Re : Mycoplasma >Nelly

[Guest guest]

Hi Nelly:

We were tested through Immunosciences Lab here in CA. It is supposed to be a

good lab. BTW my son tested negative for it and he has schizophrenia. I

still think he may have it. Drugs and some herbs can make the Myco hide so

it cannot be detected.

Also, my niece (20 yrs. old) called me two days ago and told me she was just

dx'd with Fibromyalgia. The interesting thing about all this is FM, if it is

hereditary how did my husband get it, and how did my brother's wife get it

(my brother has it)?

It has to be infectious.

I did get another doctor, one I was told was very sympathetic to FMS. She

not only wouldn't give me the ABx she sent me to an infectious disease

specialist who belittled me and told me it was " all in my head " and that I

was responsible for the mass hysteria of my family and all the people in my

group who believed me. Also, Drs and labs make up illnesses to get money.

The last time I saw my new doctor, she agreed with Infectious disease dr.

When I mentioned I still believed in it because I was better for 9 months on

the ABX, she told me I needed a psychiatrist and that it was all " placebo

effect " .

There is one dr here in Monterey Co. that will treat for it, but even he

won't go over a year. And if you don't get better within 3 months he will

take you off. I am going to wait for the research results that Dr. Nicolson

and others are doing before I make more drs mad at me. There aren't many

left in this county that will even deal with me anymore.

Take Care,

Dianne

[Guest guest]

Have people seen this. Let me know what you think.

http://members.aol.com/rgm1/private/simpson.htm

[Guest guest]

In a message dated 6/11/99 10:08:28 PM Eastern Daylight Time,

S@... writes:

<< Has anyone heard of fever therapy? >>

This sounds like it's akin to snake oil.

[Guest guest]

Has anyone heard of fever therapy?

http://www.square-sun.demon.co.uk/cfs-nim/therapies.htm

let me know what you think about it

Steve

[Guest guest]

the author supports your contagious theory

http://www.neuroimmunedr.com/Articles/CFS_-_CFIDS/Chronic_Fatigue_Syndrome/c

hronic_fatigue_syndrome.html

[Guest guest]

Nelly:

Thanks, you make me feel better.

About my son with schizophrenia, no, he was not treated for the myco at the

same time we were. It would be impossible to convince his psychiatrist to

give him doxy.

When he comes home, I am going to take him to the Monterey dr. to see what he

can do. He just might do it, for awhile anyway. Drs. will treat someone with

acne for 2 years or more with tetracycline, but try and get it for something

serious. Forget it! I don't understand this at all.

Dianne

[Guest guest]

This is all very interesting. Did anyone see the Atlantic Monthly article

about Germ Theory? One comment, much of the speculation on germ theory is

based on unproven hypothesis. This is not to say that it is not true I think

many of these ideas will be proven(some already have support -- there is a

dentist in Oklahoma who studies the pet of folks with FM and finds that they

have shorter life spans and more illnesses and he believes that pet contract

these problems from there owners -- maybe folk with fm cannot walk there

dogs as often --who knows) The problem is when issue are poorly understood

it is difficult to develop treatment programs on the basis of uncertain

knowledge. That would not be such an issue if treatment were either a

benefit or of no consequence. However some treatment has a negative side so

if they do not provide the hypothetical benefit they may cause harm. I take

CQ-10 not because it helps but because, hypothetically, it provide some long

term protection. I if I am wrong CQ-10 will probably do know harm. However

if I were to take ABXs say for depression I would probably not improve my

mental health and I would hurt my long term mental health.

So that is my soap box.

LOL

Steve

[Guest guest]

In a message dated 6/13/99 8:58:06 PM Eastern Daylight Time,

S@... writes:

<< Do others think that they have a good chance to recover? >>

Steve, there's always been a certain percentage that recover completely (very

low) and another percentage that recover about 80% (again, not the majority).

If you asked that question two years ago, I'd have said, probably not. Now,

with research lprogressing, I'd say YES......it's going to take awhile, as

science does, but it's coming.

