Re: Dear Autism Community (By Young)

[Guest guest]

Hi ,

I am aware of your candle-making business (in California, correct?) but why

don’t you re-send the link to your business and also give us more information

about this newest venture called Humboldt Includes? We are always interested

in ideas for inclusion and opportunity here in Illinois! Thanks so much for

sharing!

Laurie

P.S. You are a very eloquent writer. What you said about isolation really

makes me think about my own daughter and what she may be feeling. She can’t

always express herself in words, but through her actions and moods, I can

usually guess how she’s feeling. What’s harder to figure out is WHY she is

feeling bad. Every so often she cries, and sometimes when I ask her ‘why are

you crying?’ she’ll say ‘ feels sad and lonely’ and when she says

that, as her mother my heart just breaks. Isolation can be a complicated

problem to address. Maybe one day you could also share some ideas for

actions/things you’ve done that helped you feel less isolated. Perhaps they

could help others, too. Because, as you say so well, we all need to find

solutions and not bitter despondencies.

So true. Thanks for writing.

From:

Sent: Tuesday, October 18, 2011 2:50 AM

IPADDUnite

Subject: Dear Autism Community (By Young)

Dear Autism Community (By Young)

Hi My Name is Young and I am diagnosed with autism. I wanted to tell you

that the Autism Community for years has been where applicable escalating in

conflicts. The groups and individuals who have done this and who have caught my

attention is what is known as Autism Pride. They have been harsh with parents

and other kinds of advocacy groups demanding that nothing be for them without

them. I do not believe they had realized that people with autism think all sorts

of ways.

I myself do not approve of or appreciated it when they protest calling people

marching for autism awareness " pity " . In the same context demanding that the

public fund programs while accusing the public of selective abortion. I believe

it is inappropriate to make such demands toward tax-payers whom already pay for

my and many others community inclusion social services. I also find it

displeasing the philosophy of making compassion and compassionate caring people

into a concept of pity. I find it to be very mean.

While using these inappropriate techniques it became political. One was

nominated for a government board by the then newly elected president Obama.

Politicians I am told will commonly nominate people to settle them down. The

group he founded is not democratic and self-advocates do not have the right to

vote on issues but instead as the official Autistic Self-Advocacy Network (ASAN)

everyone is made to believe self-advocates agree with him as mainstream media

does not carry much of other self-advocates on the issues and the only voices

heard from this network is what is approved by its philosophy.

I am also very disappointed that the same group on national television went up

against Autism Isolation awareness. Without compromise for those isolated like I

experienced for years before I received after school years social services with

the Regional Center they just considered it discrimination. They did not seek to

make the public aware of the reality of isolation but yet seemed to want autism

isolation awareness to go away. Meanwhile these select very high functioning

individuals that are able to go to college gaining advanced degrees and simply

seem to be about the pride of a disorder label seem to be well integrated

themselves. This kind of pride I do not believe in and has not earned my trust.

In conclusion I wish to state I am disappointed in the indifference of pride

politicians and their methods claiming to be out for my best interest while

alienating others. I would also like others support in seeking the media allow

the input of other kinds of self-advocates with autism when issues arise in the

media. That way the public has the understanding that there is adversity in the

self-advocacy community that self-advocates are not so harsh and political

agenda based.

I would like to post here again and have you contact the media and or

organizations about ideas for inclusion and opportunity. I am proud to have

solutions and not bitter despondencies. Where I live I've been on the front

pages of newspapers, hours of radio, T.V news and most know about the candle

making project for autism and developmental disability employment I made.

Thousands of candles are sold a year supporting the employment. Now I am doing

an experiment called Humboldt Includes for sponsored transitional integration

I've talked to specialist, media, businesses and agencies about and everything

is a go.

I believe it is time for solutions and not angriness. It's time for hope,

compassion for fellow human beings regardless of having autism or not and a

constructive resolve that creates step by little step a more promising future

for those left out. It's time for a new kind of leadership by and for people

with autism and disabilities of the developmental kind in mainstream media and

in the public.

Sincerely,

Young

[Guest guest]

:

You are more than welcome to continue posting on IPADDU.

We look forward to hearing more from you, as you add a valuable perspective to

our discussions.

Ellen

Ellen Garber Bronfeld

egskb@...

[Guest guest]

:

I forgot to add one more thing...do not be discouraged if you don't get a lot of

responses to your postings. Sometimes family members are too overwhelmed and

others just don't know how to phrase a response...that doesn't mean your

postings are not read and I believe that your experiences, thoughts and feelings

will provide valuable insight to our group...so...don't assume you are not being

listened to or heard, just because there are not a lot of responses.

Ellen

Ellen Garber Bronfeld

egskb@...

[Guest guest]

Okiedoke. I also read your other reply and the one from Mrozak.

Re: Dear Autism Community (By Young)

:

You are more than welcome to continue posting on IPADDU.

