Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 She had her surgery by Dr. Bove at Mott Children's Hospital at the University of Michigan--very impressive place and very impressive pediatric cardio-thoracic department. I've been very pleased with the facility and the care she's been given. Jill > > I remember how that feels. It was terrible. All for a good cause, a healthy > child. > Where did she have her surgery done? > > Karyn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 In a message dated 12/31/01 6:57:43 PM Pacific Standard Time, thrill@... writes: << And a few times she tried to cry and there was no sound, just that little grimace and a lone tear down her face. I cried (I " m crying now, just remembering). So that has been the most difficult thing for me. >> Jill, I remember how that feels. It was terrible. All for a good cause, a healthy child. Where did she have her surgery done? Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Jill, I am so happy for you that everything has gone well. My prayers are with you and her and the family with god vibes to continue to improve. mom to Bridget 8ds Jill son <thrill@...> wrote: Hi everyone-- First thank you for all of your support and prayers--it has surely helped. Kit came through the surgery well and is doing okay. The surgery time itself was not nearly as traumatic as I thought it would be--it was hard to give my baby to the nurses to take away, but the next three hours pretty much went by very fast and uneventful. The dr. came and talked to me about 8:10 am and a nurse came out at about 10:35 and told us the repair was complete with no complications and that they were just closing her up. The doc came out about 11:05 and told us everything went as planned and he thought she would be fine soon. And actually going to see her for the first time was not nearly as traumatic as I had thought it would be either. Yes, she was/is definitely hooked up to lots of tubes, wires, machines...., but she actually looked pretty good. We had hoped she would be out of PICU today, but they are being extra cautious because of her Ds and don't want to remove the vent until they are absolutely positive she will do okay on her own. I guess, their main concern is the excess water she's retaining--they increased her Lasix and tonight added another diuretic, Diurel (?), to, hopefully, speed up the process of eliminating the excess. The hard part now is just waiting and the few times she did wake up and look at me and there was nothing I could do for her---I felt so awful. And a few times she tried to cry and there was no sound, just that little grimace and a lone tear down her face. I cried (I " m crying now, just remembering). So that has been the most difficult thing for me. The dr.'s and nurses all say she's doing exactly what she should be doing, so that's good. It's just hard for us to see much change because they are keeping her fairly sedated as long as she's on the vent. They have eliminated a few of her meds and decreased some of them, plus they started feeding her and removed the nasal tube draining stomach contents from her...so things are slowly improving. We're hopeful that tomorrow they'll be able to remove the vent and, maybe, by Wednesday she'll be removed from PICU. I just came home tonight to see Mac and do some laundry--will go back to MI tomorrow am. Leaving her there was hard, too, but my sister stopped to see her this evening and will be there first thing in the am. Plus, I know she's in excellent hands, so it was okay to leave for the night. I hope we'll be home sometime this weekend and I'll send another update then. Until then, continue to send your good vibes and prayers our way and I'll do the same for all of your children and Happy New Year to ALL!!! Love, Jill Mom to Mac (3.75 Ds) and Kit (4.5 months, Ds, ToF repaired!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Jill, You are all definitely in my prayers. I felt like crying also when I read about Kit crying and not being able to make a sound. I remember when we went to meet our new {adopted ds} son for the first time. He had contracted meningitis, and the adoption agency told us that we could go up to meet him at Westchester Medical Center. We walked in and there was my two week old baby hooked up to everything, all alone and NO MOMMY. It just about killed me, especially when we had to leave, because they would not let me stay since the transition had not taken place from the agency being legally responsible for him to us. I cried all the way home and called every day. They were good about keeping me posted and Doctor letting me know everything that was going on, but all I had in my mind was this picture of my son in the NICU alone. Talk about dying a little every day, So Jill, I can definitely feel your pain and I am so thankful for you that Kit is getting well, but we will keep on praying until she is home with her mommy, where every baby belongs!!! Loree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Jill, So glad to hear that things went so well for Kit! We hope she'll be home soon so you can make up for lost hugging time. Our thoughts and prayers are still with you and your family. Peace, ~ Mom to 11 DS and 7 NY Quote Link to comment Share on other sites More sharing options...
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