Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Just wanted to share ,I had strep 6 times 2 yrs prior to the symtems starting . I have been very interested in knowing how many had strep! Thanks Amber , Oklahoma sviilano <sviilano@...> wrote: hi, I put a started a poll on strep throat. I am interested in seeing if alot of people has had strep prior to getting A. The strep virus can casuse alot of dammage and I am interested to see if maybe there could be a connection. I know with me about a year prior to my first symptoms I got strep throat and became extreamly ill with it. Thanx dra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 No, I didn't have strep throat prior to the symptoms. But as a child to early teen I used to get it at least once a year, sometimes twice. , NYC > hi, > I put a started a poll on strep throat. I am interested in seeing > if alot of people has had strep prior to getting A. The strep virus > can casuse alot of dammage and I am interested to see if maybe there > could be a connection. I know with me about a year prior to my first > symptoms I got strep throat and became extreamly ill with it. Thanx > dra > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Actually, strep is a bacteria, not a virus. I had multiple strep infections all through high school and my early 20's up until a couple years before my first symptoms (anyone w/ recurrent strep, I *highly* recommend an INJECTED antibiotic -- that's what I did and was strep-free for several years!) Polls have been done in the past here trying to find a common thread and they haven't been very conclusive one way or another. Deb strep throat poll hi, I put a started a poll on strep throat. I am interested in seeing if alot of people has had strep prior to getting A. The strep virus can casuse alot of dammage and I am interested to see if maybe there could be a connection. I know with me about a year prior to my first symptoms I got strep throat and became extreamly ill with it. Thanx dra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Deb said: Actually, strep is a bacteria, not a virus. I had multiple strep infections all through high school and my early 20's up until a couple years before my first symptoms (anyone w/ recurrent strep, I *highly* recommend an INJECTED antibiotic -- that's what I did and was strep-free for several years!) Polls have been done in the past here trying to find a common thread and they haven't been very conclusive one way or another. How true, there’s always got to be someone like me that comes along, saying that I’ve never had strep before. Sorry to be the oddball ! (but happy to say I’ve never had strep!):-) Sandi Holt- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 I had many bout with strep throat as a young boy pre-teen and to the best of my knowledge my Achalasia started at about age 13-14 Fitzgerald strep throat poll > hi, > I put a started a poll on strep throat. I am interested in seeing > if alot of people has had strep prior to getting A. The strep virus > can casuse alot of dammage and I am interested to see if maybe there > could be a connection. I know with me about a year prior to my first > symptoms I got strep throat and became extreamly ill with it. Thanx > dra > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 No strep throat for me, ever. But you tried! Keep thinking - maybe we'll come up with something the Drs haven't! Diane > hi, > I put a started a poll on strep throat. I am interested in seeing > if alot of people has had strep prior to getting A. The strep virus > can casuse alot of dammage and I am interested to see if maybe there > could be a connection. I know with me about a year prior to my first > symptoms I got strep throat and became extreamly ill with it. Thanx > dra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Don't feel you're the only one, I havent' had it either.... I think it has to do with nerves, and eating too fast, and eating too much meat and animal protein. Perhaps we need to destress early on .... Still searching. > > Deb said: > > Actually, strep is a bacteria, not a virus. > > I had multiple strep infections all through high school and my early > 20's up until a couple years before my first symptoms (anyone w/ > recurrent strep, I *highly* recommend an INJECTED antibiotic -- that's > what I did and was strep-free for several years!) > > Polls have been done in the past here trying to find a common thread and > they haven't been very conclusive one way or another. > > How true, there's always got to be someone like me that > comes along, saying that I've never had strep before. Sorry to be the > oddball ! (but happy to say I've never had strep!):-) > Sandi > > Holt- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 I never had strep throat. But I believe I had the mumps when I was about 5. Genia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 People who have high stress levels have it, people who have low stress levels have it. People who had strep have it, people who didn't have strep have it. People who had dental work done have it, people who didn't have dental work done have it. People who had chicken pox have it, people who didn't have chicken pox have it. People who eat meat have it, people who are vegetarians have it. ALSO: People who have high stress levels DON'T have it, people who have low stress levels DON'T have it. People who had strep DON'T have it, people who didn't have strep DON'T have it. People who had dental work done DON'T have it, people who didn't have dental work done DON'T have it. People who had chicken pox DON'T have it, people who didn't have chicken pox DON'T have it. People who eat meat DON'T have it, people who are vegetarians DON'T have it. Given what we do and don't know about it, I'm inclined to think that it's a genetic predisposition towards the disease, with multiple potential triggers. But to try to blame it ONLY on meat or ONLY on stress, etc., is just being too simplistic -- using that same logic, then if most of us have had days when we even had trouble getting plain water down, then WATER would be the cause. There's a much bigger picture that needs to be examined here. Debbi Don't feel you're the only one, I havent' had it either....I think it has to do with nerves, and eating too fast, and eating too much meat and animal protein. Perhaps we need to destress early on ....Still searching. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Debbi Heiser wrote: >...I'm inclined to think that it's a genetic predisposition towards the >disease, with multiple potential triggers. It fits. And that genetic predisposition would be so weak that most people with the genes don't get achalasia. And the triggers are also weak and even with the genes and the triggers you probably still would not get achalasia. We are just very unlucky. Although, I have to say it has been nice getting to know you people. :-) > ...using that same logic, then if most of us have had days when we even > had trouble getting plain water down, then WATER would be the cause. Actually, my fist problem getting things down was with drinks not food. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Hi Debbi, It just seems that stress, an empty stomach, eating too fast and EARLY ON eating meat are triggers. Yes water can even be hard to swallow, but not eartly on. Early on it is usually meat that is the most common culpret. Most people I have read about say NO to the strep question, but most say yes to stress and meat and eating too fast. SOOOOOO, keep this all in mind when trying to treat and care for ourselves the best we can, using wisdom and discernment from God. Let's keep asking questions and keep moving forward. The body has the power to heal itself in many many cases. A helathy imune system is the one necessary thing we all need to aid in the healing from any condition. I'm finding ways to build my immune system up and not tear it down. And I haven't had an episode in over 3 weeks! Thank God! Just wanted to pass some of what I've " learned " along. With love and peace, Diane in Fl. > People who have high stress levels have it, people who have low stress levels have it. > People who had strep have it, people who didn't have strep have it. > People who had dental work done have it, people who didn't have dental work done have it. > People who had chicken pox have it, people who didn't have chicken pox have it. > People who eat meat have it, people who are vegetarians have it. > > ALSO: > > People who have high stress levels DON'T have it, people who have low stress levels DON'T have it. > People who had strep DON'T have it, people who didn't have strep DON'T have it. > People who had dental work done DON'T have it, people who didn't have dental work done DON'T have it. > People who had chicken pox DON'T have it, people who didn't have chicken pox DON'T have it. > People who eat meat DON'T have it, people who are vegetarians DON'T have it. > > Given what we do and don't know about it, I'm inclined to think that it's a genetic predisposition towards the disease, with multiple potential triggers. > > But to try to blame it ONLY on meat or ONLY on stress, etc., is just being too simplistic -- using that same logic, then if most of us have had days when we even had trouble getting plain water down, then WATER would be the cause. There's a much bigger picture that needs to be examined here. > > Debbi > > Don't feel you're the only one, I havent' had it either.... > > I think it has to do with nerves, and eating too fast, and eating > too much meat and animal protein. Perhaps we need to destress early > on .... > Still searching. