Guest guest Posted April 8, 1999 Report Share Posted April 8, 1999 Aloha! Thank you, Sue. B for the info. on Oral B-12. do you mean the sublingual tablets that I take now, or does it come in a liquid form? Jodi, thank you, too, for describing the way you take B-12. I hate needles, but have learned to use those ultra-fine ones for my Kutapressin. it would be good if I could use those for B-12 and inject myself. At least it's cheap--the Dr. only charged $4.00 for my injection. At this point, $4 bucks seems like nothing, considering that all of my disability .benefits goes for meds... Christa, mahalo (thanks) for the nasal spray B-12 info--I'll ask my dr. about it. So many choices! Some random thoughts: One of you (there's the brain fog creeping back) mentioned that you've been reading Dr. Cheney. What are you reading and where? I've been to him several times (I know he's not perfect, but I do feel his treatment protocol and general approach has been good for me). I can't afford to see him this year, unless I get desperate because i can't find a doctor over here (Honolulu) who is willing to risk anything. The local dr. I have is really bright and nice, but extremely conservative. I asked him about Neurontin and he said that's only if I truly have brain swelling. Otherwise it would cause side effects. I don't remember anymore whether I ever had tests that proved I have " swollen brain " or not. I thought that swelling was the source of the peculiar pressure-like CFIDS headches. Maybe I just dreamed this up. Also, I think Cheney tested me for mycoplasma a couple of years ago--I know Dr. Hyams did his amazing bloodtest--so colorful! Dr. H. did show the results to Cheney and there were weird white spots. I think Cheney said the test showed that I had lots of evidence of viral anti-bodies. (I'm not sure about this. I understand it when it's being explained to me, but then it all disappears again). That's why he gave me the kutapressin, because he said it worked better on people who show evidence of having or having had extensive viral infection as a major cause of the illness. Please don't hold me to any of this. I was so ill and tired when I saw him, I'm lucky I remember anything. I may be completely mistaken. The tape recording of the visit didn't turn out well, either. And I've been through several moves, etc., since then. I did request from Dr. Cheney,via phone, antibiotics according to dr. Garth Nicholson's protocol. This was about 2 years ago, at my mother's insistence (she had listened to Dr. Nicholson often on the radio and is also very interested in Gulf War syndrome). I took some sort of antibiotics Cheney prescribed, for about 6 weeks, but experienced no effects at all--no die-off or anything. Nothing good or bad, so I didn't go on with it after the initial trial. Maybe I should have.. Yet another question-- does anyone know where Sheryl Autrey, R.N., who was Dr. Cheney's nurse, is now? She was a great help/resource to me. I thought I'd read all the recent lists, but obviously missed out on this controversy over -Macy 's posting. I don't know what's going on. but after reading the list for awhile now and corresponding with some of you, I feel like a part of a " family " .(In Hawaii, family , especially extended family, is referred to as " ohana " and is extremely important). I hate to see our " ohana " torn with factionalism. We really all need to work together to find a cure for this thing, and in the meantime, as someone said, just to feel better. Hope I'm not sermonizing here. Glad to hear Stania's in the Czech Republic. I'm sure there are PWCs among all the war's displaced persons though... Love to all, Teeza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 1999 Report Share Posted April 8, 1999 Please remove me from this list Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 1999 Report Share Posted August 1, 1999 Steph, You are right about what Munchausen by proxy is. Sounds like you need a different doctor. It sounds like he thinks you are bringing your child's problems to him to gain attention for yourself.....clearly this doc has never dealt with autism personally and perhaps professionally. RUN, FOREST, RUN!!! LD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 1999 Report Share Posted September 25, 1999 Hi List, Sorry I haven't been able to respond before now - been super busy. Anyway, the " Cave Man Diet " is extremely low carbs (less than 100 grams per day), no wheat, gluten, etc. - essentially, it is fresh veggies and meat. I've been