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FYI...

By the way...recently a small group of advocates met with U.S. Congressman Bob

Dold (R-10th Congressional District) and he was against block grants for

Medicaid...he, rightfully, I believe, does not feel that Illinois has the right

system in place in order to administer these funds appropriately or fairly.

Right on, Rep. Dold!

If you have the opportunity to meet with your Federal legislators, this is an

important advocacy issue.

Ellen

Ellen Garber Bronfeld

egskb@...

My Medicaid Matters -

stevegoldada@...

My Medicaid Matters - Information Bulletin

On Wednesday, September 21, 2011 at noon on the Capital Hill

In Washington, D.C. there will be a national " My Medicaid Matters " rally.

This is a very critical time for all disabled and elderly people who need

and depend on Medicaid to survive. As you know, Congress has established

a " super Committee " to decide about the deficit and need to control

federal spending. So far, the public conversation has almost solely

focused on the deficient reduction and controlling the cost of Medicaid

On Tuesday, August 30, 2011, a number of Governors issued a statement

directed to the Congressional " super Committee, " telling this Committee to

loosen Medicaid restrictions on how states spend the federal money on

health care for persons on SSI, other low-income persons, disabled and

elderly Americans. The Governors want to receive a lump sum payment from

the federal government and then want to be free to design their own

state-by-state Medicaid program.

If you thought the past Medicaid struggles -- over waiver " caps, "

limitation of hours for Personal Assistance Service, institutional bias,

hospital stays, covered services - were tough, just wait until there are

no federal minimums! That's right, no federal minimums that could even

enforced in federal courts.

If you thought in the past Medicaid providers of nursing homes, ICF-MRs,

Assisted Living had lot's of power as political players because they

contributed to your Governor's and other elected officials Political

Action Committees, just wait and you'll really see institutional power and

biases! These providers are in business for a profit and people with

disabilities and the elderly are their cash-cows.

If you thought families with and parents of disabled in the past had to

struggle to receive Medicaid services to obtain minimally needed services,

just wait. Welcome back the 1950s! Most folks do not remember how bad it

was.

If you thought your state Medicaid folks in the past did not respect or

implement the Olmstead decision that found unnecessary

institutionalization as discrimination under the ADA, just wait and you'll

be kissing goodbye your ADA rights.

The Governors plan to come to Washington in October to push for their

Medicaid. They do not care Medicaid provides vital home and

community-based services that allow seniors and younger people with

disabilities to live independently in the community. They care only about

money.

In the general public, few people understand what Medicaid is or the

impact that Medicaid's federal funding has on the lives of people with

disabilities, seniors, their families and those people who work to support

them.

Disability, aging and civil rights organizations have banded together to

organize a national rally on Capitol Hill to show Congress that My

Medicaid Matters!

September 21st and will kick off organizing efforts in all 50 states to

show that My Medicaid Matters!

Rally National Sponsors include:

o ADAPT

o AFSME

o American Association of People with Disabilities

o American Network of Community Options and Resources

o The Association of Programs for Rural Independent Living

o The Autistic Self Advocacy Network

o The Caring Across Generation Campaign

o The Center for Self-Determination

o Coalition for Community Integration

o The Disability Rights Education and Defense Fund

o Easter Seals

o Hand in Hand: The Domestic Employers Association

o Jews for Racial and Economic Justice

o The Leadership Conference on Civil and Human Rights

o National Council on Independent Living

o National Disability Rights Network

o National Hispanic Council on Aging

o Not Dead Yet

o Self Advocates Becoming Empowered

o Service Employees International Union

o Services and Advocacy for GLBT Elders (SAGE)

o United Cerebral Palsy

o United Spinal Association

How You Can Help

Join us! Rally organizers are looking for members of Congress who are

willing to talk about the importance of Medicaid to low and middle income

Americans, older Americans and Americans with disabilities.

Help us show that My Medicaid Matters!

Additional Information

For more information, and the most updated list of sponsoring

organizations, go to: http://ly.adapt.org/rally

Steve Gold, The Disability Odyssey continues

Back issues of other Information Bulletins are available online at

http://www.stevegoldada.com

with a searchable Archive at this site divided into different subjects.

As of August, 2010, Information Bulletins will also be posted on my blog

located at http://stevegoldada.blogspot.com/

To contact Steve Gold directly, write to stevegoldada1@... or call

215-627-7100.

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