Gail

[Guest guest]

A story of recovery

I found the following post at another site. I think that it provides

a hopeful message. I have two observations about recovery. First those who

are most likely to recover are fairly young people with sudden onset and who

previously enjoyed good health. The other group that is likely to recover

are those who find a specific cause for their symtpoms. Do others agree with

this observation? One of the down side is some of the folks who get CFS at

a young age and recover may relapse latter in life and may never recover.

Maybe I am being pessimistic but since I am 46 --dx at 45-- I do not think

that I have a good chance of recovery unless I find another cause for my

symptoms.

Do others think that they have a good chance to recover?

Oh well, enjoy this optimistic story of recovery

LOL

Steve

I was lucky enough to know people who recognized that I might have

CFIDS and to get to a knowledgeable MD soon after. So I was

actually being treated for having CFIDS before I got the

official

diagnosis 6 months after my symptoms began. I had gamma

globulin

(sp?) injections which did not seem to help. Then I tried

acupuncture and Chinese herbs for about 5 months. I had other

vitamins and herbs also like Co-Q10, C, Echinacea which helped

slightly (and which I still take when I start feeling run

down).

Then I used B-12 along with Kutapressin injections. I think

that

combination is what really helped me. But I used it for quite

awhile (maybe 8-10 months, I can't remember) before it seemed

to

help. I went off it at one point and felt worse so I started

up

again at least knowing that it was helping somewhat. I used

the

Kutapressin for about a year and a half. It wasn't easy

because

it is expensive and also I had trouble giving myself an

intramuscular shot because the needle is so large. I often

would

chicken out. SO I found a friend who would do that for me.

All

in all I've been very lucky...and very persistent to find

something that works. When my symptoms started up again last

year, I began the kutapressin again. It helped and now I'm not

using it anymore (at least until I need it again next time).

I know that others have found kutapressin to be helpful.

Others

haven't though. That's what is so frustrating about this.

Different things seem to work for different people.

> .

[Guest guest]

Dear Nelly and Diane,

I just joined the list. I found your comments about the connection between

schizophrenia and Rickettsia to be quite fascinating. Do you know if anything

has been published on this? The same thing can be observed with chronic Lyme

Disease. I wonder if there isn't some common pathway in these intracellular

infections producing this clinical picture.

In a message dated 99-06-13 11:24:37 EDT, you write:

<<

From: janel@... (JANEL)

Dianne

> BTW my son tested negative for it and he has schizophrenia. I

> still think he may have it. Drugs and some herbs can make the Myco hide so

> it cannot be detected.

I guess you know about people with " schizophrenia " who have improved

dramatically when treated with doxycycline for Rickettsia. Was your son

treated along with the rest of you who tested positive? Yes, mycoplasma and

rickettsia do hide in sanctuary sites and are not always circulating freely

in the blood. Nicolson told me that I could easily test PCR neg if I had the

test 2 months after having been on Abx (for 2 weeks).

<< Yes, that's HUGE pb. And doctors are SOOOOOO conservative and SOOOOOO

sheeplike they just hate to think for themselves(most of them that is), so

once you've been labelled by one it's very hard to get them to contradict

each other, sort of safety in numbers. They don't care about being right or

wrong as long as they are not at odds with their crowd. What their peers

think is what matters, not the truth, and as they almost all think this way

it goes round in circles nobody daring to move until the others do. Being

chronically ill is already so hard without having to battle the very people

who should be helping you. >>

Dear Nelly --- well said. There is a basic conservativism in the profession,

but one thing I am hearing more about lately from other physicians is the way

state medical boards are attempting to interfere in physician's legitimate

practices and to discipline them for practices that certain physicians

believe to be outside the norm. It becomes a battle of power and ego, but it

is dismaying to see state medical boards interject themselves in these

debates --- typically weighing in on the side of conservative and orthodox

practice. It can be very frightening to physicians. State medical boards

operate virtually without having to answer to anyone. They have enormous

power over physicians. Because physicians have so much shame about the

disciplinary process, few are likely to ever speak up.

Another thing I've heard recently is that insurance companies who don't want

to pay for expensive tests or treatments ordered by a particular physician

may report that physician to the medical board. They will claim that the

physician is overdiagnosing, or ordering too many tests of a particular kind

--- even though that physician may, indeed, have a specialty practice. Based

on the insurance company complaint, a board may then take action against the

physician.

