Guest guest Posted February 26, 1999 Report Share Posted February 26, 1999 Hi Patty . . . I haven't but another lady wrote in just last week about her fiancee who is having uncontrolled movement in his arms & legs. Her name is Patsy and you can find her msgs and address on the Zapper BBS towards the top of the list. It's listed as " friend with ICD and symptoms " and dated 2/17/99. Tony Denver > ---------- > From: Patty S Pulasky > Reply egroups > Sent: Friday, February 26, 1999 15:13 > egroups > Subject: Seizures > > My husband, , had an AICD implant 23rd September, 1998, following a > cardiac arrest on 13th August. The cardiac arrest was preceded by > seizures caused by vts. He was in a coma for four days; suffers from > anoxia. Has been taking dilantin to prevent any more seizures. > Last Friday I found him lying on the floor, conscious and fairly > coherent. He then went into body tremors; he had previously been > suffering from twitches of the arms. His internist had said the twitches > were due to seizures in the brain. At the hospital, he was given every > test possible....absolutely nothing showed up as a cause, either from > cardiac or brain. (I'd like to say here that his ep checked him out in > the hospital & he had not been zapped.) No cause for the seizures was > given by the doctors. > Even after the two EKGs, two EEGs, lumbar puncture, echocardiogram, > blood panels, chest x-rays, carotid doppler, the doctors are still > puzzled. He's home from the hospital, stuffed every day with even more > anti-convulsive medication (they added neurontin to the list), and still > in tremors several times a day. > Has anyone here suffered from anything like this? Has anyone had any > extreme anxiety problems that resemble this (which has been suggested by > a layman as the cause.) > Thanking you in advance. > Pat Pulasky > > ------------------------------------------------------------------------ > Internet FileZone: Always FREE! > Instantly store & access your valuable PC files on the net, > from any Web browser. > SIGN UP NOW - http://offers./click/235/0 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 1999 Report Share Posted February 28, 1999 I have had similar occurances (I also have anoxia) The continued neuro problems are caused by blood clots for me. I was finally diagnosed with Antiphospholipid Stndrome, a Autoimmune clotting disorder. Constant maintaince of INR at 3.5 has kept me in check. May be worth looking into. The Clots from the APLS is also what caused the heart attacck that caused the Anoxia (catcha22) Steve What the heck is Antiphospholipid Syndrome? http://members.aol.com/AMAmail/Anti.html ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 1999 Report Share Posted March 18, 1999 36d71c7d.1b0-@...> wrote: Original Article: list//?start=485 > My husband, , had an AICD implant 23rd September, 1998, following a > cardiac arrest on 13th August. The cardiac arrest was preceded by > seizures caused by vts. He was in a coma for four days; suffers from > anoxia. Has been taking dilantin to prevent any more seizures. > Last Friday I found him lying on the floor, conscious and fairly > coherent. He then went into body tremors; he had previously been > suffering from twitches of the arms. His internist had said the twitches > were due to seizures in the brain. At the hospital, he was given every > test possible....absolutely nothing showed up as a cause, either from > cardiac or brain. (I'd like to say here that his ep checked him out in > the hospital he had not been zapped.) No cause for the seizures was > given by the doctors. > Even after the two EKGs, two EEGs, lumbar puncture, echocardiogram, > blood panels, chest x-rays, carotid doppler, the doctors are still > puzzled. He's home from the hospital, stuffed every day with even more > anti-convulsive medication (they added neurontin to the list), and still > in tremors several times a day. > Has anyone here suffered from anything like this? Has anyone had any > extreme anxiety problems that resemble this (which has been suggested by > a layman as the cause.) > Thanking you in advance. > Pat Pulasky > Hello Pat, >I've experienced a similar situation and I can clearly understand where you're >coming from. > >Arrhythmias are very tricky, doctors and other health care professionals - >including knowledgeable observers would expect the patient to lapse into a >syncopal (blackout) episode before being revived. That's not always the case. >Some arrhythmias have a way of masking themselves as being nothing more than >typical seizures (such as grand mal seizures), because their characteristics >are similar to the actual seizures themselves. And according to the observer, >the indivdual is just having a seizure, not knowing that its onset may be a >potentially life threatening situation. >Not all arrhythmias result in syncopal episodes. Some arrhythmias may result >in muscle twitches and tremors, while the affected individual is conscious - >but may be immobilized until the arrhythmia subsides. When an individual is >immobilized - it doesn't mean that they aren't aware of their surroundings, >or lack the ability to hear others, they just can't respond at that time. >An individual may maintain consciousness during a nonsustained arryhthmia - >without twitches and tremors, but may be