SSI Question

[Guest guest]

Does anyone know why the SS Administration would count the child support that

Karrie receives as her income? This amount isn't listed as income on tax

returns, etc. I filed an appeal, since they couldn't find her file to be able to

tell me more. The guy said she would continue to receive her checks until the

review was completed. Well, her SSI was discontinued instead.

Also...I was ordered to file income tax refund jointly with the ex. Since he is

delinquent on child support, I received notice that my tax refund is being

snagged to pay the back child support.....to me!! Go figure!!

Karrie is doing better. I've taken your advice and given her lots and lots of

attention (well, she gots lots to start!) and increased her hugs and praise. She

is less angry and starting to talk in her regular voice, not the gruff voice she

had been using. We'll see how she does tomorrow in school.

Sue mom to Kate 13 and Karrie 6 w/ds

[Guest guest]

I go through this now. It's considered UNearned income which has a lower cut

off point than earned income. It really counts against you. My check for march

from SSI was 124.00 THAT'S ALL.....

Be ware...... the SSA screws up my stuff all the time. They said that in

January I received $625 for Child Support when I only received $500. That had a

MAJOR impact on the check I just got. They wont' correct the oversight either.

I always end up going in there every single month to try and straighten in out.

What I'm hoping is that I can finally make enough money per month to get her OFF

SSI because it's much more of a headache than it's worth.

Judi - Proud mother to Jordan 7, ds and Savannah 4 Months, nda

Ambition is a poor excuse for not having enough

sense to be lazy.

[Guest guest]

Thanks for the responses about the SSI situation. I think I have it figured

out...if I keep that 4th part time job, I should be okay. Who knows, maybe

someday I'll even be able to have a life!!

Sue mom to Kate 13 and Karrie 6 w/ds

[Guest guest]

When you get a life... let me know where you got it from :-) I'd like one too!

Judi - Proud mother to Jordan 7, ds and Savannah 4 Months, nda

Ambition is a poor excuse for not having enough

sense to be lazy.

Re: SSI question

Thanks for the responses about the SSI situation. I think I have it figured

out...if I keep that 4th part time job, I should be okay. Who knows, maybe

someday I'll even be able to have a life!!

Sue mom to Kate 13 and Karrie 6 w/ds

[Guest guest]

I dont think we get our lives back until the youngest is 60

Judi S wrote:

> When you get a life... let me know where you got it from :-) I'd like

> one too!

>

--

Leis.... Aussie mum to 5 ,Natasha 1 and Jellybean due Oct 03

Whenever I'm caught between two evils, I take the one I've never tried.

Mae West (1892 - 1980)

[Guest guest]

LOL!!! I don't think I can wait that long....... sheesh... I was 31 when I had

Savannah..... (I still am) that means I'll be 91 when she's 60!! ( I think I did

that math right.... it's too late for me to use my brain right now)

Now tell me..... WHAT kind of life can a 91 y.o. woman have? ( It's a

rhetorical question for the smarties in the group!! ) :-)

Judi - Proud mother to Jordan 7, ds and Savannah 4 Months, nda

Ambition is a poor excuse for not having enough

sense to be lazy.

Re: SSI question

I dont think we get our lives back until the youngest is 60

[Guest guest]

Well you MAY be able to still have sex :) hehehehehehe

>

> Now tell me..... WHAT kind of life can a 91 y.o. woman have?

--

Leis.... Aussie mum to 5 ,Natasha 1 and Jellybean due Oct 03

Whenever I'm caught between two evils, I take the one I've never tried.

Mae West (1892 - 1980)

[Guest guest]

I have been searching through the old notes, and

can't find the one on having ports and CVID

and being on the list to receive SSI?

Do any of you have that copied in a folder?

My son has recently received SSI, he has a port, and he has CVID, possibly

it was one of my posts that you are referring to? What can I help you with?

