Re: Digest Number 104

[Guest guest]

>Hi

>I do not believe I would put much trust or faith in the above

>statements about vaccines etc made by this gentleman or alot of the

>stuff you read on the internet that he referred you to!

>Contact me by private e-mail and I will tell you the ACTUAL FACTS about

>vaccines etc!

> Bill MSN (RN)

Wow! Now I`m getting curious!

Aren`t you willing to tell all of us the thruth about vaccines?

As others have stated: This is very importent matter and the facts shouldn`t be

hidden away.

Please leak it out!

[Guest guest]

my boyfriend was diagnosed with throat cancer in april. he had surgery

they took his voice box,right vocal cord and part of his thyroid. he's

been in radiation for about two week. last week he fell and broke 4

ribs. now he's really having a hard time. what happens when you break

boneson radiation.

[Guest guest]

Dont worry ...I think your fears are unfounded. In all probability the

radiation was restricted to the Neck.

His ribs are going to heal as they would in any other healthy individual.

Dr Dhar

>From: carcep@... (Carolyn Pollard)

>Reply- onelist

> onelist

>Subject: Re: [ ] Digest Number 104

>Date: Thu, 1 Jul 1999 04:21:07 -0500 (CDT)

>

>my boyfriend was diagnosed with throat cancer in april. he had surgery

>they took his voice box,right vocal cord and part of his thyroid. he's

>been in radiation for about two week. last week he fell and broke 4

>ribs. now he's really having a hard time. what happens when you break

>boneson radiation.

>

><< Text3.html >>

[Guest guest]

For Upendra - welcome, as you are a doctor (and for everyone) I'm sending some

info about a new opportunity for patients to store their stem cells.

__________________________________________________________________

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Much heralded in the media lately, stem cells have been used successfully in

transplant for the treatment of a number of cancers and auto-immune disorders,

such as breast cancer, multiple myeloma and lymphoma. Stem cells are the

progenitor cells that create the vital components of blood and the immune

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and one of the fastest growing sources of stem cells for transplant is

peripheral

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late in a cancer patient’s disease progression.

Very often attempts to collect a cancer patient’s stem cells just prior to

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and

potentially life saving stem cell rescue.

ALPS enables peripheral blood stem cell collection at anytime in a patient’s

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IS ALPS RIGHT FOR ME?, a free informational brochure for patients recently

diagnosed with cancer, possibly facing high dose chemotherapy, and carefully

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encouraged to call CBR toll free at 877-227-2577 and ask for a free copy.

onelist wrote:

> ---------------------------

[Guest guest]

In a message dated 01/24/2000 5:38:25 AM Central Standard Time,

onelist writes:

> _

Thanks for listing those perfume recipes Cat, sounds like several

worth trying soon,

Love and God Bless,

Kay

[Guest guest]

In a message dated 01/24/2000 5:38:30 AM Central Standard Time,

onelist writes:

<< Help! DH wants to know how all the other DH's are cutting the PVC pipe

horizontally. What type of tool are they using?

>>

Not sure what you mean by horizontal. Do you mean across the hole to make

little circles or along the pipe. To cut across the pipe, my DH uses a pvc

cutter for up to 2 " diameter. If he doesn't have that, use a table saw. If

he's cutting it lengthwise along the pipe, he can use a table saw if he sets

the rip fence very close, and the blade very low and use the pusher to push

the pipe through.

From my DH (Tom)

Blessings

Jan

[Guest guest]

My DH is in the water purification business and this is what he says:

In distillation, water is heated, turned to steam and then condensed back

into a liquid leaving the impurities (minerals) behind. In Reverse Osmosis

(RO), impurities are separated from the water through a semi-permiable

membrane (a filter) removing up to 99% of impurities, bacteria, minerals etc.

RO water is better than distilled water in most applications including

drinking and also in hospitals, laboratories etc, so I don't know why it

wouldn't be better for soap. Hope this helps.

Blessings,

Jan in Kentucky

<< I went to Wal-Mart yesterday to purchase distilled water for my iron and

my

toiletries. It turns out that they don't carry distilled water anymore, but

" drinking water, " treated by reverse osmosis. Does this make it like

distilled water or not?

>>

[Guest guest]

Dear ,

I can understand your frustration with being told via the answering machine

about trying behavior modification with , but you also asked us for our

$.02 and so here is mine.

1. Medication, even the most successful kind of medication, is only PART

of the entire " package " of delivering " treatment " . Medication in and of

itself can help, but it will not cure our kids' behaviors. It will

hopefully help then get more focused, or slow them down, or let go of

obsessions. It will not stop problem behaviors magically.

