Re: Digest Number 121

[Guest guest]

The person who knows most and worked on the Drug and Informed Consent Act of

1998 is Meck, I believe. He had earlier postings to the list, but

experienced recent traumatic loss of a close family member, if I remember

correctly. His email is danielmeck@.... Also, the bill did not pass

last year, and he wanted his colleagues to take up cause.

[Guest guest]

AS a person that spent more time on the hill in DC than home last

year........I can answer questions you all may have on HR 4036 and HR 4035

DSNurse

<<

Reply-to: onelist

onelist

From: KERNLHANDY@...

The person who knows most and worked on the Drug and Informed Consent Act of

1998 is Meck, I believe. He had earlier postings to the list, but

experienced recent traumatic loss of a close family member, if I remember

correctly. His email is danielmeck@.... Also, the bill did not pass

last year, and he wanted his colleagues to take up cause.

>>

[Guest guest]

<<<<<<

Patti writes:

......The good doc I have, has done some research on sweat and says these

toxins can bypass the liver and leave the body in sweat. This is why he

wants me to do sweat therapy (as outlined in the book " Detoxification for the

Chemically Sensitive " by

Shipiro.

Hi Patti...

What kind of doctor are you seeing?

I tried to look up this book in my library, and they don't have it...I tried

to look up the author, but there are too many with that last name. Could you

tell me the author's first name?

Also, I am very interested in this detox method with the sweating. I

recently have started going to a health club and taking a sauna and find that

when I am feeling awful and I go and really work up a good sweat, I feel

better. But I have read that sitting in a sauna at high temperatures, and

without ventilation is not good either....do you have any personal experience

with this " detoxing by sweating " methods?

<<<<<

and further...

I believe that most, if not all, people with severe chemical sensitivities

(which I have) are Phase II deficient, but since there are so few people who

get this test, its hard to know for sure.

> How can we learn more about that?

Do a medline search on " Phase II " and liver and detox. That's where I came

across about 700 articles about green tea and its effect on phase II detox.

Patti

>>>>>

Patti,

I have been drinking green tea for about 4 months. About a month ago I went

on a veggie juice fast for about 5 days, and while on it, I tried drinking

green tea, and suddenly it started making me nauseous. Since then, every

time I drink it I feel nauseous. I am quite sure I am having trouble with

that Phase II detoxing, and find this discouraging that what they are

suggesting will help, makes me sick... :-(

Jane

[Guest guest]

L. and list:

<<Does everyone experience one set of emotions and views on these issues one

day, and then the next day they change?>>

This is the story of our life here with , age 8. A year and a half

after her diagnosis and we're still up and down, trying this and trying

that, feeling very sorry for ourselves one day and like it could be sooooo

much worse the next, loving her/wanting to protect her and looking at her

like she's a being from another planet, etc., etc.

OCD a very confusing disease, and not just to us, but to doctors, too.

is into her 4th week of increased Zoloft and third week of CBT and

we're simply watching symptoms shift around. None are leaving -- they're

just changing. Where is our daughter??

On top of that, this CBT is her fourth since diagnosis, and she's very

reluctant to trust him. So she doesn't (yet); she lied to him and told him

sure, she'd give up spitting into towels and clothing to get rid of

" poisons " before they make her throw up. He believed she would -- which

surprises me, too. If it were simply a matter of rationally explaining to

her why spitting isn't helpful and turns others off, then she would have

stopped long ago. She's another super-intelligent, super-sensitive child,

and she knows how to say what adults want to hear so they'll leave her and

her rituals alone.

Does CBT work if a child wants to hang onto the comforts of ritualistic

behavior? Can we make children take back control of their lives? I'm

beginning to wonder if we aren't just throwing away oodles of money trying

to get to change behaviors/thoughts she is growing to accept...

in PA

[Guest guest]

HI and list:

Wow you really describe to movingly and correctly what living with an OCDer

is like!

The spitting compulsion is a very tough one. Our son Steve used to keep

his saliva in his mouth and drool onto his T-shirts until they were half

wet. ALso he would not want to change them and in the tropical heat the

odor was quite unpleasant. Please never give up hope that wants to

be rid of OCD even more than you want this for her. Are you sure her CBT

believes her about giving up the spitting? Our OCDers can feel in a corner

when so many adults want them to change and boss back their OCD and they

are feeling fear, fear, fear. What helped me was to stop calling it lying

and just call it self-protection. Steve would also say what was needed to

get adults (especially parents and others with power and influence over his

life) off his case.