Email me privately if you wish! )

Diane,

Mom to Takoda, AKA Kody, Di Syndrome, Hypogammaglobulinemia, Seizure

Disorder, Asthma, GERD, bowel dysfunction, learning disabled, CAPD,

generalized anxiety disorder, and all around really great kid! Also Mom to

Arika age

16, Kaila age 13 (asthma), and Sami age 10 (dyslexic). Please visit my website

at _www.geocities.com/schmidtzoo/SNAK_

(http://www.geocities.com/schmidtzoo/SNAK)

[Guest guest]

Diane,

I would love it if you would email me,

I can't seem to get to you.

Thanks,

Jill

jnjjones@...

Re: SSI question

I have been searching through the old notes, and

can't find the one on having ports and CVID

and being on the list to receive SSI?

Do any of you have that copied in a folder?

My son has recently received SSI, he has a port, and he has CVID, possibly

it was one of my posts that you are referring to? What can I help you with?

Email me privately if you wish! )

Diane,

Mom to Takoda, AKA Kody, Di Syndrome, Hypogammaglobulinemia, Seizure

Disorder, Asthma, GERD, bowel dysfunction, learning disabled, CAPD,

generalized anxiety disorder, and all around really great kid! Also Mom to

Arika age

16, Kaila age 13 (asthma), and Sami age 10 (dyslexic). Please visit my

website

at _www.geocities.com/schmidtzoo/SNAK_

(http://www.geocities.com/schmidtzoo/SNAK)

[Guest guest]

They usually ask for a specific period. Phone them back and ask what

period(s) would satisfy them.

Patty

On Tuesday, October 26, 2004, at 06:04 PM, tylers_mom03 wrote:

>

>

> I have another question about SSI benefits. The SS office called

> today and left a message that she needed to talk to me about income

> so that she can get his checks started. Does anyone that gets SSI

> remember how they check your income? They haven't seen any paycheck

> stubs since I reapplied after getting turned down in July because we

> made 30 dollars to much a month. Then my husband started taking Tyler

> to OT and was losing 5 hours a week so that knocked us back down to

> eligible. Here's the problem: the last 3 weeks Tyler hasn't had OT

> because the therapist had to cancel twice and then we had something

> come up where we had to cancel so for the last 3 weeks my husband has

> gotten 40 hours. When I reapplied in August they said that if I got

> any overtime (which I don't) or if my husband got 40 hours it would

> knock us out. If I show them all of the paycheck stubs since August

> (all of which my husband only got between 25 and 35 hours) and now do

> you think that it will still hurt us that he has gotten 40 the last 3

> weeks? I really hope not since we have been trying since July to get

> this.

>

>

>

>

>

>

>

>

[Guest guest]

Most of the time they will ask from 2mths prior to the date you reapplied

and then everything since then.

MISSY

SAHM to some special kids!!!

Excuse Me While I Go

Raise Tomorrow's Future.

Re: SSI question

>

> They usually ask for a specific period. Phone them back and ask what

> period(s) would satisfy them.

>

> Patty

>

>

> On Tuesday, October 26, 2004, at 06:04 PM, tylers_mom03 wrote:

>

>>

>>

>> I have another question about SSI benefits. The SS office called

>> today and left a message that she needed to talk to me about income

>> so that she can get his checks started. Does anyone that gets SSI

>> remember how they check your income? They haven't seen any paycheck

>> stubs since I reapplied after getting turned down in July because we

>> made 30 dollars to much a month. Then my husband started taking Tyler

>> to OT and was losing 5 hours a week so that knocked us back down to

>> eligible. Here's the problem: the last 3 weeks Tyler hasn't had OT

>> because the therapist had to cancel twice and then we had something

>> come up where we had to cancel so for the last 3 weeks my husband has

>> gotten 40 hours. When I reapplied in August they said that if I got

>> any overtime (which I don't) or if my husband got 40 hours it would

>> knock us out. If I show them all of the paycheck stubs since August

>> (all of which my husband only got between 25 and 35 hours) and now do

>> you think that it will still hurt us that he has gotten 40 the last 3

>> weeks? I really hope not since we have been trying since July to get

>> this.