2. Behavior modification, behavior management, applied behavior analysis,

(ABA), are all very methodical and enormously helpful ways to go about

teaching kids with cognitive delays as well as other developmental delays.

It is also can be a very powerful tool for teaching " typical " kids.

Lovaas, discreet trials, etc., are specific curriculums, for lack of a

better word, which use this method of teaching.

3. The beauty of behavior modification is that it does NOT matter what

age, chronologically, developmentally, or otherwise, a child is. It is

useful and it should benefit if taught correctly. It will give you a

tremendous feeling of accomplishment to use these techniques.

4. A behavior intervention specialist (could be a special ed. teacher, a

child psychologist, or pediatric social worker) would, for example, come to

your home, and help you to ID the most important behaviors you want to

address with . They will tell you that it is best to just select one

or two behaviors at a time, and work on that. Sometimes it is best to pick

something that you are pretty sure could learn easily and quickly,

since that will give him initial success and make him more open to learning

something more complicated. Good behavior management techniques utilize

positive rewards, feedback, etc.

5. Does use Pic-sims, PECS, or some other kind of communication

program? Does he talk? Sign? Every single kind of augmentative

communication program is taught using behavior modification techniques.

IMO, language is of the highest priority and is a key component for helping

a child manage his behaviors. His behaviors are not coming out of the

blue- if he can't tell you how he feels with words, his behaviors will let

you know. If he has more power to communicate, he will hopefully not be

acting out as much.

6. Is getting sensory integration therapy? Also another incredibly

powerful tool. Ten minutes swinging from side to side, deep pressure,

brushing, etc., can all be used to help get focused and are not

medication. If you took a quick poll, the majority of families are using

almost all of these tools to help their kids with DS and autism. The

families who don't have their kids on meds, but are perhaps on special

diets or other supplements, are also using some sensory integration,

augmentative communication (if their child isn't talking) and behavior

management.

7. There is (again, IMO) simply no argument AGAINST using behavior

management techniques. (Families might not want to use Lovaas or discreet

trials but that is different from simply using behavior management

techniques.) You would never say " I'm not going to correct my two year old

when he pulls the dog's tail- he's only two and won't understand it " . You

would do a number of things to teach him:

-monitor when the dog and the child are together ( you don't leave them

alone unsupervised)

-model appropriate behaviors with the dog: " Oh, Spot loves it when I pet

him on his back. Happy dog! Here, baby, YOU pet the dog. Nice petting.

Good boy! You make the dog happy. "

- Remove the child immediately at any instance of tail pulling. " No

pulling Spot's tail. That hurts Spot. You leave Spot now. Come with me.

You will have to sit here away from Spot. " Then you lavish a lot of

positive attention on the dog.

-After a brief time out, you help your child pet Spot on the back, give the

dog a chew toy, etc.

These are all behavior modification techniques. needs the structure

and needs help understanding limits. ALL children do.

8. We begin using behavior modification techniques when our babies are

born. They cry; we respond. If they calm after what we do (nursing,

diaper changing, rocking) they are giving US the feedback that they want us

to do it again. Imitating our babies' coos and facial gestures gives them

feedback and is the beginning of learning language/communication. Age has

nothing to do with it.

9. I have always used behavior modification techniques when working with

Ben. The most dramatic was at 18 months- I taught him his first

signs in three days. I used beh. mod for toilet training as well- that

wasn't until age 6, but in less than a week he was pretty well time

trained. We chose to try medication because we felt it would help slow him

down and hopefully get focused so he could be more a part of things. Our

pediatrician as well as the child psychologists and child psychiatrists

that we have seen have all stressed that you work with the whole child.

You continue to use everything that works. No medication will cure your

child or magically transform him. You still work on behaviors, use sensory

integration. You will probably have to make some changes in the

environment that are now triggers for him. (someone just said they were

going cold turkey- taking away their child's flippy things, was it? )

10. If you were to go back and read, say, Sara's posts about what she has

done with Elie over the years (since he is 14 now, I think he is a very

good example) you will have a picture of what this means. Elie is on

medication. He is getting speech services. He needs some sensory

integration. Sara knows that some controls are needed over Elie's

environment- he can't handle eating with all the other kids, for example.

She has described using different behavior modification techniques (such as

backward chaining) to teach Elie household chores.

11. Sorry this is so long. I don't mean to preach. But I think that the

doctor is right. Using behavior modification techniques IS the next step-

and a very important one. It's a hell of a lot of work- but there is help

out there for learning how to do it. And that's why we are here- to hold

your hand along the way.

