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Hi Gretchen,

Do you know what the differnce is between tagament and

prednisone? Why do some kids with take tagament

and others prednisone? Cheri

--- Cheri Payton <mycheribaby@...> wrote:

> Thanks for the info., Gretchen. I hope you get some

> answeres soon. Cheri

>

> --- Gretchen Danson <gretchendanson@...>

> wrote:

>

> > It was a clinical diagnosis until we decided and

> > that genetic testing was available. We will see in

> > another week with the test results. If all the

> > genetic test come back negative then we will stick

> > with . He has non impressive blood work so,

> > really nothing really to diagnose but or

> pfs?

> > Gretchen

> >

> > mycheribaby <mycheribaby@...> wrote:

>

> > -Gretchen, I also was wondering about your sons

> > genetic test...I

> > thought there was no test to diagnosis

> .Cheri--

> > In

> > , Gretchen Danson

> > <gretchendanson@...> wrote:

> > >

> > > Hi Cheri, My name is Gretchen and my son

> > is 13 and has been

> > suffering with for years.......He has been

> on

> > tagamet since

> > April and he still has his fevers every 23 days.

> We

> > just had genetic

> > testing at Children's hosp. 3weeks ago, we have

> one

> > more week before

> > we get results. 's summer months are the

> same

> > as winter.

> > is on the verge of a fever today he hopes

> he

> > will be well by

> > Monday so he can go to a Mariners game with his

> Dad.

> > He did finally

> > have his 13Th birthday party with his class mates,

> > he missed it in

> > Feb. due to a fever, of course. He had a great end

> > of the summer pool

> > party here at the house. Hang in there and we are

> > all here for each

> > other. Gretchen and

> > >

> > > ---------------------------------

> > > All-new - Fire up a more powerful

> > email and get things

> > done faster.

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Messenger with Voice. Make PC-to-Phone

> Calls

> > to the US (and 30+ countries) for 2¢/min or less.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

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Both are used in treatment of fevers

Tagament is a daily drug taken for a minimal of 6 months in hope to see a

reduction in fevers .. Predisnone is taken at the start of a fever in hopes to

break it and only taken at these times. BOth are seen to work depending the

child. they can both be used for answers. however genetics is still your best

mom to kiara 6

Re: tagament

Hi Gretchen,

Do you know what the differnce is between tagament and

prednisone? Why do some kids with take tagament

and others prednisone? Cheri

--- Cheri Payton <mycheribaby@...> wrote:

> Thanks for the info., Gretchen. I hope you get some

> answeres soon. Cheri

>

> --- Gretchen Danson <gretchendanson@...>

> wrote:

>

> > It was a clinical diagnosis until we decided and

> > that genetic testing was available. We will see in

> > another week with the test results. If all the

> > genetic test come back negative then we will stick

> > with . He has non impressive blood work so,

> > really nothing really to diagnose but or

> pfs?

> > Gretchen

> >

> > mycheribaby <mycheribaby@...> wrote:

>

> > -Gretchen, I also was wondering about your sons

> > genetic test...I

> > thought there was no test to diagnosis

> .Cheri--

> > In

> > , Gretchen Danson

> > <gretchendanson@...> wrote:

> > >

> > > Hi Cheri, My name is Gretchen and my son

> > is 13 and has been

> > suffering with for years.......He has been

> on

> > tagamet since

> > April and he still has his fevers every 23 days.

> We

> > just had genetic

> > testing at Children's hosp. 3weeks ago, we have

> one

> > more week before

> > we get results. 's summer months are the

> same

> > as winter.

> > is on the verge of a fever today he hopes

> he

> > will be well by

> > Monday so he can go to a Mariners game with his

> Dad.

> > He did finally

> > have his 13Th birthday party with his class mates,

> > he missed it in

> > Feb. due to a fever, of course. He had a great end

> > of the summer pool

> > party here at the house. Hang in there and we are

> > all here for each

> > other. Gretchen and

> > >

> > > ---------------------------------

> > > All-new - Fire up a more powerful

> > email and get things

> > done faster.

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Messenger with Voice. Make PC-to-Phone

> Calls

> > to the US (and 30+ countries) for 2¢/min or less.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

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HI ,

Can you tell me more about genetic testing? 's

ID doctor told me there wasn't any test for .

was tested for FMF, it was negitive. Thanks,

Cheri in CA

--- Bisson <proudmom@...> wrote:

> Both are used in treatment of fevers

> Tagament is a daily drug taken for a minimal of 6

> months in hope to see a reduction in fevers ..