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Actually I disagree about the meat. I found bread and potatoes difficult early on. I also can't see meat " triggering " achalasia. Diane, have you had any treatments for your A? What tests have you gone through and how long have you been diagnosed? Just curious. , NYC > > People who have high stress levels have it, people who have low > stress levels have it. > > People who had strep have it, people who didn't have strep have it. > > People who had dental work done have it, people who didn't have > dental work done have it. > > People who had chicken pox have it, people who didn't have chicken > pox have it. > > People who eat meat have it, people who are vegetarians have it. > > > > ALSO: > > > > People who have high stress levels DON'T have it, people who have > low stress levels DON'T have it. > > People who had strep DON'T have it, people who didn't have strep > DON'T have it. > > People who had dental work done DON'T have it, people who didn't > have dental work done DON'T have it. > > People who had chicken pox DON'T have it, people who didn't have > chicken pox DON'T have it. > > People who eat meat DON'T have it, people who are vegetarians > DON'T have it. > > > > Given what we do and don't know about it, I'm inclined to think > that it's a genetic predisposition towards the disease, with > multiple potential triggers. > > > > But to try to blame it ONLY on meat or ONLY on stress, etc., is > just being too simplistic -- using that same logic, then if most of > us have had days when we even had trouble getting plain water down, > then WATER would be the cause. There's a much bigger picture that > needs to be examined here. > > > > Debbi > > > > Don't feel you're the only one, I havent' had it either.... > > > > I think it has to do with nerves, and eating too fast, and > eating > > too much meat and animal protein. Perhaps we need to destress > early > > on .... > > Still searching. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 Hi , Most I have talked to seem to have found meats to have been the most common trigger, but certainly there are many others. I agree with that. Thanks for your response. These foods are not to blame. There is a common thread in all of us - I am just looking for them. A Dr. here in Palm Beach diagnosed my problem but called it something else - CES; constriction of the esphogial sphincter? (but it is the same thing) and wanted to perform the baloone or slicing surgery for $1,500. He admitted these procedures have to often be repeaated a year or two later, depending on the individual. I didn't feel right about this so I decided to live with it for as long as I possibly could. That was about 5 years ago. I first noticed it toward the end of 1996 when I was 43 I think. I am now 50, but I am told I look 40-something. :-) (pictures in the photo section). I have a sense what the main culpret is, and I will post my opinion of cause and cure later today. All the best, Diane, Florida > > > People who have high stress levels have it, people who have low > > stress levels have it. > > > People who had strep have it, people who didn't have strep have > it. > > > People who had dental work done have it, people who didn't have > > dental work done have it. > > > People who had chicken pox have it, people who didn't have > chicken > > pox have it. > > > People who eat meat have it, people who are vegetarians have it. > > > > > > ALSO: > > > > > > People who have high stress levels DON'T have it, people who have > > low stress levels DON'T have it. > > > People who had strep DON'T have it, people who didn't have strep > > DON'T have it. > > > People who had dental work done DON'T have it, people who didn't > > have dental work done DON'T have it. > > > People who had chicken pox DON'T have it, people who didn't have > > chicken pox DON'T have it. > > > People who eat meat DON'T have it, people who are vegetarians > > DON'T have it. > > > > > > Given what we do and don't know about it, I'm inclined to think > > that it's a genetic predisposition towards the disease, with > > multiple potential triggers. > > > > > > But to try to blame it ONLY on meat or ONLY on stress, etc., is > > just being too simplistic -- using that same logic, then if most of > > us have had days when we even had trouble getting plain water down, > > then WATER would be the cause. There's a much bigger picture that > > needs to be examined here. > > > > > > Debbi > > > > > > Don't feel you're the only one, I havent' had it either.... > > > > > > I think it has to do with nerves, and eating too fast, and > > eating > > > too much meat and animal protein. Perhaps we need to destress > > early > > > on .... > > > Still searching. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 Hi Diane, So you were never officially diagnosed with A? What tests did you go thru to be diagnosed with CES? I agree with Notan that meat doesn't " trigger " achalasia. If that were the case, we'd all be cured. I have achalasia, so when I eat meat I choke. But I can get meat down easier than I can rice. Rice is next to impossible for me and I choke on that the worst. There's no getting it down. I stopped eating rice, but I still eat meat, just not very often. Yes, meat is one of the more difficult things to get down. But I certainly don't blame it for causing A. I'm sorry, but did you say they wanted to do the myotomy for $1500?? That doesn't sound right. I had a growth removed from my index finger that cost more than that and it was an in-office procedure. I suggest you get a second opinion from a different doctor. Uh oh...I feel a spasm coming...GOTTA GO!! :/ , NYC > > > > People who have high stress levels have it, people who have > low > > > stress levels have it. > > > > People who had strep have it, people who didn't have strep > have > > it. > > > > People who had dental work done have it, people who didn't > have > > > dental work done have it. > > > > People who had chicken pox have it, people who didn't have > > chicken > > > pox have it. > > > > People who eat meat have it, people who are vegetarians have > it. > > > > > > > > ALSO: > > > > > > > > People who have high stress levels DON'T have it, people who > have > > > low stress levels DON'T have it. > > > > People who had strep DON'T have it, people who didn't have > strep > > > DON'T have it. > > > > People who had dental work done DON'T have it, people who > didn't > > > have dental work done DON'T have it. > > > > People who had chicken pox DON'T have it, people who didn't > have > > > chicken pox DON'T have it. > > > > People who eat meat DON'T have it, people who are vegetarians > > > DON'T have it. > > > > > > > > Given what we do and don't know about it, I'm inclined to > think > > > that it's a genetic predisposition towards the disease, with > > > multiple potential triggers. > > > > > > > > But to try to blame it ONLY on meat or ONLY on stress, etc., > is > > > just being too simplistic -- using that same logic, then if most > of > > > us have had days when we even had trouble getting plain water > down, > > > then WATER would be the cause. There's a much bigger picture > that > > > needs to be examined here. > > > > > > > > Debbi > > > > > > > > Don't feel you're the only one, I havent' had it either.... > > > > > > > > I think it has to do with nerves, and eating too fast, and > > > eating > > > > too much meat and animal protein. Perhaps we need to > destress > > > early > > > > on .... > > > > Still searching. