Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Sorry to attach this to an unrelated topic but that seems to be the only way I can post to this list. BUT, I just had to share with you that all of a sudden Jan (15) has started talking in complete, initiated sentences. Not all the time but at least every day! Last night I was on the computer and she came downstairs and came over to me and said, " Look at me! Where is my new CD? " I suppose we have always insisted on eye contact that she thinks that is the only way to get someone's attention! And this morning as I was leaving I said, " Goodby, Jan. I'm going to work. " and she said, " I know -- you have to go in to the office. " This has come about in the past three weeks and we doin't know if something just finally clicked, broke loose or we somehow found the right key or what. But every time it happens I want to shout for joy and cry at the same time. Behavior and communication have always been her main problems and now that the behaviors have improved and the communication is improving I have great hope. And just in time for school to start. God knows I wish the same for all of you. Tamara --- Penny <nospam@...> wrote: <HR> <html> <head> <title></title> <meta name= " GENERATOR " content= " HTML Edit Control version: V2.106.0 " > </head> <body bgcolor= " #ffffff " text= " #000000 " > <p> Deanna - <p> If by & quot;the list & quot; you mean everything we research that we think will help our kids..then yep, I do...But what choice do we have, right? <p> Is that what you meant? <p> <pre>Penny<br>--------------------------------------------------------<br> & quot;\ Just remember this: Plenty of Horsepower, No Traction & quot; - R. S. on</pre> <pre> & quot;If a man does not keep pace with his companions, perhaps it is because he hears a different drummer.<br>Let him step to the music he hears, however measured or far away. & quot;<br>--Henry Thoreau</pre> <br> <tt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Tamara What great newws!!!! I am so happy for you!!! Good for you Jan!!! Tracey Tamara Easley wrote: > Sorry to attach this to an unrelated topic but that > seems to be the only way I can post to this list. > BUT, I just had to share with you that all of a sudden > Jan (15) has started talking in complete, initiated > sentences. Not all the time but at least every day! > Last night I was on the computer and she came > downstairs and came over to me and said, " Look at me! > Where is my new CD? " I suppose we have always > insisted on eye contact that she thinks that is the > only way to get someone's attention! And this morning > as I was leaving I said, " Goodby, Jan. I'm going to > work. " and she said, " I know -- you have to go in to > the office. " This has come about in the past three > weeks and we doin't know if something just finally > clicked, broke loose or we somehow found the right key > or what. But every time it happens I want to shout > for joy and cry at the same time. Behavior and > communication have always been her main problems and > now that the behaviors have improved and the > communication is improving I have great hope. And > just in time for school to start. God knows I wish > the same for all of you. > Tamara > --- Penny <nospam@...> wrote: > > <HR> > <html> > > <head> > <title></title> > <meta name= " GENERATOR " content= " HTML Edit Control > version: V2.106.0 " > > </head> > > <body bgcolor= " #ffffff " text= " #000000 " > > > <p> Deanna - > > <p> If by & quot;the list & quot; you mean everything we > research that we think will > help our kids..then yep, I do...But what choice do > we have, right? > > <p> Is that what you meant? > > <p> > > > pre>Penny<br>--------------------------------------------------------<br> & quot;J\ ust > > remember this: Plenty of Horsepower, No Traction & quot; > - R. S. on</pre> > > > <pre> & quot;If a man does not keep pace with his > companions, perhaps it is because he hears a different > drummer.<br>Let him step to the music he hears, > however measured or far away. & quot;<br>--Henry > Thoreau</pre> > > > > <br> > <tt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Tamara ! That's so wonderful for you !! Yeah Jan!!! I'm thrilled for you!! Penny-------------------------------------------------------- " Just remember this: Plenty of Horsepower, No Traction " - R. S. on " If a man does not keep pace with his companions, perhaps it is because he hears a different drummer.Let him step to the music he hears, however measured or far away. " --Henry Thoreau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 I've read that there is a big jump in brain maturation during the teen years. Maybe that is why Jan has started talking more. That's great! I'm excited for you! Dawn >From: Tamara Easley <tkeasley@...