Guest guest Posted April 1, 2011 Report Share Posted April 1, 2011 I, too, have been out of touch all week (busy spraining Quentin's ankle, etc.)and have only now read all these good discussions. Those who know me are now cringing at the thought that I may address them all -- at lennnnnnnggggggth. But instead, a few thoughts: The award for most succinct truth goes to Ellen for the observation that the entire DT program is largely inappropriate, especially for autism. The most obvious truth is that no one who has not worked through the process of reaching someone with autism really understands that the whole thought process, value system, effective rewards ... everything is not reconcilable with our wishes and preconceptions. And even those of us that have, only really understand, to the degree we do, the one (or few) that we've lived with 24/7. The most painful truth is that I don't have a billion dollars or two to set things right in Illinois -- to wit -- Charlotte would be plenipotentary czar of a services delivery system in which every person, regardless of their job, even the highest ranking, must spend a minimum 20% of their time actually working face to face with the clientele in existing programs. All consultants, policy advisors, trainers, implementation measurers, everyone would be subject to this rule. Finally: you snooze, you lose. All of us have failed at some point to stay on top of what was going on in the school, DT, RF, etc. and feel guilty about it. So we get over it and resolve to do better. Everyone here knows (very personally) that we don't know nearly enough about anyone else's experience to measure one's success against another. > > > > Can I just vent a little here? > > Laurie, > > I almost cried when I read your post about . Some of that sounded all too familiar with . Not where he was told to shut up by the dt staff, but I knew they wish he would....cause I wish every day for a little less constant talking. > > Hopefully will qualify for the services from SST. I so wish it would have been around & we'd have known about it last year. Let us know how it goes. > > Liz > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Hi. So I totally agreet hat the parents and family need to be a PARTNER, even in day programs, and work WITH STAFF, as much as we can. HOWEVER, why do we as parents make excuses for the people who care for our children, I'm sorry. We are too permissive with the workers who have made a choice to do this work, and are getting paid to do this work!!!!!!!! I dont care if you are making 5 cents per hour, YOU DO NOT TELL DD PERSONS TO SHUT UP!!!!!!! The organizations " top brass " so to speak, need to be made aware of this situation! We are a community of people. What about the other young adults there who dont have family member who can help them when they are mistreated, or other DAC who have no place else to be. It's not that each parent is responsible to protect that their DAC is being treated correctly, and then the staff just turn their " abuse " on another DAC, who's family cannot or will not speak up. Yes I said it, cause that's what it is " verbal abuse " . This behavior should be void from these programs by the staff. If the staff doesnt like being there, they should go home. I'm not saying dont do anything on our end like communication etc, and do whatever we can to make it the best possible experience for our DAC. We should, but also NOT apologize for paying someone else to care for our DAC for a specific time period and take AN OVERDUE BREAK! Sometimes I wonder if we as the family and our DAC get treated poorly because we are always afraid if we say something we wont get help, or make a host of other excuses we make for otherts doing a bad job with our kids. Diane s > > > > > > Can I just vent a little here? > > > > Laurie, > > > > I almost cried when I read your post about . Some of that sounded all too familiar with . Not where he was told to shut up by the dt staff, but I knew they wish he would....cause I wish every day for a little less constant talking. > > > > Hopefully will qualify for the services from SST. I so wish it would have been around & we'd have known about it last year. Let us know how it goes. > > > > Liz > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Diane, I most certainly agree with your last statement " Sometimes I wonder if we as the family and our DAC get treated poorly because we are always afraid if we say something we wont get help, or make a host of other excuses we make for otherts doing a bad job with our kids. " Unlike the school system which HAS to take our children and provide the necessary services, the day programs can pick and choose. I can't tell you the frustration I've gone though looking for services. I believe some of us are afraid that our child will be 'kicked' out. Like Laurie, I went through similar situations with my daughter. I really believed that at her 30 day staffing, she was going to be kicked out, but I was presently surprised to see the coordinator was willing to work with her. When I drop my daughter off and pick her up, I generally stay a bit to review with the staff how she did that day. I can tell that with 3-4 staff for 20 or so participants, that the staff works very hard. I've seen all the different behaviors they are doing with - one person is doing this while another is doing that. I blame the state for that. By setting such a small reimbursement rate for the programs, the organizations that provide the services are stuck with no enough staff to deal with all of the complex behavior issues. I, too, don't like the idea of someone telling my child to shut up. Even though, out of frustration, I've done it myself. Maybe one way help can be increased is for colleges and universities to require students in certain fields to have so many hours working in these centers before they graduate (like student teachers). Of course as long as our governor feels that the only people who serve our children who deserve wage increases and job security are those employed at a state institution, we are doomed. > > > > > > > > Can I just vent a little here? > > > > > > Laurie, > > > > > > I almost cried when I read your post about . Some of that sounded all too familiar with . Not where he was told to shut up by the dt staff, but I knew they wish he would....cause I wish every day for a little less constant talking. > > > > > > Hopefully will qualify for the services from SST. I so wish it would have been around & we'd have known about it last year. Let us know how it goes. > > > > > > Liz > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2011 Report Share Posted April 2, 2011 Cute! Sent via BlackBerry by AT & T Re: Day Programs et al Diane, I most certainly agree with your last statement " Sometimes I wonder if we as the family and our DAC get treated poorly because we are always afraid if we say something we wont get help, or make a host of other excuses we make for otherts doing a bad job with our kids. " Unlike the school system which HAS to take our children and provide the necessary services, the day programs can pick and choose. I can't tell you the frustration I've gone though looking for services. I believe some of us are afraid that our child will be 'kicked' out. Like Laurie, I went through similar situations with my daughter. I really believed that at her 30 day staffing, she was going to be kicked out, but I was presently surprised to see the coordinator was willing to work with her. When I drop my daughter off and pick her up, I generally stay a bit to review with the staff how she did that day. I can tell that with 3-4 staff for 20 or so participants, that the staff works very hard. I've seen all the different behaviors they are doing with - one person is doing this while another is doing that. I blame the state for that. By setting such a small reimbursement rate for the programs, the organizations that provide the services are stuck with no enough staff to deal with all of the complex behavior issues. I, too, don't like the idea of someone telling my child to shut up. Even though, out of frustration, I've done it myself. Maybe one way help can be increased is for colleges and universities to require students in certain fields to have so many hours working in these centers before they graduate (like student teachers). Of course as long as our governor feels that the only people who serve our children who deserve wage increases and job security are those employed at a state institution, we are doomed. > > > > > > > > Can I just vent a little here? > > > > > > Laurie, > > > > > > I almost cried when I read your post about . Some of that sounded all too familiar with . Not where he was told to shut up by the dt staff, but I knew they wish he would....cause I wish every day for a little less constant talking. > > > > > > Hopefully will qualify for the services from SST. I so wish it would have been around & we'd have known about it last year. Let us know how it goes. > > > > > > Liz > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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