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 PS: I'm turning 30 in less than 2 weeks, but people think I'm 18!! (see pic). > > > > People who have high stress levels have it, people who have > low > > > stress levels have it. > > > > People who had strep have it, people who didn't have strep > have > > it. > > > > People who had dental work done have it, people who didn't > have > > > dental work done have it. > > > > People who had chicken pox have it, people who didn't have > > chicken > > > pox have it. > > > > People who eat meat have it, people who are vegetarians have > it. > > > > > > > > ALSO: > > > > > > > > People who have high stress levels DON'T have it, people who > have > > > low stress levels DON'T have it. > > > > People who had strep DON'T have it, people who didn't have > strep > > > DON'T have it. > > > > People who had dental work done DON'T have it, people who > didn't > > > have dental work done DON'T have it. > > > > People who had chicken pox DON'T have it, people who didn't > have > > > chicken pox DON'T have it. > > > > People who eat meat DON'T have it, people who are vegetarians > > > DON'T have it. > > > > > > > > Given what we do and don't know about it, I'm inclined to > think > > > that it's a genetic predisposition towards the disease, with > > > multiple potential triggers. > > > > > > > > But to try to blame it ONLY on meat or ONLY on stress, etc., > is > > > just being too simplistic -- using that same logic, then if most > of > > > us have had days when we even had trouble getting plain water > down, > > > then WATER would be the cause. There's a much bigger picture > that > > > needs to be examined here. > > > > > > > > Debbi > > > > > > > > Don't feel you're the only one, I havent' had it either.... > > > > > > > > I think it has to do with nerves, and eating too fast, and > > > eating > > > > too much meat and animal protein. Perhaps we need to > destress > > > early > > > > on .... > > > > Still searching. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 Hi , The Dr. described it the same - just didn't use the exact name, but I have the same experiences many of you have so I know what it is. He wanted to perform stretching of the sphinctor - and since I dind't have insurance at the time (nor do I right now) he said he would charge me $1,500. Honestly, due to Iatrogenic (Dr. induced) dis- ease etc, I don't usually opt for Dr. visits and/or adhere to their recommendations to operate, medicate and treat. I know it may sound different to many of you, but for example, chemo and radiation kill more patients than the cancer they are " treating " . By building up the immune system (by feeding it good, healthy foods and staying OFF the SAD diet) the body will heal itself. Those drugs and severe treatments kill off the immune system further.... If you ever want to know more about this visit www.drday.com Dr. Lorraine Day has a very informative web site... Something told me NOT to have this surgery and I'm glad I didn't. I'm learning how to manage my A. as it's not as bad as so many of some of you seem to experience. I hope and pray, as I do all I can to care for myself, it will not accellerate where I have no choice but to do some of the drastic measures I read about here. A. spasms only strike me once or so a month. One time during an especially stressful period, I had 3 episodes in a week! That was horrible. But nothing since and it's been a few weeks. I eat much slower now. chew chew chew I cut up my meat (which I cut down on) in little pieces b4 I begin. I don't allow myself to get that hungry by eating 4 small meals a day instead of two or three. I drink water before I begin eating to hydrate the esophogus. I deep breath when I'm stressed out, esp. b4 meals. And in general, I try and eat right. (veg juice, lots of raw salads) And the latest thign I've learned is this: Most of us are chronically dehydrated! We must drink 8 glasses of good water a day. Otherwise the body strikes back with pain and other symptoms such as this. Visit this site and you will really get a lot of help. I know I did! Let me know what you think after you read what he says here. http://www.watercure.com/default2.htm So now I am drinking 7 or 8 glasses per day of pure water (I have a Reverse Osmosis machine). I check off each glass on a littel chart I have on the fridge, so I can really see how much I am drinking. I really beleive a lot of what we suffer is from dehydration. Some of us may have a dried out esphogus to no return, but I believe most of us can reverse some of the damage by beginning to drink a LOT of water every day. I have discussed this with many health professionals and nutricianists and truly believe this is something we all might want to look into. All my best wishes, Diane > > > > > People who have high stress levels have it, people who have > > low > > > > stress levels have it. > > > > > People who had strep have it, people who didn't have strep > > have > > > it. > > > > > People who had dental work done have it, people who didn't > > have > > > > dental work done have it. > > > > > People who had chicken pox have it, people who didn't have > > > chicken > > > > pox have it. > > > > > People who eat meat have it, people who are vegetarians have > > it. > > > > > > > > > > ALSO: > > > > > > > > > > People who have high stress levels DON'T have it, people who > > have > > > > low stress levels DON'T have it. > > > > > People who had strep DON'T have it, people who didn't have > > strep > > > > DON'T have it. > > > > > People who had dental work done DON'T have it, people who > > didn't > > > > have dental work done DON'T have it. > > > > > People who had chicken pox DON'T have it, people who didn't > > have > > > > chicken pox DON'T have it. > > > > > People who eat meat DON'T have it, people who are > vegetarians > > > > DON'T have it. > > > > > > > > > > Given what we do and don't know about it, I'm inclined to > > think > > > > that it's a genetic predisposition towards the disease, with > > > > multiple potential triggers. > > > > > > > > > > But to try to blame it ONLY on meat or ONLY on stress, etc., > > is > > > > just being too simplistic -- using that same logic, then if > most > > of > > > > us have had days when we even had trouble getting plain water > > down, > > > > then WATER would be the cause. There's a much bigger picture > > that > > > > needs to be examined here. > > > > > > > > > > Debbi > > > > > > > > > > Don't feel you're the only one, I havent' had it either.... > > > > > > > > > > I think it has to do with nerves, and eating too fast, and > > > > eating > > > > > too much meat and animal protein. Perhaps we need to > > destress > > > > early > > > > > on .... > > > > > Still searching. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 I couldnt' find your pic anywhere! Is it in the photo section? D > > > > > People who have high stress levels have it, people who have > > low > > > > stress levels have it. > > > > > People who had strep have it, people who didn't have strep > > have > > > it. > > > > > People who had dental work done have it, people who didn't > > have > > > > dental work done have it. > > > > > People who had chicken pox have it, people who didn't have > > > chicken > > > > pox have it. > > > > > People who eat meat have it, people who are vegetarians have > > it. > > > > > > > > > > ALSO: > > > > > > > > > > People who have high stress levels DON'T have it, people who > > have > > > > low stress levels DON'T have it. > > > > > People who had strep DON'T have it, people who didn't have > > strep > > > > DON'T have it. > > > > > People who had dental work done DON'T have it, people who > > didn't > > > > have dental work done DON'T have it. > > > > > People who had chicken pox DON'T have it, people who didn't > > have > > > > chicken pox DON'T have it. > > > > > People who eat meat DON'T have it, people who are > vegetarians > > > > DON'T have it. > > > > > > > > > > Given what we do and don't know about it, I'm inclined to > > think > > > > that it's a genetic predisposition towards the disease, with > > > > multiple potential triggers. > > > > > > > > > > But to try to blame it ONLY on meat or ONLY on stress, etc., > > is > > > > just being too simplistic -- using that same logic, then if > most > > of > > > > us have had days when we even had trouble getting plain water > > down, > > > > then WATER would be the cause. There's a much bigger picture > > that > > > > needs to be examined here. > > > > > > > > > > Debbi > > > > > > > > > > Don't feel you're the only one, I havent' had it either.... > > > > > > > > > > I think it has to do with nerves, and eating too fast, and > > > > eating > > > > > too much meat and animal protein. Perhaps we need to > > destress > > > > early > > > > > on .... > > > > > Still searching. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Diane wrote: It just seems that stress, an empty stomach, eating too fast and EARLY ON eating meat are triggers. As I said earlier, I think that some definition of what you mean by "trigger" is in order. Do you mean the trigger for the disease, or the trigger for having diffulty swallowing as a result of the disease? And for each item you mention here, there are also people for whom those issues do NOT apply, and there are lots of people who eat meat quickly when they have an empty stomach while under stress, and they don't all end up with achalasia. This is a pretty complicated disorder, and I doubt that a simple solution is at hand. Yes water can even be hard to swallow, but not eartly on. Early on it is usually meat that is the most common culpret. Again, some people do have trouble with water early on. And I think that bread and rice are right up there with meat on the "hard to swallow early on" list. Most people I have read about say NO to the strep question, but most say yes to stress and meat and eating too fast. Most people would also say yes to having done/experienced about a billion other things in life. How many have had a common cold? had influenza? eaten refined sugar? seen snow? never been to Africa? had diarrhea? experienced the death of a relative? Attributing something that is a common experience to huge numbers of people in general does not correlate to a causative effect in a small subset of the population that shares that same common experience. SOOOOOO, keep this all in mind when trying to treat and care for ourselves the best we can, using wisdom and discernment from God. Let's keep asking questions and keep moving forward. I have no problem with asking questions -- I do it myself from time to time. The body has the power to heal itself in many many cases. A helathy imune system is the one necessary thing we all need to aid in the healing from any condition.I'm finding ways to build my immune system up and not tear it down. And I haven't had an episode in over 3 weeks! Thank God! Just wanted to pass some of what I've "learned" along. Of course everyone has a need for a healthy immune system. However, it's not the ONLY thing that is needed, and even people with extremely healthy immune systems end up terribly ill. My father-in-law's brain aneurysm had nothing to do with his healthy immune system, and his body wasn't able to regenerate the nerves that were damaged as a result of the aneurysm even though he was otherwise extremely healthy. Debbi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Diane wrote: >... Those drugs and severe >treatments kill off the immune system further.... If you ever want >to know more about this visit www.drday.com >Dr. Lorraine Day has a very informative web site... Anyone looking at the site should also take a look at: http://www.quackwatch.org/01QuackeryRelatedTopics/Cancer/day.html Some Notes on Dr. Lorraine Day By Barrett, M.D. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 If anyone wants info about antibiotics and nutrition and the immune system, I can highly recommend a book called Healing Childhood Ear Infections: Prevention, Home Care, and Alternative Treatment by A. Schmidt. Don't let the title fool you, it's about WAY more than just ear infections. It discusses allergies, food sensitivities (not a true allergy, but still a problem), antibiotics, the role of nutrition in the immune system, and homeopathic, herbal, and chiropractic treatments, etc. I recommend it to ANYONE with kids especially, but I think it's beneficial to every human being to know this stuff. My doctor and my son's pediatrician both endorse the book, too, which carries a lot of weight with me that it's not just some "whack job" writing the book. Neither my doctor nor the pediatrician had ever heard of it before I mentioned it to them -- I learned about it from my chiropractor -- so it's not like they had any kind of vested interest in it (I also bought my copy from & Noble, so my chiro didn't even make any money off me, it was just a book he recommended b/c he's seen the difference it can make.) One thing I like about the book is that it doesn't denounce any one method -- I'm always skeptical of anyone who claims "this is THE only way to deal with such-and-such" because we are all different, and what works for Joe's situation might not work for 's situation, etc. It talks about when antibiotics are necessary and when they're not, and when alternative methods are worth a try and when they're not, etc. I kind of consider it to be a "Fox News" kind of book -- fair and balanced. LOLDebbi Diane wrote:>... Those drugs and severe>treatments kill off the immune system further.... If you ever want>to know more about this visit www.drday.com>Dr. Lorraine Day has a very informative web site...Anyone looking at the site should also take a look at:http://www.quackwatch.org/01QuackeryRelatedTopics/Cancer/day.htmlSome Notes on Dr. Lorraine DayBy Barrett, M.D.notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 Diane wrote: A Dr. here in Palm Beach What doctor did you see, and what tests did you have? diagnosed my problem but called it something else - CES; constriction of the esphogial sphincter? (but it is the same thing) How do you know that "CES" is the same as achalasia??? Achalasia isn't all that common a term, but it's way more common than CES, so I don't know why your doctor would label it CES if it's really achalasia. The references that I was able to find to constriction of the esophageal sphincter were related to Esophageal Rings and/or Hiatal Hernia -- not achalasia. and wanted to perform the baloone or slicing surgery for $1,500. The costs for balloon dilation or Heller myotomy aren't even close to being in the same price range, making me question whether your condition is the same as ours (and if these treatments are the same as ours.) Also, a gastroenterologist does NOT do Heller Myotomies (that would be done by a surgeon), but he DOES do balloon dilations, so the same doctor wouldn't do both procedures. But from what I can tell, the "surgery" for esophageal rings is an endoscopic procedure like a balloon dilation, which WOULD make them roughly the same price and WOULD mean that they would both be performed by the same doctor. (Surgery seems to be really rare, too -- balloon dilation seems to work for the majority of esophageal ring patients. I have a sense what the main culpret is, and I will post my opinion of cause and cure later today. I'm just getting caught up on my emails from the weekend, but unless I missed it I don't see where you posted this theory. One thing that I noticed when I looked up esophageal rings is that eating MEAT is mentioned as the most common reason for symptoms because MEAT is most likely to get "hung up" on the stricture. There is even a nickname for esophageal rings -- Steakhouse Syndrome -- that goes along with that. Since you've been bringing up meat over and over and over again, and since you indicate that you only have symptoms when you eat meat, I'd be inclined to think that you don't have achalasia afterall, and instead have the much-easier-to-treat esophageal rings. Debbi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2004 Report Share Posted January 27, 2004 Me thinks you protest too much and you seem to have a passive form of agression you might want to look into. Your insistance that I tell you WHO my Dr. is, is rather absurd. Is that really your business? I am not going to comment on EVERY one of YOUR comments, although I easily can, b/c I refuse to stoop to your level of being argumentative. I think you bring up an intersting point about Steakhouse Syndrome (Schatzki's Ring). Perhaps there are others who join us here who are suffering from this as well. Here is a question one wrote in, copied and pasted FYI. ___________________________________________________________ At times, I find it very hard to swallow. Last night, I could not get a piece of steak to go down. Any ideas what the problem could be? M.M. Ronen Arai Dr. Arai is Senior Fellow in Gastroenterology at the University of Miami School of Medicine in Miami, Florida. Gastroenterologists often see patients who experience episodes of