Regards,

Lynn Shepler, MD, JD

email: amonterey@...

[Guest guest]

Dear Dianne,

In a message dated 99-06-13 13:15:34 EDT, you write:

<< Drs. will treat someone with

acne for 2 years or more with tetracycline, but try and get it for something

serious. Forget it! I don't understand this at all. >>

Bravo ! Yes, I agree. It has astounded me how stingy physicians are in

treating intracellular infections --- yet many people take fairly high doses

of tetracycline over long periods of time and no one bats an eye. These

intracellular infections and their debilitating states are much more serious

than acne !!!

I don't understand this at all, either.

Lynn Shepler, MD, JD

P.O. Box 802

West Falmouth, MA 02574

email: amonterey@...

[Guest guest]

I think Lynn comment are well taken. I have heard folks on this board curse

Drs. because they gave them too many antibiotics and ruined there health.

Whereas other lament that Drs will are not generous enough with this type of

treatment. That reflects the double bind that MDs are in.

If you want to go out on your own and take the risks yourself rather than

putting them on your doctor it is not that hard. Look at this week US News

and World Report. Also I know farm families that get ABXs from Vet supply

stores. It is easy to bemoan MD but in today's litigious society one should

understand Drs. that provide defensive medicine. Beside is it really that

hard to find MDs on the fringe that thrive on providing " off beat "

approaches. It seems that many folks on this board are on long term ABXs.

If you want to read about the more speculative aspects of germ theory check

out The Atlantic monthly -- I think it was the Feb issue but I am not sure.

Lynn welcome to this group I hope you stick around

LOL

Steve

[Guest guest]

In a message dated 6/14/99 9:40:26 PM Eastern Daylight Time,

AMONTEREY@... writes:

<< I just joined the list. I found your comments about the connection between

schizophrenia and Rickettsia to be quite fascinating. Do you know if

anything

has been published on this? The same thing can be observed with chronic Lyme

Disease. I wonder if there isn't some common pathway in these intracellular

>>

I think the only link so far has been Dr. W. 's published works.

Someone with a brain can list his stealth virus website.

Gail

[Guest guest]

In a message dated 6/15/99 8:47:28 AM Eastern Daylight Time, janel@...

writes:

<<

>>

Your're right, and I have the abstracts and the proceedings here. Just

didn't remember.

Gail

[Guest guest]

nelly, this must have been terrible experience for you. Such people are

supposed to be clever, wise and intelligent but they are only rigid and

useless for people who dare to suffer from an illness which is as mysterious

and problematic as CFS. Shame on him.

Wish you good luck with finding a doctor who would be able to help you.

Stania

Re : Mycoplasma >Nelly

>From: " Jacques & Nelly " <janel@...>

>

>Lynn,

>You couldn't be righter! I've just (10 minutes ago) returned from seeing a

>Professor of infectious diseases in one of Paris' leading hospitals and I

>stormed out telling him he was so intellectually rigid there was absolutely

>nothing I could get from him. To which he replied that he was quite sure he

>was as intelligent as I am. (nah, nah, nah, nah!)

[Guest guest]

Stania,

Yes, a few years ago, I would've been absolutely devastated by such an

encounter. And even today, if I wasn't feeling quite a bit better (don't

know how long it'll last, I'm on my 11th day of my second abx course), I

pbly would be despairing at the sheer madness of the situation, as well as

wondering, yet again, where to go from here. It's a shame I seem to be

experiencing this pain in my right side, under the ribs (liver, duodenum,

gut, gallbladder, stomach?) which means I might not stay on Abx as long as I

might need to, because it makes a fantastic difference each time I take

them. I feel alive again and so much less vulnerable, physically and

therefore emotionally. Better equipped to tackle the kind of encounter I had

yesterday. Yet, I most definitely NEED someone in HIS position to monitor

what I am doing. I can't do it myself. My local doctor doesn't have the time

or the confidence to really follow through. His attitude is OK but he

doesn't feel he's got enough to offer me, so I feel he's withdrawing a bit.

I still would like to see if we could do smthng at the European level, but

I'm not holding my breath about French doctors. They really take the cake!

