas

about achalasia.or

if he'll even know what it is. :-)

>

> If anyone can think

of any questions for me to ask of the

neurologist, feel free to share your

thoughts/ideas with me.

>

>

>

> , you are the

only one I know of who is seeing a

neurologist about achalasia. Do you find the

neurologist to be of

any help to you?

>

> Thanks,

>

> Sandi

>

>

>

> Holt-

>

>

>

>

>

>

>

>

>

>

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[Guest guest]

The RLS research foundations studies indicate that it is related to an iron deficiency in the brain that unfortunately cannot be replenished by taking iron pills. There is a great deal of information about this at http://rls.org there is also a support group here in the if anyone is interested.

F

RE: Neurologists for Achalasia> > > > My doctor has decided that I should see a neurologist for my achalasia and neuropathy. Funny, I've been thinking this all along, and now that I have the appointment, I'm a little afraid about going. I wonder if he'll have any brilliant ideas about achalasia.or if he'll even know what it is. :-)> > If anyone can think of any questions for me to ask of the neurologist, feel free to share your thoughts/ideas with me. > > > > , you are the only one I know of who is seeing a neurologist about achalasia. Do you find the neurologist to be of any help to you? > > Thanks,> > Sandi> > > > Holt-> > > > > > > > > > ----------------------------------------------------------------------------> > > > > > > > ----------------------------------------------------------------------------> >

[Guest guest]

The one thing that I've found consistently correlates to me having a spasm or trouble swallowing is a change in sleep, either too little or a lot more than usual. I'll be fascinated to hear what the neurologists have to say...

(Honolulu)

[Guest guest]

wrote:

The one thing that I've found

consistently correlates to me having a spasm or trouble swallowing is a change

in sleep, either too little or a lot more than usual. I'll be fascinated

to hear what the neurologists have to say...

Aloha ,

Thanks so much for your

response. I’ll be sure to include this in my list as well.

If you have any more

thoughts, please be sure to let me know. I was just reading some info about

biofeedback and it sounds very interesting…thanks for bringing this up.

I hope I didn’t

offend you the other day with my welcome...it certainly wasn’t meant to come

across that way.

Well anyway, welcome

again, it’s great to have you as a member of our group. ;-)

Sandi in No CA

Groups Links

·

To visit your group on the

web, go to:

achalasia/

·

[Guest guest]

Sandi,

No offense at all, I just thought my dictionary translation was funny. I very interested in biofeedback as well. and Notan's references are really interesting.

Aloha,

RE: Neurologists for Achalasia

wrote:

The one thing that I've found consistently correlates to me having a spasm or trouble swallowing is a change in sleep, either too little or a lot more than usual. I'll be fascinated to hear what the neurologists have to say...

Aloha ,

Thanks so much for your response. I’ll be sure to include this in my list as well.

If you have any more thoughts, please be sure to let me know. I was just reading some info about biofeedback and it sounds very interesting…thanks for bringing this up.

I hope I didn’t offend you the other day with my welcome...it certainly wasn’t meant to come across that way.

Well anyway, welcome again, it’s great to have you as a member of our group. ;-)

Sandi in No CA

[Guest guest]

Dr. L. wrote:

>The one thing that I've found consistently correlates to me having a spasm

>or trouble swallowing is a change in sleep, either too little or a lot

>more than usual. I'll be fascinated to hear what the neurologists have to

>say...

Both can cause blood glucose levels to rise. I have noticed other things

people have said that change glucose levels and people report they also

change achalasia symptoms. Stress, low carb diets, and exercise all change

glucose levels. These things also change other things in the blood

chemistry. Even if there are real connections here, one still has to wonder

why these specific nerves and why such small changes would matter. Maybe

because these nerves are already damaged by other things. I find these

things interesting but I don't know what they could mean.

notan

[Guest guest]

notan wrote:

Both can cause blood glucose levels to rise. I

have noticed other things

people have said that change glucose levels and

people report they also

change achalasia symptoms. Stress, low carb diets,

and exercise all change

glucose levels. These things also change other

things in the blood

chemistry. Even if there are real connections

here, one still has to wonder

why these specific nerves and why such small

changes would matter. Maybe

because these nerves are already damaged by other

things. I find these

things interesting but I don't know what they could mean.

notan, here is an interesting article.

