Interesting

[Guest guest]

Doris,

I don't know what CSM is so I definitely haven't tried it. I do take

silymarin all the time to help liver function, but not at all sure what

aspect of liver function I should be improving, or what silymarin does

improve. The only thing that reduces my itch/rash (major MCS symptom) is

hot baths or saunas which causes me to sweat out the whatever-it-is.

AFAIK I am totally mould-free where I am, but highly MCS, so I don't easily

see such a connection for me. My house hasn't got a single spore as far as

I can tell.

Your golf course is not a real golf course, it is a rare exception! REAL

golf courses use dangerous chemicals by the truckload.

I wonder how many of us have this positive correlation between high stress

and less infection? And what does it prove. I suppose they will say it

proves adrenal exhaustion, but I am not so sure. I do know that my

metabolism is generally up the creek with the normally impossible

combination of high testosterone and very very low DHEAS.

What is CSM?

n

At 11:09 AM 11/10/05, you wrote:

>Hi n

>Have you ever tried to get the mold toxins out of your body with CSM? I

>know that leaving the mold areas can help you improve, as it did with

>me. But your body has to be working pretty well, your liver, etc. to be

>able to detox the mold on your own. (And if you have the really bad genes

>then it probably is impossible to detox on your own.). You probably know

>that Shoemaker says out of 500 people he has treated with MCS, they all

>had underlying mold toxins. When I was removed from mold I did become

>less and less MCS until now it is barely noticeable. I also live on a

>golf course which worried me at first, but it turns out that the course I

>am on is very natural and doesn't do any spraying for bugs or weeds. (It

>helps that we are at 5000 feet and bugs basically aren't around, and in a

>desert so weeds don't grow except where you water. This spring they

>burned the edges of the course to kill the spring weeds.) Ironically the

>one chemicals they use is to stop snow mold during the winter, so I guess

>I'm not going to complain about that!

>

>I did have some mold exposure and have been slightly worse since then, so

>I am trying the CSM now.

>

>Also Shoemaker believes the reason some people don't recover from lyme

>with antibiotics is because they still have lyme toxins in them. He

>claims that treating them with CSM gets rid of the lyme toxins and they

>get better. Again, all but the worst genetic makeup.

>

>I found some stresses, such as traveling to Japan, caused me to become

>sicker, typically viral. But extreme emotional stress such as the death

>of a sibling, caused some of my best health..

>

>Doris

>

>

[Guest guest]

I doubt there is anything that affects everyone equally. Some people are

affected by mercury fillings, others are not. Some people get the flu when it

goes through town, others do not. A higher % of people who live near a nuclear

power plant get cancer, but they don't all get cancer. Many many things affect

the risk of getting some illness. But it is risk, % chance of getting it.

Seldom is something so clear cut that everyone exposed gets the same illness.

Only catastrophic things like a nuclear bomb.

So no, it would not surprise me at all if some people are more susceptible to

problems caused by EMF's than other people. Whether the difference is genetics

or previous illness or concurrent illnesses or what, who knows.

Doris

----- Original Message -----

From: yakcamp22

Doris, since there is usually only one person in a household

supposedly affected by an EMF, is there a supposition that you have

to have a bad gene or some other infection for the EMF to affect

the sick individual and not the rest of the family? Again, in this

case w/ EMFs, it would seem that it would affect everyone in the

house.

[Guest guest]

CSM is a cholesterol drug that also works to bind the mold toxins in your body

and get them out. If you are interested in more, you should get the book Mold

Warriors (moldwarriors.com) I never saw any mold either; it is not necessarily

visible, so I'm not sure how you would know you are in a mold-free environment.

I will say it once again (sorry I keep repeating it), it is not mold that is a

problem it is mold toxins created by the mold. Mold toxins are invisible. Once

mold toxins are somewhere they never go away. Mold could have been there 10

years ago and if those molds made toxins, the mold toxins would still be there.

The most mold toxins seem to form indoors, but they must be outdoors too because

some areas are known for being moldy and making people sick (like California Bay

Area where I used to live.)

Doris

----- Original Message -----

I don't know what CSM is so I definitely haven't tried it...

AFAIK I am totally mould-free where I am, but highly MCS, so I don't easily

see such a connection for me. My house hasn't got a single spore as far as

I can tell.