> >Reply-Autism_in_Girls >Autism_in_Girls >Subject: Re: Sharing good news >Date: Tue, 7 Aug 2001 18:15:36 -0700 (PDT) > >Sorry to attach this to an unrelated topic but that >seems to be the only way I can post to this list. >BUT, I just had to share with you that all of a sudden >Jan (15) has started talking in complete, initiated >sentences. Not all the time but at least every day! >Last night I was on the computer and she came >downstairs and came over to me and said, " Look at me! >Where is my new CD? " I suppose we have always >insisted on eye contact that she thinks that is the >only way to get someone's attention! And this morning >as I was leaving I said, " Goodby, Jan. I'm going to >work. " and she said, " I know -- you have to go in to >the office. " This has come about in the past three >weeks and we doin't know if something just finally >clicked, broke loose or we somehow found the right key >or what. But every time it happens I want to shout >for joy and cry at the same time. Behavior and >communication have always been her main problems and >now that the behaviors have improved and the >communication is improving I have great hope. And >just in time for school to start. God knows I wish >the same for all of you. >Tamara >--- Penny <nospam@...> wrote: > ><HR> ><html> > ><head> > <title></title> > <meta name= " GENERATOR " content= " HTML Edit Control >version: V2.106.0 " > ></head> > ><body bgcolor= " #ffffff " text= " #000000 " > > ><p> Deanna - > ><p> If by & quot;the list & quot; you mean everything we >research that we think will > help our kids..then yep, I do...But what choice do >we have, right? > ><p> Is that what you meant? > ><p> > ><pre>Penny<br>--------------------------------------------------------<br> & quot\ ;Just >remember this: Plenty of Horsepower, No Traction & quot; >- R. S. on</pre> > > ><pre> & quot;If a man does not keep pace with his >companions, perhaps it is because he hears a different >drummer.<br>Let him step to the music he hears, >however measured or far away. & quot;<br>--Henry >Thoreau</pre> > > > ><br> ><tt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Tamara, What wonderful news, I'm teared up thinking about what this must be like for you. My is 8, and I know that things will always change, whether it be for the good or bad. It's great to hear of changes in an older child. Enjoy every minute michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Tamara, What wonderful news, I'm teared up thinking about what this must be like for you. My is 8, and I know that things will always change, whether it be for the good or bad. It's great to hear of changes in an older child. Enjoy every minute michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Gee, dawn, i hope this is so on brain maturation, I would love that to happen, but i've got a few years to get through yet!!!!, cheryl Re: Sharing good news >Date: Tue, 7 Aug 2001 18:15:36 -0700 (PDT) > >Sorry to attach this to an unrelated topic but that >seems to be the only way I can post to this list. >BUT, I just had to share with you that all of a sudden >Jan (15) has started talking in complete, initiated >sentences. Not all the time but at least every day! >Last night I was on the computer and she came >downstairs and came over to me and said, " Look at me! >Where is my new CD? " I suppose we have always >insisted on eye contact that she thinks that is the >only way to get someone's attention! And this morning >as I was leaving I said, " Goodby, Jan. I'm going to >work. " and she said, " I know -- you have to go in to >the office. " This has come about in the past three >weeks and we doin't know if something just finally >clicked, broke loose or we somehow found the right key >or what. But every time it happens I want to shout >for joy and cry at the same time. Behavior and >communication have always been her main problems and >now that the behaviors have improved and the >communication is improving I have great hope. And >just in time for school to start. God knows I wish >the same for all of you. >Tamara >--- Penny <nospam@...> wrote: > ><HR> ><html> > ><head> > <title></title> > <meta name= " GENERATOR " content= " HTML Edit Control >version: V2.106.0 " > ></head> > ><body bgcolor= " #ffffff " text= " #000000 " > > ><p> Deanna - > ><p> If by & quot;the list & quot; you mean everything we >research that we think will > help our kids..then yep, I do...But what choice do >we have, right? > ><p> Is that what you meant? > ><p> > ><pre>Penny<br>--------------------------------------------------------<br> & quot;Just >remember this: Plenty of Horsepower, No Traction & quot; >- R. S. on</pre> > > ><pre> & quot;If a man does not keep pace with his >companions, perhaps it is because he hears a different >drummer.<br>Let him step to the music he hears, >however measured or far away. & quot;<br>--Henry >Thoreau</pre> > > > ><br> ><tt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Gee, dawn, i hope this is so on brain maturation, I would love that to happen, but i've got a few years to get through yet!!!!, cheryl Re: Sharing good news >Date: Tue, 7 Aug 2001 18:15:36 -0700 (PDT) > >Sorry to attach this to an unrelated topic but that >seems to be the only way I can post to this list. >BUT, I just had to share with you that all of a sudden >Jan (15) has started talking in complete, initiated >sentences. Not all the time but at least every day! >Last night I was on the computer and she came >downstairs and came over to me and said, " Look at me! >Where is my new CD? " I suppose we have always >insisted on eye contact that she thinks that is the >only way to get someone's attention! And this morning >as I was leaving I said, " Goodby, Jan. I'm going to >work. " and she said, " I know -- you have to go in to >the office. " This has come about in the past three >weeks and we doin't know if something just finally >clicked, broke loose or we somehow found the right key >or what. But every time it happens I want to shout >for joy and cry at the same time. Behavior and >communication have always been her main problems and >now that the behaviors have improved and the >communication is improving I have great hope. And >just in time for school to start. God knows I wish >the same for all of you. >Tamara >--- Penny <nospam@...