>>

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

I had some additional thoughts about this:

1. Never give them more financial info than they need/or than is

necessary for you to qualify

2. Some things, such as prescriptions bought each month, can be

deducted from your income under some circumstances.

Patty

Missy Feldhaus wrote:

> Most of the time they will ask from 2mths prior to the date you

> reapplied

> and then everything since then.

> MISSY

[Guest guest]

From what I understand, but someone correct me if I'm wrong (Alana, haha), if

it's not in like a trust fund or from like a non-profit organization w/its

own tax id num, then yes its considered your income b/c its under your SSN.

Kimi

[Guest guest]

In a message dated 3/20/2005 10:17:37 PM Eastern Standard Time,

abrcrombsweetie@... writes:

but it isnt in my ssn. The people donating money dont

even know my SSN. It would just be like they could

write a check to me or whatever and that money would

go into an acct untill i get enough to make a

downpayment.

Any acct in your name is under your SSN. So if it's not in your name, you

have nothing to worry about. That's what I was always told...

Kimi

[Guest guest]

but it isnt in my ssn. The people donating money dont

even know my SSN. It would just be like they could

write a check to me or whatever and that money would

go into an acct untill i get enough to make a

downpayment.

--- Ksmile96@... wrote:

> From what I understand, but someone correct me if

> I'm wrong (Alana, haha), if

> it's not in like a trust fund or from like a

> non-profit organization w/its

> own tax id num, then yes its considered your income

> b/c its under your SSN.

> Kimi

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

-

Though I don't have the answer to your ?...I am wondering how they will adapt

the vehicle for you. This is something I guess I kind of accepted would not be

a possibility for Jerika in the future but heck, if someone will adapt it..then

I'm all for it. Have you driven before? Will it be a set up with a joystick

type deal for steering? I am so excited for you. I just haven't heard of this

before although my bf just said there was some racecar driver (off road trucks)

called n or something that is a quadraplegic and drives with all

hand controls. I just didn't even know this would be legal. You go girl!

Please keep us updated and I hope the fundraising goes well.

, Mom to Jerika, age 3, SMA Type I/II

" To accomplish great things, we must not only act, but also dream; not only

plan, but also believe. " -Anatole France

www.smasupport.com

www.our-sma-angels.com

[Guest guest]

it wouldn't be " in kind " . it would be a gift which is counted as " unearned

income " . unearned income reduces your ssi dollar for dollar. and any

amount above $2000 ($3000 for an individual) would be beyond the resources

threshold to maintain eligibility. if someone writes you a check and you

either cash if or deposit it into your bank account, ssa will notice the

additional income when you show them your bank statements at your annual

redetermination. only the 1st $65 of unearned income per month is exempt.

there are 3 ways to handle this:

1) save the $ under someone else's name and have them purchase the vehicle

for you. the vehicle would be considered an exempt " in kind " gift.

2) develop a " plan for achieving self-support " and put the money in an

account for the plan. here are

details:

http://www.disabilitybenefits101.org/ca/programs/income_support/pass/index.htm

3) establish a " special needs trust " (this type specifically) for people to

donate the money to instead of to you. it costs about $1200 to setup the

trust before the there's any money, and about $4000 to setup the trust if

the money is already in hand. here's a good

link: http://www.kidsource.com/kidsource/content4/estate.dis.all.3.3.html

good luck!

alana

At 06:32 PM 3/20/2005, you wrote:

>Okay... I was talking with my mom a few min ago and

>mentioned to her that I wanted to do some fundraising

>soon to try to raise money to get a new car that I can

>have adapted for me to drive. She said she didn't

>think I could do it because that money would be

>considered " in kind " money and SSI would subtrack that

>from my monthly check. Anyone know anything about

>that??? I could never afford a car if I didnt do

>something to get a good downpayment at least!! Ideas?!