Good luck, and hang in there!

MB

PS. I just re-read your post. We just got through a very long conference

with our doc. He stressed that it does take a while -up to two or three

months for some meds- to get a clear picture of what the meds are doing.

He said, in effect, that we are not helping matters if we jump from one med

to the next. (In shorter acting drugs this is different). So Ben is

back on Risperdal and we are looking at trying some different behavior

management techniques as well.

wrote:

>>

Now, I've heard everything.....got a message on my ans. machine from nurse

today about 's meds becoming ineffective.....doc recommends beh. mod. and

will NOT increase, decrease or change meds!

I told this dip that I thought BM would NOT be effective as is still at

the " toddler " stage emotionally and unless we found something to calm him

down first, there is no way he will cooperate with any type of therapy, this

being said at the initial consultation and mentioned many times thereafter.

I need advice, people, before I drive to this doc's office and strangle

him....we have gone round and round with this....I think has really

presented this doc with his first challenge...he seems to be very clinical in

his language and behavior, so I'm thinking he has been successful with other

children up until NOW!!!

I always knew was the exception instead of the rule, but I didn't expect

this......what do I do now......besides, obviously, look for another doc?

(which I'm going to do shortly when I calm down!)

Has anyone else been successful with therapy with their own child at such a

young developmental age.....like around 2.......and if so, what were the

methods attempted, and if not, what happened?

I still think is just not on the right combo of meds.....and we still

have a ways to go before the Risperdal reaches a decent blood level....so do

I wait it out for the Risperdal, try my luck on the therapy, change docs or

ALL of the above?

Mad and Spitting Tacks in Texas,

________________________________________________________________________

________________________________________________________________________

[Guest guest]

In a message dated 4/5/00 4:07:20 PM Pacific Daylight Time, Okieleah writes:

<< We chose to try medication because we felt it would help slow him

down and hopefully get focused so he could be more a part of things. >>

MB:

This is the main prob we are having.....you don't know , obviously, and

when I tell you he is wound tighter than a drum, I mean it! Even the

teachers had to physically HOLD HIM DOWN most of the school day...he is

everywhere, starting one task, beginning another and not finishing anything.

I appreciate your input, but I don't think anything can be accomplished UNTIL

the child is more or less " in control " or at least, able to sit still for 2

min. while you're trying out the BM methods!!

Behavior is one thing, but ADHD is a condition that requires meds and until

we come up with the right combo for , no amount of intervention is going

to sink in.......believe me, we've had lots of therapists at school and at

hospital tell me to come back when he is sufficiently " calmed down " so that

the BM can be effective.....if not, we're just beating a dead horse......

[Guest guest]

Long, but well said. It's also not always a quick and easy thing to

accomplish. So, to your comment about toilet training in 1 week, did you

just use the same time every day to go to the toilet? What technique did you

use. We are trying to find the best.

Thanks

Re: Digest Number 104

> Dear ,

>

> I can understand your frustration with being told via the answering

machine

> about trying behavior modification with , but you also asked us for

our

> $.02 and so here is mine.

>

> 1. Medication, even the most successful kind of medication, is only PART

> of the entire " package " of delivering " treatment " . Medication in and of

> itself can help, but it will not cure our kids' behaviors. It will

> hopefully help then get more focused, or slow them down, or let go of

> obsessions. It will not stop problem behaviors magically.

>

> 2. Behavior modification, behavior management, applied behavior analysis,

> (ABA), are all very methodical and enormously helpful ways to go about

> teaching kids with cognitive delays as well as other developmental delays.

> It is also can be a very powerful tool for teaching " typical " kids.

> Lovaas, discreet trials, etc., are specific curriculums, for lack of a

> better word, which use this method of teaching.

>

> 3. The beauty of behavior modification is that it does NOT matter what

> age, chronologically, developmentally, or otherwise, a child is. It is

> useful and it should benefit if taught correctly. It will give you a

> tremendous feeling of accomplishment to use these techniques.

>

> 4. A behavior intervention specialist (could be a special ed. teacher, a

> child psychologist, or pediatric social worker) would, for example, come

to

> your home, and help you to ID the most important behaviors you want to

> address with . They will tell you that it is best to just select one

> or two behaviors at a time, and work on that. Sometimes it is best to

pick

> something that you are pretty sure could learn easily and quickly,

> since that will give him initial success and make him more open to

learning

> something more complicated. Good behavior management techniques utilize

> positive rewards, feedback, etc.

