Re: low-grade fevers - why do we have them?

[Guest guest]

Hi Peggy,

My thoughts on the low grade fevers (mine has been 99 give or take for

almost 5 years now!).......because our immune systems are in a constant state

of " hyperdrive " this is a natural response to a perceived

" infecton/virus/whatever " that has " triggered " our immune systems to react.

I don't know about others, but swollen lymph nodes (helped immensely by

Interferon) have also been a big part of the clinical picture for me. I'd be

interested to hear other views/opinions as well.....

Ann

[Guest guest]

I don't really know what causes the fevers, but I have noticed that mine

seems to go away if I rest a lot and will flare up again if I overdo. They

are very uncomfortable.....I used to stand with my head in the freezer

compartment of the refrigerator to try to cool down.

Dwanna

[Guest guest]

I get fevers and painful lymph nodes as well and low dose alpha interferon

made me feel really ill. Can't remember too much about it- I think may have

made me dizzy and nauseous. Imuplus is really helping with fevers/painful

lymph nodes.

[Guest guest]

Fevers may be in response to a reactivated virus, such as hhv6. I have

active hhv6 and I have fevers. And what helps with the fevers tends to be

things that are antiviral (and immunomodulating).

[Guest guest]

Many CFSers,including myself, have low body temps. Upon waking I am way down

around 96,0 to 96.5

LOL

Steve

> Re: low-grade fevers - why do we have

> them?

>

> From: SWNGDABOAT@...

>

> Hi Peggy,

> My thoughts on the low grade fevers (mine has been 99 give or take for

> almost 5 years now!).......because our immune systems are in a constant

> state

> of " hyperdrive " this is a natural response to a perceived

> " infecton/virus/whatever " that has " triggered " our immune systems to

> react.

> I don't know about others, but swollen lymph nodes (helped immensely by

> Interferon) have also been a big part of the clinical picture for me. I'd

> be

> interested to hear other views/opinions as well.....

> Ann

>

> ---------------------------

[Guest guest]

In a message dated 6/26/1999 5:12:40 PM Pacific Daylight Time,

S@... writes:

<< I do not know much about this topic but I keep hearing the mantra " if it

hurts it must be good for you " . Are you sure that getting fever and other

reaction are a sigh that one is benefiting from a treatment. Could it be

that you immune system is over active and giving it more fuel increases the

problem. I know Dr. Cheney is the expert but the whole HHV6 business is at

least somewhat hypothetical. If something is making you sick maybe it is bad

for you. >>

I agree with Steve. Oddly, since he is responding to someone who is

experiencing fevers from immunocal, imuplus decreases my fevers.

Also, the hhv6 thing is only hypothetical in that they don't yet know

what role this is playing in cfids. However, it is not hypothetical that a

large subset of people with cfids/me do have active hhv6.

So, the person who was doctor told her there is no viral reactivation in

cfids was misinformed by him. He is just not in the loop. The lab where

this is being done, HerpesVirus Diagnostics is very well respected and has

never been involved in something controversial before they started testing

cfids patients. Noone ever questioned that they were finding, by rapid

culture and by pcr on cerebrospinal fluid , active hhv6 in Aids patients and

bone marrow transplant receipients. Now, using these same methods, they are

finding this active hhv6 in cfids and multiple sclerosis.

The doctor at the Cleveland clinic may not know about the availability

of this test for hhv6 antigen- he may be just thinking of the test for hhv6

antibody (this is the test just about any physician would have familiarity

with), and questioning the usefulness of this antibody testing.

[Guest guest]

I do not know much about this topic but I keep hearing the mantra " if it

hurts it must be good for you " . Are you sure that getting fever and other

reaction are a sigh that one is benefiting from a treatment. Could it be

that you immune system is over active and giving it more fuel increases the

problem. I know Dr. Cheney is the expert but the whole HHV6 business is at

least somewhat hypothetical. If something is making you sick maybe it is bad

for you.

Just a thought

Steve

> Re: low-grade fevers - why do we have

> them?

>

> From: Stefscreen@...

>

> Fevers may be in response to a reactivated virus, such as hhv6. I have

> active hhv6 and I have fevers. And what helps with the fevers tends to be

>

> things that are antiviral (and immunomodulating).

>

> ---------------------------

[Guest guest]

SWNGDABOAT@... wrote:

> From: SWNGDABOAT@...

>

> Hi Peggy,

> My thoughts on the low grade fevers (mine has been 99 give or take for

> almost 5 years now!).......because our immune systems are in a constant state

> of " hyperdrive " this is a natural response to a perceived

> " infecton/virus/whatever " that has " triggered " our immune systems to react.

> I don't know about others, but swollen lymph nodes (helped immensely by

> Interferon) have also been a big part of the clinical picture for me. I'd be

> interested to hear other views/opinions as well.....

> Ann

Low grade fevers and swollen glands were a part of my symptom profile for about

the lst 6 or so years of my illness. Then after that, the gland swelling went

down and II dropped to a constant low

body temp even on thyroid med. About 10 years into the illness, the FM symptoms

started (pain, stiffness, weakness).

I did get fevers starting Immunocal, but dropped the dose enough to keep from

getting the fevers so I can remain functional (or what I call functional) and am

trying to work my dose up slowly

without getting the fevers. Not quite to 1/2 pack daily yet!

Marcia

[Guest guest]

In a message dated 6/26/99 3:30:57 PM Eastern Daylight Time,

TheFez062@... writes:

> .I used to stand with my head in the freezer

> compartment of the refrigerator to try to cool down.

>

Hi Dwanna, Several us were just mentioning this and be careful if there are

funny scents from the freezer, like freon. I am begining to think the heat

from with in is one thing and the chills are a fever.

When we overdue we are weaker maybe ? who truly knows, anyone ?

[Guest guest]

Steve,

I think one has to judge the symtoms of negative yuckies and positve

yuckies and the person themselves have to be the judge of thier own reactions,

For me, b12 sublib and it does wake me up and I would have a natural

feeling of doing more but again when i do I get into trouble.

abx's and herxing is a run for my money but when the period is over i know i

feel better, and am capable of doing minor very minor increases,

some meds put me in to lalaland and i just don't like that kind of releif.

Immunocal took me awhile but i do feel again in my own body that it is a

plus,

chills did come on and I lowered the dose, and I hope and pray this is not

like so many things that just piddle out on me, but i have never reacted this

way before. the abx's are fighting something and it seems the immunocal is

helping the body to fight also on its own ground forces ?

[Guest guest]

You mentioned things that are antiviral and immunomodulating. What sort of

things would these be? Certain foods ?

Thanks

Phil

Stefscreen@... wrote:

> From: Stefscreen@...

>

> Fevers may be in response to a reactivated virus, such as hhv6. I have

> active hhv6 and I have fevers. And what helps with the fevers tends to be

> things that are antiviral (and immunomodulating).

>

> ---------------------------