Nelly

----------

>De : " Mužiková Stanislava " <stanislava.muzikova@...>

>À : <onelist>

>Objet : Re: Re : Mycoplasma >Nelly

>Date : Mar 15 juin 1999 19:27

>

> From: " =?iso-8859-1?B?TXWeaWtvduEgU3RhbmlzbGF2YQ==?= "

<stanislava.muzikova@...>

>

> nelly, this must have been terrible experience for you. Such people are

> supposed to be clever, wise and intelligent but they are only rigid and

> useless for people who dare to suffer from an illness which is as mysterious

> and problematic as CFS. Shame on him.

> Wish you good luck with finding a doctor who would be able to help you.

> Stania

> Re : Mycoplasma >Nelly

>

>

>>From: " Jacques & Nelly " <janel@...>

>>

>>Lynn,

>>You couldn't be righter! I've just (10 minutes ago) returned from seeing a

>>Professor of infectious diseases in one of Paris' leading hospitals and I

>>stormed out telling him he was so intellectually rigid there was absolutely

>>nothing I could get from him. To which he replied that he was quite sure he

>>was as intelligent as I am. (nah, nah, nah, nah!)

>

>

>

> ------------------------------------------------------------------------

> ONElist members are using Shared Files in great ways!

>

> Are you? If not, see our homepage for details.

> ------------------------------------------------------------------------

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

[Guest guest]

At 11:37 AM 6/16/99 +0200, you wrote:

>From: " Jacques & Nelly " <janel@...>

>

>Stania,

>

>Yes, a few years ago, I would've been absolutely devastated by such an

>encounter. And even today, if I wasn't feeling quite a bit better (don't

>know how long it'll last, I'm on my 11th day of my second abx course), I

>pbly would be despairing at the sheer madness of the situation, as well as

>wondering, yet again, where to go from here. It's a shame I seem to be

>experiencing this pain in my right side, under the ribs (liver, duodenum,

>gut, gallbladder, stomach?) which means I might not stay on Abx as long as I

>might need to, because it makes a fantastic difference each time I take

>them. I feel alive again and so much less vulnerable, physically and

>therefore emotionally. Better equipped to tackle the kind of

I'm not holding my breath about French doctors. They really take the cake!

>

>Nelly

>

And USA DR's have the icing! I'm getting same attitude from whole team of

docs now. I cannot walk or talk w/o being out of breath and no one knows

what to do! THey remind me of the keystone cops!

Christie

tab@...

encounter I had

>yesterday. Yet, I most definitely NEED someone in HIS position to monitor

>what I am doing. I can't do it myself. My local doctor doesn't have the time

>or the confidence to really follow through. His attitude is OK but he

>doesn't feel he's got enough to offer me, so I feel he's withdrawing a bit.

>

>I

still would like to see if we could do smthng at the European level, but

>I'm not holding my breath about French doctors. They really take the cake!

>

>Nelly

>

>

>

>

>

>

>----------

>>De : " Mužiková Stanislava " <stanislava.muzikova@...>

>>À : <onelist>

>>Objet : Re: Re : Mycoplasma >Nelly

>>Date : Mar 15 juin 1999 19:27

>>

>

>> From: " =?iso-8859-1?B?TXWeaWtvduEgU3RhbmlzbGF2YQ==?= "

><stanislava.muzikova@...>

>>

>> nelly, this must have been terrible experience for you. Such people are

>> supposed to be clever, wise and intelligent but they are only rigid and

>> useless for people who dare to suffer from an illness which is as

mysterious

>> and problematic as CFS. Shame on him.

>

>> Wish you good luck with finding a doctor who would be able to help you.

>> Stania

>> Re : Mycoplasma >Nelly

>>

>>

>>>From: " Jacques & Nelly " <janel@...>

>>>

>>>Lynn,

>>>You couldn't be righter! I've just (10 minutes ago) returned from seeing a

>>>Professor of infectious diseases in one of Paris' leading hospitals and I

>>>stormed out telling him he was so intellectually rigid there was absolutely

>>>nothing I could get from him. To which he replied that he was quite sure he

>>>was as intelligent as I am. (nah, nah, nah, nah!)

>>

>>

>>

>> ------------------------------------------------------------------------

>> ONElist members are using Shared Files in great ways!

>>

>> Are you? If not, see our homepage for details.

