Re: Stress Before onset of CFIDS/FMS

[Guest guest]

Responding to Shari's post about stress prior to onset of CFIDS:

I think this is really interesting. Would anybody else care to share what

happened to them right before they got sick?

I was in a terribly stressful job situation. My boss was really nuts --

nobody else in the company would even work for him because he had such a bad

temper, and every time he did something wrong he would yell at somebody else

for something. I was also subjected to continual sexual harassment by the

head of our department. It was my first job after college, and I didn't

want to quit before a year had gone by because I thought it would look bad

on my resume, and I didn't want to take any action about the sexual

harassment because I was afraid I would never get another job if I did. I

started that job in October of 1982. I got CFIDS and FMS in January 1983,

and was completely disabled by December 1983. Like so many of us, it

started out as the flu and within two days I had CFIDS and FMS symptoms.

Re: trying the interferon

>

>From: SWNGDABOAT@...

>

>I'm following the Interferon Protocol off of Clement's Web

>site......all the doses,etc are there

><A HREF= " http://home.earthlink.net/~cfsmail/ifna.html " >Low-dose oral

>interferon alpha:</A>

>

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[Guest guest]

said:

>Responding to Shari's post about stress prior to onset of CFIDS:

>

>I think this is really interesting. Would anybody else care to share what

>happened to them right before they got sick?

>

>I was in a terribly stressful job situation. My boss was really nuts --

Response:

I had the most stressful / frustrating year of my life in 1988. I was

" blocked " at work (no prospect of advancement) and working long hours for

no appreciation, had some personal problems, was generally very stressed.

The same year I had a relationship with a CFS sufferer, and was getting

sick regularly - about 8 times in that year each time for 1 to 3 weeks.

Night sweats and strange fevers appeared.

By September '88 I too had CFS.

My observation is that MANY of us have stress preceding the sudden onset

type CFS.

n

n

Tel/Fax +61-2-6239 6226

Canberra, Australia

[Guest guest]

HI EVERYONE, IN WINTER 1990, WE WERE SHORT ONE PERSON AT WORK AND WE HAD A

NEW PERSON WHO DIDNT WANT TO DO ANYTHING EXTRA SO I TOOK ON THE ADDED

RESPONSABLITY OF THESE TWO PEOPLE,(SMALL DEPT. OF SIX PEOPLE) PLUS WAS

STEADLY DATING SOMEONE, TAKING CLASSES AND OUT OF THE HOUSE FIVE OUT OF SEVEN

NITES OF THE WEEK AND JUGGLING A SIGNIFICANT MEDICAL PROMBLEM (NON CFIDS)

THAT WAS BECOMING MORE PRONOUNCED IN MY DAILY LIFE. WENT TO BED WITH THE " FLU

" + TURNS OUT ALSO TO BE PNEUMONIA AND WOKE UP TO THE WIDE WORLD OF CFIDS/FM.

ALOT OF US START THIS WAY ALTHOUGH OTHERS HAVE SLOW GRADUAL ONSET .

ELLICE

[Guest guest]

Hello !

I was in a family buisness, New Florist part, Took 9 mins to get to

work if the farmers were off the road. Maybe 7 people working both shops,

including DH and myself. Very slow being the winter mnths, fluctuating

business with holidays, long hours when needed, stress being when the

daffadils came in showing no color for easter or roses came in as bullets for

valentines day. My co-worker a mnth before became ill with something

(flulike) and had to quit , that was stress without her, But others pitched

in and it was slow anyway.

Not enough hours in the day, family, holidays, parties, never had a

get a way vacation , but had fun vacations with others, less expensive that

way also perks from companies.

I was stringing lights outside for a very small house wedding, very

cold that day, and couldn't make it back to the shop, went home..... within 4

mnths the florist was closed. Started working in the yard and made deliveries

and pick ups. Hard to deal with the public at times but the majority of

customers got happy spring fever ! Once again had to let go and started to

work from home, each year seemed less and less.

Thats all folks.......

Susydrizzle......

[Guest guest]

My story is a long one,but i will try to be brief.Delete it if you do not

want to know my story.It really is long,though I tried to be brief.... I had

a

slow onset.