on it with much success (only cheated twice) and am hoping it will help. I do have lots of other questions, but unfortunately my time right now is limited. I will write again, ASAP. MJ In a message dated 9/15/99 4:46:10 AM Eastern Daylight Time, candidiasisonelist writes: << Message: 1 Date: Tue, 14 Sep 1999 10:56:24 EDT From: J304@... Subject: Re: Welcome to candidiasisonelist What is the cave man diet? Janice >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Hi....I'm BAAAAAAAAAAAACK!! Did anyone miss me or did you not notice????? hehehehe...... Had defective monitor and CompUSA would NOT take anything back after 14 days......and they charge 15% opened box fee....so everybody, if your puter breaks, don't buy anything from them....... Anyway, lots to catch up on....trying to read all my mail and the list too...been away for FIVE WHOLE DAYS!!!! Fast update..... is now on Risperdal in am too......50mg.....the nighttime dose finally kicked in......so we started in am this past Monday to see if he can improve at school.......nothing yet...maybe the new dose takes as long to kick in???? Will read previous lists and try to catch up....... Take care all, B. (do I have to add that now since we have a new ?? Can't I just say " Crazy " or " Stooge " ???) P.S. Had to send monitor BACK to manufacturer and they shipped me new one....at least THEY were reliable!!! In case anyone was asking....hehe.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 i say since we got a new laura to call you " crazy stooge laura " aka seans mom....heheheeh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Hi, I asked this a few weeks ago and did not get any replies, but is there any one on the list from New Jersey that plans on going to the Association Method Seminar at West Chester University on Saturday March 3rd? Kindly reply to: iaquinto@... Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 Hi Diane! How are you doing? I'm hanging in there, counting the days until I leave. Will it ever come??? Always, SJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 Hi S.J. How are you girl???? So glad to hear from you but worried about you too.... I sent you a private email and asked you to send me your phone number.... Did you get it?????? Angel Hugs, Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 OK geez yall . . . I have CRS really really bad and it seems to only get worse. I've sent another pic (I think) anyway. Hope it wasn't the same one . . . hahaha . . . one just never knows with me. In fact, I hope what I sent WAS me! :::giggle::: Its too early in the AM for me to be awake . . . maybe I should head back to bed for a few??? Always, SJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 SJ.....Don't feel bad Hon...I think we all have a case of CRS everynow and then......me on the other hand suffer from it frequently!!!!! hahaha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Sorry, advised me he is no longer doing HBOT treatments. > Message: 1 > Date: Thu, 07 Mar 2002 21:35:14 -0500 > From: rhartsoe <rhartsoe@...> > Subject: HBOT in Tampa > > There is a facility in Tampa, Dr. Capria will be happy to work with > you. > > Tampa: Tampa Hyperbaric Enterprise, Capria, 700 West Waters Ave., > Tampa, FL 33604, 800-932-5391 Email: drmichael@... > > Hartsoe > Children's Hyperbaric ative at Miracle Mountain > www.miraclemountain.homestead.com/cooperative.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 >Message: 2 > Date: Mon, 22 Dec 2003 22:39:17 -0800 > From: " Caitlin Lorraine " <secretariat88@...> >Subject: Re: Flu and the good stuff > >Carol, > I would be very interested to have your kefir cheesecake recipe! I am always looking for new delicious ways to take my kefir. Kefir banana milkshake with coconut oil is very good! And I make a kefir eggnog with nutmeg, stevia, and a raw fresh of the farm chicken egg. Very tasty! I think strawberry shake is still my favorite though... Caitlin Lorraine > > > During the whole day I worked at > getting all my usual pro biotic stuff into me --- kefir, kefilli, kefir > cheesecakes, coconut oil, zinc tab, garlic tabs, Vit C tabs, Olive leaf > tab. By nite the aches and cold feeling were gone and now this morn the > Diarrhea is gone. > So as far as I'm concerned, the good stuff really can win out over the > nasties. > > Carol K > > > > Here are my kefir recipes A Couple of Kefir Recipes When you start getting more kefir than you want to drink, here are a few recipes to try. There are lots more at Dom’s site too. My measurements aren’t