>

> 5. Does use Pic-sims, PECS, or some other kind of communication

> program? Does he talk? Sign? Every single kind of augmentative

> communication program is taught using behavior modification techniques.

> IMO, language is of the highest priority and is a key component for

helping

> a child manage his behaviors. His behaviors are not coming out of the

> blue- if he can't tell you how he feels with words, his behaviors will let

> you know. If he has more power to communicate, he will hopefully not be

> acting out as much.

>

> 6. Is getting sensory integration therapy? Also another incredibly

> powerful tool. Ten minutes swinging from side to side, deep pressure,

> brushing, etc., can all be used to help get focused and are not

> medication. If you took a quick poll, the majority of families are using

> almost all of these tools to help their kids with DS and autism. The

> families who don't have their kids on meds, but are perhaps on special

> diets or other supplements, are also using some sensory integration,

> augmentative communication (if their child isn't talking) and behavior

> management.

>

> 7. There is (again, IMO) simply no argument AGAINST using behavior

> management techniques. (Families might not want to use Lovaas or discreet

> trials but that is different from simply using behavior management

> techniques.) You would never say " I'm not going to correct my two year

old

> when he pulls the dog's tail- he's only two and won't understand it " . You

> would do a number of things to teach him:

> -monitor when the dog and the child are together ( you don't leave them

> alone unsupervised)

> -model appropriate behaviors with the dog: " Oh, Spot loves it when I pet

> him on his back. Happy dog! Here, baby, YOU pet the dog. Nice petting.

> Good boy! You make the dog happy. "

> - Remove the child immediately at any instance of tail pulling. " No

> pulling Spot's tail. That hurts Spot. You leave Spot now. Come with me.

> You will have to sit here away from Spot. " Then you lavish a lot of

> positive attention on the dog.

> -After a brief time out, you help your child pet Spot on the back, give

the

> dog a chew toy, etc.

> These are all behavior modification techniques. needs the structure

> and needs help understanding limits. ALL children do.

>

> 8. We begin using behavior modification techniques when our babies are

> born. They cry; we respond. If they calm after what we do (nursing,

> diaper changing, rocking) they are giving US the feedback that they want

us

> to do it again. Imitating our babies' coos and facial gestures gives them

> feedback and is the beginning of learning language/communication. Age has

> nothing to do with it.

>

> 9. I have always used behavior modification techniques when working with

> Ben. The most dramatic was at 18 months- I taught him his first

> signs in three days. I used beh. mod for toilet training as well- that

> wasn't until age 6, but in less than a week he was pretty well time

> trained. We chose to try medication because we felt it would help slow

him

> down and hopefully get focused so he could be more a part of things. Our

> pediatrician as well as the child psychologists and child psychiatrists

> that we have seen have all stressed that you work with the whole child.

> You continue to use everything that works. No medication will cure your

> child or magically transform him. You still work on behaviors, use

sensory

> integration. You will probably have to make some changes in the

> environment that are now triggers for him. (someone just said they were

> going cold turkey- taking away their child's flippy things, was it? )

>

> 10. If you were to go back and read, say, Sara's posts about what she has

> done with Elie over the years (since he is 14 now, I think he is a very

> good example) you will have a picture of what this means. Elie is on

> medication. He is getting speech services. He needs some sensory

> integration. Sara knows that some controls are needed over Elie's

> environment- he can't handle eating with all the other kids, for example.

> She has described using different behavior modification techniques (such

as

> backward chaining) to teach Elie household chores.

>

> 11. Sorry this is so long. I don't mean to preach. But I think that the

> doctor is right. Using behavior modification techniques IS the next step-

> and a very important one. It's a hell of a lot of work- but there is help

> out there for learning how to do it. And that's why we are here- to hold

> your hand along the way.

>

> Good luck, and hang in there!

>

> MB

>

> PS. I just re-read your post. We just got through a very long conference

> with our doc. He stressed that it does take a while -up to two or three

> months for some meds- to get a clear picture of what the meds are doing.

> He said, in effect, that we are not helping matters if we jump from one

med

> to the next. (In shorter acting drugs this is different). So Ben

is

> back on Risperdal and we are looking at trying some different behavior

> management techniques as well.

>

>

> wrote:

> >>

> Now, I've heard everything.....got a message on my ans. machine from nurse

> today about 's meds becoming ineffective.....doc recommends beh. mod.

and

> will NOT increase, decrease or change meds!