>

>

[Guest guest]

Yes, I was thinking the way to go would be a PASS plan, but doesn't the end

result (the reason you are buying a vehicle) have to be so you can work or be

self employeed and be " self-sufficient " .. Alana, you're the expert here..

LOL ..

, Do you plan on getting a van so you can work ?

Elaine

" Alana R. Theriault " <alrt@...> wrote:

it wouldn't be " in kind " . it would be a gift which is counted as " unearned

income " . unearned income reduces your ssi dollar for dollar. and any

amount above $2000 ($3000 for an individual) would be beyond the resources

threshold to maintain eligibility. if someone writes you a check and you

either cash if or deposit it into your bank account, ssa will notice the

additional income when you show them your bank statements at your annual

redetermination. only the 1st $65 of unearned income per month is exempt.

there are 3 ways to handle this:

1) save the $ under someone else's name and have them purchase the vehicle

for you. the vehicle would be considered an exempt " in kind " gift.

2) develop a " plan for achieving self-support " and put the money in an

account for the plan. here are

details:

http://www.disabilitybenefits101.org/ca/programs/income_support/pass/index.htm

3) establish a " special needs trust " (this type specifically) for people to

donate the money to instead of to you. it costs about $1200 to setup the

trust before the there's any money, and about $4000 to setup the trust if

the money is already in hand. here's a good

link: http://www.kidsource.com/kidsource/content4/estate.dis.all.3.3.html

good luck!

alana

At 06:32 PM 3/20/2005, you wrote:

>Okay... I was talking with my mom a few min ago and

>mentioned to her that I wanted to do some fundraising

>soon to try to raise money to get a new car that I can

>have adapted for me to drive. She said she didn't

>think I could do it because that money would be

>considered " in kind " money and SSI would subtrack that

>from my monthly check. Anyone know anything about

>that??? I could never afford a car if I didnt do

>something to get a good downpayment at least!! Ideas?!

>

>

A FEW RULES

* The list members come from many backgrounds, ages and beliefs So all

members most be tolerant and respectful to all members.

* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

not be allowed. If your under 16 ask your parents/gaurdian before you

join the list.

* No SPAMMING or sending numerous emails unrelated to the topics of

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[Guest guest]

In a message dated 3/20/2005 11:15:38 PM Eastern Standard Time,

mom2smagrl13@... writes:

Though I don't have the answer to your ?...I am wondering how they will adapt

the vehicle for you. This is something I guess I kind of accepted would not

be a possibility for Jerika in the future but heck, if someone will adapt

it..then I'm all for it. Have you driven before? Will it be a set up with a

joystick type deal for steering? I am so excited for you. I just haven't heard

of this before although my bf just said there was some racecar driver (off road

trucks) called n or something that is a quadraplegic and drives

with all hand controls. I just didn't even know this would be legal.

First off, ANYONE can drive so long as they successfully complete a drivers'

ed program. As far as people with disabilities are concerned, they must go

through a drivers' modification program, typically available at area rehab

centers/hospitals. Persons who operate the drivers' ed portion in such hospitals

will run the disabled person through a battery of tests, checking every ability

imaginable, and literally have the individual try out many scenerios using the

latest technology available to assist with driving. I have met some pretty

amazing people who do drive, but I never thought possible! By meeting them, I

actually became encouraged to go through the program myself, however fear of

other drivers and their driving led me to put my driving on the back burner.

Just be careful about the fundraising for a vehicle; keep in mind that any

money over $5000 must be reported to the IRS and is no longer considered a gift.

If anyone were to suddenly have a " large " amount of money appear in one's

account or large purchases, such as a van, are made with cash, questions will

arise and be asked. Have you considered going through a vocational rehab program

to help pay for the modifications you would need? In Illinois, the vocational

program of the Office of Rehab Services will pay for vehicle mods whereas the

client purchases the vehicle itself. Trust me, when you're dealing with $40,

000+ required in modifications, it's not a bad deal.

