Guest guest Posted October 27, 2003 Report Share Posted October 27, 2003 , I should have included this as well. A PEG is used in long term feeding. There are other, temporary, feeding tubes which are inserted through the mouth which normally wouldn't be applicable to HD therefore I am not addressing those. A PEG tube, which has about a 3 inch tube protruding from the incision area, can be concealed by clothing but is a little "snaky" since it's a tube. There is a "button" tube which can be installed a couple of weeks after the surgery. will get this. It is supposedly flush to the body HD is Hunnington Disease that sometime drastically affects swallowing Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2004 Report Share Posted May 11, 2004 Debbi, Thank you so very much for your email and options. My grandfather has been living with achalasia since 1946 and is now faced with having to get a feeding tube. I will check out the other groups you referenced. Thank you again. I truly appreciate it. From: Debbi Heiser [mailto:heiser@...] Sent: Monday, May 10, 2004 9:09 PM achalasia Subject: Re: Feeding Tube , I'm not sure you're going to find much help in this group. I'm sorry, but I don't know of anyone who is on this board that has a feeding tube. There may be a few here and there who had a tube immediately after surgery, but that's probably about it. A search of did come up with these, though: feeding_g-tubes/ tubefeedinggroup/ tubefeeding/ I hope you can find some support! I know this group has been invaluable in my own situation, and support can make such a difference in your life when dealing with health issues that affect your day-to-day living. Debbi > I am looking for anyone who might have information on life after a > feeding tube. I have several questions re: care of the device, the > change of foods, the possible change in the digestive process and > the administration of medications. > > I would appreciate any information anyone can provide. Thank you for > your help. > > Sincerely, > (I am writing for my grandfather Gene.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2004 Report Share Posted May 11, 2004 , Does your grandfather get home care? A visiting nurse? This type of information is part of the post-op education process is should be provided to you by your discharge team. The visiting/discharge/home health nurse needs to ascertain that you/your family must demonstrate competency/comfort in caring for a feeding tube, plus all the teaching that go with it. It is imperative that you follow up with your attending physician and if you have a " nagging " feeling of discomfort with the people giving you these very important instructions, please do not hesitate to seek others out who will have your best interests at heart in your home area. I can honestly say that this site has the SMARTEST--achalasians (is there such a term?), most POSITIVE people I have ever " internet met " . I would not hesitate to take the information about Achalasia-- the little tricks sure help!! Thank you all for that. I suggest that you refer all of these questions to your attending physician, who may refer you to the appropriate personnel. Ask for home health visits, etc., until you are satisfied and feel confident about caring for someone with a feeding tube. In achalasia , " heatherkkoenig " <equ1po1se@c...> wrote: > I am looking for anyone who might have information on life after a > feeding tube. I have several questions re: care of the device, the > change of foods, the possible change in the digestive process and > the administration of medications. > > I would appreciate any information anyone can provide. Thank you for > your help. > > Sincerely, > (I am writing for my grandfather Gene.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2004 Report Share Posted May 11, 2004 Jo wrote: I can honestly say that this site has the SMARTEST--achalasians (is there such a term?), most POSITIVE people I have ever "internet met". I would not hesitate to take the information about Achalasia--the little tricks sure help!! Thank you all for that. Jo, we don't know if there is such a term as "Achalasians" but several of us in the group use it often around here... makes us sound kinda like some sort of "alien race" or something, doesn't it??? ;o) I like it a lot better than "patients", too, as that implies sickness or hospitalization, and in most cases we Achalasians are able to live quite happy and healthy and productive lives. I am SO GLAD that you've found positive, helpful support here. That's what this group is all about, and it gives me (and others, I'm sure!) a warm fuzzy feeling to know that someone else is able to use the little tricks and tips and research that we've learned (in many cases the hard way, and in some cases by sheer luck!) to their advantage. Some of my best friends -- I consider many of them to be family, really -- I have met via the internet. Yes, there are some shysters out there, and a few people who are just negative people and downright "meanie-butts" (can you tell I have a preschooler? LOL) But by and large, the people I've met in this group and others have been invaluable to me. Welcome to our funky little family! ;o)Debbi in Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2004 Report Share Posted May 11, 2004 Hey Sister Deb!!!! Speak for yourself! I am NOT FUNKY!!!!! LOL (I thought Achalasians were an exotic group from the Island of Achalasia…somewhere out in the South Pacific Islands…am I wrong about this???) BTW Jo, Welcome to our little Achalasia family!!! Sister Sandi Re: Re: Feeding Tube Jo wrote: I can honestly