precise as I often don’t measure. Kefir Cream Cheese. I never buy cream cheese any more. Dom’s site has several recipes/instructions for cheeses. http://users.chariot.net.au/~dna/kefir_cheese.html Cream cheese is also called Leban Line a strainer with a fine wove cloth (Wal-Mart has a nice " flour sack " kitchen cloth). Have the strainer sit over something to collect the whey, it’s useful too. Pour in at least a Quart of kefir. Fold over the cloth and let drain a couple of hours. Then take a wooden spoon or heavy rod and tie the bundle to suspend it so more whey drips out. The whole process takes 8 - 24 hours depending on how much kefir you start with. The cream cheese is softer and much lighter, less gummy than store cream cheese. Makes about 2 cups/ Qt of kefir used. Smoothies In a wide mouth Qt jar ( I use a stick blender) or blender jar, 1 ripe banana 1 egg 2 tbl ground Flax seed 2 Tbl ground unsweetened coconut 3-4 Tbl coconut oil flavoring - some berries, cocoa powder, jam, whatever Sweetener if the kefir is too sour for you. But you get used to it and won’t need it after about 2 weeks. Kefir to cover but leave room to blend. Blend, pour into a drinking container. I use a Rubbermaid Qt and top the bottle with Kefir Makes at least a Qt Cheese cake 2 Cups kefir cream cheese 2 packs Knox gelatin, dissolved in 1 cup water ½ to 1 cup ground unsweetened coconut flavoring - some berries, cocoa powder, jam, whatever Sweetener of choice - this you want a bit sweet 1 cup coconut oil blend all together, pour into lined muffin tins. Refrigerate. Makes 12-15 individual cheese cakes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2005 Report Share Posted May 17, 2005 Re: Suspended; Rants; Questions unanswered; and conversation I've been part of this group for a good couple of months and took the title " Infection and Inflammation " seriously, ie not a " Lyme " group but one havving a broader discussion. My own (identified) infectious source is Chlam Pneumonia, not Lyme, and my observations and questions have always been received well even though I'm not a member of the " dominant infection " group here. Bleu also. and Penny- I really don't get the exchange between you for the last week or so. I don't know whether will get this as he is suspended, but you both have seemed off the deep end at times in this discussion, which leaves me feeling that there must be something else going on, or someone you symbolize to each other, for this to keep going. - from your reports things are really crappy for you medically these days. But that's true of a lot of us. I'd like us to tone down. There has been some enourmously helpful info and discussion here, and challenging the data and the logic doesn't need name calling. It's not been that way through other rather challenging discussions. Why now? Nelly and , et al. Really good questions for Tony, whether it's " his style " to answer back in a " scientific " rather than obnoxious way, or not. The questions are right on the mark. Thanks for putting them forward. Let's get on with it. Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2005 Report Share Posted November 2, 2005 Hi all, My name is Jeff and I am responding to all who suffer with the unrelenting pain that I have come to know. I was recently introduced to a non-narcotic method of pain relief . A lady friend of mine in the medical profession suggested I try LIDODERM patches. The patches are prescribed for people with severe cases of shingles. Since I once suffered from the unbearable pain caused by shingles I was eager to try them out. Since I started using the Patches (which can be left on for up to twelve hours) I have been able to function better during the day, and for the most part get a complete nights sleep. I would suggest that you ask your doctor about a free sample pack and then maybe a prescription for the patches.Spinal Stenosis Treatment wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2005 Report Share Posted November 2, 2005 Jeff, Thanks for the info. I am going to ask my doctor about this next time I am in. --- Jeff Price <the_chefanator@...> wrote: > Hi all, My name is Jeff and I am responding to all > who suffer with the unrelenting pain that I have > come to know. I was recently introduced to a > non-narcotic method of pain relief . A lady friend > of mine in the medical profession suggested I try > LIDODERM patches. __________________________________ Start your day with - Make it your home page! http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.