Re: prenatal dx ds...possible blockage esophageal tract / welcome Holly

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Welcome to the list Holly

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Re: prenatal dx ds...possible blockage esophageal tract

Hello.I have been a member of this group for a while buthave not posted until now. My son Max (DS) is 11months old - he is our only child although we do planon having more!I had a similar experience with Max. We had apre-natal diagnosis also and the reason why we had apre-natal diagnosis was b/c Max was found to haveduodenal stenosis (the connection between his stomachand small intestine was very small) in utero. We didnot have a triple screen but on our routine USsomething showed up with his heart, we were referredfor a level II US and although it turned out his heartwas fine the duodenal stenosis was detected. We then opted for an amniocentesis to confirm the diagnosis.Anyway, because of the duodenal stenosis the amnioticfluid did not pass through Max like it would in atypical baby and I was at risk for polyhydramnios(elevated level of amniotic fluid) and this places awoman at risk for pre-term labor b/c as it was put tome "the uterus can only hold so much". Throughout therest of my pregnancy I saw a perinatologist everymonth and an US was done to measure the level ofamniotic fluid - near the end of the pregnancy I wentmore frequently. Luckily, my levels were always atthe high end of normal and I never experiencedpre-term labor. After Max was born he was stabilized and on the secondday of life he underwent surgery to repair theduodenal stenosis. During the surgery the doc removedthe small connection b/w the stomach and smallintestine and anastamosed the two parts so there wasa normal connection. Max was in the NICU for 2 weeksand he did very well throughout his hospital stay. After discharge he was feeding like a typical baby (Hewas breastfed) and we have not had any problems. Hedid have some mild reflux but that is now no longer anissue. He is seen by a peds GI Q 3-6 months now. It sounds like your little girl's problem is a littlehigher in the GI tract but I think they may treat muchin the same way they did Max's. Hope this helps and hang in there! If you have anyfurther questions I would be happy to answer them asbest I can. Holly MatheMom to Max 11 months--- Hope <rhsikesctc (DOT) net> wrote:> From my local group. If anyone had a similar> experience and could > correspond with this lady, she would appreciate it> very much.> > Hi everyone. My name is --- and I am currently> pregnant with our> second child, a little girl we are naming ---, due> Feb. 13th. She> has been diagnosed via amnio with DS. We also have a> son,---, who> is 4. My question is did any of you have or know> someone that knew> prenatal the diagnosis and if so, did you have any> complications that> were related to the baby having DS? Let me explain> what is going on> with me right now to help understand...> > Last Saturday, I started having contractions and> went to the hospital> b/c they didn't go away. I had to spend the night> b/c giving me IV> fluids didn't help relieve them so they had to> sedate me (I can't> take the trebutiline to stop labor b/c I am also a> Type I Diabetic).> I got to come home Sunday and was on bedrest for the> remainder of> that day. Monday when I was taking my son to school,> I started having> really bad menstrual like cramps so I called my dr> and he had me to> come in. They did a Non Stress Test to check on baby> and she was> fine...movement was great and her heartrate steady.> He then decided> he would do a quick ultrasound to check my amniotic> fluid levels> (keep in mind I just had an u/s the previous Tuesday> and everything> was "perfect" according to them). When he measured> my fluid levels, I> am measuring a little over the max they would like> to see. I then had> to go on Wed. to the perinatologist (my high risk> dr) for another u/s> and they said my fluid was still a little over and> they did a scan of> baby to check her heart, stomach, brain...the dr> said that her> stomach didn't increase in size while they were> scanning me and that> makes them believe that she has a blockage somewhere> in her> esophageal tract between her mouth and stomach and> therefore that is> causing the increase in fluid levels. I have to go> back this Wed. to> find out more and to make sure that is what is going> on. My husband> and I are very scared b/c so far everything has been> great but now we> don't know what they will do if she does have the> blockage. I know> the dr said they would insert a feeding tube (I am> terrified) but> past that what happens??? Do they do surgery and if> so, when do they> do it? Just wondering if any of you have had this> problem with your> babies and what happened. I think if I can hear some> stories of other> people that know what we are going through, I will> be able to relax> more. Thanks!!!> > > __________________________________________________________Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping

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