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Re: Guardianship, etc

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Hi Chantelle,

I have had a number of go-arounds with the Springfield-based, 3-ring circus

called Medicaid. My son turned 21 recently, and is now no longer eligible

for a prescription for OTC acid reflux meds he was prescribed (Prilosec)..

Pretty incredible---on a Friday...'we are all about maintaining your

health'....comes Saturday....'you are now too old for us to care about

maintaining your health. The monthly cost to us would have been $75-$100,

depending on the sale-of-the-month. May not seem like a lot of $$,..to some

people.

2 options available that I know of:

- Investigate, with the prescribing MD if there are any meds that Medicaid

will cover that are similar to what he is on now..there are a variety of

reasons why that can cause more problems than solve. Not much of an option,

but worth a shot.

- Have your MD write a 'letter of medical necessity', containing ALL

pertinent info about your son's case, previous meds tried, success with

current meds regimen. The letter needs to contain Medicaid case#, ID#,

etc.--fax to 217-524-7264. This is not a quick process, but if plan A above

isn't acceptable this is your other choice.

We are currently trying this route for my son's acid reflux meds. We are

fortunate to be working with an MD who understands how the system works

(Suburban Gastroenterologists).

Some years back my son was taking Strattera, and when he turned 18 the state

wouldn't cover (over $1,000/month or some such obscene amount). MD wrote

the letter, state denied it (could NOT have seen that coming!), and we tried

him on a similar covered med...similar results were achieved.

Good luck navigating the swamp that is public aid.

Al Karman

On Wed, Jun 15, 2011 at 10:04 AM, chantelle <cappy.porter@...> wrote:

>

>

> Thanks for all the input on guardianship. Wouldn't you know just yesterday

> I received the paperwork from the court (Dupage) that I need to complete for

> continuing guardianship. It was sent by a volunteer. I didn't even know they

> had such a thing. At least the " free help " is on top of things.

>

> Yesterday Zack was also approved for Medicaid. The statement he received

> wasn't on any kind of letterhead, no signature, no date just said " you're

> approved. Your card is in the mail. " Of course, I suppose since it doesn't

> pay for much of anything there's no reason to worry about it looking

> " official " . (Seriously, it looked like a stalker could have sent it) It's so

> absurd it's funny.

>

> On another note, Zack's Medicaid doesn't cover 2 of his prescriptions.

> (They're $280 a month) Anyone had any luck with the Patient assistance

> programs that the major pharmaceuticals offer? Any tips?

>

> Thanks

>

> Chantelle

>

>

>

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Your doctor can file an appeal to Medicaid - stating nothing cheaper, no other

drugs & no generic drugs work for him.

From: chantelle <cappy.porter@...>

Subject: Guardianship, etc

IPADDUnite

Date: Wednesday, June 15, 2011, 10:04 AM

 

Thanks for all the input on guardianship. Wouldn't you know just yesterday I

received the paperwork from the court (Dupage) that I need to complete for

continuing guardianship. It was sent by a volunteer. I didn't even know they had

such a thing. At least the " free help " is on top of things.

Yesterday Zack was also approved for Medicaid. The statement he received wasn't

on any kind of letterhead, no signature, no date just said " you're approved.

Your card is in the mail. " Of course, I suppose since it doesn't pay for much of

anything there's no reason to worry about it looking " official " . (Seriously, it

looked like a stalker could have sent it) It's so absurd it's funny.

On another note, Zack's Medicaid doesn't cover 2 of his prescriptions. (They're

$280 a month) Anyone had any luck with the Patient assistance programs that the

major pharmaceuticals offer? Any tips?

Thanks

Chantelle

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Chantelle:

I have had good results from the prescribing physician submitting a letter of

exception (an appeal) to Medicaid, to get meds paid for that are not on the

formulary (approved drug) list. As I recall, there is a specific form. Sherri

Schneider might chime in, as she would know about this. We did it quite some

time ago.

From what I hear, the same kind of process is available to those of us whose

loved ones are part of the Managed Care programs.

Ellen

Ellen Garber Bronfeld

egskb@...

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Apologize for my late response...thanks Sherri and Al for covering the topic of

appeals to Medicaid for meds.

Funny, Al...I think it was Straterra that we appealed, as well, but, we got it

approved...go figure!!!

Ellen

Ellen Garber Bronfeld

egskb@...

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I have found that it depends on the wording of the appeal. It is important for

the dr to notate that other drugs will not work and generic will not work. The

specific drug was initially denied because it is not on Medicaid's formulary

list. (most of the time, this means it is too expensive). So the dr needs to

explain why this particular drug is the ONLY one that will work for his patient.

From: ELLEN BRONFELD <egskb@...>

Subject: Re: Guardianship, etc

IPADDUnite

Date: Thursday, June 16, 2011, 8:49 AM

 

Apologize for my late response...thanks Sherri and Al for covering the topic of

appeals to Medicaid for meds.

Funny, Al...I think it was Straterra that we appealed, as well, but, we got it

approved...go figure!!!

Ellen

Ellen Garber Bronfeld

egskb@...

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