What is CSM?

n

[Guest guest]

Excuse me for jumping in, but CSM is cholestyramine, a cholesterol-

lowering drug (a resin powder mixed into water), used by Dr. Ritchie

Shoemaker to bind neurotoxins in the gut (from Lyme, or mold, or

staph infections). Along with this the drug Actos can be used, which

according to him helps reduce inflammation.

You might read some of his work. I was just reading in his latest

book " Mold Warriors " where he says he had MCS, and believes that MCS

starts with a mold exposure. Your case may fit his model, in that

even though you're no longer exposed to mold, the accumulated

neurotoxins are still in your system, causing your MCS, or they have

affected your hormone balance and contributed to MCS somehow. He

says certain genotypes are mold-susceptible, these are listed in Mold

Warriors. I personally think it's worth reading; many people seem to

dismiss him without giving his testing and treatment a chance.

Saunas may be doing for you what CSM does for some of his patients.

www.chronicneurotoxins.com

www.moldwarriors.com

www.hopkintondrug.com (compounding pharmacy that makes pure CSM

without sugar or aspartame)

> >Hi n

> >Have you ever tried to get the mold toxins out of your body with

CSM? I

> >know that leaving the mold areas can help you improve, as it did

with

> >me. But your body has to be working pretty well, your liver, etc.

to be

> >able to detox the mold on your own. (And if you have the really

bad genes

> >then it probably is impossible to detox on your own.). You

probably know

> >that Shoemaker says out of 500 people he has treated with MCS,

they all

> >had underlying mold toxins. When I was removed from mold I did

become

> >less and less MCS until now it is barely noticeable. I also live

on a

> >golf course which worried me at first, but it turns out that the

course I

> >am on is very natural and doesn't do any spraying for bugs or

weeds. (It

> >helps that we are at 5000 feet and bugs basically aren't around,

and in a

> >desert so weeds don't grow except where you water. This spring

they

> >burned the edges of the course to kill the spring weeds.)

Ironically the

> >one chemicals they use is to stop snow mold during the winter, so

I guess

> >I'm not going to complain about that!

> >

> >I did have some mold exposure and have been slightly worse since

then, so

> >I am trying the CSM now.

> >

> >Also Shoemaker believes the reason some people don't recover from

lyme

> >with antibiotics is because they still have lyme toxins in them.

He

> >claims that treating them with CSM gets rid of the lyme toxins and

they

> >get better. Again, all but the worst genetic makeup.

> >

> >I found some stresses, such as traveling to Japan, caused me to

become

> >sicker, typically viral. But extreme emotional stress such as the

death

> >of a sibling, caused some of my best health..

> >

> >Doris

> >

> >

[Guest guest]

I actually did know about cholestyramine, I jsut didn't recognise that

acronym. I bought this place new, and have had the humidity below about

30% for almost every day since I have been here by a combination of means

including a permanent heater 24/7 in the wet areas. I am sure this is

mould free. But pesiticide-free, I am not so sure. I understand about it

not being visible, this was the case in my last house from which I escaped.

Cheers

n

At 02:25 PM 14/10/05, you wrote:

>CSM is a cholesterol drug that also works to bind the mold toxins in your

>body and get them out. If you are interested in more, you should get the

>book Mold Warriors (moldwarriors.com) I never saw any mold either; it is

>not necessarily visible, so I'm not sure how you would know you are in a

>mold-free environment. I will say it once again (sorry I keep repeating

>it), it is not mold that is a problem it is mold toxins created by the

>mold. Mold toxins are invisible. Once mold toxins are somewhere they

>never go away. Mold could have been there 10 years ago and if those molds

>made toxins, the mold toxins would still be there. The most mold toxins

>seem to form indoors, but they must be outdoors too because some areas are

>known for being moldy and making people sick (like California Bay Area

>where I used to live.)

>

>Doris

> ----- Original Message -----

>

> I don't know what CSM is so I definitely haven't tried it...

> AFAIK I am totally mould-free where I am, but highly MCS, so I don't

> easily

> see such a connection for me. My house hasn't got a single spore as

> far as

> I can tell.

>

> What is CSM?

