Guest guest Posted August 21, 2007 Report Share Posted August 21, 2007 Dear Group, Thank you from the bottom of my heart for replies and interest. Once again I have fallen and you are all there helping me get back up. I must say that I am having a very hard time getting my head out of my butt and dealing with all of this. I screamed at myself and at God today. He didn't scream baack so I guess he unserstands that for now I am just spinning in circles looking for the sofest place to fall. My kness and elbow are so scarred and bloddy from all my falling. Shjaron swallowing is hard in Ohio let45ride <brendacoyle@...> wrote: Sharon,Isn't it great to be able to vent here?! When you vent to thisgroup, they pretty much know how you feel, too. I've been readingyour posts (I responded to one the other day, but somehow it didn'tshow up) and I'm really sorry this is all happening to you! I've often felt frustrated, but in the way your husband does. Myhusband being sick has made me (and him) wonder why him?! How did theone I love get chosen to have a rare disease that not many people evenunderstand?!! It's so hard to see him having a hard time, in painwith spasms, spitting up, losing weight, etc. I can also relate tothe financial part, as well. We are not of retirement age and myhusband has lost his job due to missing time being sick. We now payCOBRA and with the cost of prescriptions, doctor visit co-pays, not tomention co-pays for procedures (we just finished making payments forhis MRI last December), it really puts a strain on the budget andpressure on me as the sole bread-winner. I'm sorry the scope didn't give you relief this time, but I'mhoping for healing of your ulcer and that you'll feel relief fromthat! I'm sure the gloomy day (we had it in Michigan, too) doesn'thelp you to feel optimistic, either. I know you'll be in good handswith Dr. Rice and/or others recommended by this group. I hope theycan get a solution figured out for you and SOON! Sending you healing wishes, in Michigan>> Hey there group, > It is Sunday, so far a very cool rainy ugly Sunday with no hintof sun or warmth which to seems to match my mood. I have been tryingto digest all that has happened since my visit with Dr, Rice and myscope on Wed. I don't seem to be able to get a grip on any of it. Isabelle my heart aches so for you and I have no idea what to say. Ido believe I am one of the older ones in this group being approaching62 in November. Lately I seem to have a mind of a brainless creaturewalking around bumping into walls with no clue where to go or how toget there except to say that I am so very very tired of all this. Itired of the pain, the acid, the headaches, being hungry, hurting,burping, not fitting in with my own family. I swear if one more wellmeaning person tells me I need to improve my mental attitude and lookat t hings more positive I will murder them. > > Generally after a scope I have a bad few hours a wonderful sleepand can then eat a few things. I must admit that I really lookforward to this part as food has always been my best friend. Well, ithas become a living nightmare. Since the scope I have not been ableto drink or eat anything except are you ready French VanillaCappuccino out of a can not even the real stuff oh and hot lemonwater. I am losing weight daily although no one seems to really worryas I am on the plump side to begin with but have gone from 248lbs downto 160 which at 5"2' still makes me medically fat. If my daughtertells me to eat healthy one more time I am going to stuff her longlanky full figured perfect weight body into something vile and ugly.> > Generally I can get down soup, just plain old cream of potato orcream of Tomato. Since Wed it seems to to just lay have way down andcurddle. Yogurt is out as well as my lemon ice. I can't taste muchof anything right now. I have tried toast, sherbet, eggs, noodles,rice, tea, soda, juice. If I get it down it seems to come right backup and leave me burping, farting and panting for more. I am sodisgusted and so miserable. I am cold all the time > > I feel this time the scope didn't even provided me with a fewhours of relief let alone a few days and that I am getting a doublewhammy. They tell me to hang in there until we get the results of thebiopsies. Oh ode to Joy. Well, my sense of humor is on overload andI am really mad at my body and the bile and the night and the doctorsand the crap. I hate t his disease no one ask if I wanted it or notthey just gave it to me where is mu free choice. I am done> > Sharon who is not happy swallowing in Ohio or anywhere else.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2007 Report Share Posted August 21, 2007 Sharon, don't give up and we are here for you. Consider us your new family! And hey not everyone can claim to be an Achalaisian! Glass half full (or full of water) Love in VA Park yourself in front of a world of choices in alternative vehicles.Visit the Auto Green Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2011 Report Share Posted March 20, 2011 I just want to thank everyone for all the info they have provided to me for the past year. On Monday I have my first meeting with Trinity for Home Based Services. After 21 years of doing everything on my own I am finally looking for help. It's been a long time coming. Wish me luck! Liz Quote Link to comment Share on other sites More sharing options...
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