20/20

[Guest guest]

used to have severe sensory problems. He loved the beach, but couldn't

stand the feel of sand on his skin. Sometimes things would be too dark for him

(even in bright sunlight) and he would go around the house turning on all the

lights. Other times he would think everything was too bright and make our house

into a cave. Same with sound, sometimes it was too loud and he would whisper

his one word sentences, and other times he would scream.

I just found out another sensory problem he has just today. We were doing

school work, and he suddenly said " Whas-smell? " I told him I didn't smell

anything, and asked what he smelled. He said, " eggs. " Funny thing was, I've

been having possible gall bladder problems, where you get gassy and burp bile.

It tasted a little like rotten eggs, but I had burped with my mouth shut, then

breathed out through my nose. He was sitting a good 3 feet from me - I would

have problems too, if I could smell that good. Lately, he's been telling

everyone they stink. I thought he associated every strong smell that bothered

him as stinky, but apparently he can smell everyone's perspiration. . .

Loriann

[Guest guest]

Did anyone happen to see the 20/20 show on Sensory Integration Dysfunction?

Spelling is correct on that! LOL I went to the web site and it sounds just

like Seth. I didn't know that was something separate from Autism. I thought

all the kids acted like Seth. Do all the kids here have sensory problems?

That seems to be a bigger problem for Seth than the non-communication one.

Is that normal for our kids or has Seth got yet something else? I am

confused now! LOL

Gail, Mom to; Seth-4, jo-7, Becky-9, -23, Jen-24, Grandma to Errick-4

and wife to -my hero

[Guest guest]

Where can I find this web site Gail? And when was the show aired?

Here in Guam we get all of the shows a week late so we may still have a

chance to catch it.

Thanks,

Chris

Mom to age 4, DS and possible ASD???

Re: 20/20

Did anyone happen to see the 20/20 show on Sensory Integration Dysfunction?

Spelling is correct on that! LOL I went to the web site and it sounds just

like Seth. I didn't know that was something separate from Autism. I

thought

all the kids acted like Seth. Do all the kids here have sensory problems?

That seems to be a bigger problem for Seth than the non-communication one.

Is that normal for our kids or has Seth got yet something else? I am

confused now! LOL

Gail, Mom to; Seth-4, jo-7, Becky-9, -23, Jen-24, Grandma to

Errick-4

and wife to -my hero

------------------------------------------------------------------------

Free, Unlimited Calls Anywhere!

Conference in the whole family on the same call.

Let the fights begin! Visit Firetalk.com - Click below.

1/5476/13/_/691668/_/964503219/

------------------------------------------------------------------------

[Guest guest]

Actually, I just discovered this. I'll have to call the SI/OT and ask for

suggestions. Since I homeschool, she gives me suggestions that I can do at

home. I think he labels all strong odors (whether good or bad) as stinky. We

live close to a bread factory and a bean factory (we've toured the bread factory

on a homeschool field trip), and every now and then we get this strong smell of

something burning. I don't know which factory it is, but he always smells it

before I do.

Loriann

[Guest guest]

In a message dated 7/25/00 9:57:01 AM Eastern Daylight Time,

stolzfamily@... writes:

<< Gail,

I did see this. It was very good. I am thinking that a lot of Matt's

behavior problems are sensory. I know there are certain things that

really bother him, and combined with the language problem, the action is

unacceptable. But he cant' TELL us what the problem is. More

investigating.

S >>

,

Wish I had seen it! I know Seth doesn't act like the other Autistic kids in

class, and he definitely doesn't act like any Downs kid I have seen. He

seems to be a combo of those plus this sensory thing. Do all the sensory

therapy things help Matt? They make a big difference in Seth. Even simple

joint compression on his arms in church can calm him down. I thought that

was the norm for Autistic kids. I haven't been this confused since before we

got the Autism diagnosis. LOL

Gail, Mom to; Seth-4, jo-7, Becky-9, -23, Jen-24, Grandma to Errick-4

and wife to -my hero

[Guest guest]

In a message dated 7/25/00 1:53:37 AM Eastern Daylight Time,

hsmyangel@... writes:

<< " Whas-smell? " >>

Loriann,

Wow! Good smelling or what ! ? The world must really stink to . Do

you think he smells the good smells as well as the bad? Does he do smell

therapy and if so, how does he do at them? this is so interesting!

Gail, Mom to; Seth-4, jo-7, Becky-9, -23, Jen-24, Grandma to Errick-4

and wife to -my hero

[Guest guest]

Gail,

I did see this. It was very good. I am thinking that a lot of Matt's

behavior problems are sensory. I know there are certain things that

really bother him, and combined with the language problem, the action is

unacceptable. But he cant' TELL us what the problem is. More

investigating.