> Predisnone is taken at the start of a fever in hopes

> to break it and only taken at these times. BOth are

> seen to work depending the child. they can both be

> used for answers. however genetics is still your

> best

> mom to kiara 6

> Re: tagament

>

>

>

> Hi Gretchen,

> Do you know what the differnce is between tagament

> and

> prednisone? Why do some kids with take

> tagament

> and others prednisone? Cheri

> --- Cheri Payton <mycheribaby@...> wrote:

>

> > Thanks for the info., Gretchen. I hope you get

> some

> > answeres soon. Cheri

> >

> > --- Gretchen Danson <gretchendanson@...>

> > wrote:

> >

> > > It was a clinical diagnosis until we decided

> and

> > > that genetic testing was available. We will

> see in

> > > another week with the test results. If all the

> > > genetic test come back negative then we will

> stick

> > > with . He has non impressive blood work

> so,

> > > really nothing really to diagnose but or

> > pfs?

> > > Gretchen

> > >

> > > mycheribaby <mycheribaby@...> wrote:

> >

> > > -Gretchen, I also was wondering about your

> sons

> > > genetic test...I

> > > thought there was no test to diagnosis

> > .Cheri--

> > > In

> > > , Gretchen Danson

> > > <gretchendanson@...> wrote:

> > > >

> > > > Hi Cheri, My name is Gretchen and my son

>

> > > is 13 and has been

> > > suffering with for years.......He has

> been

> > on

> > > tagamet since

> > > April and he still has his fevers every 23

> days.

> > We

> > > just had genetic

> > > testing at Children's hosp. 3weeks ago, we

> have

> > one

> > > more week before

> > > we get results. 's summer months are

> the

> > same

> > > as winter.

> > > is on the verge of a fever today he

> hopes

> > he

> > > will be well by

> > > Monday so he can go to a Mariners game with

> his

> > Dad.

> > > He did finally

> > > have his 13Th birthday party with his class

> mates,

> > > he missed it in

> > > Feb. due to a fever, of course. He had a great

> end

> > > of the summer pool

> > > party here at the house. Hang in there and we

> are

> > > all here for each

> > > other. Gretchen and

> > > >

> > > > ---------------------------------

> > > > All-new - Fire up a more

> powerful

> > > email and get things

> > > done faster.

> > > >

> > > > [Non-text portions of this message have been

> > > removed]

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Messenger with Voice. Make PC-to-Phone

> > Calls

> > > to the US (and 30+ countries) for 2¢/min or

> less.

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> >

> __________________________________________________

> >

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Share on other sites

Hi Cheri, What I know is tagamet is a Auto-immune regulator and prednisone helps

with inflammation. Why one works and the other doesn't......I don't know. I'm

sure Fran can answer that question in more detail. We tried tagamet out of

desperation hoping would be well more days than sick. It did this

however, he still gets sick every 22-23 day like clock work. What is weird is he

fevers high every other month for the last 3 or 4 months. We are seeing a

pattern here. He will go from 104 one month to 100.4 the other. This time right

now he is 100.4 but, with these or without these high fevers he still feels the

same......Bad!!!!! Will have more answers this week.

Take care, Gretchen

Cheri Payton <mycheribaby@...> wrote:

Hi Gretchen,

Do you know what the differnce is between tagament and

prednisone? Why do some kids with take tagament

and others prednisone? Cheri

--- Cheri Payton <mycheribaby@...> wrote:

> Thanks for the info., Gretchen. I hope you get some

> answeres soon. Cheri

>

> --- Gretchen Danson <gretchendanson@...>

> wrote:

>

> > It was a clinical diagnosis until we decided and

> > that genetic testing was available. We will see in

> > another week with the test results. If all the

> > genetic test come back negative then we will stick

> > with . He has non impressive blood work so,

> > really nothing really to diagnose but or

> pfs?