>

> n

>

>

[Guest guest]

Thanks for this, I will add it to my list of things to do.

n

At 03:01 PM 14/10/05, you wrote:

>Excuse me for jumping in, but CSM is cholestyramine, a cholesterol-

>lowering drug (a resin powder mixed into water), used by Dr. Ritchie

>Shoemaker to bind neurotoxins in the gut (from Lyme, or mold, or

>staph infections). Along with this the drug Actos can be used, which

>according to him helps reduce inflammation.

>

>You might read some of his work. I was just reading in his latest

>book " Mold Warriors " where he says he had MCS, and believes that MCS

>starts with a mold exposure. Your case may fit his model, in that

>even though you're no longer exposed to mold, the accumulated

>neurotoxins are still in your system, causing your MCS, or they have

>affected your hormone balance and contributed to MCS somehow. He

>says certain genotypes are mold-susceptible, these are listed in Mold

>Warriors. I personally think it's worth reading; many people seem to

>dismiss him without giving his testing and treatment a chance.

>Saunas may be doing for you what CSM does for some of his patients.

>

>www.chronicneurotoxins.com

>www.moldwarriors.com

>www.hopkintondrug.com (compounding pharmacy that makes pure CSM

>without sugar or aspartame)

>

>

> > >Hi n

> > >Have you ever tried to get the mold toxins out of your body with

>CSM? I

> > >know that leaving the mold areas can help you improve, as it did

>with

> > >me. But your body has to be working pretty well, your liver, etc.

>to be

> > >able to detox the mold on your own. (And if you have the really

>bad genes

> > >then it probably is impossible to detox on your own.). You

>probably know

> > >that Shoemaker says out of 500 people he has treated with MCS,

>they all

> > >had underlying mold toxins. When I was removed from mold I did

>become

> > >less and less MCS until now it is barely noticeable. I also live

>on a

> > >golf course which worried me at first, but it turns out that the

>course I

> > >am on is very natural and doesn't do any spraying for bugs or

>weeds. (It

> > >helps that we are at 5000 feet and bugs basically aren't around,

>and in a

> > >desert so weeds don't grow except where you water. This spring

>they

> > >burned the edges of the course to kill the spring weeds.)

>Ironically the

> > >one chemicals they use is to stop snow mold during the winter, so

>I guess

> > >I'm not going to complain about that!

> > >

> > >I did have some mold exposure and have been slightly worse since

>then, so

> > >I am trying the CSM now.

> > >

> > >Also Shoemaker believes the reason some people don't recover from

>lyme

> > >with antibiotics is because they still have lyme toxins in them.

>He

> > >claims that treating them with CSM gets rid of the lyme toxins and

>they

> > >get better. Again, all but the worst genetic makeup.

> > >

> > >I found some stresses, such as traveling to Japan, caused me to

>become

> > >sicker, typically viral. But extreme emotional stress such as the

>death

> > >of a sibling, caused some of my best health..

> > >

> > >Doris

> > >

> > >

[Guest guest]

WHere do you get the idea that the toxins never go away? DO you have

any proof of this? What do you mean by toxins anyway?

Lots of people do poorly on CSM. There may be better choices.

I am so grossed out. I just read a study released today that all

pillows whether feaethers or snythetic are loaded with fungus.

Totally gross.

>

> CSM is a cholesterol drug that also works to bind the mold toxins

in your body and get them out. If you are interested in more, you

should get the book Mold Warriors (moldwarriors.com) I never saw

any mold either; it is not necessarily visible, so I'm not sure how

you would know you are in a mold-free environment. I will say it

once again (sorry I keep repeating it), it is not mold that is a

problem it is mold toxins created by the mold. Mold toxins are

invisible. Once mold toxins are somewhere they never go away. Mold

could have been there 10 years ago and if those molds made toxins,

the mold toxins would still be there. The most mold toxins seem to

form indoors, but they must be outdoors too because some areas are

known for being moldy and making people sick (like California Bay

Area where I used to live.)

>

> Doris

> ----- Original Message -----

>

> I don't know what CSM is so I definitely haven't tried it...

> AFAIK I am totally mould-free where I am, but highly MCS, so I

don't easily

> see such a connection for me. My house hasn't got a single spore

as far as

> I can tell.

>

> What is CSM?

>

> n

>

>

[Guest guest]

>

> There was a person I know of who had CFS + MCS and went to live in

a

> stainless steel caravan (with her partner I point out, so not

isolated) in

> the desert country of central Australia. According to her partner

who was

> trying to sell me the caravan, after three years she was " cured " .