difficulty in swallowing solid foods, such as steak. In most cases, the problem stems from an abnormality known as a Schatzki's ring. This ring is basically a mild narrowing caused by fibrous scar tissue in the lower esophagus. The origin of this ring is in dispute. Some doctors think it is present from birth and only causes problems in later years. However, most gastroenterologists believe that it is a result of chronic gastroesophageal reflux (GERD). The acid reflux may not be severe enough to cause heartburn or other discomfort, but it may silently trigger inflammation in the lower esophagus, leading to the formation of a scar-tissue ring. AHHHHHHH! He used the word " trigger " ! He must be a quack too! LOL I believe in a more holistic approach to health and self-care and do not mock or dismiss alternative methods. There are so many good, sincere hurting people who might benefit from looking for natural answers, real encouragement to make life-style changes. You do not seem to be very open-minded and I have sensed your hostility toward me ever since the beginning, picking apart all my messages and demanding I disclose my personal information. You are only exposing yourself. Anyone wanting answers who deep down know that modern medicine can do more harm than good and that there are natural ways to heal and to live are free to visit the Halleluja Acres website. We welcome all and encourage questions and your own ideas. I am not saying A is always cured, but you will read about many who have been, by natural means. Our body has the ability to heal itself when you strengthen it, feeding our cells and built in immune system rather than harming or destroying them. http://www.hacres.com/Default.asp Dr. Lorraine Day is excellent and she has some critics (those she opposes). She has, however helped many many people and says this about her critics, who are threatened by the truth: I don't have a lot of time to devote to responding to my critics. They are a minor pesky annoyance to be sure but, since they always attract more attention to my message, in the long run they are a great help to my cause. When one is speaking truth, whether truth in medicine, truth in history, truth in business and financial matters, truth in spiritual matters or truth in any other area, the critics will always attack en masse. It's automatic. They have their turf to protect! If I responded in depth to each one of them, I would get nothing else done, which is precisely one of their goals - to distract me from my mission. Instead, I will follow this wise counsel: " The best way to eliminate darkness is to admit light. " So I will just continue telling more truth! I am no stranger to attacks from the media, from medical groups, from special interest groups or from the government. My previous experience in speaking out about the AIDS cover-up by organized medicine and the government has trained me well and has given me increased information and discernment about the forces behind these attacks. I have " been here " before. To quote a television comedian, " It's deja vu all over again! " For approximately eight years, from 1987 to 1995, there was hardly a week that passed when I wasn't thoroughly " trashed " in some major newspaper in the country regarding my views on AIDS. Of course, now, 15 years after I first began speaking out, virtually everything I claimed years ago has turned out to be true. Organized medicine and the government have acquiesced on virtually every point on which they attacked me so viciously. Funny thing though, not one of those who attacked me has ever apologized. Oh well, I'll not lose sleep over it. It's obvious there's now another battle to be fought. My book, " AIDS: What the Government Isn't Telling You, " written in 1991, details what happened to me when I began to expose the AIDS cover-up. Brick-bats came from every direction! My book may read like a novel but it is totally factual. Every claim I made in the book is fully documented and it is still as true and up-to-date as the day I wrote it - with three exceptions. When I wrote the book, I did not know the following: 1) that AIDS is a man-made virus (I now have the government documentation confirming that this is true), 2) that AIDS is, indeed, curable! (See my video " Diseases Don't Just Happen " ), and 3) that AZT, one of the most dangerous drugs on the market, will destroy even more the already suppressed immune system of an AIDS patient. The powers who attempt to control all information in this country as well as your access to it are many, but all are very well coordinated at the top. For years I was unaware of the zealous cohesion among the hidden leaders of this manipulation, those few who from behind the scenes run the government, industry (including the cancer industry), organized medicine, politics, the economy, religion and almost everything else. The ones at the top believe they are operating in secret, in darkness - hidden from view, but they are unaware that someone on the inside, someone in their small select group, someone who knows everything they are presently doing as well as all their sinister plans for the future, will always leak that information. There is no honor among thieves! On my audiotape set, " Conquering Confusion " I give some beginning information about what is going on in these various areas. Their overall plan of attack against ALL truth is diabolically ingenious and could only be planned by one individual, their leader, the Father of Lies! I will be exposing those involved and their " Plan " as time goes on. Stay tuned! With the dumbing down of students in the schools (also part of the plan of the aforementioned group), and the numbing effects of constant television-watching, people have become less able to separate truth from lies. The media's goal is to " promote both sides of the issue until confusion reigns " and the individual throws up his hands in exasperation concluding that is impossible to know what is truth. But truth CAN be known! If you keep searching with an honest heart, asking God to help you in your quest, He promises to " guide you into ALL truth. " ( 16:13) The war of Armageddon will NOT be a war between Israel and Iraq or some other country, although those countries may indeed go to war, the war of Armageddon mentioned in Revelation 16:16 is a spiritual battle, a battle between Truth and Lies, between Good and Evil, between Christ and Satan. It is going on right now. The battle of Armageddon is clearly about worship (see Revelation 14:9-12) - who will you worship: man or God, " science " or the God of the Bible. It is a battle for the mind, heart and soul of every person on this planet. The main goal of the enemy is to stamp out Truth, to stamp out the Source of Truth - Jesus Christ, who said, " I am the Truth. . . " ( 14:6), to stamp out the true followers of Christ who exhibit the same character He did when He was on earth. Everyone is involved in this spiritual battle of Armageddon whether or not you under-stand its full impact. Everyone is on one side or the other - either the side of truth or the side of lies. The outcome has eternal consequences. It is worthy of your attention! _________________________________________________________________ By the way, it will only help you to drink 8 glasses of good water (not tap) per day. No matter what anyone says about Dr. Bat or others, let's take care of our bodies - I am speaking to myself as well. I encourage you all to take care of you. You are worth it. Look into healthy eating plans and life styles and may you, by God's grace, make the necessary changes. Eat living foods to feed yoru cells and drink 8 glasses of pure water daily. It is also highly suggested that we knock the sugar and the white flour habit and eat mostly raw veggie salads and perhaps even try juicing carrots. I do this almost every day and have gone off caffeine, sugar and white flour (since July 03). On the HA site you will read more about this " life style " . May the Lord be your guide as you seek what's best for each of you. God bless each one of you. Peace, Diane > > A Dr. here in Palm Beach > > What doctor did you see, and what tests did you have? > > diagnosed my problem but called it something else - CES; constriction of the esphogial sphincter? (but it is the same thing) > > How do you know that " CES " is the same as achalasia??? Achalasia isn't all that common a term, but it's way more common than CES, so I don't know why your doctor would label it CES if it's really achalasia. The references that I was able to