immobilized. His/Her memory may or >may not be affected by some arrhythmias. After coming out of an arrhythmic >attack, he/she may feel physically drained and weak, accompanied by sweating. >Disoriented behavior may follow. The arryhthmias that result into syncopal >episodes may be accompanied by short term or long term memory lost. >Arrhythmias may cause the body to react in various unxpected ways. >You can request that your husband's cardiologist use a "holter monitor," to >monitor your husband's cardiac electrical activity (a small, rectangular box >with a built-in tape recorder that records the heart's electrical activities >up to 12 hours or more), to see if the twitches and tremors are related to >your husband's arrhythmias, and if it is the problem... hopefully, the holter >monitor will reveal it as the source of the problem, so that your husband can >get the proper treatment that he needs to prevent reoccurring twitches and >tremors, caused by arrhythmias. >To make a long story short... I was diagnosed with having "Grand Mal" seizures >and was put on dilantins (100mg 3x a day), which really didn't prevent the >attacks from reoccurring. It wasn't until I was given a "holter monitor," >that revealed the actual cause of the reoccurring seizures. It was caused by >arrhythmias (nonsustained sustained polymorphic VT, V-Tach which degenerated >into V-Fib at 300bpm and above for 3 minutes - which simultaneously broke own >it's own). When I regained consciousness... I got up and walked away from >that attack and went to the emergency room the next following day. I told the >emergency room personnel that I had an attack the night before and they told >me to wait until the test results came back from the holter monitor. Shortly >after that - I was immediatedly admitted into the hospital. The test results >showed wave forms they've never seen before. They were amazed at how I >stayed alive and walked into their emergency room, to tell them about it. >I hope the information that I gave you will help you. Good Luck! B. (gbond@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 1999 Report Share Posted March 18, 1999 Perhaps should check out blood glucose level problems - hypoglycemia, hyperglycemia or a combination of both (at different times, of course). almorris@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2000 Report Share Posted November 27, 2000 Hi , Oh its such a relief to hear you say this:- "I have been avoiding seizures by getting proper rest and nutrition - not having either of these can trigger seizures - and avoiding other misc.things, like too much television, poor lighting, having my eyes open when I am riding in a car(especially at night). I don't go anywherre alone." I'm the same, I cant watch TV at all, or read a book, cook etc cause of smells and visual problems. I find strong lighting worse! LOL and riding in a car! Oooooooooh yeah - that is horrible. Makes me turn blue and stuff. I dont go anywhere alone either. Its such a drastic change from the old attitudy and independant person I once was! Its good to know that others with seizure related stuff find travel a trigger also. Hows the pregnancy going? The hormones are not triggering off seizurs? "I have partial seizures, and most of the time I remain entirely conscious. (not always a pleasent part of it though)." yuck yuck yuck .... I would hate that. My case is different in the sense that I am not epileptic, so I am always conscious (sometimes feel like I am going to black out though). Its horrible. How long have you had this problem? Did it just suddently start? *hugs* Love Aisha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2002 Report Share Posted March 17, 2002 Dear Jan, Sorry,you have probably checked this but I still did want to mention it. I read that some meditation tapes,especially the bi naural technology are not good for people who are having seizures...Nil seizures | | Hi, | | I'd like to hear from anyone else who is having | seizures. | | Thanks, | Jan. | | __________________________________________________ | Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 Get hold of some Klnopin. Works like a champ seizures Hi, I'd like to hear from anyone else who is having seizures. Thanks, Jan. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 Hi! A lady I correspond with who had seizures and CFS, found that the seizures were caused by wheat. She gave up wheat products and no longer has seizures. Might be worth a try. Merle Jan wrote: > Hi, > > I'd like to hear from anyone else who is having > seizures. > > Thanks, > Jan. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi Merle, That's really interesting. And I am so happy your friend found the answer. I have been wondering about wheat for a while, so I actually gave up wheat recently, and have not eaten very much wheat at all for about a month, so I don't think that's the problem. The seizures are clustering around my period so it could be aggravated by hormonal changes. I'll go over my food diary to see if I can see a link to anything I've eaten. Warm regards, Jan. --- Merle <peerent@...