Re: prenatal dx ds...possible blockage esophageal tract

[Guest guest]

Hello.

I have been a member of this group for a while but

have not posted until now. My son Max (DS) is 11

months old - he is our only child although we do plan

on having more!

I had a similar experience with Max. We had a

pre-natal diagnosis also and the reason why we had a

pre-natal diagnosis was b/c Max was found to have

duodenal stenosis (the connection between his stomach

and small intestine was very small) in utero. We did

not have a triple screen but on our routine US

something showed up with his heart, we were referred

for a level II US and although it turned out his heart

was fine the duodenal stenosis was detected. We then

opted for an amniocentesis to confirm the diagnosis.

Anyway, because of the duodenal stenosis the amniotic

fluid did not pass through Max like it would in a

typical baby and I was at risk for polyhydramnios

(elevated level of amniotic fluid) and this places a

woman at risk for pre-term labor b/c as it was put to

me " the uterus can only hold so much " . Throughout the

rest of my pregnancy I saw a perinatologist every

month and an US was done to measure the level of

amniotic fluid - near the end of the pregnancy I went

more frequently. Luckily, my levels were always at

the high end of normal and I never experienced

pre-term labor.

After Max was born he was stabilized and on the second

day of life he underwent surgery to repair the

duodenal stenosis. During the surgery the doc removed

the small connection b/w the stomach and small

intestine and anastamosed the two parts so there was

a normal connection. Max was in the NICU for 2 weeks

and he did very well throughout his hospital stay.

After discharge he was feeding like a typical baby (He

was breastfed) and we have not had any problems. He

did have some mild reflux but that is now no longer an

issue. He is seen by a peds GI Q 3-6 months now.

It sounds like your little girl's problem is a little

higher in the GI tract but I think they may treat much

in the same way they did Max's.

Hope this helps and hang in there! If you have any

further questions I would be happy to answer them as

best I can.

Holly Mathe

Mom to Max 11 months

--- Hope <rhsikes@...> wrote:

> From my local group. If anyone had a similar

> experience and could

> correspond with this lady, she would appreciate it

> very much.

>

> Hi everyone. My name is --- and I am currently

> pregnant with our

> second child, a little girl we are naming ---, due

> Feb. 13th. She

> has been diagnosed via amnio with DS. We also have a

> son,---, who

> is 4. My question is did any of you have or know

> someone that knew

> prenatal the diagnosis and if so, did you have any

> complications that

> were related to the baby having DS? Let me explain

> what is going on

> with me right now to help understand...

>

> Last Saturday, I started having contractions and

> went to the hospital

> b/c they didn't go away. I had to spend the night

> b/c giving me IV

> fluids didn't help relieve them so they had to

> sedate me (I can't

> take the trebutiline to stop labor b/c I am also a

> Type I Diabetic).

> I got to come home Sunday and was on bedrest for the

> remainder of

> that day. Monday when I was taking my son to school,

> I started having

> really bad menstrual like cramps so I called my dr

> and he had me to

> come in. They did a Non Stress Test to check on baby

> and she was

> fine...movement was great and her heartrate steady.

> He then decided

> he would do a quick ultrasound to check my amniotic

> fluid levels

> (keep in mind I just had an u/s the previous Tuesday

> and everything

> was " perfect " according to them). When he measured

> my fluid levels, I

> am measuring a little over the max they would like

> to see. I then had

> to go on Wed. to the perinatologist (my high risk

> dr) for another u/s

> and they said my fluid was still a little over and

> they did a scan of

> baby to check her heart, stomach, brain...the dr

> said that her

> stomach didn't increase in size while they were

> scanning me and that

> makes them believe that she has a blockage somewhere

> in her

> esophageal tract between her mouth and stomach and

> therefore that is

> causing the increase in fluid levels. I have to go

> back this Wed. to

> find out more and to make sure that is what is going

> on. My husband

> and I are very scared b/c so far everything has been

> great but now we

> don't know what they will do if she does have the

> blockage. I know

> the dr said they would insert a feeding tube (I am

> terrified) but

> past that what happens??? Do they do surgery and if

> so, when do they

> do it? Just wondering if any of you have had this

> problem with your

> babies and what happened. I think if I can hear some

> stories of other

> people that know what we are going through, I will

> be able to relax

> more. Thanks!!!

>

>

>

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[Guest guest]

Holly,

I will forward your reply and email to Tasha. I think she has connected

with some others who have been down this path now so I'm not sure how

many she will respond to. Nonetheless, I know every success story will

be an encouragement to her. Thanks for taking the time to respond.

Hope