Re: doctor, probably neuro

[Guest guest]

Jeff -

I highly recommend  pediatric neurologist Dr. Tonsgard from University of

Chicago.  (sorry, not the north location you were looking for)

Donna

doctor, probably neuro

 

Hi Group,

My almost-10 year old is exhibiting some unusual behavior. I don't think it is

seizure as he remains active and response while it is going on, but he is

tensing up to the point of amazing looking anxiety, hands clenched and a stiff,

pained looked on his face. These sessions can last for 10 minutes or 2 hours.

He is non-verbal low-functioning child who is generally incredibly oral and

mostly well behaved, if not a bit of a mischief maker.

I am looking for a doctor (Aetna POS, Medicaid waiver) to observe him. I have

actually used my phone to tape my son during these moments.

Any suggestions on doctors, particularly north/northwest, would be appreciated.

Jeff

[Guest guest]

Dr. Nisant Shah out of Luthern General is fantastic!

On Mon, Oct 24, 2011 at 7:40 PM, Jeff <jeffsox1@...> wrote:

> **

>

>

> Hi Group,

>

> My almost-10 year old is exhibiting some unusual behavior. I don't think it

> is seizure as he remains active and response while it is going on, but he is

> tensing up to the point of amazing looking anxiety, hands clenched and a

> stiff, pained looked on his face. These sessions can last for 10 minutes or

> 2 hours.

>

> He is non-verbal low-functioning child who is generally incredibly oral and

> mostly well behaved, if not a bit of a mischief maker.

>

> I am looking for a doctor (Aetna POS, Medicaid waiver) to observe him. I

> have actually used my phone to tape my son during these moments.

>

> Any suggestions on doctors, particularly north/northwest, would be

> appreciated.

>

> Jeff

>

>

>

[Guest guest]

Hi Jeff,

Seizures can look very different and an EEG can show you if that's what it is.

If your regular doctor can't suggest a neurologist try Children's Memorial, they

take medicaid.

Thais

[Guest guest]

dr, goetz, in the movement disorder clinic ... rush.

he's a wonderful man....

 

>________________________________

>From: Casey Faust <caseypfaust@...>

>IPADDUnite

>Sent: Monday, October 24, 2011 7:54 PM

>Subject: Re: doctor, probably neuro

>

>Dr. Nisant Shah out of Luthern General is fantastic!

>

>On Mon, Oct 24, 2011 at 7:40 PM, Jeff <jeffsox1@...> wrote:

>

>> **

>>

>>

>> Hi Group,

>>

>> My almost-10 year old is exhibiting some unusual behavior. I don't think it

>> is seizure as he remains active and response while it is going on, but he is

>> tensing up to the point of amazing looking anxiety, hands clenched and a

>> stiff, pained looked on his face. These sessions can last for 10 minutes or

>> 2 hours.

>>

>> He is non-verbal low-functioning child who is generally incredibly oral and

>> mostly well behaved, if not a bit of a mischief maker.

>>

>> I am looking for a doctor (Aetna POS, Medicaid waiver) to observe him. I

>> have actually used my phone to tape my son during these moments.

>>

>> Any suggestions on doctors, particularly north/northwest, would be

>> appreciated.

>>

>> Jeff

>>

>> 

>>

>

>

>

[Guest guest]

Hi Jeff:

Noah had some similar odd affectations at around the same age. His psychiatrist

described these as " tics. " They eventually went away, though occasionally he

has some similar events.

There is a neurologist in Lake Forest, Dr. Metrick, 847-482-0300. Autism

and I/DD's are not his specialty, but, he is a parent and he is knowledgeable

and compassionate.

I see from other postings that there appear to be some other really great

recommendations. Good luck and please let us know what happens.

Ellen

Ellen Garber Bronfeld

egskb@...