Amy M. Marquez

McHenry, Illinois

Families of Spinal Muscular Atrophy - Vice President Chicagoland Chapter

Spinal Muscular Atrophy (SMA) - Type 1

Mom to le Coral - Born July 19, 1999

Mom to Harley Jasmine - Born March 9, 2004

Colette - Retired Deceased Service Dog

Ella - Retired Service Dog

Loved Family Pets - Nala, the Lovable Lab; Dusty, the Snow-Gray Dwarf Bunny;

Rudy, the Festive Guinea Pig; Stuart, the Star-Studded Mouse

[Guest guest]

yes, a PASS is used to purchase goods and services in preparation to

achieve an occupational goal.

At 11:07 PM 3/20/2005, you wrote:

>Yes, I was thinking the way to go would be a PASS plan, but doesn't the

>end result (the reason you are buying a vehicle) have to be so you can

>work or be self employeed and be " self-sufficient " .. Alana, you're the

>expert here.. LOL ..

>, Do you plan on getting a van so you can work ?

>Elaine

[Guest guest]

I do know you can't have more than 2000 in any acounts added up together. I

know for a fact if you do they will start taking out of your check monthly or

something. I don't know about the actual question you had though, sorry

Missy

*~~* <abrcrombsweetie@...> wrote:

but it isnt in my ssn. The people donating money dont

even know my SSN. It would just be like they could

write a check to me or whatever and that money would

go into an acct untill i get enough to make a

downpayment.

--- Ksmile96@... wrote:

> From what I understand, but someone correct me if

> I'm wrong (Alana, haha), if

> it's not in like a trust fund or from like a

> non-profit organization w/its

> own tax id num, then yes its considered your income

> b/c its under your SSN.

> Kimi

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

You can set it up yourself for much less. You should talk to Katelyn Crowder's

Nana. She set up Katelyn's trust for (I think) the cost of a notary public's

signature.

Hugs

Jeni

" Alana R. Theriault " <alrt@...> wrote:

3) establish a " special needs trust " (this type specifically) for people to

donate the money to instead of to you. it costs about $1200 to setup the

trust before the there's any money, and about $4000 to setup the trust if

the money is already in hand. here's a good

link: http://www.kidsource.com/kidsource/content4/estate.dis.all.3.3.html

good luck!

alana

At 06:32 PM 3/20/2005, you wrote:

>Okay... I was talking with my mom a few min ago and

>mentioned to her that I wanted to do some fundraising

>soon to try to raise money to get a new car that I can

>have adapted for me to drive. She said she didn't

>think I could do it because that money would be

>considered " in kind " money and SSI would subtrack that

>from my monthly check. Anyone know anything about

>that??? I could never afford a car if I didnt do

>something to get a good downpayment at least!! Ideas?!

>

>

A FEW RULES

* The list members come from many backgrounds, ages and beliefs So all

members most be tolerant and respectful to all members.

* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

not be allowed. If your under 16 ask your parents/gaurdian before you

join the list.

* No SPAMMING or sending numerous emails unrelated to the topics of

spinal muscular atrophy, health, and the daily issues of the disabled.

Post message:

Subscribe: -subscribe

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[Guest guest]

there may be some types of trusts that a layman can establish themselves,

but this is not the case with a special needs trust. it requires an

attorney. the SNT is the only type of trust that is specifically designed

to protect one's eligibility for federal benefits - SSI and Medicaid. i've

had a number of clients who's families thoughtfully set up trusts for them,

only to find out later that SSA ruled that their trusts did indeed count as

resources. i probably posted the url to a good article about this before,

but just in

case: http://www.kidsource.com/kidsource/content4/estate.dis.all.3.3.html

At 01:44 PM 3/21/2005, you wrote:

>You can set it up yourself for much less. You should talk to Katelyn

>Crowder's Nana. She set up Katelyn's trust for (I think) the cost of a

>notary public's signature.

>Hugs

>Jeni

>

> " Alana R. Theriault " <alrt@...> wrote:

>3) establish a " special needs trust " (this type specifically) for people to

>donate the money to instead of to you. it costs about $1200 to setup the

>trust before the there's any money, and about $4000 to setup the trust if

>the money is already in hand. here's a good

>link: http://www.kidsource.com/kidsource/content4/estate.dis.all.3.3.html

>

>good luck!