find to constriction of the esophageal sphincter were related to Esophageal Rings and/or Hiatal Hernia -- not achalasia. > > and wanted to perform the baloone or slicing surgery for $1,500. > > The costs for balloon dilation or Heller myotomy aren't even close to being in the same price range, making me question whether your condition is the same as ours (and if these treatments are the same as ours.) Also, a gastroenterologist does NOT do Heller Myotomies (that would be done by a surgeon), but he DOES do balloon dilations, so the same doctor wouldn't do both procedures. But from what I can tell, the " surgery " for esophageal rings is an endoscopic procedure like a balloon dilation, which WOULD make them roughly the same price and WOULD mean that they would both be performed by the same doctor. (Surgery seems to be really rare, too -- balloon dilation seems to work for the majority of esophageal ring patients. > > I have a sense what the main culpret is, and I will post my opinion of cause and cure later today. > > I'm just getting caught up on my emails from the weekend, but unless I missed it I don't see where you posted this theory. > > One thing that I noticed when I looked up esophageal rings is that eating MEAT is mentioned as the most common reason for symptoms because MEAT is most likely to get " hung up " on the stricture. There is even a nickname for esophageal rings -- Steakhouse Syndrome -- that goes along with that. Since you've been bringing up meat over and over and over again, and since you indicate that you only have symptoms when you eat meat, I'd be inclined to think that you don't have achalasia afterall, and instead have the much- easier-to-treat esophageal rings. > > Debbi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2004 Report Share Posted January 27, 2004 I agree with that you mistook Debbi's post. As for who your doctor was/is, well we all share our doctors to hopefully benefit others. Recommend the good ones, inform which ones to avoid. So asking who your doctor is, is not out of the ordinary. Of course, if you opt not to share the info, then that is your right. , NYC > > > > A Dr. here in Palm Beach > > > > What doctor did you see, and what tests did you have? > > > > diagnosed my problem but called it something else - CES; > constriction of the esphogial sphincter? (but it is the same thing) > > > > How do you know that " CES " is the same as achalasia??? Achalasia > isn't all that common a term, but it's way more common than CES, so > I don't know why your doctor would label it CES if it's really > achalasia. The references that I was able to find to constriction > of the esophageal sphincter were related to Esophageal Rings and/or > Hiatal Hernia -- not achalasia. > > > > and wanted to perform the baloone or slicing surgery for $1,500. > > > > The costs for balloon dilation or Heller myotomy aren't even close > to being in the same price range, making me question whether your > condition is the same as ours (and if these treatments are the same > as ours.) Also, a gastroenterologist does NOT do Heller Myotomies > (that would be done by a surgeon), but he DOES do balloon dilations, > so the same doctor wouldn't do both procedures. But from what I can > tell, the " surgery " for esophageal rings is an endoscopic procedure > like a balloon dilation, which WOULD make them roughly the same > price and WOULD mean that they would both be performed by the same > doctor. (Surgery seems to be really rare, too -- balloon dilation > seems to work for the majority of esophageal ring patients. > > > > I have a sense what the main culpret is, and I will post my > opinion of cause and cure later today. > > > > I'm just getting caught up on my emails from the weekend, but > unless I missed it I don't see where you posted this theory. > > > > One thing that I noticed when I looked up esophageal rings is that > eating MEAT is mentioned as the most common reason for symptoms > because MEAT is most likely to get " hung up " on the stricture. > There is even a nickname for esophageal rings -- Steakhouse > Syndrome -- that goes along with that. Since you've been bringing > up meat over and over and over again, and since you indicate that > you only have symptoms when you eat meat, I'd be inclined to think > that you don't have achalasia afterall, and instead have the much- > easier-to-treat esophageal rings. > > > > Debbi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2004 Report Share Posted January 27, 2004 Me thinks you protest too much and you seem to have a passive form of agression you might want to look into. Your insistance that I tell you WHO my Dr. is, is rather absurd. Is that really your business? Wow! I am starting to wonder if you don't really understand what this group is all about. It's a support group for people w/ achalasia, in case you didn't know. I find it very interesting that you feel the need to attack me and advise me on my mental health status. Now who is protesting too much? I'm not sure why it's "absurd" for me to ask who your doctor is. This type of information is shared freely here -- there's even a database for people to list their specialists so that others know where they can go to get treatment. Many people have found a good doctor because of recommendations they saw here -- that's how I found my current specialist, in fact, and I've also passed his name and phone number on to others in the group. The doctors who treat achalasia are a separate sub-set of specialists within the specialty of gastroenterology. Achalasia is rare enough that even some gastroenterologists *never* have an achalasia patient in their career. Almost every doctor I've ever seen discussed here has been published at least once, and many of them have been published dozens and dozens of times for their research on esophageal disorders. I hadn't ever heard of an achalasia specialist in Palm Beach, so I simply asked who your doctor was. You're the first person on this group that I've seen that was offended by the question. I haven't ever "insisted" that you (or anyone else, for that matter) disclose your doctor's name -- I just asked because I was curious and because this group is about sharing this type of information. (Why such a simple question offends you so much is something that *you* might want to look into.) I am not going to comment on EVERY one of YOUR comments, although I easily can, b/c I refuse to stoop to your level of being argumentative. Uh, I think it's too late -- you've already gotten pretty darn argumentative, if you ask me. ) I think you bring up an intersting point about Steakhouse Syndrome (Schatzki's Ring). I hope that you will research the esophageal rings further, on your own and with a doctor. I'm surprised that with all the research you've been doing for so long that you hadn't come across this information before -- esophageal rings are much more common than achalasia. I hope that you can find some information that is helpful to you -- we should all be as informed as possible about our conditions so that we can make the best possible choices in our healthcare. Perhaps there are others who join us here who are suffering from this as well. Perhaps, but that would mean they have joined the wrong support group -- this group is about achalasia. We share information about achalasia. Nothing personal against people with other disorders, but there are other support groups for people with other disorders. This group is about sharing information about achalasia and support for achalasia patients and their families. Gastroenterologists often see patients who experience episodes of difficulty in swallowing solid foods, such as steak. In most cases, the problem stems from an abnormality known as a Schatzki's ring. This ring is basically a mild narrowing caused by fibrous scar tissue in the lower esophagus. The origin of this ring is in dispute. Some doctors think it is present from birth and only causes problems in later years. However, most gastroenterologists believe that it is a result of chronic gastroesophageal reflux (GERD). The acid reflux may not be severe enough to cause heartburn or other discomfort, but it may silently trigger inflammation in the lower esophagus, leading to the formation of a scar-tissue ring.AHHHHHHH! He used the word "trigger"! He must be a quack too!LOL Not sure why you posted this.... it doesn't apply to achalasia at all. Your comment about his use of the word "trigger" makes me think that may be why you posted this. The controversy over the use of the word "trigger" in