RE: good books on disabilities

[Guest guest]

One of my all time favorite books is " Changed by a Child; Companion Notes

for Parents of a Child with a Disability " . It was written by Barbara Gill,

the mom of a young man with Down syndrome and a Partners in Policymaking

graduate from Minnesota. Each page is complete within itself. So you don't

have to start at the beginning and work to the end. Here's the link on

Amazon.

http://www.amazon.com/Changed-Child-Barbara-Gill/dp/0385482434/ref=sr_1_1?s=

books

<http://www.amazon.com/Changed-Child-Barbara-Gill/dp/0385482434/ref=sr_1_1?s

=books & ie=UTF8 & qid=1310564590 & sr=1-1> & ie=UTF8 & qid=1310564590 & sr=1-1.

And on an off-topic happy note, the skunk that was stinking up our whole

house last night seems to have decided not to live under our back deck and

has moved on. J Sometimes we get to celebrate the little things, right?

Charlotte

From: IPADDUnite [mailto:IPADDUnite ] On

Behalf Of ELLEN BRONFELD

Sent: Tuesday, July 12, 2011 6:53 PM

IPADDUnite

Subject: good books on disabilities

I am on a Board and one of the Board members asked if there are any good

books that she and others could read that would give them greater insight

into raising, living with and supporting a person with an intellectual or

developmental disability.

Any thoughts???

Ellen

Ellen Garber Bronfeld

egskb@... <mailto:egskb%40sbcglobal.net>

[Guest guest]

+1 Changed by a Child

" From the Heart " edited by D.B. Marsh--anthology of mother stories

" Uncommon Fathers " edited by J. Meyer--anthology of father stories, and

there's not a lot of this out in the literature

" You Will Dream New Dreams " edited by Stanley D Klein and Kim Schive, yet more

parent stories, and a favorite of mine

A book that is very autism-specific, and too detailed for the board member is

" The World of the Autistic Child " by Bryna Siegel.  For the board member, I'd

suggest borrowing a copy and reading the chapter on family issues.

On sibling issues:

" What About Me? " by Bryna Siegel and Stuart Silverstein

" The Ride Together " by and Judy Karasik

" Riding on the Bus with My Sister " by Simon--I'm not wild about the book,

but the quick references she makes to not knowing who all these professionals

are and what they do, to learning to work with them, those parts are useful

Ellen, I'd also suggest asking over at SibParent.

-Gail 

From: Charlotte Cronin <fsn@...>

Subject: RE: good books on disabilities

IPADDUnite

Date: Wednesday, July 13, 2011, 8:46 AM

 

One of my all time favorite books is " Changed by a Child; Companion Notes

for Parents of a Child with a Disability " . It was written by Barbara Gill,

the mom of a young man with Down syndrome and a Partners in Policymaking

graduate from Minnesota. Each page is complete within itself. So you don't

have to start at the beginning and work to the end. Here's the link on

Amazon.

http://www.amazon.com/Changed-Child-Barbara-Gill/dp/0385482434/ref=sr_1_1?s=

books

<http://www.amazon.com/Changed-Child-Barbara-Gill/dp/0385482434/ref=sr_1_1?s

=books & ie=UTF8 & qid=1310564590 & sr=1-1> & ie=UTF8 & qid=1310564590 & sr=1-1.

And on an off-topic happy note, the skunk that was stinking up our whole

house last night seems to have decided not to live under our back deck and

has moved on. J Sometimes we get to celebrate the little things, right?

Charlotte

From: IPADDUnite [mailto:IPADDUnite ] On

Behalf Of ELLEN BRONFELD

Sent: Tuesday, July 12, 2011 6:53 PM

IPADDUnite

Subject: good books on disabilities

I am on a Board and one of the Board members asked if there are any good

books that she and others could read that would give them greater insight

into raising, living with and supporting a person with an intellectual or

developmental disability.

Any thoughts???

Ellen

Ellen Garber Bronfeld

egskb@... <mailto:egskb%40sbcglobal.net>

[Guest guest]

Thanks, Charlotte and Gail, for the book recommendations.

Ellen

Ellen Garber Bronfeld

egskb@...