>

> I told this dip that I thought BM would NOT be effective as is still

at

> the " toddler " stage emotionally and unless we found something to calm him

> down first, there is no way he will cooperate with any type of therapy,

this

> being said at the initial consultation and mentioned many times

thereafter.

>

> I need advice, people, before I drive to this doc's office and strangle

> him....we have gone round and round with this....I think has really

> presented this doc with his first challenge...he seems to be very clinical

in

> his language and behavior, so I'm thinking he has been successful with

other

> children up until NOW!!!

>

> I always knew was the exception instead of the rule, but I didn't

expect

> this......what do I do now......besides, obviously, look for another doc?

> (which I'm going to do shortly when I calm down!)

>

> Has anyone else been successful with therapy with their own child at such

a

> young developmental age.....like around 2.......and if so, what were the

> methods attempted, and if not, what happened?

>

> I still think is just not on the right combo of meds.....and we still

> have a ways to go before the Risperdal reaches a decent blood level....so

do

> I wait it out for the Risperdal, try my luck on the therapy, change docs

or

> ALL of the above?

>

> Mad and Spitting Tacks in Texas,

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

>

>

>

> ------------------------------------------------------------------------

> LOW RATE, NO WAIT!

> Get a NextCard Visa, in 30 seconds! Get rates

> as low as 2.9% Intro or 9.9% Fixed APR and no hidden fees.

> Apply NOW!

> 1/2122/6/_/691668/_/954939677/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Hi, this is begging for whoever wrote those numbered reasons for using

Behav. Mod. etc. to resend them. I thought I had them copied so deleted the

digest for that day. It was just a few digests ago and it was the best summary

of an approach I've ever seen. I want to say it was who sent it but my

fifty three year old brain has significant holes in it's memory retrieval

system. Hope you can resend or tell me the digest number. By the way someone

mentioned archives. I wanted to get the 25 tips for Floor Time too. How do I get

to the archives?

[Guest guest]

In a message dated 4/7/00 7:52:07 AM Eastern Daylight Time,

karen.cornell@... writes:

<< I wanted to get the 25 tips for Floor Time too. How do I get

to the archives?

>>

Actually, there's 18. Here they are again:

Floor-Time Strategies for Helping Your Child Tune in to you and to the World,

and Build Two-Way Communications Taken From: Greenspan, S. Weider, S. (1998).

The Child with Special Needs: emotional and intellectual growth. Reading,

MA A Merloyd Lawrence Book, -Wesley.

Intervention Strategies:

* Follow your child's lead and join him. It does not matter what you do

together as long as he initiates the move.

* Persist in your pursuit

* Treat everything your child does as intentional and purposeful. Give her

seemingly random actions new meanings by responding to them as if they were

purposeful.

* Help your child do what he wants to do.

* Position yourself in front of your child.

* Invest in whatever your child initiates or imitates.

*Join your child's perseverative play.

* Do not treat avoidance or " no " as rejection.

* Expand expand expand; play dumb, make the wrong move, do what your child

tells you to do, interfere with what she is doing. Do whatever it takes to

keep the interaction going.

* Do not interrupt or change the subject as long as your child is interacting.

* Insist on a response.

* Use sensory-motor play - bouncing, tickling, swinging, and so on - to

elicit pleasure.

* Use sensory toys in cause and effect ways: hide toy, then make it

" magically " reappear; drop a belled toy so that your child will hear the

jingle; bring a " tickle feather " closer, closer, closer until finally you

tickle your child with it.

* Play infant games, such as peekaboo, " I'm going to get you " , and patty-cake.

* Pursue pleasure over other behaviors and do not interrupt any pleasurable

experience.

* Use gestures, tone of voice, and body language to accentuate the emotion in

what you say and do.

* Try to be as accepting of your child's anger and protests as you are of his

more positive emotions.

* Help your child deal with anxiety (separation, getting hurt, aggression,

loss, fear, and so on) by using gestures and problem solving.

[Guest guest]

please remove me from your e-maillisting. thank you bsb33h@...

Digest Number 104

> ------------------------------------------------------------------------

> Whatever you want, chances are you'll find it at one of the hundreds

> of sites in The PointClick Network--like Disney.com, eCost.com,

> FogDog.com and many more. You get paid as you shop and an additional

> 10% off any purchase, anytime.

> 1/2994/0/_/619765/_/955637048/

> ------------------------------------------------------------------------

>

>

[Guest guest]

please remove me from your e-maillisting. thank you bsb33h@...

Digest Number 104

> ------------------------------------------------------------------------

> Whatever you want, chances are you'll find it at one of the hundreds

> of sites in The PointClick Network--like Disney.com, eCost.com,

> FogDog.com and many more. You get paid as you shop and an additional

> 10% off any purchase, anytime.