your posts was clearly stated to be in relation to using the word in reference to the cause of our disorder rather than the cause for our symptoms. Nobody in this group said that anyone using the word "trigger" in the appropriate context was a quack, so I'm not really sure why you posted this, since it's not applicable to the discussion at hand, other than further supporting my guess that you may have "Schatzki's ring" rather than achalasia. Oh, and for the record, I never called anyone that you posted about a "quack", so that's yet another thing that I don't understand why on earth you would have posted it. Some clarification might be useful so we know what you're talking about. I believe in a more holistic approach to health and self-care and do not mock or dismiss alternative methods. I also believe in multiple methods of healthcare. If you had bothered to look around the site, you would have noticed that I've posted many times about accupuncture, chiropractic, herbal, and homeopathic methods, in addition to "western medicine" in treating achalasia and other disorders. I also posted information just yesterday about a book that supported a point you had made about the damage that some medications can do to the body, and how it affects the immune system, etc. I'm not sure what the last part of your sentence was supposed to mean -- is it an implication that I mocked or dismissed alternative medicine? If that is what you intended to imply, I think you are completely off base here, as I've made no such statements. If that's not what you meant to imply, some clarification would be helpful. There are so many good, sincere hurting people who might benefit from looking for natural answers, real encouragement to make life-style changes. I agree, but those same good, sincere, hurting people ALSO deserve to have all kinds of information available to them, not just the information you seem to think they should have. We are all responsible for making our own decisions, and we can't make the decisions that are best for our own individual situations if we don't have all the pertinent information. You do not seem to be very open-minded I'm not sure how you came to that conclusion -- you've been in this group for less than two weeks, and you obviously haven't gone through the archives to learn much about me, nor have you even paid much attention to what I've posted here since you joined the group. Makes one wonder who is really the one who is not receptive to other ideas.... and I have sensed your hostility toward me ever since the beginning, Again, I wonder what you're basing this on. I haven't said anything "hostile" in my past posts that I'm aware of -- the first "hostile" statements I've seen are you calling me passive-aggressive and absurd in your post this morning. I see nothing in my past messages where I called you names or accused you of having psychological issues, etc. Perhaps you're misinterpreting things that are said, or reading things that aren't really there? I notice that others have posted today that they think you read my post wrong, too. Maybe it's just a difference in writing styles that's causing your confusion? picking apart all my messages I respond to almost all messages using the "cut-and-paste / interject" method, if that's what you're referring to as "picking apart" all your messages. It's an extremely common method for those who are proficient with e-communication methods, and it's a method I use when replying to friends, in business communications, and on message boards. The cut-and-paste method aids in understanding "email conversations" which don't have the benefit of voice tone, body language, and true "back and forth" commentary. In responding to individual parts of a message, instead of one reply to the whole message, the respondent is able to clarify which part of the original message their response is directed towards. It's like if someone asks "do you want to go to Store A or Store B or just stay home?" and you just reply "yes" -- without further clarification, it's not clear which of the three options you want to do. If you aren't referring to the cut-and-paste method, then clarification of your statement is needed. (seems to be a recurring theme, me asking for clarification of your statements) and demanding I disclose my personal information. Again, I'm not sure where you get this idea that I'm "demanding" anything from you, much less your "personal information". I've never asked *anyone* on this board to provide their name, DOB, address, phone number, etc. I do sometimes ask people the name and town of their doctor or clinic, but then other people have asked this before too, so it's not that unusual a question for a group of this sort. You are only exposing yourself. Exposing myself how? Once again, I have to ask for clarification, b/c I haven't a clue what this refers to. Anyone wanting answers who deep down know that modern medicine can do more harm than good and that there are natural ways to heal and to live are free to visit the Halleluja Acres website. We welcome all and encourage questions and your own ideas. I am not saying A is always cured, but you will read about many who have been, by natural means. Our body has the ability to heal itself when you strengthen it, feeding our cells and built in immune system rather than harming or destroying them.http://www.hacres.com/Default.asp I went to the website you posted. I did a Site Search (searches entire site at once) for "achalasia" and got this back: I'm sorry no documents matched your query So I did a search for "achalasia" just in the FAQ section and got this back: Sorry, no FAQ items found based on your search So I did a search for "achalasia" just in the Forums section (searched subject and body both, same response each time) and got this back: Your search returned 0 matches. (200 max) So I did a search for "achalasia" just in the Testimonies section and got this back: Sorry, no testimony available for that query I even searched the Recipes section, and still no hits on the word achalasia. So much for being able to read about many who have been cured that way like you promised.... Dr. Lorraine Day is excellent Do you say that from personal experience? Have you been seen by her? Has she cured you? and she has some critics (those she opposes). Most people are criticized by people who hold opposing views. But that doesn't mean that the opposers don't also have the right to be heard. I've seen nothing indicating any kind of success rates in curing various diseases with Dr. Day's barley supplements. You would think that if doctors could cure cancer by feeding us barley that SOMEONE would have published SOME sort of report by now. Certainly another company would have jumped on the bandwagon to sell this product and make hand-over-fist profit -- corporate America is all about the greed, after all. By the way, it will only help you to drink 8 glasses of good water (not tap) per day. Tossing around labels can get one into trouble. To say things like "good water" (purified) and "bad water" (tap water) is misleading and inaccurate. There is research that drinking purified water exclusively actually results in a deficiency in certain trace elements. Tap water may, in fact, be healthier for the body. No matter what anyone says about Dr. Bat or others, let's take care of our bodies - I am speaking to myself as well. I encourage you all to take care of you. You are worth it. Part of taking care of ourselves is making sure we can get the food into our bodies. Look into healthy eating plans and life styles and may you, by God's grace, make the necessary changes. Eat living foods to feed yoru cells and drink 8 glasses of pure water daily. The healthiest diet in the world isn't going to do us a bit of good if we hurl it into the kitchen sink every time we put it in our mouths. There is also significant documentation that the "eight glasses a day" rule isn't necessarily accurate. More information is available here:http://www.dartmouth.edu/dms/news/2002_h2/08aug2002_water.shtml and http://www.cnn.com/2002/HEALTH/diet.fitness/05/24/cohen.water.otsc/ It is also highly suggested that we knock the sugar and the white flour habit and eat mostly raw veggie salads and perhaps even try juicing carrots. I do this almost every day and have gone off caffeine, sugar and white flour (since July 03). On the HA site you will read more about this "life style". You can also read about this at just about any website related to a healthy diet. It's not exactly "news" that we should eat a variety