Guest guest Posted April 28, 1999 Report Share Posted April 28, 1999 , from what Lupus experts say, there is no real " high " for an ANA. And it can fluctuate a lot even in one day. There are healthy people who have a much higher ANA than the most severe patient with Lupus, so you really have to go with other tests, as this is just an indication that further testing may be warranted. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 1999 Report Share Posted April 28, 1999 Hi, Jusst be careful of docs who put too much emphasis on ANA - some lupus pt's have no ANA. And in this disease, the clinical picture and the patients word are the mosst improtant diagnostic tools! Christie - PWC and PWL tab@... At 10:12 PM 4/28/99 EDT, you wrote: >From: GAILRONDA@... > >, from what Lupus experts say, there is no real " high " for an ANA. And >it can fluctuate a lot even in one day. There are healthy people who have a >much higher ANA than the most severe patient with Lupus, so you really have >to go with other tests, as this is just an indication that further testing >may be warranted. >Gail > >------------------------------------------------------------------------ >G-Shock Sports Watch ** NOW JUST $59.95 ** SHIPPING INCLUDED >Built Tough, Built Cool! Full of Features! Electro Luminescent, Alarm >1/100th of Second Stopwatch, 12/24 Hour, Great for Sports, and more! > /ad/shoptheglobe11 >------------------------------------------------------------------------ >This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 1999 Report Share Posted April 28, 1999 My most recent blood test showed my ANA to be 1:320 (normal is 1:40). My lupus panel was negative. Does anyone else have a high ANA and does anyone know how to lower it? Thanks. _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 1999 Report Share Posted April 28, 1999 Gail, What kind of test are needed for 'lupus' test? They only took blood this morning. I thought it was for a 'lupus profile' but the lab tech said that they would also be testing for RA, thyroid, blood sugar,hepatitis. The same type of test that they ran last Oct. that there was a positive for " tissue disease " . Guess I need to do some research on 'lupus'. I am to go over the results of the test on May 11th wit the doctor. I am taking my husband with me. He always has the right questions to ask that I don't think about until I get home. Thanks Gail for all your hard work and dedication. I received the package of CFS information. I greatly appreciate all that you do. Thanks again, Judi Re: High ANA >From: GAILRONDA@... > >, from what Lupus experts say, there is no real " high " for an ANA. And >it can fluctuate a lot even in one day. There are healthy people who have a >much higher ANA than the most severe patient with Lupus, so you really have >to go with other tests, as this is just an indication that further testing >may be warranted. >Gail > >------------------------------------------------------------------------ >G-Shock Sports Watch ** NOW JUST $59.95 ** SHIPPING INCLUDED >Built Tough, Built Cool! Full of Features! Electro Luminescent, Alarm >1/100th of Second Stopwatch, 12/24 Hour, Great for Sports, and more! > /ad/shoptheglobe11 >------------------------------------------------------------------------ >This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 Judi, Lupus is more of an exclusionary disease like CFIDS, but there are tests that the specialists can take. Talk to your local lupus society and they can tell you which ones point the way. The tests you were given are exclusionary ones, too, but for other diseases like diabetes, etc. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 In a message dated 4/29/99 4:00:21 PM Eastern Daylight Time, judihoynacki@... writes: << I'll start looking for a new doctor now and maybe he will be part of my insurance. >> Judi, good luck. It's a daunting task, but worth it in the end. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 1999 Report Share Posted April 29, 1999 Thanks Gail, I did look up lupus on the internet. I really feel that whatever the results I am defiantly looking for a new doctor. Even if it has to come out of our pockets to pay for it. Maybe I shouldn't be so rash to say that. I guess what I mean is we will pay for as much as we can and fight the insurance company for the rest of it. I don't have any faith in this doctor I'm going to now. But he is my Primary Care Manager as far as my insurance is concerned. I'll start looking for a new doctor now and maybe he will be part of my insurance. Thanks again, Gail Judi Re: High ANA >From: GAILRONDA@... > >Judi, Lupus is more of an exclusionary disease like CFIDS, but there are >tests that the specialists can take. Talk to your local lupus society and >they can tell you which ones point the way. The tests you were given are >exclusionary ones, too, but for other diseases like diabetes, etc. >Gail > >------------------------------------------------------------------------ >Looking for an easy, effective way to research an important topic? > >Joining a ONElist community is your answer. >------------------------------------------------------------------------ >This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2000 Report Share Posted April 22, 2000 If I have auto immune anything I think I would be in the area of endocrinology since I have a >problem in the pituitary (no tumor) and the testes. But I am not sure if anything can be done except replace the hormones that these glands should be secreting __ any ideas? >Steve You can add a endochronologist to your list! Christie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2000 Report Share Posted April 22, 2000 I have got one but he makes it very clear that he knows nothing about CFS & he is not interested. I have come to the conclusion that unless you have a strong relationship with a Dr. one should only deal with Dr.s that have a strong interest in CFS. I realize that with some specialties they are few and far between. Steve " C.Tab. " wrote: > If I have auto immune anything I think I would be in the area of > endocrinology since I have a > >problem in the pituitary (no tumor) and the testes. But I am not sure if > anything can be done except replace the hormones that these glands should be > secreting __ any ideas? > >Steve > > You can add a endochronologist to your list! Christie > > ------------------------------------------------------------------------ > Good friends, school spirit, hair-dos you'd like to forget. > Classmates.com has them all. And with 4.4 million alumni already > registered, there's a good chance you'll find your friends here: > 1/2885/2/_/531724/_/956455764/ > ------------------------------------------------------------------------ > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2000 Report Share Posted April 23, 2000 Excellent point, Steve; this has been my experience; i got absolutely nowhere with my prudential doctor and kept getting sicker from age 14 to age 20. Just thought I'd add that with the nature of our illness its important that the doctor go that " extra mile " in treating you. I've found it beneficial to do whatever it takes to make my visit pleasurable for the doctor. In other words avoid whining, crack a few jokes, tell her/him how much you appreciate their help, send 'em a Xmas card, etc. Remember that docs are human and the amount of time they put into getting you better may be affected by how much they care about you. With the number of patients doctors have today its a huge plus if the doctor likes you. - >>>>Message: 3 Date: Sat, 22 Apr 2000 21:22:34 -0500 From: Steve <moores@...> Subject: Re: Re: high ANA >>>>I have got one but he makes it very clear that he knows nothing about CFS & he is not interested. I have come to the conclusion that unless you have a strong relationship with a Dr. one should only deal with Dr.s that have a strong interest in CFS. I realize that with some specialties they are few and far between. Steve Quote Link to comment Share on other sites More sharing options...
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