I was born premature and wasn't even supposed to live..I do not ever

remember being " well " . I remember having to get my tonsils out when I was 3

or so,

from being sickly. I always had alot of allergies/asthma and food

intolerances, chemical sensitivities etc,pain in my joints,muscles

etc..,infections( alot of antibiotics) ,pneumonias, etc

etc. Pain in my joints,muscles,headaches,chest pains etc etc Children and

family made fun of me..Lazy,hypochondriac etc... I had a

very " dysfunctional " childhood. (alcoholism and abuse...long story) We

worked very hard on our farms growing our own food,canning,baling hay,and we

had 40,000+ chickens and had to collect the eggs twice a day....12000 eggs

each time...even in very cold weather...filthy creatures,that's all I will

say...And the rats were the size of cats,I am not lying.....Plus I was a

waitress and went to school. I made good grades by

doing my homework right before classes.. I was 17 when I moved out....long

story too.. I

met and

married an alcoholic/wife abuser,at almost 19 years old.1982....my

daughter's father....I decided I was not

going to let my daughter be raised in such a life,so I finally divorced

him. In 86....For years he stalked me etc...till I finally just defended

myself and blacked both his eyes.(long story too) He was too embarrassed

to tell anyone his 90 lb ex wife blacked his eyes and never bothered me

anymore...Once he tried,but then locked himself in his car as soon as I

started towards him. He weighed more than twice of me... I was not going to

let him hurt me anymore. I didn't know about the laws at that time,but I

didn't know any better anyway. .. I was

going to college and working and raising our daughter alone.My family had

moved back to VA...1000 miles away,so I had to learn to be independent

early. ..My dad was a proud man and found out i was on food stamps,and

disowned me for several years. Talk about feeling alone. I was always very

ill,but kept going,because I didn't know any difference.. In 89,I married

another alcoholic...this one didn't beat me up,instead he tormented me with

his affairs and lies. In the few years we were married, 1) he had a

paternity

suit, 2) I was in nursing school,and 3) he made me feel as if I was crazy

for

thinking the perfume I smelled on my sheets or the bras etc I found were not

mine....Even then,I could not tolerate perfumes ,so I knew something was

awry.....etc...Plus I would catch him

at the bars with other women....I may have been a small woman,but these

women got to the point they were afraid of me..I am ashamed of the way I

acted now.....Once while he was holding me back..I threatened to beat one of

them with her wig..Imagine how silly I looked and sounded...I was about 90

lbs ,long blonde hair and mean,mean ,mean. I looked 16,but was in my late

20's. . he was 45.. He was very good

at his games.No wonder i was so crazy. He was extremely jealous ,too. He

would follow me to the store and spy to be sure I wasn't seeing someone

there etc etc..he would write down the mileage on my car daily and he

recorded my phone calls. etc etc When I got an STD,I knew for sure I wasn't

the crazy one...he tried to blame it on me,but I had not been with anyone

else

for 4 years and had always gotten my check ups every year.He tried to sell

our house by foraging my name and tricked me into filing joint taxes so he

could pay his back taxes with my refund...he was mad because I told the

attorney, who was handling his illegitimate child's case, about the sale of

the house so the child could get his money. The child got his money,just as

he should have .(.I was still chasing my daughter's father to get help with

child support.) His son and I are still in contact to this day,but he

doesn't ever see his father.....This husband was older than me by 14

years.....He moved my " very dear friend " in as I

was moving out of our home. I dated her son just out of revenge,but it

turned out he was nice.,so we remained good friends. He was embarrassed by

his mother's behavior. He even forgave me when I sought revenge by wooing my

husband back,booting her out of my house leaving her homeless,and then

dumping my husband again...Mean HUH?? A woman scorned is not to be taken

lightly. Stress. I did divorce him in 92...I didn't want my daughter to

think it was ok to be married to a drunk.She didn't know about everything

else. I was careful to shield her from ugly things,and always told her only

what needed to be told. ...He was good to her and

she loved him..but I couldn't allow her to think that drinking so much was

normal..He even went to the hospital for inpatient treatment...and had an

affair with one of his nurses..I was so shocked when I found a few letters

from her. I almost took them to the hospital to get her fired. ..I wanted to

break the chain of this co-dependency. So I did....Our divorce was final in

92.... Mike and I met and were friends when I was taking care of his

disabled nephew the end of 92....I was in home health. He was so much

younger than I was(10 1/2 years),I had no intentions of being more than

friends with him and I felt he needed someone fresh out of high school,not

an old used up woman with a child....me. I had been through so much, I had

no self esteem by this time. After his sister in law told me he had been in

love with me for over a year in 93,I talked to mike about it and figured I

had nothing to lose. Something kept telling me to try. We had so much in

common,but the musician background we both had, helped alot. we were

friends

so that helped alot too. After 6 months of never being apart, we married in

94. I had an aweful reaction to the depo provera shot.....,2 months after

we married,had a terrible hit and run car accident..I was left for dead,I

fought all year with my own ins co.,we almost lost everything. Later that

year,I kept getting so scatter brained and tired,and so sickly...I would

fall asleep while driving,get flu like viruses over and over etc..I was

making mistakes with meds and IVs at work..I could not risk my clients

lives. My last patient had AIDS and got ill with a flu like virus...he died

and I never got well....I had to quit work. I got worse,and couldn't push

myself any longer. .Everyone knows basically the story after that...all the