>

>alana

[Guest guest]

I do plan to work in the future yes... currently I am

in college and do not have time to work. But the rehab

lady asks me everytime I go in there if I am

interested in doing this, so Im hoping she wouldnt ask

if she didnt think I would qualify.

--- " Lainie H. " <bizybull2@...> wrote:

> Yes, I was thinking the way to go would be a PASS

> plan, but doesn't the end result (the reason you are

> buying a vehicle) have to be so you can work or be

> self employeed and be " self-sufficient " .. Alana,

> you're the expert here.. LOL ..

> , Do you plan on getting a van so you can work

> ?

> Elaine

>

> " Alana R. Theriault " <alrt@...> wrote:

> it wouldn't be " in kind " . it would be a gift which

> is counted as " unearned

> income " . unearned income reduces your ssi dollar

> for dollar. and any

> amount above $2000 ($3000 for an individual) would

> be beyond the resources

> threshold to maintain eligibility. if someone

> writes you a check and you

> either cash if or deposit it into your bank account,

> ssa will notice the

> additional income when you show them your bank

> statements at your annual

> redetermination. only the 1st $65 of unearned

> income per month is exempt.

>

> there are 3 ways to handle this:

>

> 1) save the $ under someone else's name and have

> them purchase the vehicle

> for you. the vehicle would be considered an exempt

> " in kind " gift.

>

> 2) develop a " plan for achieving self-support " and

> put the money in an

> account for the plan. here are

> details:

>

http://www.disabilitybenefits101.org/ca/programs/income_support/pass/index.htm

>

> 3) establish a " special needs trust " (this type

> specifically) for people to

> donate the money to instead of to you. it costs

> about $1200 to setup the

> trust before the there's any money, and about $4000

> to setup the trust if

> the money is already in hand. here's a good

> link:

>

http://www.kidsource.com/kidsource/content4/estate.dis.all.3.3.html

>

> good luck!

>

> alana

>

>

> At 06:32 PM 3/20/2005, you wrote:

>

> >Okay... I was talking with my mom a few min ago and

> >mentioned to her that I wanted to do some

> fundraising

> >soon to try to raise money to get a new car that I

> can

> >have adapted for me to drive. She said she didn't

> >think I could do it because that money would be

> >considered " in kind " money and SSI would subtrack

> that

> >from my monthly check. Anyone know anything about

> >that??? I could never afford a car if I didnt do

> >something to get a good downpayment at least!!

> Ideas?!

> >

> >

>

>

>

>

> A FEW RULES

>

> * The list members come from many backgrounds, ages

> and beliefs So all

> members most be tolerant and respectful to all

> members.

>

> * Some adult language and topics (like sexual

> health, swearing..) may

> occur occasionally in emails. Over use of

> inappropriate language will

> not be allowed. If your under 16 ask your

> parents/gaurdian before you

> join the list.

>

> * No SPAMMING or sending numerous emails unrelated

> to the topics of

> spinal muscular atrophy, health, and the daily

> issues of the disabled.

>

> Post message:

> Subscribe:

> -subscribe

> Unsubscribe:

> -unsubscribe

>

> List manager: (Sexy Mature Artist) Email:

> Esma1999@...

>

>

>

>

> oogroups.com

>

> List manager: (Sexy Mature Artist) Email:

> Esma1999@...

>

>

>

>

>

>

>

>

[Guest guest]

A PASS may work well for you, especially if you plan to do some serious

fundraising.

At 07:39 PM 3/21/2005, you wrote:

>I do plan to go thru Texas Rehab for the modifications

>and adaptations cost, but I have to pay for the

>vehicle and THAT is where my problem is. Ive got some

>money stashed away to make a small downpayment, but i

>need more in order to get it so that the monthly

>payments are something i can afford.