It could also be that the spitting compulsion is just too high up on

's OCD hierarchy for her to work on it now. You might want to ask

her CBT about where they are working on the hierarchy and what successes

have been accomplished. Dr. Penzel advised me not to take Steve more than

five times to a CBT if there was no progress being made. This has saved us

a lot of money.

The hard lesson for us is that no matter how much we want improvement, no

matter how much money we spend, unless our kids can summon up the

determination to boss back OCD, we cannot make them do it. All we can do

is create a supportive, encouraging environment. In our family that has

meant re-engineering the way our family functions, for me it has meant

trying to develop patience and a willingness to let go. Strangely once I

accepted that I could live with Steve's untreated OCD no matter what and it

was all up to him, he began to boss back his OCD on his own. It also

didn't hurt that all this happened when he finally started working with an

experienced doctor and committed therapist for a change.

The more insight our OCDers can develop, the more they are going to be able

to boss back their OCD. Good luck to you and , take care, aloha,

Kathy (Ha)

kathyh@...

At 09:54 AM 6/4/99 -0400, you wrote:

>From: " Stockman Vines " <lstockman@...>

>

> L. and list:

>

><<Does everyone experience one set of emotions and views on these issues one

>day, and then the next day they change?>>

>

>This is the story of our life here with , age 8. A year and a half

>after her diagnosis and we're still up and down, trying this and trying

>that, feeling very sorry for ourselves one day and like it could be sooooo

>much worse the next, loving her/wanting to protect her and looking at her

>like she's a being from another planet, etc., etc.

>

>OCD a very confusing disease, and not just to us, but to doctors, too.

> is into her 4th week of increased Zoloft and third week of CBT and

>we're simply watching symptoms shift around. None are leaving -- they're

>just changing. Where is our daughter??

>

>On top of that, this CBT is her fourth since diagnosis, and she's very

>reluctant to trust him. So she doesn't (yet); she lied to him and told him

>sure, she'd give up spitting into towels and clothing to get rid of

> " poisons " before they make her throw up. He believed she would -- which

>surprises me, too. If it were simply a matter of rationally explaining to

>her why spitting isn't helpful and turns others off, then she would have

>stopped long ago. She's another super-intelligent, super-sensitive child,

>and she knows how to say what adults want to hear so they'll leave her and

>her rituals alone.

>

>Does CBT work if a child wants to hang onto the comforts of ritualistic

>behavior? Can we make children take back control of their lives? I'm

>beginning to wonder if we aren't just throwing away oodles of money trying

>to get to change behaviors/thoughts she is growing to accept...

>

> in PA

>

>

[Guest guest]

, Most of us with the intractable itching from liver disease take

Atarax { hydroxyzine 25 mg. dosage } up to 3x day. I usually only take

at night when my itching is at it's worse. For lotion I have found that

SARNA an over the counter non-steroid lotion is great for short term...at

least it lasts for several hours. Remember, no hot tubs or showers.it

agravates itching. Also, be sure you are drinking the needed 8 glasses of

WATER a day to help flush the toxins out of your system...the less that will

build up under your skin. Some people also take Evening Primrose Oil as

a supplement to help. And for those very few where nothing else works there

is always prednisone..AS A LAST RESORT. Joanne Cathcart

[Guest guest]

Where do you live? Nothing called Sarna around here. There is lotion

called Respite that helps a little.

J

>From: JJCATHCART@...

>Reply- onelist

> onelist

>Subject: Re: [ ] Digest Number 121

>Date: Tue, 29 Jun 1999 19:20:22 EDT

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>From: JJCATHCART@...

>

>, Most of us with the intractable itching from liver disease take

>Atarax { hydroxyzine 25 mg. dosage } up to 3x day. I usually only

>take

>at night when my itching is at it's worse. For lotion I have found that

>SARNA an over the counter non-steroid lotion is great for short term...at

>least it lasts for several hours. Remember, no hot tubs or showers.it

>agravates itching. Also, be sure you are drinking the needed 8 glasses of

>WATER a day to help flush the toxins out of your system...the less that

>will

>build up under your skin. Some people also take Evening Primrose Oil

>as

>a supplement to help. And for those very few where nothing else works

>there

>is always prednisone..AS A LAST RESORT. Joanne Cathcart

>

>---------------------------

[Guest guest]

Carli, NOW brand isn't watered down or anything, it's perfectly fine. I've

used NOW many times with great results

Deb

:::Then there was Now brand for 1oz for only $4. So I bought the

:::Now brand. I talked to the clerk and she assured me it was 100% EO and

:::nothing else. So Im assuming that this is just a lower grade EO?

:::Does anyone know anything about this?

