Re: SSDI letter arrived today

[Guest guest]

Laurie,

Congrats!! Would you mind sharing more about how you did it? My son is

20 1/2 (Asperger's) and so far, getting a " real " job for him has been

elusive for us; this is a huge goal to get the 6 credits before he turns 24!

Debra

In a message dated 12/12/2011 7:55:50 P.M. Central Standard Time,

jeruefamily@... writes:

Alleluia, the letter confirming ’s SSDI approval arrived today in the

mail. It’s been a long time coming, but as of March 2011 she has been

approved and the Medicare clock started running. Fifteen more months to go, and

god willing, she’ll have Medicare and Medicaid. Thanks to Marsie, Sherri,

and parents on this list for helping me understand what I needed to do to

help my daughter achieve enough work hours/credits to get this. We did it!

Today was a good day.

L.

[Non-text portions of this message have been removed]

[Guest guest]

Woo  Hoo - a good day indeed.

 

Good news from me:  Sunday, my son graduated.

Bad news from me:  We have now lost our 1:1 aide.

 

I guess there is some " good " in some " bad " . 

________________________________

From: Jerue Family <jeruefamily@...>

IPADDUnite

Sent: Monday, December 12, 2011 7:55 PM

Subject: SSDI letter arrived today

 

Alleluia, the letter confirming ’s SSDI approval arrived today in the

mail. It’s been a long time coming, but as of March 2011 she has been approved

and the Medicare clock started running. Fifteen more months to go, and god

willing, she’ll have Medicare and Medicaid. Thanks to Marsie, Sherri, and

parents on this list for helping me understand what I needed to do to help my

daughter achieve enough work hours/credits to get this. We did it!

Today was a good day.

L.

[Guest guest]

Congrats to you and your son, too, Sherri! He’s a U of I grad, now, correct?

What does he hope to do as a career?

From: Sherri Schneider

Sent: Tuesday, December 13, 2011 8:34 AM

IPADDUnite

Subject: Re: SSDI letter arrived today

Woo Hoo - a good day indeed.

Good news from me: Sunday, my son graduated.

Bad news from me: We have now lost our 1:1 aide.

I guess there is some " good " in some " bad " .

________________________________

From: Jerue Family <mailto:jeruefamily%40comcast.net>

mailto:IPADDUnite%40

Sent: Monday, December 12, 2011 7:55 PM

Subject: SSDI letter arrived today

Alleluia, the letter confirming ’s SSDI approval arrived today in the

mail. It’s been a long time coming, but as of March 2011 she has been approved

and the Medicare clock started running. Fifteen more months to go, and god

willing, she’ll have Medicare and Medicaid. Thanks to Marsie, Sherri, and

parents on this list for helping me understand what I needed to do to help my

daughter achieve enough work hours/credits to get this. We did it!

Today was a good day.

L.

[Guest guest]

Congratulations, Laurie, and others who have figured this out! We missed that

boat with Noah and I know it is a good boat to be on!

Ellen

Ellen Garber Bronfeld

egskb@...

[Guest guest]

Hi Debra,

In a nutshell, my husband and I formed an IL S Corporation & paid a salary

for the work she did for the company. Mostly we built it around hobbies that

and I already had, like gardening and crafts, except now instead of doing

it completely for free we charged people money. also loves to shred

paper, so the company purchased a small business-sized shredder and we had

clients pay her to do that as well. As far as job coaching & transportation,

because we were able to start this up while she was still receiving transition

services, all was written into her IEP and, because she was competitively

employed in a job sustainable beyond her school exit, the school district was

very supportive of our efforts. We gradually reduced reliance on them to

finding private pay job coaches with me as head of transportation and

development/marketing.