It states that “impaired gastric emptying is frequently associated with cardialvagal neuropathy and small-fiber dysfunction. Morphological

changes in the vagus nerve are reported in some, but

not all studies. Recent studies have implicated hyperglycemia as a cause of

impaired gastric and small intestine motility during fasting and after food

intake. Hyperglycemia delays gastric emptying in healthy and diabetic subjects.”

http://neuropathymd.org/pdf/34/Treatment%20of%20Peripheral%20Autonomic%20Dysfunction%20of%20the%20Gastrointestinal%20Tract.pdf

Maybe this is the answer.

Sandi

Groups Links

·

To visit your group on the

web, go to:

achalasia/

·

[Guest guest]

Nobody welcomed me.... :-(

>

>

> The one thing that I've found consistently correlates to me

having a spasm or trouble swallowing is a change in sleep, either

too little or a lot more than usual. I'll be fascinated to hear

what the neurologists have to say...

>

>

>

> Aloha ,

>

> Thanks so much for your response. I'll be sure to include this

in my list as well.

>

> If you have any more thoughts, please be sure to let me know. I

was just reading some info about biofeedback and it sounds very

interesting.thanks for bringing this up.

>

> I hope I didn't offend you the other day with my welcome...it

certainly wasn't meant to come across that way.

>

> Well anyway, welcome again, it's great to have you as a member

of our group. ;-)

>

> Sandi in No CA

>

>

>

>

>

>

> -------------------------------------------------------------------

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>

>

[Guest guest]

I too have legs that "jump" at night, but I do not think it falls into the category of RLS. The cause of my legs jumping is a trapped nerve at about the level of T12 - just about where your ribs end. My spine here is a bit unstable and 'moves' or goes 'out' and a nerve gets trapped. My physio - who puts it all back in the right place again - has noted that when my A is bad so is my back ! Needless to say I seep very badly and very little.

A question for our medical student - which spinal level does the vagus nerve come from and any other nerves involved in A? I can't find my anatomy text book !

Joan

Johannesburg South Africajpearse@...

RE: Neurologists for Achalasia> > > > My doctor has decided that I should see a neurologist for my achalasia and neuropathy. Funny, I've been thinking this all along, and now that I have the appointment, I'm a little afraid about going. I wonder if he'll have any brilliant ideas about achalasia.or if he'll even know what it is. :-)> > If anyone can think of any questions for me to ask of the neurologist, feel free to share your thoughts/ideas with me. > > > > , you are the only one I know of who is seeing a neurologist about achalasia. Do you find the neurologist to be of any help to you? > > Thanks,> > Sandi> > > > Holt-> > > > > > > > > > ----------------------------------------------------------------------------> > > > > > > > ----------------------------------------------------------------------------> >

[Guest guest]

Holt- wrote:

>... " ...Hyperglycemia delays gastric emptying in healthy and diabetic

>subjects. " ...

Thanks, Sandi. That is an interesting page. Some of the references in it

are even more interesting. Check out this one:

" Relationships of Upper Gastrointestinal Motor and Sensory Function With

Glycemic Control "

http://care.diabetesjournals.org/cgi/content/full/24/2/371

The author clearly believes that all of the gut from top to bottom is

effected by glucose levels, including LES pressure, esophageal peristalsis,

and esophageal sensory perception. At some levels affecting one way and at

other levels the opposite way. It is not at all clear to me what this means

for achalasia and nerves that may be damaged and not responding in normal

ways. It is possible that this has nothing to do with the cause/s of

achalasia, but it could have something to say about strategies for dealing

with it.

Those articles don't address hypoglycemia or even the lower end of normal

levels. I would guess that achalasics often are at the lower levels because

some end up eating so little. Also, we have problems after fasting as well

as after meals. In other words we have problems at any level. Still it is

interesting that some seem to have changes in symptoms, such as spasms,

from things that affect glucose levels.

notan

[Guest guest]

Diane wrote:

Nobody welcomed me.... :-(

Diane,

A warm and hearty welcome and AloooooooooHA! to you.

Warm regards,

[Guest guest]

Thank you ...

:-)

My step daughter lived in Hawaii for years - she is a message

therapist... now she lives in Co. Sprgs.

-- In achalasia , " Dr. L. "

<@D...> wrote:

> Diane wrote:

>

>

> Nobody welcomed me.... :-(

>

> Diane,

>

> A warm and hearty welcome and AloooooooooHA! to you.

>

> Warm regards,

>

>