S

________________________________________________________________

YOU'RE PAYING TOO MUCH FOR THE INTERNET!

Juno now offers FREE Internet Access!

Try it today - there's no risk! For your FREE software, visit:

http://dl.www.juno.com/get/tagj.

[Guest guest]

Cover story of this week's Newsweek is about autism. I haven't had a chance

to read it yet (just came in the mail).

CK,

Mom to Ian (2/89),

(9/90),

and Rose (6/94)

[Guest guest]

Please give us more info on the show and what they were saying SID was.

kara

At 01:33 AM 7/25/2000 EDT, you wrote:

>Did anyone happen to see the 20/20 show on Sensory Integration Dysfunction?

>Spelling is correct on that! LOL I went to the web site and it sounds just

>like Seth. I didn't know that was something separate from Autism. I

thought

>all the kids acted like Seth. Do all the kids here have sensory problems?

>That seems to be a bigger problem for Seth than the non-communication one.

>Is that normal for our kids or has Seth got yet something else? I am

>confused now! LOL

>

>Gail, Mom to; Seth-4, jo-7, Becky-9, -23, Jen-24, Grandma to

Errick-4

>and wife to -my hero

>

>------------------------------------------------------------------------

>Free, Unlimited Calls Anywhere!

>Conference in the whole family on the same call.

>Let the fights begin! Visit Firetalk.com - Click below.

>1/5476/13/_/691668/_/964503219/

>------------------------------------------------------------------------

>

>

[Guest guest]

NFL football live game is being broadcast on ABC until 11 p.m. There's a

20/20 Downtown scheduled for midnight, is that the show?

Kathy R. in Indiana

20/20

> Hi list,

>

> i dont know if this message will reach you in time - but tonights

episode

> of 20/20, (ABC, I think) will rebroadcast the show on ocd. It features Dr.

> Bruce Hyman from florida with 'hit and run' ocd and in california Dr's

> Schwartz and Eda Gorbis. Donna Hedman, from the ocd-l is featured

> discussing her obsessive thoughts of harming her children.

>

> wendy in canada

> monday, sept. 25

> _________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

>

> Share information about yourself, create your own public profile at

> http://profiles.msn.com.

>

>

>

> You may subscribe to the OCD-L by emailing listserv@... . In

the body of your message write: subscribe OCD-L your name. You may

subscribe to the Parents of Adults with OCD List at

parentsofadultswithOCD . You may access the

files, links, and archives for our list at

. Our list advisors are Tamar

Chansky, Ph.D., and Aureen Pinto Wagner, Ph.D. Our list moderators are

Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Roman, and

Jackie Stout. Subscription issues, problems, or suggestions may be

addressed to Louis Harkins, list owner, at harkins@... .

>

>

>

[Guest guest]

If you haven't watched it yet, have your kleenex close by!

Kelli

-- 20/20

Hello,

Just noticed on 20/20 tonight, there is supposed to be a segment about

marriage between two people with DS.

Thought you guys might be interested.

Have a good weekend.

Kelli mom to Austin 10 3/4 DS and 21 1/2 months.

[Guest guest]

In a message dated 8/25/2006 9:14:24 P.M. Eastern Standard Time,

kelli1082@... writes:

Hello,

Just noticed on 20/20 tonight, there is supposed to be a segment about

marriage between two people with DS.

Thought you guys might be interested.

Have a good weekend.

Saw it, loved it, cried through it!!!

Loree

[Guest guest]

Me too! I cried.

Hey, you are the only message I've received from in over 30 hours.

Has the list been that quiet? It seems like i've been missing emails

lately.

Thanks,

Kelli

-- Re: 20/20

In a message dated 8/25/2006 9:14:24 P.M. Eastern Standard Time,

kelli1082@... writes:

Hello,

Just noticed on 20/20 tonight, there is supposed to be a segment about

marriage between two people with DS.

Thought you guys might be interested.

Have a good weekend.

Saw it, loved it, cried through it!!!

Loree

[Guest guest]

In a message dated 2/24/2007 8:48:13 AM Eastern Standard Time,

donna.arnold@... writes:

I also wonder wonder why ABC didnt show children in the ICU units convulsing

from adverse reaction to vaccines. (I know there are children who land up in

the ICU from severe seizures because of vaccines)

My nephew was one of these children. He was seizing at just a few days old.

The cause?? The umbilical cord was around his neck too tight. yeah right!