> wrote: > ><HR> ><html> > ><head> > <title></title> > <meta name= " GENERATOR " content= " HTML Edit Control >version: V2.106.0 " > ></head> > ><body bgcolor= " #ffffff " text= " #000000 " > > ><p> Deanna - > ><p> If by & quot;the list & quot; you mean everything we >research that we think will > help our kids..then yep, I do...But what choice do >we have, right? > ><p> Is that what you meant? > ><p> > ><pre>Penny<br>--------------------------------------------------------<br> & quot;Just >remember this: Plenty of Horsepower, No Traction & quot; >- R. S. on</pre> > > ><pre> & quot;If a man does not keep pace with his >companions, perhaps it is because he hears a different >drummer.<br>Let him step to the music he hears, >however measured or far away. & quot;<br>--Henry >Thoreau</pre> > > > ><br> ><tt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Wonderful News... I am so very happy for Jan and your family. Has there been any changes... it might be even a very minor change? Take Care and God Bless, Beverly Weakley Mom of Jen and Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Wonderful News... I am so very happy for Jan and your family. Has there been any changes... it might be even a very minor change? Take Care and God Bless, Beverly Weakley Mom of Jen and Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Thanks for sharing the news!! How exciting for you!!! My daughter is 7 and I hope & dream for full sentences someday! I read something on the Feat News list about brain plasticity. It mentioned that from the ages of 0-3 is when the brain develops the most and also mentioned new research that shows there is another period of high brain development during puberty. I wonder if this has anything to do with it? Has anyone else had any breakthroughs during puberty? I don't know how accurate this study is, but I am just curious. Thanks, Dayna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2001 Report Share Posted August 11, 2001 Dear Tamara, God bless your daughter and you,of course. Everytime our takes one step forward, she regresses two steps backward in other areas. All we keep doing is taking each day as it comes. I just want to get her safely through puberty right now! Re: Sharing good news > Sorry to attach this to an unrelated topic but that > seems to be the only way I can post to this list. > BUT, I just had to share with you that all of a sudden > Jan (15) has started talking in complete, initiated > sentences. Not all the time but at least every day! > Last night I was on the computer and she came > downstairs and came over to me and said, " Look at me! > Where is my new CD? " I suppose we have always > insisted on eye contact that she thinks that is the > only way to get someone's attention! And this morning > as I was leaving I said, " Goodby, Jan. I'm going to > work. " and she said, " I know -- you have to go in to > the office. " This has come about in the past three > weeks and we doin't know if something just finally > clicked, broke loose or we somehow found the right key > or what. But every time it happens I want to shout > for joy and cry at the same time. Behavior and > communication have always been her main problems and > now that the behaviors have improved and the > communication is improving I have great hope. And > just in time for school to start. God knows I wish > the same for all of you. > Tamara > --- Penny <nospam@...> wrote: > > <HR> > <html> > > <head> > <title></title> > <meta name= " GENERATOR " content= " HTML Edit Control > version: V2.106.0 " > > </head> > > <body bgcolor= " #ffffff " text= " #000000 " > > > <p> Deanna - > > <p> If by & quot;the list & quot; you mean everything we > research that we think will > help our kids..then yep, I do...But what choice do > we have, right? > > <p> Is that what you meant? > > <p> > > <pre>Penny<br>--------------------------------------------------------<br> & q uot;Just > remember this: Plenty of Horsepower, No Traction & quot; > - R. S. on</pre> > > > <pre> & quot;If a man does not keep pace with his > companions, perhaps it is because he hears a different > drummer.