Guest guest Posted December 9, 1999 Report Share Posted December 9, 1999 Phil, Gastric paresis can be a symptom of CFS. In this case the stomach muscle is no longer working well on its own and it impacts the entire GI system. Everything slows down. People with severe cases of this symptom have to take a drug called Cissapride which specifically stimulates the stomach muscle to work again. It's not a question of fiber or diet, in fact fiber can make things much much worse...the muscle is just weak and slow and where fiber would stimulate a healthy GI system it stops a weak one. It is very important to get treatment so that you don't go below a normal weight. best, B >Message: 4 > Date: Thu, 09 Dec 1999 08:46:19 -0500 > From: Philip L Comer <philcome@...> >Subject: Appetite > >I seem to have no appetite and am wondering if this is common to CFS. >Does anyone have ideas that have worked for you? I need to eat as I've >lost 25 lbs. with this illness yet I understand that if I'm not hungry >I'm better off not eating. Any suggestions are appreciated. > >Phil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 1999 Report Share Posted December 9, 1999 Although initially denied, my disability case went forward immediately after I had Dr. Bell's tests for blood volume, urine osmolality, and ADH hormone. All three results were extremely abnormal and the state disability office said the results were " very convincing " . Previously I'd previously had abnormal NMH autonomic testing from Mayo which wasn't enough to sway them even though that Dr. said verbally to me that my life was extremely limited and he was very " pessimistic " . -E >Message: 3 > Date: Thu, 09 Dec 1999 08:43:35 -0500 > From: Philip L Comer <philcome@...> >Subject: CFS Disability Marker > >I know that this is not the real purpose of this list but I would >appreciate any input. I'm seeing with my disability insurance lawsuit >that quantifying disability from CFS and showing CFS from some medical >test is problematic. Does anyone know of tests or procedures that helped >others in demonstrating disability? I think I recall that Cheney for >example uses the bicycle cortisol test. Has anyone on this list found >that useful for documenting disability? You can backchannel me. > >Thanks > >Phil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 1999 Report Share Posted December 9, 1999 , That's very interesting! Some of us are missing or nearly missing our anti-diuretic hormone (ADH) which is something Bell always tests for. So it is very interesting to know that the taurine worked so well for you. > Date: Thu, 9 Dec 1999 16:10:35 -0500 > From: " Crane " <ccrane@...> >Subject: RE: Taurine for " sticky blood " > >Hi, I'm new here, and I haven't posted my hello post yet (promise soon), but >I do want to comment on this. I used to have terrible problems with >thirst--drank large amounts of water constantly which never quenched my >thirst, and also needed to pee as soon as I had a drink. Based on low >taurine showing up on amino acid tests, my doctor put me on 500 mg 2/day. >I'm much more normal now! My doctor says that taurine is used in the > " anti-peeing hormone " we all have which makes us retain the fluid we need. >You can see that we would need some of this hormone, but not too much. So, I >would think this hormone might also indirectly affect blood stickiness by >helping fluid balance in the body. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 1999 Report Share Posted December 14, 1999 Where did you have the test done? Phil esp wrote: > From: esp <esp@...> > > Although initially denied, my disability case went forward immediately > after I had Dr. Bell's tests for blood volume, urine osmolality, and ADH > hormone. All three results were extremely abnormal and the state > disability office said the results were " very convincing " . Previously I'd > previously had abnormal NMH autonomic testing from Mayo which wasn't > enough to sway them even though that Dr. said verbally to me that my life > was extremely limited and he was very " pessimistic " . -E > > >Message: 3 > > Date: Thu, 09 Dec 1999 08:43:35 -0500 > > From: Philip L Comer <philcome@...