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Ellen

Ellen Garber Bronfeld

egskb@...

(NOEWAIT) LISTEN TO NOEWAIT IPOD BROADCAST

Services and Supports for People with Disabilities

Call-in Number: (805) 243-1368

Date / Length: 4/5/2011 7:00 PM Eastern time; 6:00 Central, 5:00 Mountain, 4:00

Pacific

Length: 1 hr

IFCD on 4/5/2011 7:00 PMEDT

#BlogTalkRadio

http://tobtr.com/s/1669157

Description:

Please join Denver Fox, Carol Calix, and Phil May for (hopefully) a lively

discussion on a major national problem regarding our most vulnerable citizens;

namely, those with developmental disabilities. The discussion will focus on

education about and raising the awareness of, and eventually ending the

years-long waitlists for Home and Community Based Medicaid Waiver Services for

individuals with intellectual and developmental disabilities. Hardly any general

practitioners (GPs) are aware that almost all states have extensive waitlists -

some for 20 years or more - totaling in the neighborhood nationally of 370,000

adults and children at home with aging parents. A number of states have closed

all " institutions " and many others are constantly reducing their populations in

institutional settings, under pressures resulting from the Olmstead decision and

Justice Department enforcement of that decision, resulting in less alternative

options, since institutional settings are the only residential mandated service

under the Medicaid Act.. Additionally, it is little known by GP's and others

that individuals with disabilities can not move from one state to another

without going to the bottom of the waitlist in their new state. Some military

families never qualify for services, failing to get through the waitlist before

transferring to another state. Certainly the pressures caused on individuals and

families of caring for individuals with disabilities in a home setting for years

and years should be known about and be a concern of general practitioners. The

effects can be devastating and harmful to all concerned, and GP's should be

aware of the effects on parents and caregivers, and individuals with

disabilities, and should be informed of what advocacy, ameliorative action and

remedies they can provide. We would urge you to view the website of NOEWAIT (The

National Organization to End the Waitlisr) at http://www.noewait.net

Denver Fox

Moderator, NOEWAIT

No Wait - No Boundaries

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