>> ------------------------------------------------------------------------

>> This list is intended for patients to share personal experiences with each

>> other, not to give medical advice. If you are interested in any treatment

>> discussed here, please consult your doctor.

>

>------------------------------------------------------------------------

>Having difficulty getting " in synch " with list members?

>

>Try ONElist's Shared Calendar to organize events, meetings and more!

>------------------------------------------------------------------------

>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

It was nearly ten years ago that our local support group heard that

Isoprinosine was doing wonders for patients. It wasn't available in the

United States, so we enlisted the help of an AIDS Buyer's Club in Houston (no

longer there, the man died) to get it for us from Mexico. It didn't seem to

have many severe side effects....most were mild, but it didn't seem to help

any of us, either. The company called me two days ago and wanted to meet

with me in Boston. I just told them to send material. Their group only was

comprised of 19 patients....very small for a study. Maybe they've improved

on it.....but it's wait and see right now. I don't think it's harmful to

try, though. At least, none of us is the worse for it, but no better, either.

Gail

[Guest guest]

has anyone heard of this??

Company Press Release Helix BioPharma Corp.

Isoprinosine® Clinical Study Shows Promise For

Chronic Fatigue

AURORA, ONTARIO--Isoprinosine®, an approved anti-viral

pharmaceutical used to treat sub-acute sclerosing

panencephalitis, has

shown to be promising in the treatment of Chronic

Fatigue Syndrome.

In a presentation made to the Neuro Immune Dysfunction

Syndrome

Medical Conference in Bethesda, land, Dr. Byron Hyde

of the

Ottawa-based Nightingale Foundation described the

results of his small

clinical study into the treatment of patients with

Isoprinosine® versus a

placebo. His study demonstrated that Isoprinosine®

appears to relieve the

symptoms of this debilitating condition in some

patients.

``I am happy with the results of our preliminary study

of the treatment of

chronic fatigue patients with Isoprinosine®. I believe

that this is a safe

medication with the promise of improvement of the

quality of life for some

CFS patients,'' stated Dr. Hyde, ``Some patients may

even be able to

return to work''

Isoprinosine® is distributed in Canada exclusively by

Helix BioPharma

Corp.'s subsidiary, Rivex Pharma Inc.

Approximately 500,000 people in North America are

estimated to suffer

from Chronic Fatigue Syndrome, many of whom are unable

to work due

to the profound tiredness associated with the disorder.

Patients typically

function at levels of activity substantially lower than

their capacity before

the onset of illness and may become exhausted with only

light physical

activity.

The cause of Chronic Fatigue Syndrome has not been

identified.

Isoprinosine® is a registered trademark of Newport

Pharmaceuticals Ltd.

Information contained in this news release includes

forward-looking

statements that are subject to risks and uncertainties

that could cause

actual results to differ materially.

Helix BioPharma trades on the TSE under the symbol

``HBP''

[Guest guest]

Hi,

I used to take Isoprinosine and it didnt work for me. I belive it can help

some PWC. Stania

Re: Re : Mycoplasma >Nelly

>From: " , T. " <S@...>

>

>has anyone heard of this??

>

>

> Company Press Release Helix BioPharma Corp.

>

> Isoprinosine® Clinical Study Shows Promise For

> Chronic Fatigue

>

> AURORA, ONTARIO--Isoprinosine®, an approved anti-viral

> pharmaceutical used to treat sub-acute sclerosing

>panencephalitis, has

> shown to be promising in the treatment of Chronic

>Fatigue Syndrome.

>

> In a presentation made to the Neuro Immune Dysfunction

>Syndrome

> Medical Conference in Bethesda, land, Dr. Byron

Hyde

>of the

> Ottawa-based Nightingale Foundation described the

>results of his small

> clinical study into the treatment of patients with

>Isoprinosine® versus a

> placebo. His study demonstrated that Isoprinosine®

>appears to relieve the

> symptoms of this debilitating condition in some

>patients.

>

> ``I am happy with the results of our preliminary study

>of the treatment of

> chronic fatigue patients with Isoprinosine®. I believe

>that this is a safe

> medication with the promise of improvement of the

>quality of life for some

> CFS patients,'' stated Dr. Hyde, ``Some patients may

>even be able to

> return to work''

>

> Isoprinosine® is distributed in Canada exclusively by

>Helix BioPharma

> Corp.'s subsidiary, Rivex Pharma Inc.