> > Gretchen

> >

> > mycheribaby <mycheribaby@...> wrote:

>

> > -Gretchen, I also was wondering about your sons

> > genetic test...I

> > thought there was no test to diagnosis

> .Cheri--

> > In

> > , Gretchen Danson

> > <gretchendanson@...> wrote:

> > >

> > > Hi Cheri, My name is Gretchen and my son

> > is 13 and has been

> > suffering with for years.......He has been

> on

> > tagamet since

> > April and he still has his fevers every 23 days.

> We

> > just had genetic

> > testing at Children's hosp. 3weeks ago, we have

> one

> > more week before

> > we get results. 's summer months are the

> same

> > as winter.

> > is on the verge of a fever today he hopes

> he

> > will be well by

> > Monday so he can go to a Mariners game with his

> Dad.

> > He did finally

> > have his 13Th birthday party with his class mates,

> > he missed it in

> > Feb. due to a fever, of course. He had a great end

> > of the summer pool

> > party here at the house. Hang in there and we are

> > all here for each

> > other. Gretchen and

> > >

> > > ---------------------------------

> > > All-new - Fire up a more powerful

> > email and get things

> > done faster.

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Messenger with Voice. Make PC-to-Phone

> Calls

> > to the US (and 30+ countries) for 2¢/min or less.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

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Share on other sites

-Hi Gretchen, thanks for your reply. It is all so interesting and yet

so mysterious! I wish I knew what 's pattern will be. He has

only had 6 episodes...too early to tell. I feel blessed that we found

out about so early in his illness. I wonder how moms hold a job

with having a child who is sick so much??? Cheri-- In

, Gretchen Danson <gretchendanson@...> wrote:

>

> Hi Cheri, What I know is tagamet is a Auto-immune regulator and

prednisone helps with inflammation. Why one works and the other

doesn't......I don't know. I'm sure Fran can answer that question in

more detail. We tried tagamet out of desperation hoping would

be well more days than sick. It did this however, he still gets sick

every 22-23 day like clock work. What is weird is he fevers high every

other month for the last 3 or 4 months. We are seeing a pattern here.

He will go from 104 one month to 100.4 the other. This time right now

he is 100.4 but, with these or without these high fevers he still

feels the same......Bad!!!!! Will have more answers this week.

> Take care, Gretchen

>

> Cheri Payton <mycheribaby@...> wrote:

>

> Hi Gretchen,

> Do you know what the differnce is between tagament and

> prednisone? Why do some kids with take tagament

> and others prednisone? Cheri

> --- Cheri Payton <mycheribaby@...> wrote:

>

> > Thanks for the info., Gretchen. I hope you get some

> > answeres soon. Cheri

> >

> > --- Gretchen Danson <gretchendanson@...>

> > wrote:

> >

> > > It was a clinical diagnosis until we decided and

> > > that genetic testing was available. We will see in

> > > another week with the test results. If all the

> > > genetic test come back negative then we will stick

> > > with . He has non impressive blood work so,

> > > really nothing really to diagnose but or

> > pfs?

> > > Gretchen

> > >

> > > mycheribaby <mycheribaby@...> wrote:

> >

> > > -Gretchen, I also was wondering about your sons

> > > genetic test...I

> > > thought there was no test to diagnosis

> > .Cheri--

> > > In

> > > , Gretchen Danson

> > > <gretchendanson@> wrote:

> > > >

> > > > Hi Cheri, My name is Gretchen and my son

> > > is 13 and has been

> > > suffering with for years.......He has been

> > on

> > > tagamet since

> > > April and he still has his fevers every 23 days.

> > We

> > > just had genetic

> > > testing at Children's hosp. 3weeks ago, we have

> > one

> > > more week before

> > > we get results. 's summer months are the

> > same

> > > as winter.

> > > is on the verge of a fever today he hopes

> > he

> > > will be well by

> > > Monday so he can go to a Mariners game with his

> > Dad.

> > > He did finally

> > > have his 13Th birthday party with his class mates,

> > > he missed it in

> > > Feb. due to a fever, of course. He had a great end

> > > of the summer pool

> > > party here at the house. Hang in there and we are

> > > all here for each

> > > other. Gretchen and

> > > >

> > > > ---------------------------------

> > > > All-new - Fire up a more powerful

> > > email and get things

> > > done faster.

> > > >

> > > > [Non-text portions of this message have been

> > > removed]

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Messenger with Voice. Make PC-to-Phone

> > Calls

> > > to the US (and 30+ countries) for 2¢/min or less.

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> > __________________________________________________

> >

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