> 1/2994/0/_/619765/_/955637048/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Hi!

There's a great children's book called " The Kissing Hand. " It's a really

sweet story about a child not wanting to separate from his mom when it's time

for school. So, she kisses his palm and closes his hand around it. When he

misses mom, he puts his hand to his cheek and pretends it's a kiss from her.

It works wonders for the kids (and especially the parents!) in my nursery

school class who have trouble saying goodbye. I'm not sure if it'll work for

you, but it's worth a try. Good Luck!

Kerry

Long Island

[Guest guest]

Gaynelle

Thank you for posting your story. One concern I have had is that

there is not much posted about long term effects of using enzymes. It

was very helpful to hear you have had such postive results and over a

longer time frame than I have seen posted so far.

Thanks

Caroline

Message: 24

Date: Sun, 01 Jul 2001 23:48:48 -0700

From: Gaynelle Grover <ggrover@...>

Subject: EnZymAid

Hello all:

There seems to be a fair amount of discussion lately about which

enzyme

products should or shouldn't be used as a replacement for a GFCF diet.

Since has asked for input from parents using enzymes other than

the Peptizyde and ZymePrime, I decided to venture back onto this list

to

share my experiences.

Two years ago my identical twin ASD boys were part of the clinical

trials for Serenaid. During the Serenaid trials, the boys were NOT on

a

GFCF diet.

Approximately 4 weeks into the clinical trials we began to see notable

improvements in both boys. Yet, when we received the post-trial

urinary

peptide lab reports from AAL Reference Laboratories (www.aalrl.com) we

discovered one boy's IAG level had risen, the other's was still

elevated, urinary peptide levels had risen slightly on one, and both

boys had DES-TYR casomorphin readings, where previously none had been

detected. While only their IAG was above the reference range, we came

away with the sense that their scores were trending in the wrong

direction. Because of this, we decided to stop the Serenaid enzymes

and

go strictly GFCF.

The boys have been on a GFCF diet for over 1-1/2 years now.

Approximately 8 months ago, at the recommendation of their

doctor--seconded by their pediatric gastroenterologist --we added

Kirkman EnZymAid (www.kirkmanlabs.com) to the boys' supplementation

schedule. While my boys' progress is undoubtedly the result of the

combination of many different therapies and biomedical interventions,

I

believe EnZymAid--in combination with high doses (3-4 caps/day) of a

multi-strain probiotic called Probio Gold--has played an important

role

in their gains. One boy's ATEC score (http://www.autism.com/atec/) is

fast approaching zero, the other's is in the low teens; both started

in

the 90's. They will be fully included in kindergarten this fall, are

ahead of typical peers in most cognitive areas, and are loving,

sociable

little guys. And although we haven't retested for urinary peptides

(it's

in the test queue), the latest Great Smokies Comprehensive Digestive

Stool Analysis (www.gsdl.com) test results are finally trending in the

right direction.

I know of several families who are currently using EnZymAid instead of

the GFCF diet and are reporting good results. (FYI, they use 2 -3

capsules per meal.) This might also be the time to add that the

EnZymAid

doesn't have the strong taste/smell of some other enzyme products

we've

tried--which may be a consideration for parents whose children cannot

swallow capsules.

I am a real believer in the benefits of enzymes, and will often

recommend that parents of autistic children--particularly those

parents

who have just gotten the diagnosis--start their children on enzymes

right away. (Most parents I've met have needed to focus their efforts

on

getting services for their children, rather than learning a whole new

cooking style or launching into extensive medical investigations.

Enzymes provide a quick way to begin addressing potential

gastrointestinal issues, with apparently little downside.) And because

of the good results I've seen first-hand, I plan to discuss the use of

enzymes in an autism early-intervention course I will help teach at

Stanford University this fall.

When parents ask me which enzyme product to use, I recommend EnZymAid

because of my children's experience with the product, good reports

from

others using the product, and because Kirkman is a respected company,

with a proven track record, that is deeply committed to helping

children

on the autism spectrum. I also appreciate that the company is waiting

until there is sufficient research data available before making the

claim that their product can be used as a replacement for the GFCF

diet--despite the fact the company knows many families are

successfully

using the enzymes this way. I take this as a sign that the company

places the well-being of ASD kids before corporate profits, which I

find

commendable.

I hope this has been helpful for some.