We look forward to hearing more from you, as you add a valuable perspective to

our discussions.

Ellen

Ellen Garber Bronfeld

egskb@...

[Guest guest]

The autism and DD employment candle project has reached awareness in other

countries, other states and from my understanding some organizations having to

do with autism in a higher saturation in other areas then that of the general

public elsewhere. The Autism Candles project is newly being launched as well

with new simi-robotic candle making equipment so we can keep up. The candles

were an experiment to complete a broader economic and inclusion goal as a social

experiment. The candles fund jobs and the experimental Humboldt Includes

campaign. I am happy to make nothing since its origination nearly 6 years ago

and hwen I can figure it out or someone comes along to help form a non-profit I

will do so but I refuse to pay $10,000 to have special professional do it as the

money is needed for other more important progress.

<Area> Includes is about the awareness for a remedy of inclusion. Transitional

skills development is the key phrase specialist and professionals inform me of.

I base the general public relations on the conceptualism I have learned from my

behaviorist, autism specialist and the few others I interact with. I have also

met with a few others like the Easter Seals Autism President of some sort but

I'm just not extremely interested in meeting a bunch of people. People are nice,

smiles and positivity about what I do.

<Area> Inclusion campaigns I propose become common in the community experience.

I am formulating by means of experimentation and study of past movements a

present day specifically focused agenda and PR modality for its context.

Inclusion encompasses those isolated to those needing help to be included but

who may also be already somewhat included. Working with already devised social

service day employment program models businesses sponsor inclusion transitional

training hours and receive a <Area Includes> sticker for their door or window

for sponsoring so many hours a month. As far as the detail of the other strategy

in place I will later write about it.

As far as my experience with exclusion (isolation) the campaign is modeled with

myself in mind as well as others. Thinking of what I would have needed after

school to be more inclusively prone. By establishing the ideal premises of

inclusion in understanding circumstances individuals who need this type of help

might become accustomed to where applicable and needed more transitions,

self-reliance, social experiences, responsibilities, independence and in general

a more inclusive quality of life.

<Area> Includes measures transitional and inclusive outreach progress within

communities by standardizing it's model toward the general public. The public

begins to realize the importance of inclusion by means of public relations

awarenesses and can see it in every day life. the individual community members

may then interpersonally relate to and seek to experience the change in their

communities reality and how they can help people be part of everyday normalcy as

they have become accustomed.

I hope your daughter is able to experience day programs and general community

inclusion.

See PR:

http://www.youtube.com/watch?v=ynebwUJHrZY

See PR - PRE-Introduction

http://www.youtube.com/watch?v=XA23NOyDx5Q

Young

>

> Hi ,

> I am aware of your candle-making business (in California, correct?) but why

don’t you re-send the link to your business and also give us more information

about this newest venture called Humboldt Includes? We are always interested

in ideas for inclusion and opportunity here in Illinois! Thanks so much for

sharing!

> Laurie

> P.S. You are a very eloquent writer. What you said about isolation really

makes me think about my own daughter and what she may be feeling. She can’t

always express herself in words, but through her actions and moods, I can

usually guess how she’s feeling. What’s harder to figure out is WHY she is

feeling bad. Every so often she cries, and sometimes when I ask her ‘why are

you crying?’ she’ll say ‘ feels sad and lonely’ and when she says

that, as her mother my heart just breaks. Isolation can be a complicated

problem to address. Maybe one day you could also share some ideas for

actions/things you’ve done that helped you feel less isolated. Perhaps they

could help others, too. Because, as you say so well, we all need to find

solutions and not bitter despondencies.

> So true. Thanks for writing.

>

> From:

> Sent: Tuesday, October 18, 2011 2:50 AM

> IPADDUnite

> Subject: Dear Autism Community (By Young)

>

>

> Dear Autism Community (By Young)

>

> Hi My Name is Young and I am diagnosed with autism. I wanted to tell

you that the Autism Community for years has been where applicable escalating in

conflicts. The groups and individuals who have done this and who have caught my

attention is what is known as Autism Pride. They have been harsh with parents

and other kinds of advocacy groups demanding that nothing be for them without

them. I do not believe they had realized that people with autism think all sorts

of ways.

>

> I myself do not approve of or appreciated it when they protest calling people

marching for autism awareness " pity " . In the same context demanding that the

public fund programs while accusing the public of selective abortion. I believe

it is inappropriate to make such demands toward tax-payers whom already pay for

my and many others community inclusion social services. I also find it

displeasing the philosophy of making compassion and compassionate caring people

into a concept of pity. I find it to be very mean.

>

> While using these inappropriate techniques it became political. One was

nominated for a government board by the then newly elected president Obama.

Politicians I am told will commonly nominate people to settle them down. The

group he founded is not democratic and self-advocates do not have the right to

vote on issues but instead as the official Autistic Self-Advocacy Network (ASAN)

everyone is made to believe self-advocates agree with him as mainstream media

does not carry much of other self-advocates on the issues and the only voices

heard from this network is what is approved by its philosophy.