:::*~*Carli*~*

[Guest guest]

Hello all, i ahve been watching and learning so much from you all, I have

tried several different recipes and i wanted to say thanks, and also to ask

for your assistance in a recipe for gardners lotion i have seen it

mentioned but i have been unable to locate. thanks again

shrnmt

[Guest guest]

Autistic Spectrum Disorder

Just a fancy way (PC way) of saying Autism.

On Wed, 19 Apr 2000 23:11:37 -0500 ericsezl@... writes:

> ,,

> what is ASD?

>

> Lori

>

>

------------------------------------------------------------------------

> Win $1000 at eGroups!

> Click here to find out how:

> 1/2861/6/_/691668/_/956203164/

>

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>

>

[Guest guest]

,,

what is ASD?

Lori

[Guest guest]

I'm not , but ASD stands for Autism Spectrum Disorder.

Sara

>>> ericsezl@... - 04/20/0 12:11 AM >>>

,,

what is ASD?

Lori

------------------------------------------------------------------------

Win $1000 at eGroups!

Click here to find out how:

1/2861/6/_/691668/_/956203164/

------------------------------------------------------------------------

[Guest guest]

In a message dated 8/15/00 1:36:58 PM Eastern Daylight Time, kj-mj@...

writes:

<< Did you cure yourself of anything with the Beck device? >>

Hi ,

I had miraculous results with the black box blood purifier (EBV). I also

have the magnetic pulser and make colloidal silver. I never did get to try

the ozonated water though. Everyone is different - just remember to start

slow. Let us know when you get it and what you're trying to treat.

Good Luck,

Dotsie

[Guest guest]

Hi!

I'm sure this has been covered in the past, but I'm considering Beck's

4-point protocol (CS, blood electrification, ozonated water, magnetic

pulser).

Does anyone have experience with this? Also, what devices did you buy?

Did you cure yourself of anything with the Beck device?

Thanks,

[Guest guest]

Before S--- had to remove their testimonials pages, literally dozens

were coming up with regard to HIV treatment. Some were daily

journals. Impressive results. Go for it. (At worst, you break even,

at best, you get better).

One thing- don't be too quick to pronounce a 'cure' because to effect

that, you have to get ALL the virii. But if you beat down the bug,

you're just a host, nothing more. You can always take a booster

treatment twice a year or so. Good luck.

ciao

Duncan

[Guest guest]

Hi Toni! I was pregnant with twins and one developed language just fine. I can tell you I did not have gestational diabetes. However, I did have a break through of bleeding at least three times during my pregnancy and they thought I would miscarry. I also suffered from alot af headaches. They told me to take Tylenol for them. My little girl weighed 5lbs. (the one that developed fine). And my son weighed 4 lbs. ( he is the one with developmental problems in language and social skills). They were 5 weeks premature. I can tell you my son had imitation in oral moter skills and then lost the ability to imitate. I believe he wasn't born that way. But that is my theory because I saw regression in my son. I suspect either the MMR vaccination or possibly a reaction to a very high fever. My son was very sick the first year and a half of life ! His immune system was extremely weak. When they would vaccinate him, he was always sick. I honestly don't know what happened, but I would love to find out just like all the other parents!! Please keep us informed.

Thanks, Candace

[Guest guest]

Hello Dave,

>I totally lost my sense of smell 27 years ago, and have only regained it

twice (for a few days) - each time after an extended course of

prednisolone. After the second operation to remove polyps, the surgeon

said I had a real chance of regaining my sense of smell. It didn't happen

- and here I am waiting for operation #3.

I think I lost my sense of smell around that many years ago - I didn't

notice it gone at first! I've got it back a few times, as you say, during

courses of prednisolone, but also in the early years when I had the flu or

took antibiotics. The medicos were at a loss as to why, naturally.

I'm really puzzled at the moment, as is my immunologist. I've had the op,

had the desensitisation, and still problems persist. My skin tests and

blood tests come back with minor allergies/intolerances - definitely

nowhere near enough to cause the chronic symptoms I experience on an

ongoing basis. What else could be causing the inflammation and excess mucus

production that leads to chronic sinusitis and continual flare up of

polyps. After a bare 3 months my polyps have regrown by 40-50%!!!

Apart from avoiding bread and similiar foods, I eat an unrestricted diet

(well, I can, after all salicylate shouldn't be a problem, right, as I'm

taking four tablets a day - 1200mg???). I've now cut out preservatives and

am hunting them down as much as I can. What else? I'm desperate as I'm sure

that the illness is contributing, if not causing, equally debilitating

depression. I want to get well, I want to look forward to a life without

cortisone sprayed or inhaled into my poor wretched body.