It was an investment/labor of love for sure. Lots of ups and downs along the

way – for sure! But in the end it was worth it. Others on the list have had

greater success finding paid work for their loved ones in OTHER people’s

companies (smile) but that was not a path available to us. had too many

barriers to typical employment, and not enough time to figure out workable

alternatives. This worked for her. I do know of other families taking this

same approach now; perhaps after the first of the year we can have a more

in-depth discussion of strategies.

Just remember, it is SO much easier to make this happen while your son is still

a full-time student. (Look back at Marsie/Cindi’s post from a few days ago

about the Student Earned Income exemption to see what I’m talking about).

Otherwise, it can be done, yes, but you need to start early and work on a fairly

consistent basis to make it over the threshold by the time he’s 24.

If you’d like to contact me directly, we could talk more about it offline.

Take care!

L.

From: mcgee3atcincy@...

Sent: Monday, December 12, 2011 9:52 PM

IPADDUnite

Subject: Re: SSDI letter arrived today

Laurie,

Congrats!! Would you mind sharing more about how you did it? My son is

20 1/2 (Asperger's) and so far, getting a " real " job for him has been

elusive for us; this is a huge goal to get the 6 credits before he turns 24!

Debra

In a message dated 12/12/2011 7:55:50 P.M. Central Standard Time,

mailto:jeruefamily%40comcast.net writes:

Alleluia, the letter confirming ’s SSDI approval arrived today in the

mail. It’s been a long time coming, but as of March 2011 she has been

approved and the Medicare clock started running. Fifteen more months to go, and

god willing, she’ll have Medicare and Medicaid. Thanks to Marsie, Sherri,

and parents on this list for helping me understand what I needed to do to

help my daughter achieve enough work hours/credits to get this. We did it!

Today was a good day.

L.

[Guest guest]

Thank you Laurie! Would love to talk; I will contact you soon after the

holidays.

Debra :-)

In a message dated 12/13/2011 9:33:08 A.M. Central Standard Time,

jeruefamily@... writes:

Hi Debra,

In a nutshell, my husband and I formed an IL S Corporation & paid a

salary for the work she did for the company. Mostly we built it around

hobbies that and I already had, like gardening and crafts, except now

instead of doing it completely for free we charged people money. also

loves to shred paper, so the company purchased a small business-sized

shredder and we had clients pay her to do that as well. As far as job coaching

&

transportation, because we were able to start this up while she was still

receiving transition services, all was written into her IEP and, because she

was competitively employed in a job sustainable beyond her school exit, the

school district was very supportive of our efforts. We gradually reduced

reliance on them to finding private pay job coaches with me as head of

transportation and development/marketing.

It was an investment/labor of love for sure. Lots of ups and downs along

the way – for sure! But in the end it was worth it. Others on the list have

had greater success finding paid work for their loved ones in OTHER people’

s companies (smile) but that was not a path available to us. had too

many barriers to typical employment, and not enough time to figure out

workable alternatives. This worked for her. I do know of other families taking

this same approach now; perhaps after the first of the year we can have a

more in-depth discussion of strategies.

Just remember, it is SO much easier to make this happen while your son is

still a full-time student. (Look back at Marsie/Cindi’s post from a few

days ago about the Student Earned Income exemption to see what I’m talking

about). Otherwise, it can be done, yes, but you need to start early and work

on a fairly consistent basis to make it over the threshold by the time he’s

24.

If you’d like to contact me directly, we could talk more about it offline.

Take care!

L.

From: _mcgee3atcincy@..._ (mailto:mcgee3atcincy@...)

Sent: Monday, December 12, 2011 9:52 PM

_IPADDUnite _ (mailto:IPADDUnite )

Subject: Re: SSDI letter arrived today

Laurie,

Congrats!! Would you mind sharing more about how you did it? My son is

20 1/2 (Asperger's) and so far, getting a " real " job for him has been

elusive for us; this is a huge goal to get the 6 credits before he turns

24!