> > >Subject: CFS Disability Marker > > > >I know that this is not the real purpose of this list but I would > >appreciate any input. I'm seeing with my disability insurance lawsuit > >that quantifying disability from CFS and showing CFS from some medical > >test is problematic. Does anyone know of tests or procedures that helped > >others in demonstrating disability? I think I recall that Cheney for > >example uses the bicycle cortisol test. Has anyone on this list found > >that useful for documenting disability? You can backchannel me. > > > >Thanks > > > >Phil > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2000 Report Share Posted September 5, 2000 I have gotten some very valuable information from this site. I read the messages nearly every day. My question is, what are the requirements for becoming a liscened herbalist. Where do I go for such info. Any suggestions woul be appreciated. N, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 In a message dated 09/22/2000 2:20:57 PM Eastern Daylight Time, egroups writes: << In addition, someone told me yesterday (I'm trying to find out the source) that mercury toxicity seems to be highly common in blond haired, blue eyed little girls (which describes my daughter very nicely - she has Marilyn Monroe hair even though her parents have brown to dark brown hair. Both parents had blue eyes until puberty when our eyes turned green/hazel - sounds hormonal?) How about the rest of you? Are there more like us out there? Someone on the amalgam list from Sweden said that Scandinavian types have high grouping of Apoe-4 types which means poor mercury excreters which means more problems with mercury. I think that fits the blue-eyed blond type. Bernie >> OK...had to jump in here! I am a blond-haired , hazel-eyed (though most say they're blue) Mom who is Finnish, German and English by decent. My children were all white-haired babies (my own 4 of our 6). They all have hazel eyes except one, who has his Daddy's brown eyes. My oldest son has ADD (though I call it giftedness with an IQ of 140!), asthma, allergies, migraines, sleep disturbances, and dysthymic disorder (depression). My daughter has been suffering headaches recently, is extremely irritable and bossy on most days. My other son (8) will be diagnosed with ADD one day by some desperate teacher! And of course, my youngest, (6) is autistic...and heavy metal poisoned. I intend to do the hair analysis on ALL of us at some point...but right now, I'm focusing on the youngest's problems. So does this fit the bill? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 In a message dated 11/14/00 4:21:49 AM Central Standard Time, egroups writes: << http://www.sweettreats.org/ >> , Thanks for the above link. I looked at it and agreed; it's a great site for supplies. It also has lots of recipes and something I haven't seen too many other places - flavored oils for lip glosses. Snowdon tryaimhigh@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2001 Report Share Posted December 21, 2001 Deb, I also had a stove fire. I cannot cook(not clean, obviously either) as under the burner was dirty I suppose. I did the old put the frying pan lid over it and smother it trick and it did not work and to make a long and for me very frightening experience short I ran for the fire extinguisher (no lie we must have 8 in my small ranch) and put it out. What a mess! The best part is that my then 5 yr old and almost 3 yr old apraxic twins watched the whole thing as if it was a movie and when it was over I wiped my hands on my pants and turned around and they said " cool-eap " ...translation.... " cool. now let's try to eat again " .......like oh well just another adventure.......life with 4 boys......Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 I know of two people who have said that their legs jerk at exact intervals, such as once every 18 seconds. This would suggest to me that it could be related to a " timer " for the circadian rhythm. If one knows where that is generated, maybe that would be a place to start looking. > Date: Tue, 9 Sep 2003 08:05:03 -0600 > From: " Joan Ordmandy " <joan@...> > Subject: Restless Leg > > Has anyone had success working with restless leg? > Any ideas as to which area of the brain might not be functioning correctly to cause these symptoms. > Any suggestions would be appreciated. > Thanks, > Joan Ordmandy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Thanks Ellen. I usually eat whole milk products and coconut oil. I recently had open heart surgery and just had not gotten back into eating all of this yet. Will definitely start though. Thanks again, Cin > From: " ellenussery " <ellenjill@...> > Subject: Restless Leg Syndrome > > > Coconut oil and other saturated fats as well as whole milk products. > Calcium and magnesium form the dairy and plenty of fats to help your > body absorb them will help on a long term basis. For relief when it > happens real sourkraut juice or quinine water. donn't know why the > quinine water helps but the kraut has something to do with the > different kinds of lactic acid: left and right turning...probably > kombucha would help as well. > > Ellen Quote Link to comment Share on other sites More sharing options...
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