<br>Let him step to the music he hears, > however measured or far away. & quot;<br>--Henry > Thoreau</pre> > > > > <br> > <tt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2003 Report Share Posted June 25, 2003 Hi everybody! I just wanted to share my joy at the fact that we've had about three weeks of PERFECT health here in my house. I spiked 's soy milk with breast milk during her GI infection, and she and Kate got over theirs several days faster than I did!! I swear next time I'm putting some in my coffee! I have since read there is something in breast milk that protects against GI bugs, maybe it's IgA, I don't know. I just knew I had extra milk stored and it certainly couldn't hurt to give some to (without her knowledge of course! MOMMMM!!!!). Anyway, since then we've had two ballet classes, a trip to Six Flags Great America (a blast!!!!), a local fair and a time at the mall playground and 's still healthy! She looks like a raccoon, but no other symptoms of sinus at all. I think the dark circles might be due to the fact that she has totally given up her naps for good. She still takes one every once in a while but then she stays up until like 11pm or something crazy -- just doesn't need all that sleep. I'm going through all our mold remediation insurance stuff to finalize the rest of the claim -- the statute of limitations runs out next week. Burst into tears upon seeing the picture of 's ER bag that we had to throw out -- a duffel bag with toys, snacks, stuff to do and change of clothes for those surprise trips to the ER. Mixed emotions -- miss the bag because it's part of our history, sad because it really was a necessary part of our lives, then realized with utter JOY that we don't have to make those hasty dashes to the ER anymore!!! We haven't been to the ER since the Fall of 2001!!!!!!!!!!!!!!!! HAPPY DANCE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I hadn't really realized that before. I am soooo grateful. I'm also starting to feel very happy about finally pursuing her GERD issues. Guilt is gone, just glad to be on the road to fixing/figuring it out. She has bloodwork coming up for it (CBC and Chem 12) and then an upper GI (have already decided to take chocolate syrup to flavor the barium in case they don't already) and an endoscopy in July. really wants the " urps " to be done with!! I hope I can fulfill that request. Oh, do we love summer (even more) now that we have a house. Can stay at home and play in the yard and kiddie pool instead of being exposed to everybody everywhere. We still have playdates with healthy friends and go places here and there, but nice not to be stranded in a condo on the second floor with no yard anymore!!!!!!! 's actually taking swimming lessons starting next week. There once was a time we didn't dare take her to a public pool! Okay, another happy dance. Rambling now... lack of sleep will do that!!!!!! (mom to Kate, born 9/19/02, dairy intolerant; and , age 4, dairy intolerant -- currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 , Thanks for the encouraging post! I'm always glad to hear when someone has good health! I am happy to report that the health level in our house has been high since we raised the IVIG dose to 12.5 grams and since Rebekah's eye infection went away. She still have 30+ stitches holding her eyeball together, but they aren't infected any more!! And her vision is returning. God was gracious and merciful and performed a miracle, without a doubt. There will be very little visible damage to her eyelid or eye itself Please keep up posted on the GERD issues. We have just started pursuing it for our non-PID Hannah. We had the appointment today with the ped GI. He put her back on prilosec, but wants to put her on prozac because he thinks her problem is anxiety over Rebekah. This kind of comment didn't make us very happy. It might be true, but it didn't make us happy. Thank you to whoever mentioned the PAGER association for ped GERD. They have been very helpful and supportive. Enjoy those ballet lessons and I hope that the ER bag remains a distant and bittersweet memory. Pam wife to (16 years) mother to , 9, Hannah, 7, Rebekah, 3, and Leah, 2 Rebekah has CVID and maybe some other stuff Re: Sharing Good News Hi everybody! I just wanted to share my joy at the fact that we've had about three weeks of PERFECT health here in my house. I'm also starting to feel very happy about finally pursuing her GERD issues. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 Wanted to share some fun news. My 23 year old DD Daughter and I were interviewed by Meyers of Channel 7, the ABC channel in Chicago regarding the Center For Enriched Living where Kate is a member. For those who don't know about the Center, it is a privately funded non-profit agency serving the social needs of people all ages with developmental disabilities – such as Down syndrome, autism, Fragile X syndrome. The Center is the place that brings friends and peers together – to benefit from life-long learning and enrichment, to enjoy social activities, and to be an active part of the community. The Center has been serving the Chicago-area for more than 42 years. The Center offers more than 30 different social and recreation programs to meet the interests and needs of people ages 5 to 75, with developmental disabilities. Programs operate 7-days a week – including evenings and weekends. For younger members, The Center offers afterschool clubs, weekend social programming and summer camps. For adults in their post-school life, The Center offers REACH – a day program that provides opportunities for social experiences, work and volunteer experiences, leisure activities, community life, and much more. Here is there web site http://www.centerforenrichedliving.org/ We just heard when the Meyers story is going to be aired. It will be this Sunday, the 20th, at 8:20am. I can't wait to see it! Quote Link to comment Share on other sites More sharing options...
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