Gaynelle

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[Guest guest]

Hope everyone is doing as best as can be expected. I know I am supposed to be able to let my hair down here and share in life's ups and downs and am so appreciative of the fact that I am able to do such. I finally called my parents yesterday and they are calling me back today so that we can put some plans in concrete. I am going home to Oregon, something I haven't done since I was 19 years old. My folks and my siblings and their families will help me through this difficult time. There are 2 good VA hospitals in Oregon, one in Roseburg and one in Portland. I will transfer there and continue with the assistance the VA provides me. I need rest. I need to relax. I need to breathe. I can find a safe haven with my family and that is the best medicine I can think of. It will be sad having to leave Nate and I will surely miss my job, the members, but there is nothing else here for me in Terre Haute. I plan on keeping my AOL account and will continue on with the family I have here. I will try to keep up the best I can. And I promise you all that I will keep in touch. You might want to add EssJayinOR to your address books as I believe that address will be happening in the very near future. Thanks again for your support . . . it means more to me than you know. Be well . . .

Always,

SJ

[Guest guest]

Hi all:

Had a slight accident yesterday. I was sitting in the kitchen in a chair

that I can sit in. When I got up, there was a loud snap and the pain was

simply awful. I could barely get to my computer chair. I just sat there and

cried my foolish head off. I think it was the combination of the pain and

the reaction after my surgery. I called my orthopod and he saw me today

between surgeries. He took x-rays and everything is fine. He thinks I pulled

a muscle. He also told me I'm doing things that he would have expected me to

do at 6 weeks. He is very pleased with my progress.

I think my muscles are rebelling because I haven't been exercising in so

long.

Carole - AKA Thorn Willowweb, AKA Daisy Proudfoot of Standelf.

God grant me the Senility to forget the people I never liked anyway, the

good fortune to run into the ones I do, and the eyesight to tell the

difference.

·.,¸¸,.·´¯`·.,¸¸,.·´¯`·.»§«©©©»§«·.,¸¸,.·´¯`·.,¸¸,.·´¯`·

I think I lost my mind, so watch where you step!

·.,¸¸,.·´¯`·.,¸¸,.·´¯`·.»§«©©©»§«·.,¸¸,.·´¯`·.,¸¸,.·´¯`·

[Guest guest]

Jeff,

Thanks for your advice and I will continue to search the net. My

husband is in real good shape; he's got a better body now than he had

at 28 when I married him. He works out everyday with weights and on

a treadmill or eliptical machine. He quit the weights cuz the doc

said he shouldn't lift anything heavy until he has the surgery and is

fully recovered. I hope this takes away his pain and that the

numbness in his hands will go away and that the nerves are too far

damaged.

Debbie

> Dear Debbie, I had cervical fusion of the C-6/ C-7 vertabrae

almost two years ago. I came thru the surgery with relative ease. I

am 53 years old and I am in reasonably good health. I was very

fortunate to be operated on by one of the leading Neurosurgeons in my

part of the country.I am from the State of Washington and he was from

the State of Oregon. My surgery was done at OHSU (Oregon Health

Sciences University, a teaching hospital. I would suggest that you go

to WebMd.com and get aas much info as possible. I have recently

discovered that I have bulging discs between C/5 & C/6 and C/3 & C/4

vertabrae. I was also diagnosed with narrowing of the spinal canal,

and an osteophyte on my C/3 vertabra. I believe that my problems of

late were caused by the previous surgery. I went un-diagnosed for so

many years that my body had adjusted to the degenerated disc. My

present physician, after reading the reults of my most recent MRI

says I degenerative disc disease. What I can tell you is that I

> do my best to stay active and not allow my pain rule my life. I

put my trust in in a power greater than myself every day, GOD, the

greatest healer of them all.

>

>

> There is 1 message in this issue.

>

> Topics in this digest:

>

> 1. Newbie here

> From: " Debbie Mosier "

>

>

>

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>

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>

> Message: 1

> Date: Thu, 08 Sep 2005 00:23:07 -0000

> From: " Debbie Mosier "

> Subject: Newbie here

>

> I just joined because my husband has cervical stenosis and

spondysis

> (sp?) of the 5th, 6th, and 7th vertebrae. He isn't in alot of pain.

> I'm scared to death that he will be disabled after the surgery.

Both

> of the neurologists that we have seen said he will feel better

after

> the surgery. Another scary thing is that I don't work and of course

he

> is our only income. His disability check for a month will equal

what

> he makes in one week. I guess he is talking about taking money out

of

> his retirement if we need it. I said I'd get a job but the problem

is

> I have severe IBS and GERD, there are some days that I can't even

get

> off the couch except to RUN to the bathroom. Anyway, those of you

who

> have had the surgery I'd like to hear from. We need some

encouragement.