>

Hi n.

My question is, if we are so unable to tolerate mold that exposure to

it at levels that does nothing to other people causes us to become

almost totally disabled, wouldn't we most likely succumb to it again

when we are exposed to it again?

Also, I live in Tucson, AZ. It rains here very infrequently and the

humidity is often in the single digits (1 to 9%), but we have lots of

mold here too. Mold has no problem adapting to a desert

environment. The wind blows fragments and spores around all the time.

I have heard many of these " I did one thing and it completely cured

my CFS " stories. My conclusion is that either these people had a

very different illness than I have, or they are very lucky, or they

are trying to sell something (a stainless steel trailer?).

Tom

[Guest guest]

That doesn't prove you don't have mold; it could be growing inside a wall from a

leak, etc.

If you read the book, you will see that there doesn't have to be mold in your

house for you to be sick. If you are mold susceptible, you may have be exposed

to mold toxins in the past and they are still in your body causing the trouble.

That said, new houses are loaded with outgassing chemicals and about the worst

choice there is for people with MCS. When I moved, I refused to live in one

that wasn't at least a few years old.

Doris

----- Original Message -----

I actually did know about cholestyramine, I jsut didn't recognise that

acronym. I bought this place new, and have had the humidity below about

30% for almost every day since I have been here by a combination of means

including a permanent heater 24/7 in the wet areas. I am sure this is

mould free. But pesiticide-free, I am not so sure. I understand about it

not being visible, this was the case in my last house from which I escaped.

[Guest guest]

Hi

I'm sure there are other and probably better choices; unfortunately nobody is

working on it besides Shoemaker and he mainly uses CSM. He doesn't get into

enough detail in the book about people it doesn't work on and why. At the time

of the book he talked about not being able to help them much yet and that is

where his focus is now. So I suspect he might have some more things by this

point.

I admit I've gotten all my info on mold toxins from Shoemaker. You might be

able to find alternate research. Apparently the field of mycocytology is new

but they are learning fast, doubling their knowledge every few years. Shoemaker

mentions that until a few years ago they didn't even have the ability to measure

a mold toxins and could prove they were there. I understand people who think

Shoemaker doesn't have the handle of CFS; I think it's true that he focuses on

mold and when you have a hammer, everything you see looks like a nail. But his

experience with mold in sick buildings is so strong, thousands of cases, and he

tests susceptible people over and over even after supposed cleanup, with and

without CSM. So I don't question at all his knowledge in general of mold, so I

believed when he said the toxins don't die. But I'm sure there should be some

scientific proof out there. (I think maybe his first book had more about the

toxins; maybe if I went back and re-read that it would help.)

I can say what a mold toxin is. Molds send off spores to reproduce. If they

are relatively safe and not being threatened for survival, then they have extra

" energy " and use it to create toxins. They put the toxins on the spores before

sending them out, in order to help the spores survive. That's why molds inside

homes tend to make way more toxins, because the humidity and temperature is

perfect for them, and they don't have natural predators. So they have a lot of

extra energy to make toxins. There is also a belief that chemicals in our

environment have made mold toxins more potent. Anyway, according to Shoemaker,

years after the mold and spores are gone, the toxins remain.

Doris

Re: Interesting

WHere do you get the idea that the toxins never go away? DO you have

any proof of this? What do you mean by toxins anyway?

Lots of people do poorly on CSM. There may be better choices.

I am so grossed out. I just read a study released today that all

pillows whether feaethers or snythetic are loaded with fungus.

Totally gross.

[Guest guest]

Thought you guys would be interested in this......mental health becomes more of

an issue as our kids get older.

http://www.woodbinehouse.com/main.asp_Q_product_id_E_1-890627-65-8

Reggie

________________________________________________________________________

Check out AOL.com today. Breaking news, video search, pictures, email and IM.

All on demand. Always Free.

[Guest guest]

Or how they name folks! My sister Tonya to my son is Pizza Tonya cause

she always orders pizza when he visits her house!

My sister Adele is big mamma because she is like everyones mamma!

I am mamacita I think thats how ya spell it or little mamma

Cousin Gabi is Chatty Gabi cause she lives up to her name.