>

> Approximately 500,000 people in North America are

>estimated to suffer

> from Chronic Fatigue Syndrome, many of whom are unable

>to work due

> to the profound tiredness associated with the disorder.

>Patients typically

> function at levels of activity substantially lower than

>their capacity before

> the onset of illness and may become exhausted with only

>light physical

> activity.

>

> The cause of Chronic Fatigue Syndrome has not been

>identified.

>

> Isoprinosine® is a registered trademark of Newport

>Pharmaceuticals Ltd.

>

> Information contained in this news release includes

>forward-looking

> statements that are subject to risks and uncertainties

>that could cause

> actual results to differ materially.

>

> Helix BioPharma trades on the TSE under the symbol

>``HBP''

>

>

>------------------------------------------------------------------------

>Looking to expand your world?

>

>ONElist has 170,000 e-mail communities from which to choose!

>------------------------------------------------------------------------

>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

[, T.] Is it expensive is it like the clovair type

anti virals.?

How are you allergies doing?

Steve

> Is From: " =?iso-8859-1?B?TXWeaWtvduEgU3RhbmlzbGF2YQ==?= "

> <stanislava.muzikova@...>

>

> Hi,

> I used to take Isoprinosine and it didnt work for me. I belive it can help

> some PWC. Stania

> Re: Re : Mycoplasma >Nelly

>

>

> >From: " , T. " <S@...>

> >

> >has anyone heard of this??

> >

> >

> > Company Press Release Helix BioPharma Corp.

> >

> > Isoprinosine® Clinical Study Shows Promise For

> > Chronic Fatigue

> >

> > AURORA, ONTARIO--Isoprinosine®, an approved

> anti-viral

> > pharmaceutical used to treat sub-acute sclerosing

> >panencephalitis, has

> > shown to be promising in the treatment of Chronic

> >Fatigue Syndrome.

> >

> > In a presentation made to the Neuro Immune

> Dysfunction

> >Syndrome

> > Medical Conference in Bethesda, land, Dr. Byron

> Hyde

> >of the

> > Ottawa-based Nightingale Foundation described the

> >results of his small

> > clinical study into the treatment of patients with

> >Isoprinosine® versus a

> > placebo. His study demonstrated that Isoprinosine®

> >appears to relieve the

> > symptoms of this debilitating condition in some

> >patients.

> >

> > ``I am happy with the results of our preliminary

> study

> >of the treatment of

> > chronic fatigue patients with Isoprinosine®. I

> believe

> >that this is a safe

> > medication with the promise of improvement of the

> >quality of life for some

> > CFS patients,'' stated Dr. Hyde, ``Some patients may

> >even be able to

> > return to work''

> >

> > Isoprinosine® is distributed in Canada exclusively by

> >Helix BioPharma

> > Corp.'s subsidiary, Rivex Pharma Inc.

> >

> > Approximately 500,000 people in North America are

> >estimated to suffer

> > from Chronic Fatigue Syndrome, many of whom are

> unable

> >to work due

> > to the profound tiredness associated with the

> disorder.

> >Patients typically

> > function at levels of activity substantially lower

> than

> >their capacity before

> > the onset of illness and may become exhausted with

> only

> >light physical

> > activity.

> >

> > The cause of Chronic Fatigue Syndrome has not been

> >identified.

> >

> > Isoprinosine® is a registered trademark of Newport

> >Pharmaceuticals Ltd.

> >

> > Information contained in this news release includes

> >forward-looking

> > statements that are subject to risks and

> uncertainties

> >that could cause

> > actual results to differ materially.

> >

> > Helix BioPharma trades on the TSE under the symbol

> >``HBP''

> >

> >

> >------------------------------------------------------------------------

> >Looking to expand your world?

> >

> >ONElist has 170,000 e-mail communities from which to choose!

> >------------------------------------------------------------------------

> >This list is intended for patients to share personal experiences with

> each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

> >

>

>

> ------------------------------------------------------------------------

> Make your voice heard!