In addition to all that I came off my son's motorbike the other day and I'm

bruised and battered all over - a sorry sight indeed! (Had fun though...)

all the best,

Beverley

Author of " The Chimaera Conspiracy " , new Australian YA action-packed sci-fi

mystery novel. http://chimaera.topcities.com available from

http://greaterglider.com

" Getting Started with Homeschooling " and " Learning in the Absence of

Education " available from

http://members.ozemail.com.au/~beverleypaine/homeschool

[Guest guest]

Beverley,

I can't say I'm convinced by this aspirin desensitisation treatment. But then, what do I know? No-one at my ENT Clinic has ever mentioned it as an idea. (But then, they've never mentioned Samters Triad either.)

It seems to me - as a know-nothing - that there must be a chance your current problems are CAUSED by the daily aspirin dosage rather than mitigated by it. I've already had one frightening experience from taking a mild dosage of aspirin - and I'm not going to try it ever again.

Dave

[Guest guest]

Hi All,

I have to admit I too am confused why anyone would want to take something daily that they are allergic to. Maybe it is the degree to which that person has the allergy?

I'm with Dave, 'been there, done that, not returning'. But then I don't understand all the surgeries either. Right now I am full of polyps, but I know I haven't been sticking to 'the food list' and so have earned them. I can live with the idea I have limited foods and if I eat them, there are going to be problems. Sometimes it is worth the problems. But the flip side is I know that when I stick to the food list, I do get my sense of smell back. Not always for very long, and not always when I want to smell something but I think if I would stop cheating, I might actually see some good results.

My goal at the moment is to stay on the diet for at least 2 weeks without cheating. I've been sneaking mayo and hot dogs all summer without too much problems but the ice cream has just about closed my nose. So...time to get my act together ..again.

Another thing I have discovered, that by staying off the allergy foods and then cheating big time, my hiatus hernia really kicks in and I have acid reflux for days. Anyone else notice anything like this, or is it not related?

PS which is easier to track and read, the digest or the e-mails?

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

> Hi All,

>

... . . snip . . .

>

>

> PS which is easier to track and read, the digest or the e-mails?

Individual e-mails are better to manage, as long as you don't mind the multiple

messages.

A request though, for everyone who uses the digests:

When replying, please change the " subject " of the reply to something which

describes the message -- " Digest Number

999 " is not a very helpful heading for your audience.

regards,

Ken West

[Guest guest]

I am now getting mine through an Efriend in the US who gets good discounts for being a practitioner (OT) and she has them delivered to her house and resends them as a gift I pay a little more on postage sometimes but I already have the saving on the supps and no VAT or customs.

She'll do it for you too - I'll send you details off list and anybody else who wants info mail me direct

MAndi in Dorset

Whenever I've ordered vitamins from the US I have had to pay customs duty - so all the saving from multi buying in bulk is lost. how does anyone else get around this?

[Guest guest]

It is Cally

What about Cally?

[Guest guest]

Whenever I've ordered vitamins from the US I have had to pay customs duty -

so all the saving from multi buying in bulk is lost. how does anyone else

get around this?

best

Stephx

Mum of Tom, 6

Advice re flu virus

Jack (8) came down with a nasty flu virus last Friday, and having slept

solidly for 3 days is just starting to turn a corner. Because he has been so

poorly and initially it was a struggle just to get fluids into him we have

not given any supplements from Friday until today, nor any dmps, gsh or

ttfd. I have started to build back up the mg, zinc and brainchilds vits and

mins slowly and thought I should get him up to full dose on all these supps

before reintroducing the chelators and td creams. My concern is that we had

taken a while to build up to the 10 drops td dmps we were on and I'm not

sure whether I can go straight back to 10 when we restart or whether we'll

have to start low and build up again! Has anyone else been in this

predicament?

Also he is terribly congested, can't blow his nose and therefore s

having trouble breathing especially at night. Can anyone recommend a good

way to ease this? I have tried a chest rub of eucalyptus,rosemary and lemon

oils, plus putting these on an aromastome in his room - any suggestions or

tips are very welcome!!!

With many thanks

[Guest guest]

What about Cally?

Re: Digest Number 121

I am now getting mine through an Efriend in the US who gets good discounts for being a practitioner (OT) and she has them delivered to her house and resends them as a gift I pay a little more on postage sometimes but I already have the saving on the supps and no VAT or customs.

She'll do it for you too - I'll send you details off list and anybody else who wants info mail me direct

MAndi in Dorset

Whenever I've ordered vitamins from the US I have had to pay customs duty - so all the saving from multi buying in bulk is lost. how does anyone else get around this?

[Guest guest]

That's great..keep it all in the "family"....

Re: Digest Number 121

It is Cally

What about Cally?