Re: Re: Clarification on SST and CART

[Guest guest]

Liz,

It's funny the things these 'kids' of ours can do when necessary. Although in

's case, it appears he's just taking on the responsibility himself, not out

of necessity. In our house, I'm noticing is also learning how to put that

darn bottom sheet on the bed, picks a lot of things up herself, when dressing

and showering she's attempting more steps independently, etc...all because I've

droned over and over again because 'mom's back hurts and can't bend over' (Lord

help me, I'm turning into one of those old people who talks about her health all

the time!).

Point is, HOORAY for ! And ! And all the other adults whose moms and

dads have tirelessly cared for them for decades beyond the norm. There's this

phrase right now in education that's popular -- lifelong learning -- and I guess

it's true. Our experience teaches us that both adults with disabilities AND the

parents who care for them are always learning. For our kids, they're learning

new skills and the confidence that they can do things themselves. For us, it's

that sometimes we over-help or just get stuck in routines of helping, when in

fact we could STEP AWAY and watch the competence unfold before our eyes.

As always, thanks for sharing.

Laurie

P.S. Wasn't there an old book or movie called something like 'Tales from the

Front'? That could be IPADD's new tagline.

From: Liz

Sent: Monday, March 28, 2011 10:53 PM

IPADDUnite

Subject: Re: Clarification on SST and CART

Thanks for the clarification Ellen, as it was sounding to me, like it was a

redundancy of agencies,which is really what IL doesn't need right now.

I didn't even know about CART until it was too late for my son to benefit.

Sounds like SST would have been just what he needed 10 months ago. Wow; can't

believe it's been that long since he's been home. I'm keeping the info in case

we ever need it.

I'm gonna combine two postings together, as it's been a long 14+ hr work day for

me.

Yesterday before I went to work, I asked to put his sheets in the dryer.

Not only did he do that, but he also put the bottom sheet on his bed fairly

decent...

I was going to give his Risperidone after coming home last evening from

work & didn't see it in his pill container. Asked his dad if he had given it to

him & he said " No " . came in & said he took it..ALL BY HIMSELF!!! We're

FINALLY getting more instances of him doing things he could/should be doing!!!

When stuff like that happens, it makes me so glad we pulled him out of the ICF.

Liz

[Guest guest]

Hi Liz, that's great about making the progress!!

is just going to be 19 in April (can't believe I'm saying 19!!) and gains

new skills and independence every single day. I try to always expect the most

from him and he never ceases to amaze me!

Sorry about a 14 hour day, YIKES!!

H.

Re: Clarification on SST and CART

hanks for the clarification Ellen, as it was sounding to me, like it was a

edundancy of agencies,which is really what IL doesn't need right now.

I didn't even know about CART until it was too late for my son to benefit.

ounds like SST would have been just what he needed 10 months ago. Wow; can't

elieve it's been that long since he's been home. I'm keeping the info in case

e ever need it.

I'm gonna combine two postings together, as it's been a long 14+ hr work day for

e.

Yesterday before I went to work, I asked to put his sheets in the dryer.

ot only did he do that, but he also put the bottom sheet on his bed fairly

ecent...

I was going to give his Risperidone after coming home last evening from

ork & didn't see it in his pill container. Asked his dad if he had given it to

im & he said " No " . came in & said he took it..ALL BY HIMSELF!!! We're

INALLY getting more instances of him doing things he could/should be doing!!!

When stuff like that happens, it makes me so glad we pulled him out of the ICF.

Liz

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