Guest guest Posted August 31, 2003 Report Share Posted August 31, 2003 Hi, I've just been diagnosed with achalasia and im waiting on a mamotery. Since december ive had trouble swallowing and my doctor never listened until I lost 3 stones in weight. I live in the uk has anyone had the same trouble here. I have been waiting for two months to get the mamotery and im living on soup. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2003 Report Share Posted August 31, 2003 Hi , >I live in the uk has anyone had the same trouble here. There are a few people here from the UK. My daughter is 6yo and she had a myotomy last year but her surgeon wouldn't be much good for you as he only does children. If you have a look at the database links of the home page www./group/achalasia you should find a list of doctors. Maybe or or someone else here in the UK has put the name of their surgeon and you can ask for a referral there. -- Sue Mum to Stephi, 6yo Nottingham UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 Donna, I'm a relative newbie, but was fortunate enough to have a GI who understands achalasia and recommended surgery. My first instinct was to try the natural route, but after searching every nook and cranny of the internet, could find no instance of anyone ever being " cured " . In the 6 months I've had it, I've dropped over 25% of my body weight, and have come to the conclusion that the Heller myotomy is the way to go. Chances are that after you do your due diligence that's where you'll end up too. If you talk with some of the folks who've been here a while, the consistent message is to be proactive and positive, regardless of where you are physically. This a is a great place for support, and we're glad you found us. My personal advice is to find a GI who knows about achalasia. If surgery is the route you take, find the most experienced surgeon within your means to perform it. The people in this group can provide information about their personal experiences with doctors from all over the country - if you'll share your location, you'll start hearing about those very soon, and you can start taking steps to deal with it. Ask questions - don't be shy. We've all had our issues, and we've benefited from each others' counsel. Welcome! Lee in Atlanta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2008 Report Share Posted May 13, 2008 > HI DONNA, My name is and I am just home from a Heller myotomy that was done on May 5. I was diagnosed 4 years ago with achalasia. After lots of tests, dilations, botox injection, this was my best option. So far my recovery has been very easy. My doctor is down at Toronto General Hospital. She is amazing. Her name is Dr. Gail Darling. The balloon option is only temporary so I would consider the surgery. I live in Stouffville Ontario, am I close to you? I read that you are 20 minutes from Oshawa. Talk to you soon... > Hello everyone, > I have had achalasia for 5 years now and gone through a lot of tests, > all coming back negative. Last week, I finally had a motility test > that showed that I have achalasia. What do I do from here? Is surgery > or balloon placement the only really options that work? I have lost > too much weight, down to 105 lbs, and starting to get nervous about how > much damage throwing up is doing to my esophugus. My endoscope in > March was fine but I have been throwing up every meal since then. > Any advice from people who know how to cope would be greatly > appreciated. > Donna > Quote Link to comment Share on other sites More sharing options...
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