>

> I am also very disappointed that the same group on national television went up

against Autism Isolation awareness. Without compromise for those isolated like I

experienced for years before I received after school years social services with

the Regional Center they just considered it discrimination. They did not seek to

make the public aware of the reality of isolation but yet seemed to want autism

isolation awareness to go away. Meanwhile these select very high functioning

individuals that are able to go to college gaining advanced degrees and simply

seem to be about the pride of a disorder label seem to be well integrated

themselves. This kind of pride I do not believe in and has not earned my trust.

>

> In conclusion I wish to state I am disappointed in the indifference of pride

politicians and their methods claiming to be out for my best interest while

alienating others. I would also like others support in seeking the media allow

the input of other kinds of self-advocates with autism when issues arise in the

media. That way the public has the understanding that there is adversity in the

self-advocacy community that self-advocates are not so harsh and political

agenda based.

>

> I would like to post here again and have you contact the media and or

organizations about ideas for inclusion and opportunity. I am proud to have

solutions and not bitter despondencies. Where I live I've been on the front

pages of newspapers, hours of radio, T.V news and most know about the candle

making project for autism and developmental disability employment I made.

Thousands of candles are sold a year supporting the employment. Now I am doing

an experiment called Humboldt Includes for sponsored transitional integration

I've talked to specialist, media, businesses and agencies about and everything

is a go.

>

> I believe it is time for solutions and not angriness. It's time for hope,

compassion for fellow human beings regardless of having autism or not and a

constructive resolve that creates step by little step a more promising future

for those left out. It's time for a new kind of leadership by and for people

with autism and disabilities of the developmental kind in mainstream media and

in the public.

>

> Sincerely,

>

> Young

>

>

>

>

>

>

[Guest guest]

,

She does experience day programs and community inclusion. She attends a day

program three times a week, where the participants are active out in the

community at least twice a week. They do a nice job of integrating into local

community service endeavors (food banks, Meals on Wheels) as well as regular

visits to area attractions (Arboretum, Zoo, walking paths, swimming, museums,

etc). She enjoys attending. On the other days of the week, we rely on paid

Personal Support Workers/Assistants, who accompany her on her personal agenda of

seasonal work (via a home-based business), volunteering, exercise, lunches out,

etc. Having just written all this, I’m thinking she has a pretty nice life!

Still, she gets lonely sometimes. I’ll keep thinking about how to help her

make personal connections with people her own age, at a pace and intensity level

she can enjoy. Many of the usual social outlets for people with disabilities

(Special Olympics, Best Buddies, etc) have proven too intense for her, she can

generally only handle or enjoy 1-2 other people at a time. Groups are too hard.

We’ll keep working on it.

Thanks for your concern. I like your idea about involving local businesses in

sponsoring inclusion/transition training and then having the PR tied to it. You

might enjoy looking at a website called www.jjslist.com. Ellen and others from

this group are involved in this effort called JJs List and it sounds similar to

what you’re talking about. You may want to check it out.

Take care,

Laurie

[Guest guest]

I am very happy myself. I have social services 7 days a week. the behaviourist

is helping me with larger and noisy environments. That is sensory integration.

That's what effected me when grammer school went to middle school (then I was

held back again) and then differing environments and change. I seem to be very

rigid about it and can get overloaded from it and the brain is effected to where

it feels like I am under water of some sort and disorientated.

I remember the first day and week I was taken with a support worker wherever I

wanted to go after the long time of not being in the community. It took months

but my health improved and now I create and do whatever I want.. Everything

changed.

Young

Re: Re: Dear Autism Community (By Young)

,

She does experience day programs and community inclusion. She attends a day

program three times a week, where the participants are active out in the

community at least twice a week. They do a nice job of integrating into local

community service endeavors (food banks, Meals on Wheels) as well as regular

visits to area attractions (Arboretum, Zoo, walking paths, swimming, museums,

etc). She enjoys attending. On the other days of the week, we rely on paid

Personal Support Workers/Assistants, who accompany her on her personal agenda of

seasonal work (via a home-based business), volunteering, exercise, lunches out,

etc. Having just written all this, I’m thinking she has a pretty nice life!

Still, she gets lonely sometimes. I’ll keep thinking about how to help her

make personal connections with people her own age, at a pace and intensity level

she can enjoy. Many of the usual social outlets for people with disabilities

(Special Olympics, Best Buddies, etc) have proven too intense for her, she can

generally only handle or enjoy 1-2 other people at a time. Groups are too hard.

We’ll keep working on it.

Thanks for your concern. I like your idea about involving local businesses in

sponsoring inclusion/transition training and then having the PR tied to it. You

might enjoy looking at a website called www.jjslist.com. Ellen and others from

this group are involved in this effort called JJs List and it sounds similar to

what you’re talking about. You may want to check it out.

Take care,

Laurie