11 year old

[Guest guest]

Mark

When our son was first diagnosed he had become quite frail from lack

of nutriton. When we finally figured out the problem, he had

basically gone a year without putting on any weight or growing. We

had to act fast. The GI specialist here at Children's Hospital in

Boston took him in right away and did the dilitation ( an endoscopic,

not a surgical procedure) and he improved dramatically. He just

recently began having symptoms again and needed to go in for another

procedure. Unfortunately, this problem does not seem to go away by

itself...how we wish it could! 11 year olds are on th brink of

puberty ( the horror the horror ! ) their bodies are growing and

changing every day and they need all the nutrition they can get. I

think we will relax a little more about this condition once his body

has fully grown. Do you have a Children's Hospital nearby? What does

your pediatrician think?

[Guest guest]

,

Our pediatrician doesn't know anything about this problem (and

luckily

will admit so) but also doesn't have anyone to recommend. We've been

to see 1 ped. GI but found his demeanor didn't inspire confidence.

My

girl also has lost about 10 pounds (weighs 65 now). She's always

been

trim but this is just a little too much so. Just being aware of the

problem has helped alot and she's starting to eat more wisely and

perk

up again.

There is a highly rated Children's Hospital in Detroit but they excel

in general pediatrics. For Gastroenterology there are other more

highly rated choices.

Mark

> Mark

> When our son was first diagnosed he had become quite frail from

lack

> of nutriton. When we finally figured out the problem, he had

> basically gone a year without putting on any weight or growing. We

> had to act fast. The GI specialist here at Children's Hospital in

> Boston took him in right away and did the dilitation ( an

endoscopic,

> not a surgical procedure) and he improved dramatically. He just

> recently began having symptoms again and needed to go in for

another

> procedure. Unfortunately, this problem does not seem to go away by

> itself...how we wish it could! 11 year olds are on th brink of

> puberty ( the horror the horror ! ) their bodies are growing and

> changing every day and they need all the nutrition they can get. I

> think we will relax a little more about this condition once his

body

> has fully grown. Do you have a Children's Hospital nearby? What

does

> your pediatrician think?

>