His own sisters are sisie one and two

>

> You know when you go into a store and meet someone who knows you well

> and you just can't place them and you get a little paniky? Then

after

> you do something else for a while and calm down it comes to you who

> that person is? 's physical theripist was explaining yesterday

> that Autistic people have this happen quite often. That helped me

> relate to my son. Jodi

>

[Guest guest]

Or how they name folks! My sister Tonya to my son is Pizza Tonya cause

she always orders pizza when he visits her house!

My sister Adele is big mamma because she is like everyones mamma!

I am mamacita I think thats how ya spell it or little mamma

Cousin Gabi is Chatty Gabi cause she lives up to her name.

His own sisters are sisie one and two

>

> You know when you go into a store and meet someone who knows you well

> and you just can't place them and you get a little paniky? Then

after

> you do something else for a while and calm down it comes to you who

> that person is? 's physical theripist was explaining yesterday

> that Autistic people have this happen quite often. That helped me

> relate to my son. Jodi

>

[Guest guest]

I like knowing that they are getting some test results back that is showing how to make the bodies immune system respond and over come mites.....but.I hate knowing that they are knowing infecting animals with these mites....after I have itched for 2 years I now know what animals are going through and it is unbearable......no animal should have to live with this.....Rita

Interesting

http://www.ncbi.nlm.nih.gov/pubmed/7611562?ordinalpos=1 & itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVAbstractPlus

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.7/1232 - Release Date: 1/18/2008 7:32 PM

[Guest guest]

it's hard to understand, lorie. i feel like a dumbass reading it.fritolay66 <fritolay66@...> wrote: http://www.ncbi.nlm.nih.gov/pubmed/7611562?ordinalpos=1 & itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVAbstractPlus

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

My son does something like this. Everyone he knows has sort of a category so that when he sees them again he immediatly starts talking about the certain persons catergory. One person has a little sports car so eveytime he sees this person he immediatly starts talking about their car. Or my nephew plays pro hockey so obviously his catergory is hockey but he really only talks about the time when he was still in the minors which was quite a while ago. I think he does this because when my son first stared doing this was around the time that my nephew was playing in the minors and we as a family would all sit around and watch him play being broadcast on the internet.. And peter loved that. Everyone has a category which I guess helps him and gives him comfort and confidence too.valet_4u <valet_4u@...> wrote: Or how they name folks! My sister Tonya to my son is Pizza Tonya cause she always orders pizza when he visits her house! My sister Adele is big mamma because she is like everyones mamma! I am mamacita I think thats how ya spell it or little mamma Cousin Gabi is Chatty Gabi cause she lives up to her name.His own sisters are sisie one and two >> You know when you go into a store and meet someone who knows you well > and you just can't place them and you get a

little paniky? Then after > you do something else for a while and calm down it comes to you who > that person is? 's physical theripist was explaining yesterday > that Autistic people have this happen quite often. That helped me > relate to my son. Jodi>

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Your son has a wonderful imagination! I bet he brings many smiles

to your house. =) Jodi

> >

> > You know when you go into a store and meet someone who knows you

well

> > and you just can't place them and you get a little paniky? Then

> after

> > you do something else for a while and calm down it comes to you

who

> > that person is? 's physical theripist was explaining

yesterday

> > that Autistic people have this happen quite often. That helped

me

> > relate to my son. Jodi

> >

>

[Guest guest]

Oh yeah if you read the book LOOK ME IN THE EYE this is an Aspie thing

> > >

> > > You know when you go into a store and meet someone who knows

you

> well

> > > and you just can't place them and you get a little paniky?

Then

> > after

> > > you do something else for a while and calm down it comes to you

> who

> > > that person is? 's physical theripist was explaining

> yesterday

> > > that Autistic people have this happen quite often. That helped

> me

> > > relate to my son. Jodi

> > >

> >

>

[Guest guest]

Subject: interestingTo: "Diane V Murrell" Date: Monday, August 10, 2009, 11:31 PM

http://www.rottentomatoes.com/m/1208105-adam/

[Guest guest]

Subject: interestingTo: "Diane V Murrell" Date: Monday, August 10, 2009, 11:31 PM

http://www.rottentomatoes.com/m/1208105-adam/

[Guest guest]

Just the OPPOSITE happened with polio. I believe it was in 1958 doctors were no

longer " allowed " to diagnose polio based on symptoms - they had to send in poop

samples to of all organizations - the corrupt World Health Organization for

analysis. So, they then made the claim that polio was " eradicated " by the

vaccine and came up with new names for the disease (Guillain Barre, asceptic

meningitis, acute flaccid paralysis, west nile virus, etc). What a joke. Prior

to 1958 these would all be called polio.