humiliation of skeptical doctors etc etc.. Mike couldn't deal with it and

left me.. I remember being so moody and mean and angry,I was throwing things

down the stairs at him and out the door as he left. No wonder he thought i

was crazy. All the anger.... He was fleeing for his life. I still had some

fight left in me,...believe it or not!.....and tormented him by phone till

he came

back to me about a week later. We talked to our pastor and became

christians.Being christians does not make the problems go away,but seems to

give us the strength to get through things.It seems to also lead me to

answers,when before,I could not see them. I had a mild remission period

after praying to God for a son..I felt like I was going to get too old if I

didn't have a baby with Mike soon. I found out about my mother's cancer so

we moved to

VA,so I could get to know her,and be with her......In those 2 months,I got

pregnant,so we

stayed in VA to be with my

mother and during the pregnancy.( I did get to know my mother much better

and was honored to be able to nurse her the last few days of her life....My

mother passed away in July 98 .All ten daughters made it in from all over

the USA to be with her) During this pregnancy,the CFS was gone.....though

the

recovery from an emergency C-section was very difficult..(.he was breech and

was born dead,he was revived though.) long story.........My daughter from my

first

marraige is 14 now..Her father is now trying to make up for lost time the

last few years,and has since apologized to me on several occasions for all

the rotten things he did. His present wife is not a nice person,but I am

trying to deal with that stress now..My kids are both very healthy happy

children.. That's my story as brief as I could make it.Sorry it was still a

bit long. I believe abnormal stress and genetics,and my not knowing when to

stop and rest..... were a big part of my

illness. That is my point. Now I am on my way to a healing though.It's just

slow..It was slow onset,and will be slow getting well too..But I am hopeful.

..

Re: stress before onset of CFIDS/FMS

>From: " Clement " <cfsmail@...>

>

>Responding to Shari's post about stress prior to onset of CFIDS:

>

>I think this is really interesting. Would anybody else care to share what

>happened to them right before they got sick?

>

>I

[Guest guest]

oobadooba wrote:

> From: " oobadooba " <oobadooba@...>

> That's my story as brief as I could make it.Sorry it was still a

> bit long. I believe abnormal stress and genetics,and my not knowing when to

> stop and rest..... were a big part of my

> illness. That is my point. Now I am on my way to a healing though.It's just

> slow..It was slow onset,and will be slow getting well too..But I am hopeful.

> .

and Jodi,

Thank you both for sharing your stories today. You have both come through so

much! I know how hard it is to be ill with no end to it in sight. But look how

much you have grown and how far you

have come! You really do have to have a LOT of inner strength to endure all

that! My stress seems so small in comparison......

Marcia

[Guest guest]

This has to be another big seller.....write the book!!

Shari

Re: stress before onset of CFIDS/FMS

>

>

>>From: " Clement " <cfsmail@...>

>>

>>Responding to Shari's post about stress prior to onset of CFIDS:

>>

>>I think this is really interesting. Would anybody else care to share what

>>happened to them right before they got sick?

>>

>>I

>

>

>

>

>

>

>

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[Guest guest]

Thanks for your support. We all have been through alot.

Re: stress before onset of CFIDS/FMS

>From: Marcia Grahn <mgrahn@...>

>

>

>

>oobadooba wrote:

>

>> From: " oobadooba " <oobadooba@...>

>> That's my story as brief as I could make it.Sorry it was still a

>> bit long. I believe abnormal stress and genetics,and my not knowing when

to

>> stop and rest..... were a big part of my

>> illness. That is my point. Now I am on my way to a healing though.It's

just

>> slow..It was slow onset,and will be slow getting well too..But I am

hopeful.

>> .

>

> and Jodi,

>

>Thank you both for sharing your stories today. You have both come through

so much! I know how hard it is to be ill with no end to it in sight. But

look how much you have grown and how far you

>have come! You really do have to have a LOT of inner strength to endure

all that! My stress seems so small in comparison......

>

>Marcia

>

>

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[Guest guest]

If only I had the energy!....I have tried to start on a journal towards

writing a book,and someday will do it. Thanks,

Re: stress before onset of CFIDS/FMS

>>

>>

>>>From: " Clement " <cfsmail@...>

>>>

>>>Responding to Shari's post about stress prior to onset of CFIDS:

>>>

>>>I think this is really interesting. Would anybody else care to share

what

>>>happened to them right before they got sick?

>>>

>>>I

>>

>>

>>

>>

>>

>>

>>

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[Guest guest]

In relation to stress at onset...what is the point here? I am 53, I

have had stress all my life, so has everyone else I know. They are not

sick. I am. Certainly stress weakens our immune systems and makes us

suceptable to whatever. Meanwhile, what are we sick with???? It is not

STRESS.

a

n wrote:

>

> From: n <jrobinso@...>

>

> said:

> >Responding to Shari's post about stress prior to onset of CFIDS:

> >

> >I think this is really interesting. Would anybody else care to share what

> >happened to them right before they got sick?

> >

> >I was in a terribly stressful job situation. My boss was really nuts --

>

> Response:

> I had the most stressful / frustrating year of my life in 1988. I was

> " blocked " at work (no prospect of advancement) and working long hours for

> no appreciation, had some personal problems, was generally very stressed.

> The same year I had a relationship with a CFS sufferer, and was getting

> sick regularly - about 8 times in that year each time for 1 to 3 weeks.

> Night sweats and strange fevers appeared.

>

> By September '88 I too had CFS.

>

> My observation is that MANY of us have stress preceding the sudden onset

> type CFS.

>

> n

>

> n

> Tel/Fax +61-2-6239 6226

> Canberra, Australia

>

> ------------------------------------------------------------------------

>