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Re: Hope Foundation

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Hi ,

They are in the northwest suburbs, there is one house for 5 young women and one

for 5 young men. I just heard yesterday that due to funding issues (yay

ilinois!) this foundation no longer exists and the homes might have been taken

over by Clearbrook, so I would start with them. They might also be able to

advise you how to start your own home.

We have found within the last 6 years a pattern of aggressive behavior just

before a grand mal seizure and afterwards he just wants to sleep and sometimes

not eat.

This has improved significantly (see Laurie's post, I agree) We chose not to use

any drugs because he already has a cocktail of antiepileptics . We are very

proud of his ability to " self regulate " but again this has to be taught, it is

part of his IEP and we are consistent at home with various deescalating

strategies.

Thais

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Thais,

That’s too bad about the Hope Foundation, I saw Carl LaMell from Clearbrook

once talking about the home for women, and he was saying that they couldn’t

have afforded it without Hope, as the cost per resident (at that time) was about

$90,000/year per person and the state CILA funding was maybe $45,000? I may

have gotten the state part wrong, but distinctly remember that $90,000 part for

obvious reasons (having a daughter with autism and seizures). What the Hope

Foundation did was fill the gap through social capitol/fundraising. Maybe they

let that part go but the families are still donating, I don’t know.

Either way, it was a good model that seemed to be meeting some specific needs in

that community. Those ladies medical needs, as I recall, were pretty specific

and ongoing.

Keep us posted on what you find out.

Thanks,

L.

From: Francis PALLUAU

Sent: Saturday, July 09, 2011 10:33 AM

IPADDUnite

Subject: Re: Hope Foundation

Hi ,

They are in the northwest suburbs, there is one house for 5 young women and one

for 5 young men. I just heard yesterday that due to funding issues (yay

ilinois!) this foundation no longer exists and the homes might have been taken

over by Clearbrook, so I would start with them. They might also be able to

advise you how to start your own home.

We have found within the last 6 years a pattern of aggressive behavior just

before a grand mal seizure and afterwards he just wants to sleep and sometimes

not eat.

This has improved significantly (see Laurie's post, I agree) We chose not to use

any drugs because he already has a cocktail of antiepileptics . We are very

proud of his ability to " self regulate " but again this has to be taught, it is

part of his IEP and we are consistent at home with various deescalating

strategies.

Thais

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