I told his parents it was the Hep B. They will not listen. He is now fully

vaxed. His 4 month old sister is in the middle of her vax schedule. So sad.

Holly

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

[Guest guest]

I didn't see the show, but I just read the article online. Truly

shameful; unbelievable they call this kind of biased bull* " *t

journalism. here's the article

http://abcnews.go.com/2020/Health/story?id=2892683 & page=1

and here is some interesting debate going on on the forum!!!

http://forums.go.com/abcnews/2020/thread?threadID=534124

christine

>

> Anyone catch 20/20 tonight? They did a piece on vaccines.

>

> Holly

> <BR><BR><BR>**************************************<BR> AOL now

offers free

> email to everyone. Find out more about what's free from AOL at

> http://www.aol.com.

>

>

>

[Guest guest]

When Stossel interviewed Offit, He held 13 or so studies showing

thimerosal does not cause cancer, I have never heard of these studies or

seen these studies. Was Offit holding toxicology studies that were done

(becaue they can not say thimerosal is safe) and just coming to the

conclussion it doesnt cause Autism? Offit did say it doesnt cause Autism,

But were not sure about what could happen.(something to that effect)

All I can say is, you can tell Thimerosal Court Date is approaching!

Donna

On 2/24/07, christine <christineniblo@...> wrote:

>

> I didn't see the show, but I just read the article online. Truly

> shameful; unbelievable they call this kind of biased bull* " *t

> journalism. here's the article

> http://abcnews.go.com/2020/Health/story?id=2892683 & page=1

>

>

> and here is some interesting debate going on on the forum!!!

> http://forums.go.com/abcnews/2020/thread?threadID=534124

>

> christine

>

>

>

>

> >

> > Anyone catch 20/20 tonight? They did a piece on vaccines.

> >

> > Holly

> > <BR><BR><BR>**************************************<BR> AOL now

> offers free

> > email to everyone. Find out more about what's free from AOL at

> > http://www.aol.com.

> >

> >

> >

[Guest guest]

When Stossel interviewed Offit, He held 13 or so studies showing

thimerosal does not cause cancer,

I mean Autism, Thats what I get for writing when I first wake up!

I also wonder wonder why ABC didnt show children in the ICU units convulsing

from adverse reaction to vaccines. (I know there are children who land up in

the ICU from severe seizures because of vaccines)Yet they show children

coughing. Most of the kids were probably vaccinated. I know my son had all

his vaccines and he landed up with croup/whopping cough that lasted about a

month! My heart goes out to those who have severely injured children from

vaccines. One thing I have learned from my studying vaccines, Pharma is

very powerful and wicked!

Donna

On 2/24/07, Donna Arnold <donna.arnold@...> wrote:

>

> When Stossel interviewed Offit, He held 13 or so studies showing

> thimerosal does not cause cancer, I have never heard of these studies or

> seen these studies. Was Offit holding toxicology studies that were done

> (becaue they can not say thimerosal is safe) and just coming to the

> conclussion it doesnt cause Autism? Offit did say it doesnt cause Autism,

> But were not sure about what could happen.(something to that effect)

>

> All I can say is, you can tell Thimerosal Court Date is approaching!

>

> Donna

>

>

>

>

> On 2/24/07, christine <christineniblo@...> wrote:

> >

> > I didn't see the show, but I just read the article online. Truly

> > shameful; unbelievable they call this kind of biased bull* " *t

> > journalism. here's the article

> > http://abcnews.go.com/2020/Health/story?id=2892683 & page=1

> >

> >

> > and here is some interesting debate going on on the forum!!!

> > http://forums.go.com/abcnews/2020/thread?threadID=534124

> >

> > christine

> >

> >

> >

> >

> > >

> > > Anyone catch 20/20 tonight? They did a piece on vaccines.

> > >

> > > Holly

> > > <BR><BR><BR>**************************************<BR> AOL now

> > offers free

> > > email to everyone. Find out more about what's free from AOL at

> > > http://www.aol.com.

> > >

> > >

> > >

[Guest guest]

Any talk about all vaccine ingredients? The concept? The unproven germ

theory? The fraudulent, unscientific history?

Barbara Fisher could also be doing a better job if she's going to

agree to go on tv.

[Guest guest]

" Parent Suzanne Walther agrees. On internet sites, Walther read so

many horror stories about vaccines, that so she postponed vaccinating

her daughter, .

But not vaccinating caused harm. got very sick with

spinal meningitis.

recovered, but she's one of many kids who are coming

down with diseases doctors once thought were nearly eradicated, like

mumps, measles, and whooping cough. "

I want to know:

What. Kind. Of. Meningitis. Did. She. Have.???