say that this site has the SMARTEST--achalasians (is there such a term?), most POSITIVE people I have ever " internet met " . I would not hesitate to take the information about Achalasia-- the little tricks sure help!! Thank you all for that. Jo, we don't know if there is such a term as " Achalasians " but several of us in the group use it often around here... makes us sound kinda like some sort of " alien race " or something, doesn't it??? ;o) I like it a lot better than " patients " , too, as that implies sickness or hospitalization, and in most cases we Achalasians are able to live quite happy and healthy and productive lives. I am SO GLAD that you've found positive, helpful support here. That's what this group is all about, and it gives me (and others, I'm sure!) a warm fuzzy feeling to know that someone else is able to use the little tricks and tips and research that we've learned (in many cases the hard way, and in some cases by sheer luck!) to their advantage. Some of my best friends -- I consider many of them to be family, really -- I have met via the internet. Yes, there are some shysters out there, and a few people who are just negative people and downright " meanie-butts " (can you tell I have a preschooler? LOL) But by and large, the people I've met in this group and others have been invaluable to me. Welcome to our funky little family! ;o) Debbi in Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2004 Report Share Posted May 11, 2004 hahahhahahah- Debbi - I swear I wrote the Star Trek thing before I read your post below! Cindi -- Re: Re: Feeding Tube Jo wrote: I can honestly say that this site has the SMARTEST--achalasians (is there such a term?), most POSITIVE people I have ever "internet met". I would not hesitate to take the information about Achalasia--the little tricks sure help!! Thank you all for that. Jo, we don't know if there is such a term as "Achalasians" but several of us in the group use it often around here... makes us sound kinda like some sort of "alien race" or something, doesn't it??? ;o) I like it a lot better than "patients", too, as that implies sickness or hospitalization, and in most cases we Achalasians are able to live quite happy and healthy and productive lives. I am SO GLAD that you've found positive, helpful support here. That's what this group is all about, and it gives me (and others, I'm sure!) a warm fuzzy feeling to know that someone else is able to use the little tricks and tips and research that we've learned (in many cases the hard way, and in some cases by sheer luck!) to their advantage. Some of my best friends -- I consider many of them to be family, really -- I have met via the internet. Yes, there are some shysters out there, and a few people who are just negative people and downright "meanie-butts" (can you tell I have a preschooler? LOL) But by and large, the people I've met in this group and others have been invaluable to me. Welcome to our funky little family! ;o)Debbi in Michigan ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2004 Report Share Posted May 11, 2004 --- Thank you all!! Jo In achalasia , " Holt- " <holt-smith@c...> wrote: > Hey Sister Deb!!!! Speak for yourself! I am NOT FUNKY!!!!! LOL > > (I thought Achalasians were an exotic group from the Island of > Achalasia.somewhere out in the South Pacific Islands.am I wrong about > this???) > > BTW Jo, Welcome to our little Achalasia family!!! > > Sister Sandi > > Re: Re: Feeding Tube > > Jo wrote: > I can honestly say that this site has the SMARTEST--achalasians (is > there such a term?), most POSITIVE people I have ever " internet > met " . I would not hesitate to take the information about Achalasia- - > the little tricks sure help!! Thank you all for that. > > Jo, we don't know if there is such a term as " Achalasians " but several > of us in the group use it often around here... makes us sound kinda like > some sort of " alien race " or something, doesn't it??? ;o) I like it a > lot better than " patients " , too, as that implies sickness or > hospitalization, and in most cases we Achalasians are able to live quite > happy and healthy and productive lives. > > I am SO GLAD that you've found positive, helpful support here. That's > what this group is all about, and it gives me (and others, I'm sure!) a > warm fuzzy feeling to know that someone else is able to use the little > tricks and tips and research that we've learned (in many cases the hard > way, and in some cases by sheer luck!) to their advantage. > > Some of my best friends -- I consider many of them to be family, really > -- I have met via the internet. Yes, there are some shysters out there, > and a few people who are just negative people and downright > " meanie-butts " (can you tell I have a preschooler? LOL) But by and > large, the people I've met in this group and others have been invaluable > to me. Welcome to our funky little family! ;o) > > Debbi in Michigan > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Sandi Wrote: > Hey Sister Deb!!!! Speak for yourself! I am NOT FUNKY!!!!! LOL Heh... you haven't seen the video of your snoring in the hotel room...... <evil sadistic cackle> Deb, who just LOVES a good blackmailing.....LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 > hahahhahahah- Debbi - I swear I wrote the Star Trek thing before I read > your post below! Cindi Cindi, just another case of " great minds think alike " !!! Glad to hear the cinnamon bun was delish! Deb, another " great mind " ....???? LOL Quote Link to comment Share on other sites More sharing options...
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