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Toddler in Life Support Battle Dies

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AUSTIN, Texas (AP) -- A 19-month-old boy whose terminal illness

started a contentious legal and ethical debate over who decides when

life-sustaining treatment should cease has died.

Emilio died in his mother's arms Saturday night at Children's

Hospital of Austin, Texas, family attorney Jerri Ward said.

" God chose to take Emilio at this time, " Ward said.

The family has not requested an autopsy, said Michele , a

spokeswoman for the Seton Family of Hospitals. Children's Hospital physicians

will make a final determination on the cause of death by the middle of the

week, she told The Associated Press.

Emilio, who had been on a respirator since December, was believed to have

Leigh's disease, a progressive illness which destroys brain functions. His

mother had fought in court to continue his medical care while doctors, saying

there was no hope of recovery, sought to remove him from the machines keeping

him alive.

Doctors wanted to invoke a state law allowing the hospital to stop life

support after a 10-day notice for patients deemed medically futile.

Emilio's mother, Catarina , said she knew her son would die but

wanted doctors to continue care, pointing out that he smiled and turned his

head when he heard voices. Her lawyer argued the state law was

unconstitutional. In April, a judge agreed to temporarily block the hospital's

move to end life support.

" We mourn the death of Emilio , " Regier, senior

vice president of legal services for the Seton Family of Hospitals, said in a

statement. " We pray that in the days and weeks to come, Emilio's mother

and family will be comforted by God's loving presence and by the knowledge that

Emilio's earthly suffering is now ended. "

The state Senate approved legislation this month to change the law and give

patients' families more time before ending life-sustaining treatment.

http://www.cnn.com/2007/US/05/20/futile.care.ap/index.html

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