>

> Thanks,

> Debbie

>

>

>

>

>

>

>

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>

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>

>

>

> --------------------------------------------------------------------

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>

[Guest guest]

Joyce & Martha,

Thank you both so much for responding to me. It's interesting that these two names keep popping up around the scolio/flatback circle. If either of you have the time & wouldn't mind, I'd greatly appreciate a private email re: your experience with the guys.

Cam,

I feel the same way about Fall. I thought maybe I was weird or something - lol.

Blessings,

Carla Kay

Ps. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise...

[Guest guest]

Carla Kay,

Welcome! I, too, am a patient of Dr. Bridwell. He will " revise " me in

December. It took me about a month to get in to see him and I was

pleasantly surprised it was that fast. With reservations and all, that

worked out perfect. I have also been to see Dr. LaGrone (in Amarillo)

and while he was great, decided to stay on course with Dr. B.

Martha and Joyce have been great with logistics and all kinds of

stuff, but if you have any specific questions, let me know!

kam

[Guest guest]

Posted by: "gldcst" gldcst@... gldcst2

Wed Aug 16, 2006 8:38 pm (PST)

<<18 years ago, (not really the Dark Ages) the day Eleanor was born the doctors and nurses told us the following things:We could go home, leave her and she would "taken care of."That she had a life expectancy of 16 years.That she would learn to crawl, "not much else" and unlikely learn to walk and run.They advised me not to sign her birth certificate since it would make me "financially liable." Etc., etc.>><<, this is horrible... is almost 18 and all we got was great support and hope for her future when she was born. We're in So. Florida, not the most enlightened of areas so I guess we were very lucky. Where were you when Eleanor was born?Sherry>>

When Jeff was born almost 18 years ago with the ASD heart, my OBG said he wouldn't put a little baby through that kind of heart surgery. I asked him if he would have the surgery for one of his children (who didn't have any diagnosis). He understood where I was going with that. Months later, he told everyone in his office when I was there that I had "the miracle baby," and told them about the heart surgery he had and how fast he was growing, etc., etc. I think that experience changed a dr's life for the better! It's not the area where you live -- it's the "person" you have for a doctor or any professional. Betty in TN

[Guest guest]

I had a very good experience with doctors and the hospital where Mark was born over 18 years ago. Our family doctor who delivered him was part of a clinic with mostly Mennonite doctors. (we aren't Mennonite) We're in a small rural town in west central Ohio. Since I was an older mom, he told me before the birth my chances of having a child with DS, but then added that he had a niece with DS and it wasn't such a bad thing. Then when Mark was born with DS, he was very supportive. He said we should have a local pediatrician see him (a woman doctor who is also Mennonite). Maybe some of you in Indiana know her-- she went to Riley Hospital but I'm not sure if she's still there. (Dr. Graber) She told us that she had a daughter, just a few years older than Mark, who had very serious delays. So, she was very supportive for us, of course. In fact, she and her husband ran the local support group for parents of kids with disabilities.

The nurses in the hospital were wonderful. I will never forget the care they gave us both. (Mark and I) In fact, if I happened to see any of them later (out shopping) they always asked about Mark.

So, like Betty said, it's not where you live, but who the doctor is.

Barbara

RE: Digest Number 104

Posted by: "gldcst" gldcstcomcast (DOT) net gldcst2

Wed Aug 16, 2006 8:38 pm (PST)

<<18 years ago, (not really the Dark Ages) the day Eleanor was born the doctors and nurses told us the following things:We could go home, leave her and she would "taken care of."That she had a life expectancy of 16 years.That she would learn to crawl, "not much else" and unlikely learn to walk and run.They advised me not to sign her birth certificate since it would make me "financially liable." Etc., etc.>><<, this is horrible... is almost 18 and all we got was great support and hope for her future when she was born. We're in So. Florida, not the most enlightened of areas so I guess we were very lucky. Where were you when Eleanor was born?Sherry>>

When Jeff was born almost 18 years ago with the ASD heart, my OBG said he wouldn't put a little baby through that kind of heart surgery. I asked him if he would have the surgery for one of his children (who didn't have any diagnosis). He understood where I was going with that. Months later, he told everyone in his office when I was there that I had "the miracle baby," and told them about the heart surgery he had and how fast he was growing, etc., etc. I think that experience changed a dr's life for the better! It's not the area where you live -- it's the "person" you have for a doctor or any professional. Betty in TN

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