> wrote: > Hi! > > A lady I correspond with who had seizures and CFS, > found that the seizures were caused by wheat. She > gave up wheat products and no longer has seizures. > Might be worth a try. > > Merle > > Jan wrote: > > > Hi, > > > > I'd like to hear from anyone else who is having > > seizures. > > > > Thanks, > > Jan. > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Jan could it be the increased inflammation during periods?.Sorry,I have forgottan if you have mentioned if you were pre-menopausal but if you are,do you use phytoestrogens?I am not sure but phyto estrogens may help to regulate the hormones. You might want to check this with an expert. I have a feeling that flax seed oil and/or evening Primrose Oil also might be of some help for reducing inflammation if this is due to inflammation.Nil .. Re: seizures | Hi Merle, | That's really interesting. And I am so happy your | friend found the answer. I have been wondering about | wheat for a while, so I actually gave up wheat | recently, and have not eaten very much wheat at all | for about a month, so I don't think that's the | problem. The seizures are clustering around my period | so it could be aggravated by hormonal changes. I'll go | over my food diary to see if I can see a link to | anything I've eaten. | Warm regards, Jan. | --- Merle <peerent@...> wrote: | > Hi! | > | > A lady I correspond with who had seizures and CFS, | > found that the seizures were caused by wheat. She | > gave up wheat products and no longer has seizures. | > Might be worth a try. | > | > Merle | > | > Jan wrote: | > | > > Hi, | > > | > > I'd like to hear from anyone else who is having | > > seizures. | > > | > > Thanks, | > > Jan. | > > | > | > | | | __________________________________________________ | Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 Mark, Both TBI and seizure disorders have the majority of their references training SMR bipolar over the sensorimotor strip, and reducing Theta (3-7Hz or 4-7Hz). Generally positive outcome reports (both statistically and clinically). Intensity in training is (ie- many sessions in a week and/or in a day) comorbid with efficacy. All the best, >From: " mwaller " <mwaller@...> >Reply- >< > >Subject: Seizures >Date: Fri, 17 Jan 2003 07:15:44 -0800 > >Group: > >Yesterday I interviewed a prospective patient who had been in a car >accident and now suffers from memeory problems as well as daily >seizures. In fact, she had one as we talked. > >Has anyone had experience with this, and what course of treatment or >protocol would you recommend? > >Thanks > >Mark > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 Would you go with T3-4 or C3-4? Mark Seizures >Date: Fri, 17 Jan 2003 07:15:44 -0800 > >Group: > >Yesterday I interviewed a prospective patient who had been in a car >accident and now suffers from memeory problems as well as daily >seizures. In fact, she had one as we talked. > >Has anyone had experience with this, and what course of treatment or >protocol would you recommend? > >Thanks > >Mark > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Mark, Sterman originally used C3/C4. Others use C4/T4 or T3/T4. Some folks just use C4/A2. If you find specific areas in the brain (which you might do by looking at the cognitive functions affected or where the impact from the accident was and then doing some data gathering in the EEG) where there is significantly more slow activity than in others, training down the slow activity there is likely to be helpful. Pete Seizures >Date: Fri, 17 Jan 2003 07:15:44 -0800 > >Group: > >Yesterday I interviewed a prospective patient who had been in a car >accident and now suffers from memeory problems as well as daily >seizures. In fact, she had one as we talked. > >Has anyone had experience with this, and what course of treatment or >protocol would you recommend? > >Thanks > >Mark > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 C3-C4, is what everything that I've studied has succeeded with. Be well, SOMOS AMOR Seizures >Date: Fri, 17 Jan 2003 07:15:44 -0800 > >Group: > >Yesterday I interviewed a prospective patient who had been in a car >accident and now suffers from memeory problems as well as daily >seizures. In fact, she had one as we talked. > >Has anyone had experience with this, and what course of treatment or >protocol would you recommend? > >Thanks > >Mark > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 Could you explain this a bit further for me - in baby-step terms? What locations should training be done at? And, if there are 2, should that be done separately, or at the same time? i.e., C3 then C4, or C3-C4-A2? And, have you actually had results using this? And if so, what type of seizures - those involving muscles or not involving muscles? And when you are rewarding SMR and inhibiting theta, is there a specific % of time that we should be shooting for? i.e., hitting our reward x% of the time? and reducing X% of the time? Do you have some success stories you could share from performing this approach? Thanks! Re: Seizures Mark, Both TBI and seizure disorders have the majority of their references training SMR bipolar over the sensorimotor strip, and reducing Theta (3-7Hz or 4-7Hz). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 , I've heard many of the things you have (including not to train bipolar across the midline, which, of course, is exactly what Sterman did in his research at C3/C4 and what the Othmer's teach/taught at T3/T4.) I don't know that there really are any good absolute don't except perhaps don't train up theta/delta and down train up fast beta. I don't see that you could go wrong inhibiting slow activity and/or variability. And certainly training up SMR seems to be generally accepted. Pete Van DeusenBrainTrainer ()16246 SW 92nd Ave, Miami, FL 33157305/321-1595 Seizures I realize that I don't know what to avoid when treating someone with seizures. I've 'heard' not to reward beta....if you have a "processing" client, do you just inhibit, do a frontal squash maybe? I've 'heard ' not to do 2 channel training, just train one side at a time. I've noticed that the 's book has nothing in it about what to avoid...just to reward SMR... Thanks for your help, everybody! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Pete, I think that working with seizures is probably trickier than meets the eye. There may be some possibility of triggering seizures in people who have had a history of them. I would think twice about working with such a person without a fair amount of experience or tight supervision by a well-experienced person. Respectfully, Steve On Jul 1, 2004, at 7:58 AM, Van Deusen wrote: > , >  > I've heard many of the things you have (including not to train bipolar > across the midline, which, of course, is exactly what Sterman did in > his research at C3/C4 and what the Othmer's teach/taught at T3/T4.) I > don't know that there really are any good absolute don't except > perhaps don't train up theta/delta and down train up fast beta. I > don't see that you could go wrong inhibiting slow activity and/or > variability. And certainly training up SMR seems to be generally > accepted. >  > Pete > > Van Deusen > BrainTrainer () > 16246 SW 92nd Ave, Miami, FL 33157 > 305/321-1595 > Seizures > > I realize that I don't know what to avoid when treating someone with > seizures. > I've 'heard' not to reward beta....if you have a " processing " client, > do you just inhibit, do a frontal squash maybe? > I've 'heard ' not to do 2 channel training, just train one side at a > time. >  > I've noticed that the 's book has nothing in it about what to > avoid...just to reward SMR... > Thanks for your help, everybody! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2004 Report Share Posted July 1, 2004 Steve, I agree. Van DeusenBrainTrainer ()16246 SW 92nd Ave, Miami, FL 33157305/321-1595 SeizuresI realize that I don't know what to avoid when treating someone with seizures.I've 'heard' not to reward beta....if you have a "processing" client, do you just inhibit, do a frontal squash maybe?I've 'heard ' not to do 2 channel training, just train one side at a time. I've noticed that the 's book has nothing in it about what to avoid...just to reward SMR...Thanks for your help, everybody! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 Susie- -what a horrible story. I know you must be heartbroken for him. It is very hard to not have any say so in his health care too. I had to be rude but his parents are total fools if they go ahead with his next vac. schedule. I am pretty sure they are people on here that have been through this same thing...there are people that have even lost their child to reactions. Are they open at all to the toxins in the vaccines? How would they take it if you got some information for them to read? Maybe tell them they can postpone the next vac. and take a little time to read what is really going on. What state is the baby in? Maybe someone on the list might know of a good Dr that would give them an alternative view? Poor little guy... I wish you both the best Sherry > Hello.my name is Susie. i am new to this board and i was wondering if > anyone can answer a few questions for me.I baby sit a little boy that > is 6 months old and he is having seizures.After his first shots i was > holding him the next day and his leg and arm were jerking ,like a > spasm or something, i didnt think much about it,it only lasted a few > seconds.Then after his second shots his mom had him at home and he > seized, she called 919 and the rescue squad took him to the hospital( > about a 15 mile trip) seizing all the way... they ran a few test on > him and his liver had elevated enzymes and some other things were > pretty high i forgot the name of them.So after wards they sent him to > a neurologists and they are gonna do some tests on him like an eeg > and cat scan, well this past week he had another seizure and the same > thing his mom called 919 and they took him to the hospital.they still > are calling his seizures febrile.He is due to have his 6 month shots > after the eeg's,the doctor is gonna leave out the pertussis as his > mom has requested it.my fear is that even though he wont get the > pertussis ,is that he will get some of the awful things i have been > reading about on here.My question i guess is this, has anyone else > been thru this same thing and it gets worse or will it get better? I > am only his babysitter but i love him as he were mine.I am so worried > about him because i have seen changes after these shots and it breaks > my heart.He is a beautiful baby and after the first seizure he lost > his happy little disposition and after awhile it started coming > back,and he started acting like his old self again.i have been giving > him lots to drink and eat hoping that all the poisions in them shots > will somehow wash out of his little body...I dont mean im over > feeding him ,i just try to flush his kidneys out in hopes if there is > any poisions in him that it wont damage his kidneys and other > organs,if i sound stupid im sorry i just am not a good writter,and > have a hard time explaining myself sometimes. thanks for listening. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 Is she serious? It more than likely means that whatever shot she had, she had an allergic reaction to, (which also may mean one of the ingredients). If it's a shot where " booster " shots are recommended, she DEFINITELY needs to be looked at. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 Hi Carol, Good idea to get it checked out, I am sure it was very scary! Here is more info about occurence of seizures in ds. Isabella had infantile spasms as a 7 month old. FYI, I did find that my pediatrician was not very knowledgeable when it came to seizures. He would admit that to me, but he is not most drs. We ended up at a neurologist office. If you look at the population of all children with mental retardation, there is a very large number (from 20 to 40%) that have epilepsy. The number is quite lower in Down Syndrome, but it's still a larger number than in the general population. Studies in the last two decades have estimated the number of people with DS who have seizures to be from 5 to 10%. Send Me Email There appears to be two " peaks " in ages at which the onset of epilepsy is more common in DS. The first peak occurs in the first two years of life. The type of seizure most often seen in this age range is the " infantile spasm. " This type of seizure involves what looks like a spasm of the body, lasting a few seconds, and sometimes not affecting the infant's state of consciousness. It can also look like a quick drop of the head and/or shoulders if the baby is sitting or standing up. Another type of seizure seen is the generalized " tonic-clonic " seizure (also called " grand mal " ); this type of seizure involves the whole body, with stiffening of the trunk and jerking of the extremities, followed by a period of sleepiness. Other types of seizures have been described, including atonic (head-drop) seizures and reflex (myoclonic, " startle " ) seizures. The second " age peak " at which people with DS tend to develop seizures is in adulthood, usually between 20 and 30 years of age, but it can develop later in life as well. The most common seizure in this age range is the tonic-clonic seizure, but other types are also seen. Keep us posted, we will keep Amber in our prayers! Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2007 Report Share Posted November 6, 2007 Glad to hear things checked out for the time being anyway- I know strep can make a kid really, really sick. and used to get it and though they had vastly differently symptoms, the one common symptom was they were obviously sick and it took a huge toll on their bodies til we got meds for it.I hope she passed out from being sick and feeling weak and that's it. I told you my ph passed out cold when he throws up!! He just goes right over backwards...... Carol in IL AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic----- Original Message ----From: iammamapie <iammamapie@...> ; dstni Sent: Monday, November 5, 2007 9:07:05 AMSubject: Seizures Are Seizures common in Down Syndrome ?? I think Amber had one yesterday. We are going to her pediatrician this morning to talk with them about it. We almost called 911 but she came out of it and seemed fine after that. This does not run in our family. And this is the first time I have ever seen one She just went limp all over appeared to stop breathing and was unresponsive. It lasted about a minute . Just long enough to scare us to death. My husband thought maybe it was drainage in her throat that caused her to gauge or stop breathing. I thought it was a seizure. So we just decided to keep a close eye on her and take her in this morning. Just wanted to ask if anyone has experience with this or has gone through it ?? Thanks Hugs, Carol P. AIM iammamapie Giga iammamapie ____________ _________ _________ _________ _________ __Do You ?Tired of spam? has the best spam protection around http://mail. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Thats funny you mentioned that, I just had a patient that was admitted d/t seizures this week. She had gastric bypass 1 year ago. They are not sure why she has been having them. I would be curious to know if there is a connection or not. seizures Has anyone seen any pts that have developed seizures after a proximal bypass or have you read any literature about it?? I have a pt who is 4 months out and has had two seizures. Just curious. Thanks. -Diane Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2008 Report Share Posted February 23, 2008 A fatty acid deficiency can induce seizures...in fact, omega-3's can be used to help control seizures. Monika Woolsey www.afterthediet.com www.incyst.blogspot.com www.thisisyourbrainonpsychdrugs.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2011 Report Share Posted May 4, 2011 Can anybody suggest an excellent neurologist specializing in seizures at Children's? Thank you! B. Kruss Beata Kruss Quote Link to comment Share on other sites More sharing options...
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