>

> My co-workers daughter was just diagnosed with the flu. He says that they are

" treating it like H1N1 " as they are with anyone coming in with flu-like symptoms

" because they cannot send blood like that to the state lab for testing anymore. "

>

> What's up with that?

>

> I'm sure they're counting every possible case as H1N1 then, since they now

can't prove it!?! That'll surely help the numbers to go up, even if it's

totally not H1N1!

>

[Guest guest]

I have always wondered if there was a correlation for Lucas with some of his

emotional issues. This looks very interesting!

IVIG www.webpediatrics.com

Recent scientific evidences are pointing

out that an infectious agent(s) may play an important role in the

pathophysiology of certain neuropsychiatric disorders in

children1,11,17,19,20. Group A beta-hemolytic ...

BARBIE

[Guest guest]

My son was diagnosed with PANDAS in 2006, at a study done of Pediatric OCD

patients, at the University of Florida......his OCD is severe at times. He also

has CVID and receives IVIG....I can tell you, from my experience, that the IVIG

has done nothing for his OCD...I wish it would, maybe it helps some kids, but

not mine.  Sue

From: Barbara Jimenez <mother5590@...>

Subject: Re: Interesting

Date: Thursday, May 27, 2010, 4:59 AM

 

I have always wondered if there was a correlation for Lucas with some of

his emotional issues. This looks very interesting!

IVIG www.webpediatrics.com

Recent scientific evidences are pointing

out that an infectious agent(s) may play an important role in the

pathophysiology of certain neuropsychiatric disorders in

children1,11,17,19,20. Group A beta-hemolytic ...

BARBIE

[Guest guest]

IVIG has been a off label use for Autism for years. I am not sure what the

recent studies point too, but I do know that several years ago it (in a few

SMALL blind studies) helped relieve SOME of the behaviors associated with

autism. Personally, my son has autism, and while I am not sure IVIG has

changed the symptoms, he is not sick anymore, and therefore more receptive

to autism related services.

On Wed, May 26, 2010 at 9:59 PM, Barbara Jimenez <mother5590@...>wrote:

>

>

> I have always wondered if there was a correlation for Lucas with some of

> his emotional issues. This looks very interesting!

>

> IVIG www.webpediatrics.com

> Recent scientific evidences are pointing

> out that an infectious agent(s) may play an important role in the

> pathophysiology of certain neuropsychiatric disorders in

> children1,11,17,19,20. Group A beta-hemolytic ...

> BARBIE

>

>

[Guest guest]

hi Sue-

I'm sorry to hear that the IVIG doesn't help with the OCD- for your son's sake

and for mine too. One of my boys and I have already been getting IVIG infusions

for years and my other son has recently had his diagnosis (long suspected) of

CVID confirmed also. I strongly suspect PANDAS for him too and his most recent

testing suggests it.

He also has OCD- quite severe and I am praying that starting infusions will help

him- not only with his CVID but also w/ his PANDAS and his aspergers (unofficial

diagnosis) My best friend has a son w/aspergers and I know a lot about it- as

does she obviously- and she agrees that it is very likely he has it also. He is

able to compensate with support and therapies I have learned from my friend. My

son is extremely sensitive @ autism and OCD and refuses to be tested formally-

which makes me sad on so many levels...WAY too much rambling could happen but I

will stop explaining so much now ;-)

What tests were done to confirm the PANDAS diagnosis ? I can remember off the

top of my head what was tested- but my son has very classic signs of PANDAS.

Lori

lucky mom blessed with triplets

www.caringbridge.org/visit/bradenwild

>

> My son was diagnosed with PANDAS in 2006, at a study done of Pediatric OCD

patients, at the University of Florida......his OCD is severe at times. He also

has CVID and receives IVIG....I can tell you, from my experience, that the IVIG

has done nothing for his OCD...I wish it would, maybe it helps some kids, but

not mine.  Sue

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