>

> Sign up for the ONElist Weekly Survey. Go to homepage for details.

> ------------------------------------------------------------------------

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

[Guest guest]

The kind I used was made by Ewopharma, CH and costs about 800 crowns which

makes about 23 US dollars (for 50 x 500 mg). it is also an immunomodulator

and stimulates T-cells and NK cells (it is used for minor immun.

insufficiences). it is covered by health insurance here in Czech Republic.

It can cause some side effects. people may urinate more frequently or have

some GI problems.

I don't know the clovair type. I also did not take other antivirals. I am

the type who gets colds or infections only rarely.

My allergies are quite ok now (it is rainy and rather cold). I take my

favourite claritine :-) thanks.

Bye, Stania

Re: Re : Mycoplasma >Nelly

>>

>>

>> >From: " , T. " <S@...>

>> >

>> >has anyone heard of this??

>> >

>> >

>> > Company Press Release Helix BioPharma Corp.

>> >

>> > Isoprinosine® Clinical Study Shows Promise For

>> > Chronic Fatigue

>> >

>> > AURORA, ONTARIO--Isoprinosine®, an approved

>> anti-viral

>> > pharmaceutical used to treat sub-acute sclerosing

>> >panencephalitis, has

>> > shown to be promising in the treatment of Chronic

>> >Fatigue Syndrome.

>> >

>> > In a presentation made to the Neuro Immune

>> Dysfunction

>> >Syndrome

>> > Medical Conference in Bethesda, land, Dr. Byron

>> Hyde

>> >of the

>> > Ottawa-based Nightingale Foundation described the

>> >results of his small

>> > clinical study into the treatment of patients with

>> >Isoprinosine® versus a

>> > placebo. His study demonstrated that Isoprinosine®

>> >appears to relieve the

>> > symptoms of this debilitating condition in some

>> >patients.

>> >

>> > ``I am happy with the results of our preliminary

>> study

>> >of the treatment of

>> > chronic fatigue patients with Isoprinosine®. I

>> believe

>> >that this is a safe

>> > medication with the promise of improvement of the

>> >quality of life for some

>> > CFS patients,'' stated Dr. Hyde, ``Some patients may

>> >even be able to

>> > return to work''

>> >

>> > Isoprinosine® is distributed in Canada exclusively

by

>> >Helix BioPharma

>> > Corp.'s subsidiary, Rivex Pharma Inc.

>> >

>> > Approximately 500,000 people in North America are

>> >estimated to suffer

>> > from Chronic Fatigue Syndrome, many of whom are

>> unable

>> >to work due

>> > to the profound tiredness associated with the

>> disorder.

>> >Patients typically

>> > function at levels of activity substantially lower

>> than

>> >their capacity before

>> > the onset of illness and may become exhausted with

>> only

>> >light physical

>> > activity.

>> >

>> > The cause of Chronic Fatigue Syndrome has not been

>> >identified.

>> >

>> > Isoprinosine® is a registered trademark of Newport

>> >Pharmaceuticals Ltd.

>> >

>> > Information contained in this news release includes

>> >forward-looking

>> > statements that are subject to risks and

>> uncertainties

>> >that could cause

>> > actual results to differ materially.

>> >

>> > Helix BioPharma trades on the TSE under the symbol

>> >``HBP''

>> >

>> >

>> >------------------------------------------------------------------------

>> >Looking to expand your world?

>> >

>> >ONElist has 170,000 e-mail communities from which to choose!

>> >------------------------------------------------------------------------

>> >This list is intended for patients to share personal experiences with

>> each

>> other, not to give medical advice. If you are interested in any

treatment

>> discussed here, please consult your doctor.

>> >

>>

>>

>> ------------------------------------------------------------------------

>> Make your voice heard!

>>

>> Sign up for the ONElist Weekly Survey. Go to homepage for details.

>> ------------------------------------------------------------------------

>> This list is intended for patients to share personal experiences with

each

>> other, not to give medical advice. If you are interested in any

treatment

>> discussed here, please consult your doctor.

>

>------------------------------------------------------------------------

>Last chance to earn $5000 for your charity of choice!

>

>Deadline for " GROW TO GIVE " is June 19. See homepage for details.

>------------------------------------------------------------------------

>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.