of veggies, increase our whole grains and other fibers, and reduce the amount of fats and refined sugars that we eat. There's nothing wrong with suggesting that people eat healthy foods, avoid dehydration, get exercise several times a week, reduce their stress level, get adequate sleep, use sunscreen, etc. But implying that doing these things is going to cure achalasia (or that not having done these things caused achalasia) is a stretch, and it's not appropriate for this group. Here's a quote from the home page for this group: Note to All Members:The posting of messages with the intent to promote products and or services is not allowed. Signature lines with the same intent are not permissible. The purpose of this group is to provide support. Personal attacks, "flaming", "trolling", and offensive messages are not permitted in this group. The group moderators will remove offensive messages and members who violate these rules will be permanently removed from the group. So far, Diane, you've posted links to no less than THREE products/services (Dr. Day / "the barley lady", Dr. Bat / "the water guy", and Hallelujah Acres / "the bible people"), and you've accused me of being mentally disturbed and closed-minded, called me absurd and hostile, and claimed I've done things that I haven't done. And you've managed to do all of this in less than two weeks on the board, too. Maybe you need to ask yourself why you are claiming to have a disease that you haven't been diagnosed with, or even tested for, from what we can tell. Why have you put so much time and energy into researching these other "methods" while not even bothering to discover what disorder you have or what treatments are available? This board is so we can support each other and share pertinent information. I'm not sure that it's your intention to do either of these things. If I'm wrong about that, please do clarify your position. But please be polite, honest, and respectful of those on the board. That's what a support group is all about, after all. Debbi in Snowy Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2004 Report Share Posted January 27, 2004 Hey , I would share my Dr.'s name if 1) you lived in south Fl, and 2) if I thought he was exceptional. The truth is none of you live near me and I didn't realy think that much of him. He sent me to get the testing (probe etc) and that while they were " in there " they would perform the procedure, which I opted not to have. (please pardon my lack of precise lingo) I'm still very glad I didn't do that. The nurse had told me that half of the people they send over there to have that procedure, have to have it repeated within one to two years! I checked my paperwork and it was in April of 1999, so it was four years ago that I last saw a Dr. about this. Maybe a year after the first episode I saw one too, but I can't find the paperwork. So I was never diagnosed with A. He said it was probably a stricture in the esphogus and when I asked him questions he sort of brushed me off, wanting me to go for tests and then at that same time to allow them to do what they felt necessary. I really have been managing this pretty well. It's funny b/c the symptoms of A and whatever I have if it is Sh. Ring, are almost exactly the same esp. early on. Perhaps what I have can grow into A? And, perhaps many who suffer form A. also started out with whatever I have! Again, since I do not have insurance, I cna't afford to see a Dr. right now. I feel in my heart this is not necessary anyway and I have learned a lot just readign and writing posts here on this site and others. (I belong to 4 groups). I am not the only one who took Debbie that way - my husband read many of her respnses to me as well as my notes and he agreed she came on a bit too strong and a bit abrasive. No offense is taken; I don't know her and it is possible she was, in her own way, trying to help. I'm sure this has been a good lesson for her as well; to be careful how she says things as we don't want to offend each other. This is supposed to be a safe place for everyone and kindness and humility go a long way.... :-) I asked questions just to see if perhaps there was a connection between Type O's; I asked about meat being one of the main things we have difficulty swallowing (other than the people who now can't swallow anything!); I asked about water, stress and even stuffed emotions such as anger... Debbie didn't seem too open to anything I questioned, even though I too was only trying to help. Pete mentioned what color hair people have and she answered him very politely. SO I smiled and am happy to see she is learning how to be kind and allow room for new ideas if you know what I mean. I only wish I had been treated with the same respect and patience as the others have. mentioned she and her husband did a lot of research, as did I for years! I've seen two different Drs, and read all I could find on the particular symtoms I experience and so far I felt I had either one or the other I mentioned. When I first came on teh board, I didn't say I KNEW I had or had been disagnosed with A. But I sure DO have many of the same symtoms. I find it super annoying when it comes on and have just been trying to keep from having it happen again or as often for the sake of myself and for those around me. Many lovely dinners have been ruined out. Times I had to " throw up " on the sidewalk on my way back to the car, after having to leave a resteraunt when no one was really finished with their meals.... I have stayed in the bathroom during an entire meal more than once! I have regurgitated running through airports in plants and right on teh floor! (the stress of almost missing my flight brought on an attack while trying to eat really fast b4 we got on a plane in Denver); I have tried to sleep sitting up b/c it hurt too much to lie down. It hasn't been fun so I try to help myself and I really have found a few things that have slowed this process down for me. I just wanted to share soem of them with you all... Anyway, Thanks again for your responses. All the best, Diane > > > > > > A Dr. here in Palm Beach > > > > > > What doctor did you see, and what tests did you have? > > > > > > diagnosed my problem but called it something else - CES; > > constriction of the esphogial sphincter? (but it is the same thing) > > > > > > How do you know that " CES " is the same as achalasia??? Achalasia > > isn't all that common a term, but it's way more common than CES, so > > I don't know why your doctor would label it CES if it's really > > achalasia. The references that I was able to find to constriction > > of the esophageal sphincter were related to Esophageal Rings and/or > > Hiatal Hernia -- not achalasia. > > > > > > and wanted to perform the baloone or slicing surgery for $1,500. > > > > > > The costs for balloon dilation or Heller myotomy aren't even > close > > to being in the same price range, making me question whether your > > condition is the same as ours (and if these treatments are the same > > as ours.) Also, a gastroenterologist does NOT do Heller Myotomies > > (that would be done by a surgeon), but he DOES do balloon > dilations, > > so the same doctor wouldn't do both procedures. But from what I > can > > tell, the " surgery " for esophageal rings is an endoscopic procedure > > like a balloon dilation, which WOULD make them roughly the same > > price and WOULD mean that they would both be performed by the same > > doctor. (Surgery seems to be really rare, too -- balloon dilation > > seems to work for the majority of esophageal ring patients. > > > > > > I have a sense what the main culpret is, and I will post my > > opinion of cause and cure later today. > > > > > > I'm just getting caught up on my emails from the weekend, but > > unless I missed it I don't see where you posted this theory. > > > > > > One thing that I noticed when I looked up esophageal rings is > that > > eating MEAT is mentioned as the most common reason for symptoms > > because MEAT is most likely to get " hung up " on the stricture. > > There is even a nickname for esophageal rings -- Steakhouse > > Syndrome -- that goes along with that. Since you've been bringing > > up meat over and over and over again, and since you indicate that > > you only have symptoms when you eat meat, I'd be inclined to think > > that you don't have achalasia afterall, and instead have the much- > > easier-to-treat esophageal rings. > > > > > > Debbi Quote Link to comment Share on other sites More sharing options...
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