Debra

In a message dated 12/12/2011 7:55:50 P.M. Central Standard Time,

mailto:jeruefamily%40comcast.net writes:

Alleluia, the letter confirming ’s SSDI approval arrived today in the

mail. It’s been a long time coming, but as of March 2011 she has been

approved and the Medicare clock started running. Fifteen more months to

go, and

god willing, she’ll have Medicare and Medicaid. Thanks to Marsie, Sherri,

and parents on this list for helping me understand what I needed to do to

help my daughter achieve enough work hours/credits to get this. We did it!

Today was a good day.

L.

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Guest guest]

Congrats, Laurie, om the successful realization of all of your hard work

on 's behalf. Gloria

[Guest guest]

and Laurie - I'm so Proud and Happy for you all! You persevered to make

's SSDI and eventual Medicare eligibility a reality. You Did It! Woooo

Hoooo!!!

So, now . . . . you will likely get to follow the work incentives for both the

SSDI AND SSI disability cash programs. You'll be working in tandem with the

Work Incentives Planning & Assistance Projects in no time! Congratulations!

Continued success with the building of Helper Girl, Inc.! Happy New Year to you

all!

Marsie Frawley

Senior Consultant, -Hammis Associates, LLC

920 559 6364

mfrawley@...

>

> Hi Debra,

>

> In a nutshell, my husband and I formed an IL S Corporation & paid a

salary for the work she did for the company. Mostly we built it around hobbies

that and I already had, like gardening and crafts, except now instead of

doing it completely for free we charged people money. also loves to shred

paper, so the company purchased a small business-sized shredder and we had

clients pay her to do that as well. As far as job coaching & transportation,

because we were able to start this up while she was still receiving transition

services, all was written into her IEP and, because she was competitively

employed in a job sustainable beyond her school exit, the school district was

very supportive of our efforts. We gradually reduced reliance on them to

finding private pay job coaches with me as head of transportation and

development/marketing.

>

> It was an investment/labor of love for sure. Lots of ups and downs along the

way †" for sure! But in the end it was worth it. Others on the list have had

greater success finding paid work for their loved ones in OTHER people’s

companies (smile) but that was not a path available to us. had too many

barriers to typical employment, and not enough time to figure out workable

alternatives. This worked for her. I do know of other families taking this

same approach now; perhaps after the first of the year we can have a more

in-depth discussion of strategies.

>

> Just remember, it is SO much easier to make this happen while your son is

still a full-time student. (Look back at Marsie/Cindi’s post from a few days

ago about the Student Earned Income exemption to see what I’m talking about).

Otherwise, it can be done, yes, but you need to start early and work on a fairly

consistent basis to make it over the threshold by the time he’s 24.

>

> If you’d like to contact me directly, we could talk more about it offline.

Take care!

> L.

>

> From: mcgee3atcincy@...

> Sent: Monday, December 12, 2011 9:52 PM

> IPADDUnite

> Subject: Re: SSDI letter arrived today

>

>

> Laurie,

>

> Congrats!! Would you mind sharing more about how you did it? My son is

> 20 1/2 (Asperger's) and so far, getting a " real " job for him has been

> elusive for us; this is a huge goal to get the 6 credits before he turns 24!

> Debra

>

>

> In a message dated 12/12/2011 7:55:50 P.M. Central Standard Time,

> mailto:jeruefamily%40comcast.net writes:

>

> Alleluia, the letter confirming ’s SSDI approval arrived today in the

> mail. It’s been a long time coming, but as of March 2011 she has been

> approved and the Medicare clock started running. Fifteen more months to go,

and

> god willing, she’ll have Medicare and Medicaid. Thanks to Marsie, Sherri,

> and parents on this list for helping me understand what I needed to do to

> help my daughter achieve enough work hours/credits to get this. We did it!

>

> Today was a good day.

> L.

>

>

[Guest guest]

Congratulations to ....

Laurie, wish I had met you years ago.....

is happily retired, but does volunteer reading when I get time to help him.

Liz