This makes me angry!!! There are a million causes of meningitis. And

there is no vaccine for it for children.

I guess there is a very slight possibility that she had one of the

strains of bacteria in the Hib or Prevnar vaccine. But Hib is not one

of the diseases that doctors once thought was nearly eradicated, and

they're saying she had one of those.

Amy

[Guest guest]

Yeah, this is bull & *%$. First of all, *I* was never vaccinated with any

anti-meningitis vaccines (they didn't have them back in ye olde 60's,

when I was born), and I didn't come to harm. Not to mention that being

vaccinated doesn't mean your child is immune from illness. I was

thinking about this the other day: I think that's what some of the

hullaballoo about vaccines is: it taps into that parental desire to be

able to protect your child completely. Parents of vaccinated kids think

they've made their kids " safe. " But just read " Parents " magazine (look,

I'm picking up on another thread!) or " Readers Digest " and you will

soon learn of all the terrible things kids can still get and die from.

When you see writing like this crap, you've just got to write a letter

to the editor, and keep doing it. It worked for the feminists and other

groups who were routinely treated like crap in the media. Even if it

doesn't make it to print, some editor has looked at it, and maybe

learned to think a little. -angie

On Saturday, February 24, 2007, at 11:11 AM, alasich wrote:

> " Parent Suzanne Walther agrees. On internet sites, Walther read so

> many horror stories about vaccines, that so she postponed vaccinating

> her daughter, .

>

> But not vaccinating caused harm. got very sick with

> spinal meningitis.

>

> recovered, but she's one of many kids who are coming

> down with diseases doctors once thought were nearly eradicated, like

> mumps, measles, and whooping cough. "

>

> I want to know:

>

> What. Kind. Of. Meningitis. Did. She. Have.???

>

> This makes me angry!!! There are a million causes of meningitis. And

> there is no vaccine for it for children.

>

> I guess there is a very slight possibility that she had one of the

> strains of bacteria in the Hib or Prevnar vaccine. But Hib is not one

> of the diseases that doctors once thought was nearly eradicated, and

> they're saying she had one of those.

>

> Amy

>

>

**********

" At that point, I had the right to remain silent... but I didn't have

the ability. " -Ron White

[Guest guest]

a

>

>

>

> I guess there is a very slight possibility that she had one of the

> strains of bacteria in the Hib or Prevnar vaccine. But Hib is not one

> of the diseases that doctors once thought was nearly eradicated, and

> they're saying she had one of those.

>

Yeah, and they forget the BEST way to prevent HiB is BREASTFEEDING!

[Guest guest]

In a message dated 2/26/2007 10:50:45 AM Eastern Standard Time,

vaccinegenocide@... writes:

Barbara Fisher could also be doing a better job if she's going to

agree to go on tv.

I suspect much of what she said was edited.

Holly

<BR><BR><BR>**************************************<BR> AOL now offers free

email to everyone. Find out more about what's free from AOL at

http://www.aol.com.

[Guest guest]

Anyone watch 20/20 last night? They investigated Mannatech. They went undercover to the meetings and interviewed the founder. It disgusted me.

Patty

[Guest guest]

I did see the 20/20 special on Mannatech and ambrosia.

I really felt for the girl with the brain cancer and

when she learned that after taking it I did not do

anything for it. I also was very shocked at what the

undercover cameras found and the nasty email that girl

got from Mannatech that told her to stop talking to

the news people.

Then when I also saw the list of " issues " that they

were told to target and saw Down Syndrome and Autism,

I nearly fell off my couch.

I believe that vitamins will help but it made me think

twice about where I get them.

B

--- Patty <jamienpatty1@...> wrote:

> <Down Syndrome Treatment >

> From: " Patty " <jamienpatty1@...>

> Date: Sat, 2 Jun 2007 09:34:01 -0500

> Subject: 20/20

>

> Anyone watch 20/20 last night? They investigated

> Mannatech. They went undercover to the meetings and

> interviewed the founder. It disgusted me.

>

> Patty

________________________________________________________________________________\

____

Get the toolbar and be alerted to new email wherever you're surfing.

http://new.toolbar./toolbar/features/mail/index.php

[Guest guest]

Re Mannetech - the folks promoting it have to get their talking points from somewhere. Over the years I have been approached by at least four people, who after they found out I had a child with DS, urged me to try the product (which of course they were selling) citing studies that showed it even changed facial features. (I talked them under the table by quoting the metabolic systems that are out of whack in DS.) Really not a smart thing to send your sales people out with little knowledge of biochemistry.

Mindy

Re: 20/20